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  • Post
    • September 10, 2011 at 11:34 am
    renakimu
    Participant

      hello everyone!!

      once again i have to say that saring with you things is very important for me!now i dont have smth to sare but i have smthg to ask.i have told you that my mum is 3b stage from april from a mole in her back, iwanted to have your personal expeerience with reoccurance, most of all the time that the beast came back…i know that every person is completely different from an other but just wanted to see….i am very thakefull to all of you..

       

      best wished and many years of "NED" to all from my heart

      DiRena

      hello everyone!!

      once again i have to say that saring with you things is very important for me!now i dont have smth to sare but i have smthg to ask.i have told you that my mum is 3b stage from april from a mole in her back, iwanted to have your personal expeerience with reoccurance, most of all the time that the beast came back…i know that every person is completely different from an other but just wanted to see….i am very thakefull to all of you..

       

      best wished and many years of "NED" to all from my heart

      DiRena

    Viewing 5 reply threads
    • Replies
        • September 10, 2011 at 2:13 pm
        DebbieH
        Participant

          Hi DiRena,

          I'm not exactly clear what you're looking for but I'll share my experience.

          I was stage 1A with a great prognosis and all that "lucky you caught it early" stuff in 1995.  Six years later it came back to my lymhnodes and had also grown into a muscle in my back, making me stage IIIC with a terrible prognosis.  My original melanoma, and the only mole I ever had, was on my upper back.

          So, I had pretty extensive surgery, 10 years ago tomorrow – some day THAT was!  They were wheeling me to surgery as I watched the second World Trade tower fall in the patient waiting room.  They weren't sure they would even do the surgery as they were talking about possibly evacuating the hospital, Univ. of Mich. in Ann Arbor.  Anyway, I did interferon and got through 9 months of it until I just had to quit and I've been fine since then.  I changed little in my life, no diet change or lifestyle exchange.  After several years my doctor told me whatever I'm doing to not change a thing and I haven't. 

          Good luck to your mom and you.  You're a good daughter to want to help.  Let us know what she's doing and how you're doing. 

          DebbieH

            • September 10, 2011 at 7:06 pm
            renakimu
            Participant

              thanke so much Debbie for your respone!you are giving me courage!

              blessings to you

              • September 10, 2011 at 7:06 pm
              renakimu
              Participant

                thanke so much Debbie for your respone!you are giving me courage!

                blessings to you

                • September 12, 2011 at 11:17 pm
                bblapril
                Participant

                  Hi Debbie,

                   

                  I am new to this site.  I have viewed it as a guest but just joined today.  I finally need it I guess.

                  My husband was diagnosed with skin cancer in May 2011.  Originally the Doctor said it was Squamous Cell but after his radical neck disection in June it was confirmed that it was stage IIIC Melanoma.  I am so happy to read your story.  So many sites and statistics make it sound like it is "game over" at this point and that is not the encouragement we look for.  He is now doing the six month treatment of Alpha Interferon 2B and he is actually doing quit well (thank goodness). 

                  Thank you for confirming that people do respond to treatments are can move on and live their life.

                  April

                  • September 12, 2011 at 11:17 pm
                  bblapril
                  Participant

                    Hi Debbie,

                     

                    I am new to this site.  I have viewed it as a guest but just joined today.  I finally need it I guess.

                    My husband was diagnosed with skin cancer in May 2011.  Originally the Doctor said it was Squamous Cell but after his radical neck disection in June it was confirmed that it was stage IIIC Melanoma.  I am so happy to read your story.  So many sites and statistics make it sound like it is "game over" at this point and that is not the encouragement we look for.  He is now doing the six month treatment of Alpha Interferon 2B and he is actually doing quit well (thank goodness). 

                    Thank you for confirming that people do respond to treatments are can move on and live their life.

                    April

                  • September 10, 2011 at 2:13 pm
                  DebbieH
                  Participant

                    Hi DiRena,

                    I'm not exactly clear what you're looking for but I'll share my experience.

                    I was stage 1A with a great prognosis and all that "lucky you caught it early" stuff in 1995.  Six years later it came back to my lymhnodes and had also grown into a muscle in my back, making me stage IIIC with a terrible prognosis.  My original melanoma, and the only mole I ever had, was on my upper back.

                    So, I had pretty extensive surgery, 10 years ago tomorrow – some day THAT was!  They were wheeling me to surgery as I watched the second World Trade tower fall in the patient waiting room.  They weren't sure they would even do the surgery as they were talking about possibly evacuating the hospital, Univ. of Mich. in Ann Arbor.  Anyway, I did interferon and got through 9 months of it until I just had to quit and I've been fine since then.  I changed little in my life, no diet change or lifestyle exchange.  After several years my doctor told me whatever I'm doing to not change a thing and I haven't. 

                    Good luck to your mom and you.  You're a good daughter to want to help.  Let us know what she's doing and how you're doing. 

                    DebbieH

                    • September 10, 2011 at 4:42 pm
                    washoegal
                    Participant

                      I am stage 3a and have been NED for 16 months, no reason ehy I shouldn't remain NED.  At least that's my opinion.

                       

                      Mary,

                      Stage 3

                        • September 10, 2011 at 7:08 pm
                        renakimu
                        Participant

                          thanke you so much Mary!!!

                          Keep NED for ever!!

                          • September 10, 2011 at 7:08 pm
                          renakimu
                          Participant

                            thanke you so much Mary!!!

                            Keep NED for ever!!

                          • September 10, 2011 at 4:42 pm
                          washoegal
                          Participant

                            I am stage 3a and have been NED for 16 months, no reason ehy I shouldn't remain NED.  At least that's my opinion.

                             

                            Mary,

                            Stage 3

                            • September 11, 2011 at 3:19 am
                            BethA
                            Participant

                              Many many years ago, I had a mole that turned out to be MM.  I went 10 1/2 years NED.  When I had the recurrence I was Stage 3/B.  That was almost 7 years ago, and NED is still with me.   I feel very blessed. 

                              I stay on these boards b/c at times of struggle, it is nice to have people around who totally understand and are supportive.  So many have been kind to me and given me valuable information.  They have calmed my fears and made me stronger.  I hope I can do that for someone else.        Beth 3/B 

                              • September 11, 2011 at 3:19 am
                              BethA
                              Participant

                                Many many years ago, I had a mole that turned out to be MM.  I went 10 1/2 years NED.  When I had the recurrence I was Stage 3/B.  That was almost 7 years ago, and NED is still with me.   I feel very blessed. 

                                I stay on these boards b/c at times of struggle, it is nice to have people around who totally understand and are supportive.  So many have been kind to me and given me valuable information.  They have calmed my fears and made me stronger.  I hope I can do that for someone else.        Beth 3/B 

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