› Forums › General Melanoma Community › Good Evening – I am a newbie – Diagnosed 4 days ago – your thoughts are appreciated……
- This topic has 105 replies, 14 voices, and was last updated 8 years, 1 month ago by
Silva.
- Post
-
- January 6, 2012 at 11:26 pm
Hi All,
Hi All,
I am 42, married, and mother of two children, a boy who is 6 and my ‘mini-me’ daughter, who is 9. I always thought one day I would join a blog or message board, but I thought it would be to talk about children, the Oakland Raiders or even work. What I never imagined was joining a message board, seeking support and answers for Melanoma, however, here I am! I was diagnosed four days ago and it changed my world. I haven’t been eating or sleeping, and have been distracted by this all day at work. Of course, I am thinking the worst and hoping for the best. I must say though, of all websites I have been reading about and poking around on, this one is the most positive, supportive, knowledgeable one out there. So thanks for having me.
I don’t have much history with melanoma, however my mom had Thyroid cancer 5 years ago, my dad had a basal cell removed from his face 4 years ago, and my aunt (fathers sister) had a mastectomy 7+ years ago. All are 60+ and come through their cancer with positive results. I have always been, should we say, concerned about skin cancer and suspicious moles within the past 15 years. I am considered fair skinned and do remember a burn or two when I was in my 20’s. I was at the dermatologist approx 7 years ago, had a full body scan and everything was fine. About 3 years ago, I had a couple suspicious beauty mark/moles removed, sent for testing, which came back fine. Now to today, I had a mole, dark brown in color, the size of a pin head on my right inner thigh. I didn’t remember having it when I was younger, but, thought maybe it had always been there. About three months ago, it was irritating me. Never bled, but was sore. I thought maybe I cut it shaving etc. so I waited a few weeks to see if it changed, got worse etc. which it didn't, was kinda just there.When I felt it, it was smooth and ever so slightly raised. I figured, can’t hurt in getting it looked at. Even the doctor didn’t seem concerned; however, did a punch biopsy that came back positive. Invasive Malignant Melanoma and I haven’t been the same since. Scared! I have read a couple posts where it’s been requested to post the results of the pathology report, so here it is. Clark Level is IV, Breslow is 1.2MM, Regression is Absent, Ulceration is Absent, Mitotic rate is 1 per square millimeter, Microscopic satellites are Absent, Vertical growth is present, Vertical growth Cell type: Epitheltoid, Lymphocytic Infiltrate is Minimal, Lateral Margin is involved, Deep Margin is Involved, Re-Excision with appropriate clear margins for Invasive Malignant Melanoma is recommended. Melan-A stain is consistent with this diagnosis. So what does is all mean???
I went back to the dermatologist with these results and he just kept commenting that he was surprised because the mark was so small and that I was Stage II. He didn’t give me much reassurance and suggested that I schedule with a Melanoma Specialist (which I didn’t need him to suggest as I did that the day after I found out). The dermatologist told me that they would be doing a dye test to see if the tumor has attacked any lymph nodes. He mentioned if one tests positive they would take more and I would then be considered Stage III, then talk to me about Chemo or other treatments. He glanced over the remaining moles that I have and commented ‘normal’ – ‘normal’ – ‘normal’….wouldn’t they all be suspicious at this point?? I want them all biopsied and removed if necessary…I just don’t get why I didn’t get a more thorough exam?
I just keep thinking that I must be here for my kids. I have not told anyone in my family. The only reason my husband knows is because I wasn’t home when the doc called with results and he pushed the doctor to tell him. I really don’t think he gets the potential severity of the situation anyway. I have not told my parents, siblings or his. My parents would be devastated, they live out of state and I want them to live the rest of their lives happy, not worrying about me. I realize that there are people on this message board with more advanced, serious conditions, so I appreciate any guidance or recommendations of next steps. I continue to try and have the attitude that it is what it is and be prepared to fight for my life and family, if that’s what the outcome is. You all are in my prayers and wish we were meeting under better circumstances.
Kelli
- Replies
-
-
- January 7, 2012 at 1:05 am
Hi, Kelli,
It can be a bit slow here on weekends, but understanding how a initial diagnosis can freak anyone out (normal), I wanted to give you a little pat on the shoulder and say "breathe deep"…………..I know it is difficult.
There are some real whiz bang people who will chime in on you path report in detail,so I'll just give you a few broad brush type thoughts about that. A punch biopsy, which you had, hardly ever "gets it all" so to speak, so further exicision is a normal and wise follow up. So don't dwell on "deep" ,"margins" "involved" too much as some sort of bad news; that wording is quite normal in a punch pathology report and simply means you need some surgery to fully excise the melanoma……….again, a very normal process.
It is important to focus on the issue at hand, which is the full excision and the need for a Sentinel Node Biopsy and NOT let the more stringent exam questions that you felt laking to pester your thinking right now,, because I assure you, you are going to have more tests and head to toe exams in your days ahead as you go through the Staging process.
First, you are going to need a surgeon to do your excision and the Sentinel Node Biopsy. To be steered to a competent and skilled one, you really need to go first to an oncologist with a specialty in melanoma for guidance.
I am a bit short on time tonight, but if no one else does, I will post a video for you over the weekend explaining the excision and SNB process.
A note about this site: Melanoma is not a death sentence, not all people die from melanoma, not all people develop advanced melanoma……………….what is represented here can be scary because a large population of this site are in the thick of battle. Many others have had an initial diagnosis and moved on from here with no further problems.
