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GSK Dabrafenib and Tranetinib
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GSK Dabrafenib and Tranetinib

› Forums › General Melanoma Community › GSK Dabrafenib and Tranetinib

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    • December 12, 2012 at 9:34 pm
    vicuk
    Participant

      I have been following you all now since July. My very good friend was diagnosed with Stage IV with no primary in July 2012. By sheer luck, she had a cyst that caused her severe pain and when she had her op. to remove it, they discovered melanoma in her ovary. She was 29 then. I say sheer luck, because otherwise it wouldn't have been dealt with.

      I have been following you all now since July. My very good friend was diagnosed with Stage IV with no primary in July 2012. By sheer luck, she had a cyst that caused her severe pain and when she had her op. to remove it, they discovered melanoma in her ovary. She was 29 then. I say sheer luck, because otherwise it wouldn't have been dealt with.

      We live in the UK and she managed to get onto the GSK trial. She started on the trial in August and has had two scans. On the first scan, the mets in her lung and hip began to shrink. Her second scan showed that her lung mets were immeasurable and her hip tumour hadn't got any smaller but  it had begun to decay from within.

      When we got the original diagnosis, we were all devastated, obviously. I was appointed the role of Researcher in 'Team Helen ' and my greatest source was MPIP. Thanks to all of you for providing me with information and hope so I could feed it all back to her. I think of you all every day and will you on, cheer you on and pray for you all. I shed a tear for Kevin (several) but really appreciate your  bravery, strength and sheer bloody determination.

      Thank you all very much. You are pioneers.

    Viewing 8 reply threads
    • Replies
        • December 13, 2012 at 4:00 am
        POW
        Participant

          I'm so happy to hear that Dabrafenib + Tranetinib is working well for you friend. I always though it sounded like a good idea (BRAF + MEK inhibitors) but it's great to learn that it is living up to its promise. Thanks for sharing and keep posting. We need input and encouragment like yours!

          • December 13, 2012 at 4:00 am
          POW
          Participant

            I'm so happy to hear that Dabrafenib + Tranetinib is working well for you friend. I always though it sounded like a good idea (BRAF + MEK inhibitors) but it's great to learn that it is living up to its promise. Thanks for sharing and keep posting. We need input and encouragment like yours!

            • December 13, 2012 at 4:00 am
            POW
            Participant

              I'm so happy to hear that Dabrafenib + Tranetinib is working well for you friend. I always though it sounded like a good idea (BRAF + MEK inhibitors) but it's great to learn that it is living up to its promise. Thanks for sharing and keep posting. We need input and encouragment like yours!

              • December 16, 2012 at 6:01 pm
              Harry in Fair Oaks
              Participant

                I have been on the GSK BRAF/MEK trial for 19 months.  None of my are evident any longer.  The only things that show up are a couple of pinpoint areas of enhacement where I had a large bone met (femur).  I hope your friend has a longlasting response live I've had.

                Best wishes,

                Harry

                  • December 20, 2012 at 4:41 pm
                  vicuk
                  Participant

                    Thanks very much for that Harry! I've passed the message on and I know it will give her hope.

                    Wishing you a Happy Christmas!

                    Best Wishes,

                    Vic .

                    • December 20, 2012 at 4:41 pm
                    vicuk
                    Participant

                      Thanks very much for that Harry! I've passed the message on and I know it will give her hope.

                      Wishing you a Happy Christmas!

                      Best Wishes,

                      Vic .

                      • December 20, 2012 at 4:41 pm
                      vicuk
                      Participant

                        Thanks very much for that Harry! I've passed the message on and I know it will give her hope.

                        Wishing you a Happy Christmas!

                        Best Wishes,

                        Vic .

                      • December 16, 2012 at 6:01 pm
                      Harry in Fair Oaks
                      Participant

                        I have been on the GSK BRAF/MEK trial for 19 months.  None of my are evident any longer.  The only things that show up are a couple of pinpoint areas of enhacement where I had a large bone met (femur).  I hope your friend has a longlasting response live I've had.

                        Best wishes,

                        Harry

                        • December 16, 2012 at 6:01 pm
                        Harry in Fair Oaks
                        Participant

                          I have been on the GSK BRAF/MEK trial for 19 months.  None of my are evident any longer.  The only things that show up are a couple of pinpoint areas of enhacement where I had a large bone met (femur).  I hope your friend has a longlasting response live I've had.

                          Best wishes,

                          Harry

                          • December 16, 2012 at 7:20 pm
                          JerryfromFauq
                          Participant

                            While reports of these treatments don't help my particular type melanoma, they sure help morale and provide info to pass on to others.  Research is getting closer for us all.

                            • December 16, 2012 at 7:20 pm
                            JerryfromFauq
                            Participant

                              While reports of these treatments don't help my particular type melanoma, they sure help morale and provide info to pass on to others.  Research is getting closer for us all.

                              • December 16, 2012 at 7:20 pm
                              JerryfromFauq
                              Participant

                                While reports of these treatments don't help my particular type melanoma, they sure help morale and provide info to pass on to others.  Research is getting closer for us all.

                            Viewing 8 reply threads
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