Just wanted to thank Josh & John for their replies to my post on 27/9 . Sorry it has taken me so long but I had trouble logging in & have only just rectified the problem.
In the mean time after resuming trametinib for 2 days & then just 3 doses of the combo after that, I again ended up with fever mouth ulcers & terrible nerve like pain up my legs & in my feet . I was walking like a sick 90 year old! Once again!!
So I am off drugs again for another week when I’ll again resume on 5 days of trametenib before adding reduced dose of dabrafenib .
Docs not sure if it’s the trametenib or the dabrafenib that’s causing me grief , however thinks it’s the dabrafenib. It’s trial & error to get the right dose my body can tolerate. Dr thinks we started back too soon the last time! The thing is no one knows much about this medication where I live – that’s why I’m so interested to hear of other peoples experiences. I really want the drugs to work as I’m not sure what alternatives will be available. I’m wondering if anyone has had similar side effects – & a positive outcome. I’m due for a scan in a months time so really need to get the medication continuing to work.
Thanks for reading & do hope your politicians get some resolution to their differences.
Hope everyone is doing well & keeping the fighting spirit alive. I know it’s not easy sometimes when you’re doing it really tough but I guess we all have to keep positive.
Take care,
Lyn