I know it is hard and very scary, but focus on it is not a death sentence and you need an oncologist with an emphasis on melanoma, who will get you on the right track.
Sounds like you are in Cali, and there are many good melanoma resources available to you.
Until then.
Cheers,
Charlie S
-
- January 7, 2012 at 5:17 pm
Hi Charlie – I appreciate your kind words and positive attitude. I am actually in NJ and the appointment I made was with a Melanoma Oncology Specialist and Surgeon, so it sounds like I did step 1 right : ) I would appreciate that video if you happen to have the time because I am more scared of the unknown than the actual process. I am going to take your advice and stay positive. Enjoy the rest of your weekend and thanks again for the support.
Kelli
-
- January 7, 2012 at 5:17 pm
Hi Charlie – I appreciate your kind words and positive attitude. I am actually in NJ and the appointment I made was with a Melanoma Oncology Specialist and Surgeon, so it sounds like I did step 1 right : ) I would appreciate that video if you happen to have the time because I am more scared of the unknown than the actual process. I am going to take your advice and stay positive. Enjoy the rest of your weekend and thanks again for the support.
Kelli
-
- January 7, 2012 at 5:17 pm
Hi Charlie – I appreciate your kind words and positive attitude. I am actually in NJ and the appointment I made was with a Melanoma Oncology Specialist and Surgeon, so it sounds like I did step 1 right : ) I would appreciate that video if you happen to have the time because I am more scared of the unknown than the actual process. I am going to take your advice and stay positive. Enjoy the rest of your weekend and thanks again for the support.
Kelli
-
- January 7, 2012 at 1:05 am
Hi, Kelli,
It can be a bit slow here on weekends, but understanding how a initial diagnosis can freak anyone out (normal), I wanted to give you a little pat on the shoulder and say "breathe deep"…………..I know it is difficult.
There are some real whiz bang people who will chime in on you path report in detail,so I'll just give you a few broad brush type thoughts about that. A punch biopsy, which you had, hardly ever "gets it all" so to speak, so further exicision is a normal and wise follow up. So don't dwell on "deep" ,"margins" "involved" too much as some sort of bad news; that wording is quite normal in a punch pathology report and simply means you need some surgery to fully excise the melanoma……….again, a very normal process.
It is important to focus on the issue at hand, which is the full excision and the need for a Sentinel Node Biopsy and NOT let the more stringent exam questions that you felt laking to pester your thinking right now,, because I assure you, you are going to have more tests and head to toe exams in your days ahead as you go through the Staging process.
First, you are going to need a surgeon to do your excision and the Sentinel Node Biopsy. To be steered to a competent and skilled one, you really need to go first to an oncologist with a specialty in melanoma for guidance.
I am a bit short on time tonight, but if no one else does, I will post a video for you over the weekend explaining the excision and SNB process.
A note about this site: Melanoma is not a death sentence, not all people die from melanoma, not all people develop advanced melanoma……………….what is represented here can be scary because a large population of this site are in the thick of battle. Many others have had an initial diagnosis and moved on from here with no further problems.
I know it is hard and very scary, but focus on it is not a death sentence and you need an oncologist with an emphasis on melanoma, who will get you on the right track.
Sounds like you are in Cali, and there are many good melanoma resources available to you.
Until then.
Cheers,
Charlie S
-
- January 7, 2012 at 1:05 am
Hi, Kelli,
It can be a bit slow here on weekends, but understanding how a initial diagnosis can freak anyone out (normal), I wanted to give you a little pat on the shoulder and say "breathe deep"…………..I know it is difficult.
There are some real whiz bang people who will chime in on you path report in detail,so I'll just give you a few broad brush type thoughts about that. A punch biopsy, which you had, hardly ever "gets it all" so to speak, so further exicision is a normal and wise follow up. So don't dwell on "deep" ,"margins" "involved" too much as some sort of bad news; that wording is quite normal in a punch pathology report and simply means you need some surgery to fully excise the melanoma……….again, a very normal process.
It is important to focus on the issue at hand, which is the full excision and the need for a Sentinel Node Biopsy and NOT let the more stringent exam questions that you felt laking to pester your thinking right now,, because I assure you, you are going to have more tests and head to toe exams in your days ahead as you go through the Staging process.
First, you are going to need a surgeon to do your excision and the Sentinel Node Biopsy. To be steered to a competent and skilled one, you really need to go first to an oncologist with a specialty in melanoma for guidance.
I am a bit short on time tonight, but if no one else does, I will post a video for you over the weekend explaining the excision and SNB process.
A note about this site: Melanoma is not a death sentence, not all people die from melanoma, not all people develop advanced melanoma……………….what is represented here can be scary because a large population of this site are in the thick of battle. Many others have had an initial diagnosis and moved on from here with no further problems.
I know it is hard and very scary, but focus on it is not a death sentence and you need an oncologist with an emphasis on melanoma, who will get you on the right track.
Sounds like you are in Cali, and there are many good melanoma resources available to you.
Until then.
Cheers,
Charlie S
-
- January 7, 2012 at 1:17 am
Kelli, welcome to our forum. Here is some detailed info about the stages of melanoma:
http://www.cancerhelp.org.uk/type/melanoma/treatment/stages-of-melanomaThe most important prognostic indicator is the depth of the primary tumour. From the
info that you have mentioned, I feel that there is no need to be overly concerned about
your situation at the moment.It is excellent that you are consulting a melanoma specialist. However, it is also
important to keep things in perspective and to take things one step at time.Hope this helps.
