Good News

This topic has 27 replies, 6 voices, and was last updated 10 years, 5 months ago by NYKaren.

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- October 16, 2012 at 11:23 pm
- Quote
NYKaren
Participant
I went for screening today, and I am enrolled in a research study of DPCP at Rockefeller University Hospital. Dr. James Krueger is running the trial.

I went for screening today, and I am enrolled in a research study of DPCP at Rockefeller University Hospital. Dr. James Krueger is running the trial.

I go for my first appointment Monday morning; they will do a biopsy on one of my many mets, ultrasound, bloodwork, photography and some other stuff. At this appointment, they apply the medicine to a spot on each arm and on one met. this is to see if my skin responds to it (they call it sensitizing) and I'll know if i respond by a rash. Possibly very itchy and even blister-y. Who knew i'd ever be wishing for a rash!

According to Dr. Krueger, in studies done in Australia, the response rate is 50%. Highest odds I've gotten yet.

I am cautiously optimistic and I feel lucky to be in this small study. There will be only about 12 other participants. The drug company, Hapten Pharmaceuticals, is small and does not have the money for a larger study/trial. It's being funded by a variety of sources, one of which is a private foundation.

At the same time, I will be part of a larger study (60 people) for something called a Melanoma Advanced Imaging Dermascope (mAID). it is new device that may predict if a skin lesion is likely to be cancerous or not. The goal is to noninvasively predict the prognosis of a lesion to avoid the occurences of unnecessary biopsies. Good stuff.

I'll keep you guys posted.

karen

Viewing 17 reply threads

Replies

- - October 16, 2012 at 11:28 pm
  - Quote
  NYKaren
  Participant
  Forgot to include: Study drug is to treat cutaneous Melanoma metastases. for once, I was just what they were looking for!
  
  karen
- - October 16, 2012 at 11:28 pm
  - Quote
  NYKaren
  Participant
  Forgot to include: Study drug is to treat cutaneous Melanoma metastases. for once, I was just what they were looking for!
  
  karen
- - October 16, 2012 at 11:28 pm
  - Quote
  NYKaren
  Participant
  Forgot to include: Study drug is to treat cutaneous Melanoma metastases. for once, I was just what they were looking for!
  
  karen
- - October 16, 2012 at 11:48 pm
  - Quote
  lhaley
  Participant
  I'm so glad you were able to find a trial!!! Hope it shows a rash!! that does sound so negative but it sounds like that's a thing.
  
  Linda
- - October 16, 2012 at 11:48 pm
  - Quote
  lhaley
  Participant
  I'm so glad you were able to find a trial!!! Hope it shows a rash!! that does sound so negative but it sounds like that's a thing.
  
  Linda
- - October 16, 2012 at 11:48 pm
  - Quote
  lhaley
  Participant
  I'm so glad you were able to find a trial!!! Hope it shows a rash!! that does sound so negative but it sounds like that's a thing.
  
  Linda
- - October 16, 2012 at 11:54 pm
  - Quote
  Fen
  Participant
  Sounds like all the stars were aligned this time. Hope it beats the ***% out of your mets. Fen
- - October 16, 2012 at 11:54 pm
  - Quote
  Fen
  Participant
  Sounds like all the stars were aligned this time. Hope it beats the ***% out of your mets. Fen
- - October 16, 2012 at 11:54 pm
  - Quote
  Fen
  Participant
  Sounds like all the stars were aligned this time. Hope it beats the ***% out of your mets. Fen
- - October 17, 2012 at 1:46 am
  - Quote
  aldakota22
  Participant
  Great news Karen. Praying that you are on the plus side of the odds.Looks like you are going to be occupied with all the testing and so on in this trial.Keep us posted.May The Rash be with You. Beat the Beast. Al
  - October 17, 2012 at 5:24 pm
    
    Quote
    NYKaren
    Participant
    
    Thanks so much. you guys are great.
    
    Al, I love it…May the rash be with you! Last time i did Ipi, I had absolutely no rash at all! (first time I did, big time) but the colitis more than made up for it. Seems like we're always dealing with rashes around here.
    
    be well my friends,
    
    karen
  - October 17, 2012 at 5:24 pm
    
    Quote
    NYKaren
    Participant
    
    Thanks so much. you guys are great.
    
