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GSK Braf/Mek Trial 30% overall tumor reduction

Forums General Melanoma Community GSK Braf/Mek Trial 30% overall tumor reduction

  • Post
    Suzan AB
    Participant
    Hello All,
    The yoyo melanoma warrior is back online. I was lucky enough to get into the expanded gsk trial at UCSF with Dr. Daud and Dr. Algazi…I am so very greatful to be one of the braf-k folks to be included in this trial. (I was not discriminated against because i was not braf-e…whooohoo)

    So far i have an overall 30% tumor reduction with some tumors being resulved…some of the more stuborn boys grew slightly, some stayed the same, and some of the boys just disappeared. George ans Oscar the grouch were removed then tourched before being placed on slides to endure more horrores at the hads of the pathologists…hahahaha

    I was wondering if the other braf/mek Warriors were expericing side effects…mine are mangable but they kicked my butt this past few weeks…chills, fever and weird ouchy spots on my legs….i am greatful forfor the side effects because it means the medicine is working…WhooHoo
    My best to all with blessings and love hugs,
    Susan AB

Viewing 5 reply threads
  • Replies
      Suzan AB
      Participant
      Please excuse the misspellings…i ogt a nook for xmas and she is a toichie thing…hahaaa…i meant to say torture those tumor boys bbye for now
      Suzan AB
      Participant
      Please excuse the misspellings…i ogt a nook for xmas and she is a toichie thing…hahaaa…i meant to say torture those tumor boys bbye for now
      Suzan AB
      Participant
      Please excuse the misspellings…i ogt a nook for xmas and she is a toichie thing…hahaaa…i meant to say torture those tumor boys bbye for now
      lhaley
      Participant

      Been wondering where you've been.  Glad you were able to find a trial!

      Linda

        Suzan AB
        Participant
        Hello Linda-Lu, eyes of blu…yes mam, i found a trial just in the nick of time. Phew.
        SOOOOO sorry to hear about your brain met but so glad you sliced it outta there. What is next?
        Good to see you!!!!
        .My best to you and yours what a beautiful granddaughter…do you have any more?
        Suzan AB
        lhaley
        Participant

        The baby just turned 2!   

        I go on Wed to find out the next. Edema and need to get this dealt with!  

        Glad you found something!!!   Talk to you soon!

        Linda

        lhaley
        Participant

        The baby just turned 2!   

        I go on Wed to find out the next. Edema and need to get this dealt with!  

        Glad you found something!!!   Talk to you soon!

        Linda

        lhaley
        Participant

        The baby just turned 2!   

        I go on Wed to find out the next. Edema and need to get this dealt with!  

        Glad you found something!!!   Talk to you soon!

        Linda

        Suzan AB
        Participant
        Hello Linda-Lu, eyes of blu…yes mam, i found a trial just in the nick of time. Phew.
        SOOOOO sorry to hear about your brain met but so glad you sliced it outta there. What is next?
        Good to see you!!!!
        .My best to you and yours what a beautiful granddaughter…do you have any more?
        Suzan AB
        Suzan AB
        Participant
        Hello Linda-Lu, eyes of blu…yes mam, i found a trial just in the nick of time. Phew.
        SOOOOO sorry to hear about your brain met but so glad you sliced it outta there. What is next?
        Good to see you!!!!
        .My best to you and yours what a beautiful granddaughter…do you have any more?
        Suzan AB
      lhaley
      Participant

      Been wondering where you've been.  Glad you were able to find a trial!

      Linda

      lhaley
      Participant

      Been wondering where you've been.  Glad you were able to find a trial!

      Linda

Viewing 5 reply threads
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