Frank from Australia
-
- January 7, 2012 at 5:25 pm
Hi Frank – Thanks for your comments and information. I feel better knowing that I am taking the right steps. Kelli
-
- January 7, 2012 at 5:25 pm
Hi Frank – Thanks for your comments and information. I feel better knowing that I am taking the right steps. Kelli
-
- January 7, 2012 at 5:25 pm
Hi Frank – Thanks for your comments and information. I feel better knowing that I am taking the right steps. Kelli
-
- January 7, 2012 at 1:17 am
Kelli, welcome to our forum. Here is some detailed info about the stages of melanoma:
http://www.cancerhelp.org.uk/type/melanoma/treatment/stages-of-melanomaThe most important prognostic indicator is the depth of the primary tumour. From the
info that you have mentioned, I feel that there is no need to be overly concerned about
your situation at the moment.It is excellent that you are consulting a melanoma specialist. However, it is also
important to keep things in perspective and to take things one step at time.Hope this helps.
Frank from Australia
-
- January 7, 2012 at 1:17 am
Kelli, welcome to our forum. Here is some detailed info about the stages of melanoma:
http://www.cancerhelp.org.uk/type/melanoma/treatment/stages-of-melanomaThe most important prognostic indicator is the depth of the primary tumour. From the
info that you have mentioned, I feel that there is no need to be overly concerned about
your situation at the moment.It is excellent that you are consulting a melanoma specialist. However, it is also
important to keep things in perspective and to take things one step at time.Hope this helps.
Frank from Australia
-
- January 7, 2012 at 1:21 am
Oh, forgot to throw in that no matter how many loved ones or friends you are surrounded by, a melanoma diagnosis can scare the living bejesus out of you and suddenly you feel all so alone………………..know this, anyone posting here KNOWS what you are going through, not as a platitude, but from a "been there, done that" point of view.
You are NOT alone in your fears and we all get that.
Cheers,
Charlie S
-
- January 7, 2012 at 5:22 pm
Charlie S – So right. My husband has been pretty non-communicative about this, although, I am not sure what is going on in his brain. I keep trying to explain to him that this ‘could be’ serious however he sees no point in freaking out until I see the surgeon, which, I suppose makes sense. I am so grateful that I found everyone here and this site, it is very comforting and I hope to comfort others as my process goes on. Thanks again.
-
- January 7, 2012 at 5:22 pm
Charlie S – So right. My husband has been pretty non-communicative about this, although, I am not sure what is going on in his brain. I keep trying to explain to him that this ‘could be’ serious however he sees no point in freaking out until I see the surgeon, which, I suppose makes sense. I am so grateful that I found everyone here and this site, it is very comforting and I hope to comfort others as my process goes on. Thanks again.
-
- January 7, 2012 at 5:22 pm
Charlie S – So right. My husband has been pretty non-communicative about this, although, I am not sure what is going on in his brain. I keep trying to explain to him that this ‘could be’ serious however he sees no point in freaking out until I see the surgeon, which, I suppose makes sense. I am so grateful that I found everyone here and this site, it is very comforting and I hope to comfort others as my process goes on. Thanks again.
-
- January 7, 2012 at 1:21 am
Oh, forgot to throw in that no matter how many loved ones or friends you are surrounded by, a melanoma diagnosis can scare the living bejesus out of you and suddenly you feel all so alone………………..know this, anyone posting here KNOWS what you are going through, not as a platitude, but from a "been there, done that" point of view.
You are NOT alone in your fears and we all get that.
Cheers,
Charlie S
-
- January 7, 2012 at 1:21 am
Oh, forgot to throw in that no matter how many loved ones or friends you are surrounded by, a melanoma diagnosis can scare the living bejesus out of you and suddenly you feel all so alone………………..know this, anyone posting here KNOWS what you are going through, not as a platitude, but from a "been there, done that" point of view.
You are NOT alone in your fears and we all get that.
Cheers,
Charlie S
-
- January 7, 2012 at 1:39 am
Kelli – I'm sorry you're here, but welcome. I think you're in the worst part of the process – the shock of diagnosis stinks. As your treatment plan unfolds and you gain info you will feel better and realize that melanoma can be treated. I was diagnosed with metastatic melanoma – invaded lymph nodes – 6 years ago. I still remember the awful feeling. Things will get better.
I see you're in Morristown NJ – great metropolitan area with lots of good hospitals around. Find a melanoma specialist you are comfortable with. In your area you should have lots of choices – go into the city if that works. Ask for recommendations from people on the board – I know there are some in your area, I just can't remember who right now.
You're a good daughter to be concerned about your parents, but go easy on yourself. Tell people who you feel can be supportive and, as Charlie say, breathe deep.
Fen
-
- January 7, 2012 at 5:40 pm
Hi Fen – I am sorry for your diagnosis however your positivity is enlightening, 6 years and living a great life, is wonderful. I am in NJ and seeing Dr Witman on Thursday out of Morristown. I read a lot of wonderful things about him, so, I thought he would be a good first (and perhaps last) choice. Thanks for taking the time to reach out to me. It’s people like you that help me with those deep breaths.
Kelli
-
- January 7, 2012 at 5:40 pm
Hi Fen – I am sorry for your diagnosis however your positivity is enlightening, 6 years and living a great life, is wonderful. I am in NJ and seeing Dr Witman on Thursday out of Morristown. I read a lot of wonderful things about him, so, I thought he would be a good first (and perhaps last) choice. Thanks for taking the time to reach out to me. It’s people like you that help me with those deep breaths.
