The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

GSK Braf/Mek Trial 30% overall tumor reduction

Forums General Melanoma Community GSK Braf/Mek Trial 30% overall tumor reduction

  • Post
    Suzan AB
    Participant
      Hello All,
      The yoyo melanoma warrior is back online. I was lucky enough to get into the expanded gsk trial at UCSF with Dr. Daud and Dr. Algazi…I am so very greatful to be one of the braf-k folks to be included in this trial. (I was not discriminated against because i was not braf-e…whooohoo)

      So far i have an overall 30% tumor reduction with some tumors being resulved…some of the more stuborn boys grew slightly, some stayed the same, and some of the boys just disappeared. George ans Oscar the grouch were removed then tourched before being placed on slides to endure more horrores at the hads of the pathologists…hahahaha

      I was wondering if the other braf/mek Warriors were expericing side effects…mine are mangable but they kicked my butt this past few weeks…chills, fever and weird ouchy spots on my legs….i am greatful forfor the side effects because it means the medicine is working…WhooHoo
      My best to all with blessings and love hugs,
      Susan AB

    Viewing 5 reply threads
    • Replies
        Suzan AB
        Participant
          Please excuse the misspellings…i ogt a nook for xmas and she is a toichie thing…hahaaa…i meant to say torture those tumor boys bbye for now
          Suzan AB
          Participant
            Please excuse the misspellings…i ogt a nook for xmas and she is a toichie thing…hahaaa…i meant to say torture those tumor boys bbye for now
            Suzan AB
            Participant
              Please excuse the misspellings…i ogt a nook for xmas and she is a toichie thing…hahaaa…i meant to say torture those tumor boys bbye for now
              lhaley
              Participant

                Been wondering where you've been.  Glad you were able to find a trial!

                Linda

                  Suzan AB
                  Participant
                    Hello Linda-Lu, eyes of blu…yes mam, i found a trial just in the nick of time. Phew.
                    SOOOOO sorry to hear about your brain met but so glad you sliced it outta there. What is next?
                    Good to see you!!!!
                    .My best to you and yours what a beautiful granddaughter…do you have any more?
                    Suzan AB
                    lhaley
                    Participant

                      The baby just turned 2!   

                      I go on Wed to find out the next. Edema and need to get this dealt with!  

                      Glad you found something!!!   Talk to you soon!

                      Linda

                      lhaley
                      Participant

                        The baby just turned 2!   

                        I go on Wed to find out the next. Edema and need to get this dealt with!  

                        Glad you found something!!!   Talk to you soon!

                        Linda

                        lhaley
                        Participant

                          The baby just turned 2!   

                          I go on Wed to find out the next. Edema and need to get this dealt with!  

                          Glad you found something!!!   Talk to you soon!

                          Linda

                          Suzan AB
                          Participant
                            Hello Linda-Lu, eyes of blu…yes mam, i found a trial just in the nick of time. Phew.
                            SOOOOO sorry to hear about your brain met but so glad you sliced it outta there. What is next?
                            Good to see you!!!!
                            .My best to you and yours what a beautiful granddaughter…do you have any more?
                            Suzan AB
                            Suzan AB
                            Participant
                              Hello Linda-Lu, eyes of blu…yes mam, i found a trial just in the nick of time. Phew.
                              SOOOOO sorry to hear about your brain met but so glad you sliced it outta there. What is next?
                              Good to see you!!!!
                              .My best to you and yours what a beautiful granddaughter…do you have any more?
                              Suzan AB
                            lhaley
                            Participant

                              Been wondering where you've been.  Glad you were able to find a trial!

                              Linda

                              lhaley
                              Participant

                                Been wondering where you've been.  Glad you were able to find a trial!

                                Linda

                            Viewing 5 reply threads
                            • You must be logged in to reply to this topic.
                            About the MRF Patient Forum

                            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                            Popular Topics