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Had WLE on Satellite Spots
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Had WLE on Satellite Spots

› Forums › General Melanoma Community › Had WLE on Satellite Spots

  • Post
    • November 1, 2016 at 11:10 pm
    dmturner
    Participant

      Home from hospital had 2 satellite spots positive for melanamo today.  Back of my heel, original source bottome of heel.  I also, had skin graft taking in right groin area same place as SLNB, doc also took one swollen lymph node from same spot.  I am just wondering if the node was only swollen cause my original was healing via secondary healing.  (No skin graft just open would).

      I have to keep the bandage on till Monday.  I guess that is when I will get results from lymph node.

      Had to postpone last Yervoy treatment.  Did it even work???

      Anyone else had satellite tumors close to orginal?

       

      -Donna

      diagnosed in June, 3a

    Viewing 5 reply threads
    • Replies
        • November 2, 2016 at 3:34 pm
        laulamb
        Participant

          Donna,

          I don't have much information to offer but I am also 3a and I had ipi at 3mg … my doctor did say that the ipi treatments could cause lymph nodes to swell so perhaps that is what caused the swollen lymph node.  It sounds like with the satellite spots showing up, you are going to have to watch your skin closely.  If it is melanoma then it could open you up for more treatment options.  Good luck and I will keep you in my thoughts.
           

          Laura

          • November 2, 2016 at 3:34 pm
          laulamb
          Participant

            Donna,

            I don't have much information to offer but I am also 3a and I had ipi at 3mg … my doctor did say that the ipi treatments could cause lymph nodes to swell so perhaps that is what caused the swollen lymph node.  It sounds like with the satellite spots showing up, you are going to have to watch your skin closely.  If it is melanoma then it could open you up for more treatment options.  Good luck and I will keep you in my thoughts.
             

            Laura

              • November 2, 2016 at 3:42 pm
              dmturner
              Participant

                Laura,

                Yes, it was biopsied and is melanoma.  I just hope they got it all this time.

                I kinda knew by reading that the lymph nodes could swell.  I guess the surgical oncologist wanted to go ahead and take it.

                The primary was bottom of my heel these two new ones right on the back of my heel.

                -Donna

                • November 2, 2016 at 3:42 pm
                dmturner
                Participant

                  Laura,

                  Yes, it was biopsied and is melanoma.  I just hope they got it all this time.

                  I kinda knew by reading that the lymph nodes could swell.  I guess the surgical oncologist wanted to go ahead and take it.

                  The primary was bottom of my heel these two new ones right on the back of my heel.

                  -Donna

                  • November 2, 2016 at 3:42 pm
                  dmturner
                  Participant

                    Laura,

                    Yes, it was biopsied and is melanoma.  I just hope they got it all this time.

                    I kinda knew by reading that the lymph nodes could swell.  I guess the surgical oncologist wanted to go ahead and take it.

                    The primary was bottom of my heel these two new ones right on the back of my heel.

                    -Donna

                  • November 2, 2016 at 3:34 pm
                  laulamb
                  Participant

                    Donna,

                    I don't have much information to offer but I am also 3a and I had ipi at 3mg … my doctor did say that the ipi treatments could cause lymph nodes to swell so perhaps that is what caused the swollen lymph node.  It sounds like with the satellite spots showing up, you are going to have to watch your skin closely.  If it is melanoma then it could open you up for more treatment options.  Good luck and I will keep you in my thoughts.
                     

                    Laura

                    • November 2, 2016 at 3:50 pm
                    debwray
                    Participant

                      Hi Donna,

                      Sounds like you are having a tough time. Hang in there. I had a number of lymph nodes removed from my groin and although several were enlarged only two tested positive for melanoma. Swollen does not necessarily mean positive for melanoma.

                      Yervoy works brilliantly for a small percentage of people but there are much higher response rates when combined with a pd1 drug such as nivo or keytruda- but the problem is approval for stage 3.

                      If your nodes are positive- you might want to look at clinical trials for stage 3- go to clinical trials.gov – advanced search/ open trials/ adult/ condition melanoma and then you state/ country.I tried this as a stage 3- but got the placeo and progressed  but there might be something that fits your situation and BRAF status etc 

                      Sometimes a combination of treatments seem to work well and the ipi in your system sticks around for a while. Hoping you heal well soon and that you get good news on Monday.

                      Waiting for results is so stressful -sending you healing waves and a commiseration hug for what its worth…

                      Deb

                       

                      • November 2, 2016 at 3:50 pm
                      debwray
                      Participant

                        Hi Donna,

                        Sounds like you are having a tough time. Hang in there. I had a number of lymph nodes removed from my groin and although several were enlarged only two tested positive for melanoma. Swollen does not necessarily mean positive for melanoma.

                        Yervoy works brilliantly for a small percentage of people but there are much higher response rates when combined with a pd1 drug such as nivo or keytruda- but the problem is approval for stage 3.

                        If your nodes are positive- you might want to look at clinical trials for stage 3- go to clinical trials.gov – advanced search/ open trials/ adult/ condition melanoma and then you state/ country.I tried this as a stage 3- but got the placeo and progressed  but there might be something that fits your situation and BRAF status etc 

                        Sometimes a combination of treatments seem to work well and the ipi in your system sticks around for a while. Hoping you heal well soon and that you get good news on Monday.

                        Waiting for results is so stressful -sending you healing waves and a commiseration hug for what its worth…

                        Deb

                         

                          • November 2, 2016 at 4:19 pm
                          dmturner
                          Participant

                            Thanks Deb

                            I will look at the trials and talk with my oncologist.  I know he wants to do a CAT scan soon.  Even though I had PET scan and brain MRI done July that turned out negative.

                            Donna

                            • November 2, 2016 at 4:19 pm
                            dmturner
                            Participant

                              Thanks Deb

                              I will look at the trials and talk with my oncologist.  I know he wants to do a CAT scan soon.  Even though I had PET scan and brain MRI done July that turned out negative.

                              Donna

                              • November 2, 2016 at 4:19 pm
                              dmturner
                              Participant

                                Thanks Deb

                                I will look at the trials and talk with my oncologist.  I know he wants to do a CAT scan soon.  Even though I had PET scan and brain MRI done July that turned out negative.

                                Donna

                              • November 2, 2016 at 3:50 pm
                              debwray
                              Participant

                                Hi Donna,

                                Sounds like you are having a tough time. Hang in there. I had a number of lymph nodes removed from my groin and although several were enlarged only two tested positive for melanoma. Swollen does not necessarily mean positive for melanoma.

                                Yervoy works brilliantly for a small percentage of people but there are much higher response rates when combined with a pd1 drug such as nivo or keytruda- but the problem is approval for stage 3.

                                If your nodes are positive- you might want to look at clinical trials for stage 3- go to clinical trials.gov – advanced search/ open trials/ adult/ condition melanoma and then you state/ country.I tried this as a stage 3- but got the placeo and progressed  but there might be something that fits your situation and BRAF status etc 

                                Sometimes a combination of treatments seem to work well and the ipi in your system sticks around for a while. Hoping you heal well soon and that you get good news on Monday.

                                Waiting for results is so stressful -sending you healing waves and a commiseration hug for what its worth…

                                Deb

                                 

                            Viewing 5 reply threads
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