Kelli
-
- January 7, 2012 at 5:40 pm
Hi Fen – I am sorry for your diagnosis however your positivity is enlightening, 6 years and living a great life, is wonderful. I am in NJ and seeing Dr Witman on Thursday out of Morristown. I read a lot of wonderful things about him, so, I thought he would be a good first (and perhaps last) choice. Thanks for taking the time to reach out to me. It’s people like you that help me with those deep breaths.
Kelli
-
- January 7, 2012 at 1:39 am
Kelli – I'm sorry you're here, but welcome. I think you're in the worst part of the process – the shock of diagnosis stinks. As your treatment plan unfolds and you gain info you will feel better and realize that melanoma can be treated. I was diagnosed with metastatic melanoma – invaded lymph nodes – 6 years ago. I still remember the awful feeling. Things will get better.
I see you're in Morristown NJ – great metropolitan area with lots of good hospitals around. Find a melanoma specialist you are comfortable with. In your area you should have lots of choices – go into the city if that works. Ask for recommendations from people on the board – I know there are some in your area, I just can't remember who right now.
You're a good daughter to be concerned about your parents, but go easy on yourself. Tell people who you feel can be supportive and, as Charlie say, breathe deep.
Fen
-
- January 7, 2012 at 1:39 am
Kelli – I'm sorry you're here, but welcome. I think you're in the worst part of the process – the shock of diagnosis stinks. As your treatment plan unfolds and you gain info you will feel better and realize that melanoma can be treated. I was diagnosed with metastatic melanoma – invaded lymph nodes – 6 years ago. I still remember the awful feeling. Things will get better.
I see you're in Morristown NJ – great metropolitan area with lots of good hospitals around. Find a melanoma specialist you are comfortable with. In your area you should have lots of choices – go into the city if that works. Ask for recommendations from people on the board – I know there are some in your area, I just can't remember who right now.
You're a good daughter to be concerned about your parents, but go easy on yourself. Tell people who you feel can be supportive and, as Charlie say, breathe deep.
Fen
-
- January 7, 2012 at 2:07 am
Hi Kellie,
Since you mentioned the Oakland Raiders, I'm thinking that you may be a Bay Area resident, as I am. I know it is so difficult not to panic and be frightened, but you are in the early diagnostic phase of this melanoma and with what information you have so far, there are lots of reasons to be optimistic.
It sounds like you may have made an appointment with a melanoma specialist. If you are located here in the Bay area, two of the more well know melanoma oncologists are in San Francisco:
Dr. David Minor – California Pacific Medical Center: 415-885-8600
Dr. Adil Daud: UCSF: 353-9900
The sentinel node biopsy will determine if any melanoma has spread to the nodes and at that point, will determine what course of treatment, if needed, will be recommended.
Try and take a deep breath – this is a one day at a time process – not easy, I know too well. Feel free to email me if you have any questions . .
Best regards,
Mary
-
- January 7, 2012 at 5:42 pm
Hi Mary – I am in New Jersey, just grew up watching and routing for the Raiders : )
I have schedule with a Melanoma Specialist, however, depending on how things go would be willing to seek treatment wherever if it mean spending time with my family. Thanks for caring and the information provided.
Kelli
-
- January 7, 2012 at 5:42 pm
Hi Mary – I am in New Jersey, just grew up watching and routing for the Raiders : )
I have schedule with a Melanoma Specialist, however, depending on how things go would be willing to seek treatment wherever if it mean spending time with my family. Thanks for caring and the information provided.
Kelli
-
- January 7, 2012 at 5:42 pm
Hi Mary – I am in New Jersey, just grew up watching and routing for the Raiders : )
I have schedule with a Melanoma Specialist, however, depending on how things go would be willing to seek treatment wherever if it mean spending time with my family. Thanks for caring and the information provided.
Kelli
-
- January 7, 2012 at 2:07 am
Hi Kellie,
Since you mentioned the Oakland Raiders, I'm thinking that you may be a Bay Area resident, as I am. I know it is so difficult not to panic and be frightened, but you are in the early diagnostic phase of this melanoma and with what information you have so far, there are lots of reasons to be optimistic.
It sounds like you may have made an appointment with a melanoma specialist. If you are located here in the Bay area, two of the more well know melanoma oncologists are in San Francisco:
Dr. David Minor – California Pacific Medical Center: 415-885-8600
Dr. Adil Daud: UCSF: 353-9900
The sentinel node biopsy will determine if any melanoma has spread to the nodes and at that point, will determine what course of treatment, if needed, will be recommended.
Try and take a deep breath – this is a one day at a time process – not easy, I know too well. Feel free to email me if you have any questions . .
Best regards,
Mary
-
- January 7, 2012 at 2:07 am
Hi Kellie,
Since you mentioned the Oakland Raiders, I'm thinking that you may be a Bay Area resident, as I am. I know it is so difficult not to panic and be frightened, but you are in the early diagnostic phase of this melanoma and with what information you have so far, there are lots of reasons to be optimistic.
It sounds like you may have made an appointment with a melanoma specialist. If you are located here in the Bay area, two of the more well know melanoma oncologists are in San Francisco:
Dr. David Minor – California Pacific Medical Center: 415-885-8600
Dr. Adil Daud: UCSF: 353-9900
The sentinel node biopsy will determine if any melanoma has spread to the nodes and at that point, will determine what course of treatment, if needed, will be recommended.
Try and take a deep breath – this is a one day at a time process – not easy, I know too well. Feel free to email me if you have any questions . .
