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Good PET/CT

Forums General Melanoma Community Good PET/CT

  • Post
    Jenjen
    Participant

    Hi all,

     

    Just wanted to let you know I had my 3rd PET/CT last week and it went well. Still shows NED after a little over one year. I was diagnosed last July at age 26 with stage 3a melanoma on my foot. Currently in my 9 month of interferon injections and although it sucks..i am almost done ! Sending myself to Europe for a couple weeks come November to celebrate. I know one year NED is not much but i am trying to live my life like it will never come back ..even if i know there is a huge possiblility it will.

     

    Hi all,

     

    Just wanted to let you know I had my 3rd PET/CT last week and it went well. Still shows NED after a little over one year. I was diagnosed last July at age 26 with stage 3a melanoma on my foot. Currently in my 9 month of interferon injections and although it sucks..i am almost done ! Sending myself to Europe for a couple weeks come November to celebrate. I know one year NED is not much but i am trying to live my life like it will never come back ..even if i know there is a huge possiblility it will.

     

    This entire experience actually made me want to change careers and now I am back in school to try and get into nursing school and I love it!!!!!  Praying for continued NED for myself and everyone on this board. And for those who are not at NED yet…praying you reach it with whatever treatment you are doing.

     

    Jenjen 3a (san diego) 27 :)

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  • Replies
      Becky
      Participant

      Yay Jen!! Great news!!

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      Becky
      Participant

      Yay Jen!! Great news!!

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      MaryD
      Participant

      Congratulations – that great news Jen ..and better still that you're almost done with INF.  The trip to Europe will be a great way to celebrate!

      It was nice meeting you at the MRF SF gala in May and glad to see you are doing well ..

      Mary

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      MaryD
      Participant

      Congratulations – that great news Jen ..and better still that you're almost done with INF.  The trip to Europe will be a great way to celebrate!

      It was nice meeting you at the MRF SF gala in May and glad to see you are doing well ..

      Mary

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      triciad
      Participant

      I'm so happy to hear your happy news.  You have the positive attitude it takes to beat this thing.  Best of luck with nursing school and have  great time in Europe!  Here's to a lifetime of NED for you!!!!!

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      triciad
      Participant

      I'm so happy to hear your happy news.  You have the positive attitude it takes to beat this thing.  Best of luck with nursing school and have  great time in Europe!  Here's to a lifetime of NED for you!!!!!

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      himynameiskevin
      Participant

      I am so happy for you, congradulations. Out of curiousity would you mind sharing who your doctors are? I live in san diego too and just like to know what is out the there. Again, congradulations and have fun in Europe. ;)

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        Jenjen
        Participant

        Hi Kevin,

         

        When i was first diagnosed in San Diego it was missed 3 times by different Sharp hospital doctors.  My first surgeon was Dr. Yerevanian at Sharp Reese Stealy. He was an amaaaaazzzzzing surgeon..did a great job on my LND and SNB. Very positive and very experienced. He used to work at Sloan Kettering . My first oncologist at Sharp was absolutely horrible…horrible bedside manner, mean , old man who told me i had less than a couple years to live and there was nothing i could do..didnt recommend a lnd or any type of scans or follow up treatment. Lets just say after that experience I found this board.

        I asked around and ended up choosing to go to UCSF for an appointment/evaluation. It was there I met Dr. Adil Daud. He is an aammmmmaazzzing doctor. His team made me feel so comfortable and they are so experienced there. They work at the UCSF Helen Diller Family Comprehensive Cancer Center , in the Melanoma Clinic. I would highly highly recommend them. the number is 415-353-9900.

        I have also gone to Dr. Edward McClay in Encinitas. He works at Pacfic Oncology and Hematology and has several books out about melanoma. He is also an amazing docctor. I went to see him last month just for another opinion and he was great..I really wanted to get into his trial because it has great numbers and is close to SD , but unfortunately it has been too long since my surgery to get in (its been a year). His number is 760-452-3340.

        So bascially i go to an oncologist here, about every 3 weeks and then i head to UCSF for an app with their team about every 4 months..my new oncologist here is great too..Dr. Reissman at Sharp Reese Stealy. You definitely need to get yourself to a melanoma specialist pronto. Most oncologists dont really know the latest with melanoma..as far as diagnosis, treatment options , trials etc. 

        Do you have a plan yet? Email me if you want any more info !

        [email protected]

         

        Jen

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        Jenjen
        Participant

        Hi Kevin,

         

        When i was first diagnosed in San Diego it was missed 3 times by different Sharp hospital doctors.  My first surgeon was Dr. Yerevanian at Sharp Reese Stealy. He was an amaaaaazzzzzing surgeon..did a great job on my LND and SNB. Very positive and very experienced. He used to work at Sloan Kettering . My first oncologist at Sharp was absolutely horrible…horrible bedside manner, mean , old man who told me i had less than a couple years to live and there was nothing i could do..didnt recommend a lnd or any type of scans or follow up treatment. Lets just say after that experience I found this board.

        I asked around and ended up choosing to go to UCSF for an appointment/evaluation. It was there I met Dr. Adil Daud. He is an aammmmmaazzzing doctor. His team made me feel so comfortable and they are so experienced there. They work at the UCSF Helen Diller Family Comprehensive Cancer Center , in the Melanoma Clinic. I would highly highly recommend them. the number is 415-353-9900.

        I have also gone to Dr. Edward McClay in Encinitas. He works at Pacfic Oncology and Hematology and has several books out about melanoma. He is also an amazing docctor. I went to see him last month just for another opinion and he was great..I really wanted to get into his trial because it has great numbers and is close to SD , but unfortunately it has been too long since my surgery to get in (its been a year). His number is 760-452-3340.

        So bascially i go to an oncologist here, about every 3 weeks and then i head to UCSF for an app with their team about every 4 months..my new oncologist here is great too..Dr. Reissman at Sharp Reese Stealy. You definitely need to get yourself to a melanoma specialist pronto. Most oncologists dont really know the latest with melanoma..as far as diagnosis, treatment options , trials etc. 

        Do you have a plan yet? Email me if you want any more info !

        [email protected]

         

        Jen

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      himynameiskevin
      Participant

      I am so happy for you, congradulations. Out of curiousity would you mind sharing who your doctors are? I live in san diego too and just like to know what is out the there. Again, congradulations and have fun in Europe. ;)

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