    Al, I love it…May the rash be with you! Last time i did Ipi, I had absolutely no rash at all! (first time I did, big time) but the colitis more than made up for it. Seems like we're always dealing with rashes around here.
    
    be well my friends,
    
    karen
  - October 17, 2012 at 5:24 pm
    
    Quote
    NYKaren
    Participant
    
    Thanks so much. you guys are great.
    
    Al, I love it…May the rash be with you! Last time i did Ipi, I had absolutely no rash at all! (first time I did, big time) but the colitis more than made up for it. Seems like we're always dealing with rashes around here.
    
    be well my friends,
    
    karen
- - October 17, 2012 at 1:46 am
  - Quote
  aldakota22
  Participant
  Great news Karen. Praying that you are on the plus side of the odds.Looks like you are going to be occupied with all the testing and so on in this trial.Keep us posted.May The Rash be with You. Beat the Beast. Al
- - October 17, 2012 at 1:46 am
  - Quote
  aldakota22
  Participant
  Great news Karen. Praying that you are on the plus side of the odds.Looks like you are going to be occupied with all the testing and so on in this trial.Keep us posted.May The Rash be with You. Beat the Beast. Al
- - October 17, 2012 at 7:49 pm
  - Quote
  killmel
  Participant
  Great news Karen…soooooooooooohappy for you.
  
  Could you provide us with some contact info on Melanoma Advanced Imaging Dermascope (mAID) study. I know others might want to participate.
  
  Thanks,
  
  Danny
  - October 17, 2012 at 8:24 pm
    
    Quote
    NYKaren
    Participant
    
    thanks, Danny
    
    The mAID study principal investigator is Dan Gareau, PhD. His phone is 212 327 7983. His email is [email protected]
    
    best,
    
    karen
  - October 17, 2012 at 8:24 pm
    
    Quote
    NYKaren
    Participant
    
    thanks, Danny
    
    The mAID study principal investigator is Dan Gareau, PhD. His phone is 212 327 7983. His email is [email protected]
    
    best,
    
    karen
  - October 17, 2012 at 8:24 pm
    
    Quote
    NYKaren
    Participant
    
    thanks, Danny
    
    The mAID study principal investigator is Dan Gareau, PhD. His phone is 212 327 7983. His email is [email protected]
    
    best,
    
    karen
- - October 17, 2012 at 7:49 pm
  - Quote
  killmel
  Participant
  Great news Karen…soooooooooooohappy for you.
  
  Could you provide us with some contact info on Melanoma Advanced Imaging Dermascope (mAID) study. I know others might want to participate.
  
  Thanks,
  
  Danny
- - October 17, 2012 at 7:49 pm
  - Quote
  killmel
  Participant
  Great news Karen…soooooooooooohappy for you.
  
  Could you provide us with some contact info on Melanoma Advanced Imaging Dermascope (mAID) study. I know others might want to participate.
  
  Thanks,
  
  Danny
- - October 19, 2012 at 7:26 pm
  - Quote
  shellebrownies
  Participant
  Karen, this is fantastic! So glad that you found a good trial to be in! Will keep you in my thoughts! 😀
  
  Michelle
- - October 19, 2012 at 7:26 pm
  - Quote
  shellebrownies
  Participant
  Karen, this is fantastic! So glad that you found a good trial to be in! Will keep you in my thoughts! 😀
  
  Michelle
- - October 19, 2012 at 7:26 pm
  - Quote
  shellebrownies
  Participant
  Karen, this is fantastic! So glad that you found a good trial to be in! Will keep you in my thoughts! 😀
  
  Michelle
  - October 21, 2012 at 12:43 am
    
    Quote
    NYKaren
    Participant
    
    Thanks, Michelle
    So good to hear from you.
    Be well,
    karen
  - October 21, 2012 at 12:43 am
    
    Quote
    NYKaren
    Participant
    
    Thanks, Michelle
    So good to hear from you.
    Be well,
    karen
  - October 21, 2012 at 12:43 am
    
    Quote
    NYKaren
    Participant
    
    Thanks, Michelle
    So good to hear from you.
    Be well,
    karen