Best regards,
Mary
-
- January 7, 2012 at 3:39 am
Hi Kelli,
I agree that you need to breath first. It's going to be ok. Being diagnosed is a scary time, just wait until it doesnt faze you… now that is scary. lol
Stick to this site and your doctors sugestions and everythig will work itself out.
Treatments have changed so much lately and for every side effect there is a corrective drug out there to fix them. If you ever have any questions, just post them and I bet you will get 20 different variations how to come up with a solution here. haha That is the beauty of MRF.
I have only signed up last week , but already have been shown a positive path to help with Yervoy.
Good luck on your treatments and stay strong,
Rona
-
- January 7, 2012 at 6:00 pm
Rona, Thanks! I love your humor, agreed…if you aren’t scared now THAT would not be normal! I have found everyone here to be so supportive, uplifting and the advice is awesome! I think for all of us, no matter where we are at, this website (board) is a blessing. What a wonderful outlet. Continue on your positive path and post all your wonderful win’s. Have a great day!
Kelli
-
- January 7, 2012 at 6:00 pm
Rona, Thanks! I love your humor, agreed…if you aren’t scared now THAT would not be normal! I have found everyone here to be so supportive, uplifting and the advice is awesome! I think for all of us, no matter where we are at, this website (board) is a blessing. What a wonderful outlet. Continue on your positive path and post all your wonderful win’s. Have a great day!
Kelli
-
- January 7, 2012 at 6:00 pm
Rona, Thanks! I love your humor, agreed…if you aren’t scared now THAT would not be normal! I have found everyone here to be so supportive, uplifting and the advice is awesome! I think for all of us, no matter where we are at, this website (board) is a blessing. What a wonderful outlet. Continue on your positive path and post all your wonderful win’s. Have a great day!
Kelli
-
- January 7, 2012 at 3:39 am
Hi Kelli,
I agree that you need to breath first. It's going to be ok. Being diagnosed is a scary time, just wait until it doesnt faze you… now that is scary. lol
Stick to this site and your doctors sugestions and everythig will work itself out.
Treatments have changed so much lately and for every side effect there is a corrective drug out there to fix them. If you ever have any questions, just post them and I bet you will get 20 different variations how to come up with a solution here. haha That is the beauty of MRF.
I have only signed up last week , but already have been shown a positive path to help with Yervoy.
Good luck on your treatments and stay strong,
Rona
-
- January 7, 2012 at 3:39 am
Hi Kelli,
I agree that you need to breath first. It's going to be ok. Being diagnosed is a scary time, just wait until it doesnt faze you… now that is scary. lol
Stick to this site and your doctors sugestions and everythig will work itself out.
Treatments have changed so much lately and for every side effect there is a corrective drug out there to fix them. If you ever have any questions, just post them and I bet you will get 20 different variations how to come up with a solution here. haha That is the beauty of MRF.
I have only signed up last week , but already have been shown a positive path to help with Yervoy.
Good luck on your treatments and stay strong,
Rona
-
- January 7, 2012 at 4:49 am
You've received some good replies so far. One thing I just wanted to clarify is I believe you are stage IB at the moment, not stage II. However, since your deep margin wasn't clear, the depth remains ambiguous. You can't just add any additional depth found to your current 1.2mm. Your lesion will always be referred to as "at least 1.2mm". The staging may change with the result of your SNB as your doctor indicated. Stage IB includes lesions < 2.0mm that don't have ulceration.
Only about 8% of the melanoma population EVER have more than one primary melanoma. Do any of your other moles look "different from all the rest"? Had significant asymmetrical change? The key is to watch these moles for change. But it's extremely unlikely that any of the rest of your moles are melanoma let alone all of them. Wholesale mole removal hasn't proven to decrease your changes of additional melanomas, either, as 50% of melanomas arise on new lesions.
It does get easier with time. It's hard when you're going through the shock of a diagnosis and also trying to understand all the medical jargon that goes along with it.
Best wishes,
Janner
-
- January 7, 2012 at 5:56 pm
Hi Janner – Nice to meet you. Thanks for the informative response. The dermatologist told me that I am stage II because of the depth (1.2MM) and after reading some posts on here that were less than that .75 etc, I figured he was right. It was just a matter of whether I would move to Stage III with the SNB. Thanks for lifting my spirits with your information. Are you saying that I happen to come across the 1 Melanoma on my entire body? The dermatologist told me to get the surgery then come back to him in three months. I suppose that is the protocol? He did look at the rest of my mole (Maybe 6) and didn’t seem concerned, although, like I mentioned, he didn’t seem concerned about the one that came up positive. I think I need a new dermatologist. Sounds like we have similar stories, shaving, the mole on the leg, etc. Thanks Again!
-
- January 7, 2012 at 5:56 pm
Hi Janner – Nice to meet you. Thanks for the informative response. The dermatologist told me that I am stage II because of the depth (1.2MM) and after reading some posts on here that were less than that .75 etc, I figured he was right. It was just a matter of whether I would move to Stage III with the SNB. Thanks for lifting my spirits with your information. Are you saying that I happen to come across the 1 Melanoma on my entire body? The dermatologist told me to get the surgery then come back to him in three months. I suppose that is the protocol? He did look at the rest of my mole (Maybe 6) and didn’t seem concerned, although, like I mentioned, he didn’t seem concerned about the one that came up positive. I think I need a new dermatologist. Sounds like we have similar stories, shaving, the mole on the leg, etc. Thanks Again!
-
- January 7, 2012 at 5:56 pm
Hi Janner – Nice to meet you. Thanks for the informative response. The dermatologist told me that I am stage II because of the depth (1.2MM) and after reading some posts on here that were less than that .75 etc, I figured he was right. It was just a matter of whether I would move to Stage III with the SNB. Thanks for lifting my spirits with your information. Are you saying that I happen to come across the 1 Melanoma on my entire body? The dermatologist told me to get the surgery then come back to him in three months. I suppose that is the protocol? He did look at the rest of my mole (Maybe 6) and didn’t seem concerned, although, like I mentioned, he didn’t seem concerned about the one that came up positive. I think I need a new dermatologist. Sounds like we have similar stories, shaving, the mole on the leg, etc. Thanks Again!
-
- March 29, 2016 at 3:03 am
Hi! I've seen you comment on so many posts Janner. I just live how positive you are! I have read so many negatives that I'm scared to death. Diagnosed this month with invasive 0.35 mm lesion. Scared to death of all the people
who had reoccurrences. (Never ever all those years of tanning , would have thought of this. Sure wish I could take it all back. Stupid! )
It's hard to move past this and try to live a normal
life when all the information I've read is it comes back to haunt you again.
I'm like what Kelli mentioned , didn't tell my family out of state family because I don't want them to worry and my husband doesn't understand how fatal this is. Or if he does he doesn't show it.
immreslt going through a lot of anxiety, and stress over this.
Thsnks for listening, Janner
-
- March 29, 2016 at 3:03 am
Hi! I've seen you comment on so many posts Janner. I just live how positive you are! I have read so many negatives that I'm scared to death. Diagnosed this month with invasive 0.35 mm lesion. Scared to death of all the people
who had reoccurrences. (Never ever all those years of tanning , would have thought of this. Sure wish I could take it all back. Stupid! )
It's hard to move past this and try to live a normal
life when all the information I've read is it comes back to haunt you again.
I'm like what Kelli mentioned , didn't tell my family out of state family because I don't want them to worry and my husband doesn't understand how fatal this is. Or if he does he doesn't show it.
immreslt going through a lot of anxiety, and stress over this.
Thsnks for listening, Janner
-
- March 29, 2016 at 3:03 am
Hi! I've seen you comment on so many posts Janner. I just live how positive you are! I have read so many negatives that I'm scared to death. Diagnosed this month with invasive 0.35 mm lesion. Scared to death of all the people
who had reoccurrences. (Never ever all those years of tanning , would have thought of this. Sure wish I could take it all back. Stupid! )
It's hard to move past this and try to live a normal
life when all the information I've read is it comes back to haunt you again.
I'm like what Kelli mentioned , didn't tell my family out of state family because I don't want them to worry and my husband doesn't understand how fatal this is. Or if he does he doesn't show it.
immreslt going through a lot of anxiety, and stress over this.
Thsnks for listening, Janner
-
- January 7, 2012 at 4:49 am
You've received some good replies so far. One thing I just wanted to clarify is I believe you are stage IB at the moment, not stage II. However, since your deep margin wasn't clear, the depth remains ambiguous. You can't just add any additional depth found to your current 1.2mm. Your lesion will always be referred to as "at least 1.2mm". The staging may change with the result of your SNB as your doctor indicated. Stage IB includes lesions < 2.0mm that don't have ulceration.
Only about 8% of the melanoma population EVER have more than one primary melanoma. Do any of your other moles look "different from all the rest"? Had significant asymmetrical change? The key is to watch these moles for change. But it's extremely unlikely that any of the rest of your moles are melanoma let alone all of them. Wholesale mole removal hasn't proven to decrease your changes of additional melanomas, either, as 50% of melanomas arise on new lesions.
It does get easier with time. It's hard when you're going through the shock of a diagnosis and also trying to understand all the medical jargon that goes along with it.
Best wishes,
Janner
-
- January 7, 2012 at 4:49 am
You've received some good replies so far. One thing I just wanted to clarify is I believe you are stage IB at the moment, not stage II. However, since your deep margin wasn't clear, the depth remains ambiguous. You can't just add any additional depth found to your current 1.2mm. Your lesion will always be referred to as "at least 1.2mm". The staging may change with the result of your SNB as your doctor indicated. Stage IB includes lesions < 2.0mm that don't have ulceration.
Only about 8% of the melanoma population EVER have more than one primary melanoma. Do any of your other moles look "different from all the rest"? Had significant asymmetrical change? The key is to watch these moles for change. But it's extremely unlikely that any of the rest of your moles are melanoma let alone all of them. Wholesale mole removal hasn't proven to decrease your changes of additional melanomas, either, as 50% of melanomas arise on new lesions.
It does get easier with time. It's hard when you're going through the shock of a diagnosis and also trying to understand all the medical jargon that goes along with it.
Best wishes,
Janner
-
- January 7, 2012 at 5:49 pm
Hi Kelli, my sister was a patient of Dr. Whitman at Morristown Hospital in N. J. He is a melanoma specialist and also worked at the NIH. He is a wonderful doctor and has excellent assistants as well. I would recommend him in a heartbeat. I would NOT recommend Dr. Menart (not sure of spelling) out of Robert Wood in New Brunswick. Her office was run by the Keystone Cops and very unprofessional and haphazard. I think my sister has filed a complaint against her. But I do think you would do well by Dr. Whitman and his staff at Morristown. Best of luck to you.
-
- January 7, 2012 at 6:04 pm
Hi there! Thanks so much for the information on Dr Witman. Funny you said about Robert Wood, because that was one of the recommendation that my dermatologist gave me, which has just made my decision in never going back to him again. His other suggestion was St Luke, because it's close. I don't give a sh*t where I have to go, I just want the best, which we all do. I read nothing but good things about Dr Witman and your response makes me feel even better about it. I am actually looking forward to seeing him and getting this behind me. Keep up what you are doing, for your sister! Thanks Again!
-
- January 7, 2012 at 6:04 pm
Hi there! Thanks so much for the information on Dr Witman. Funny you said about Robert Wood, because that was one of the recommendation that my dermatologist gave me, which has just made my decision in never going back to him again. His other suggestion was St Luke, because it's close. I don't give a sh*t where I have to go, I just want the best, which we all do. I read nothing but good things about Dr Witman and your response makes me feel even better about it. I am actually looking forward to seeing him and getting this behind me. Keep up what you are doing, for your sister! Thanks Again!
-
- January 7, 2012 at 6:04 pm
Hi there! Thanks so much for the information on Dr Witman. Funny you said about Robert Wood, because that was one of the recommendation that my dermatologist gave me, which has just made my decision in never going back to him again. His other suggestion was St Luke, because it's close. I don't give a sh*t where I have to go, I just want the best, which we all do. I read nothing but good things about Dr Witman and your response makes me feel even better about it. I am actually looking forward to seeing him and getting this behind me. Keep up what you are doing, for your sister! Thanks Again!
-
- January 7, 2012 at 5:49 pm
Hi Kelli, my sister was a patient of Dr. Whitman at Morristown Hospital in N. J. He is a melanoma specialist and also worked at the NIH. He is a wonderful doctor and has excellent assistants as well. I would recommend him in a heartbeat. I would NOT recommend Dr. Menart (not sure of spelling) out of Robert Wood in New Brunswick. Her office was run by the Keystone Cops and very unprofessional and haphazard. I think my sister has filed a complaint against her. But I do think you would do well by Dr. Whitman and his staff at Morristown. Best of luck to you.
-
- January 7, 2012 at 5:49 pm
Hi Kelli, my sister was a patient of Dr. Whitman at Morristown Hospital in N. J. He is a melanoma specialist and also worked at the NIH. He is a wonderful doctor and has excellent assistants as well. I would recommend him in a heartbeat. I would NOT recommend Dr. Menart (not sure of spelling) out of Robert Wood in New Brunswick. Her office was run by the Keystone Cops and very unprofessional and haphazard. I think my sister has filed a complaint against her. But I do think you would do well by Dr. Whitman and his staff at Morristown. Best of luck to you.
-
- January 7, 2012 at 7:32 pm
Hi Kelli
Sorry your here but there are a lot of people here to help you through your journey. I had to laugh when you talked about your husband's reaction. When I went over everything with my husband all he said is "You're not going to die are you?" I said I wasn't planning on it any time soon. He said OK and went back to what he was doing. It has only been in the past several months I found out from a few of his friends how scared he really was. I suppose he thought he was being brave for me, who knows?
Anyway, from the little you know about the Mel so far it doesn't look too bad. If the depth doesn't go much deeper and there hasn't been any spread, which you wouldn't expect than you are in great shape. The hardest part will be waiting to find out. By the way, at least for me, the Sentinel Node Biopsy was really and easy surgery. In-and-Out. No ill effects, other than a sore arm. I think it's a little tougher for those that have it in the groin, but shouldn't be too much worse.
Sounds like you have your head in the right place. So keep yourself busy and just try to go on with life in the meantime.
Good Luck
Mary
Stage 3
-
- January 8, 2012 at 3:49 pm
Hi Mary. Now I had to laugh at your comments. Now I wonder which is worse, what you r husband said or what mine didn’t? I am with you and lucky for him you will be around a long long time. Too funny. Agreed, the unknown is what has me the most worried. It’s like, just give it to me and let me deal. Until then, taking your advice and moving on with life…it doesn’t stop no matter what is going on. Be good…Kelli
-
- January 8, 2012 at 3:49 pm
Hi Mary. Now I had to laugh at your comments. Now I wonder which is worse, what you r husband said or what mine didn’t? I am with you and lucky for him you will be around a long long time. Too funny. Agreed, the unknown is what has me the most worried. It’s like, just give it to me and let me deal. Until then, taking your advice and moving on with life…it doesn’t stop no matter what is going on. Be good…Kelli
-
- January 8, 2012 at 3:49 pm
Hi Mary. Now I had to laugh at your comments. Now I wonder which is worse, what you r husband said or what mine didn’t? I am with you and lucky for him you will be around a long long time. Too funny. Agreed, the unknown is what has me the most worried. It’s like, just give it to me and let me deal. Until then, taking your advice and moving on with life…it doesn’t stop no matter what is going on. Be good…Kelli
-
- January 7, 2012 at 7:32 pm
Hi Kelli
Sorry your here but there are a lot of people here to help you through your journey. I had to laugh when you talked about your husband's reaction. When I went over everything with my husband all he said is "You're not going to die are you?" I said I wasn't planning on it any time soon. He said OK and went back to what he was doing. It has only been in the past several months I found out from a few of his friends how scared he really was. I suppose he thought he was being brave for me, who knows?
Anyway, from the little you know about the Mel so far it doesn't look too bad. If the depth doesn't go much deeper and there hasn't been any spread, which you wouldn't expect than you are in great shape. The hardest part will be waiting to find out. By the way, at least for me, the Sentinel Node Biopsy was really and easy surgery. In-and-Out. No ill effects, other than a sore arm. I think it's a little tougher for those that have it in the groin, but shouldn't be too much worse.
Sounds like you have your head in the right place. So keep yourself busy and just try to go on with life in the meantime.
Good Luck
Mary
Stage 3
-
- January 7, 2012 at 7:32 pm
Hi Kelli
Sorry your here but there are a lot of people here to help you through your journey. I had to laugh when you talked about your husband's reaction. When I went over everything with my husband all he said is "You're not going to die are you?" I said I wasn't planning on it any time soon. He said OK and went back to what he was doing. It has only been in the past several months I found out from a few of his friends how scared he really was. I suppose he thought he was being brave for me, who knows?
Anyway, from the little you know about the Mel so far it doesn't look too bad. If the depth doesn't go much deeper and there hasn't been any spread, which you wouldn't expect than you are in great shape. The hardest part will be waiting to find out. By the way, at least for me, the Sentinel Node Biopsy was really and easy surgery. In-and-Out. No ill effects, other than a sore arm. I think it's a little tougher for those that have it in the groin, but shouldn't be too much worse.
Sounds like you have your head in the right place. So keep yourself busy and just try to go on with life in the meantime.
Good Luck
Mary
Stage 3
-
- January 7, 2012 at 9:55 pm
Here is a GRAPHIC video of the sentinel biopsy as well as an explanation of the process.
If you are a bit uneasy about watching a live surgical proceedure, just turn your head away and listen to the audio.
Okay with that graphic warning ! http://www.youtube.com/watch?v=tU6C-76iQls&feature=relmfu
Cheers,
Charlie S
-
- January 7, 2012 at 9:55 pm
Here is a GRAPHIC video of the sentinel biopsy as well as an explanation of the process.
If you are a bit uneasy about watching a live surgical proceedure, just turn your head away and listen to the audio.
Okay with that graphic warning ! http://www.youtube.com/watch?v=tU6C-76iQls&feature=relmfu
Cheers,
Charlie S
-
- January 7, 2012 at 9:55 pm
Here is a GRAPHIC video of the sentinel biopsy as well as an explanation of the process.
If you are a bit uneasy about watching a live surgical proceedure, just turn your head away and listen to the audio.
Okay with that graphic warning ! http://www.youtube.com/watch?v=tU6C-76iQls&feature=relmfu
Cheers,
Charlie S
-
- January 8, 2012 at 4:02 am
Hi Kelli,
I found your thread, so thought I would reply here instead, and read all your replies, which are so nice.
So glad you had a good day – your daughter sounds so sweet! My older daughter wanted us to donate my younger daughter's hair to Locks of Love when she was 3 – her hair was already to her butt, but even cutting a lot wasn't long enough then.
I got the dreaded paper in the mail with all the jargon, so today kind of sucked for me, plus my daughter is watching me like a hawk to see if I'm acting any different and my 15 year old is ignoring me. My husband is really sad today, I might like the "ridiculous" attitude better – ha ha.
What time of the year were you in Minnesota last year? What did you think? I tell my east coast friends that its Maine, without an ocean, but you have to go more north to make that connection.
Sending my thoughts and prayers to you, and everyone here – Paula
-
- January 8, 2012 at 4:00 pm
Hi Paula – Sorry you didn’t have a good day, getting the paper and all. All this waiting sux, and try not to (and I know it’s hard) think about it. You will have more answers this week at your appointment. Your 15 year old is ignoring you? Based on my experience with teenagers (I am an aunt) would she be ignoring your regardless of what was going on (ha ha). I suppose everyone just needs time to register and get their head around what is going on and their reactions are based out of love. They love you and it, at times, is always harder for those…..because we feel helpless. My mom is my everything and I remember when she was diagnosed with Thyroid cancer, I was so sad because there was NOTHING I could do but hope for the best. It’s tough for those around you, but if YOU continue maintaining a positive attitude, they will be fine!
I was in Minneapolis October of 2009, little more than a year. One of my accounts that I handle is Target, so we were there visiting our office supporting that account. I must say, it’s a beautiful city, I love all the underground tunnels to get from building to building, although their purpose, I am not a fan of (the weather conditions). The view from our office was great, Target field (where the baseball team plays) and we stayed at the Marriott. I was there for 3 days and gained 3 pounds….food amazing!!
Be strong and we shall talk soon!
-
- January 8, 2012 at 11:33 pm
Hi Kelli,
Nice to meet you, sorry about the circumstances.
I just want to share with you that I live on Long Island and work in NYC. After starting at North Shore University Hospital, i switched to Sloan Kettering. I think the world of my doctors at Sloan…my derm's name is Alan Halpern; my onc's name is Jedd Wolchok. He's one of the researchers that brought Yervoy to FDA approval. I can't recommend them highly enough. They both have great bedside manners and make a great team.
I did have a consult w/a surgeon there, but it was determined that my mel couldn't be re-sected again. (I had wide margin resection w/negative SNB in Oct. '10, at North Shore and by Feb. 11 it had recurred in the same location.) It's a good thing that so many people on this board say "don't look back," or I'd constantly be asking myself if I had had the original surgery at Sloan, would it have recurred.
All the best to you; I'm looking forward to reading about your progress.
karen
-
- January 9, 2012 at 12:04 pm
Hi Karen – Thanks for reaching out and sharing your story. Because I am new to this, are you saying that they (North Shore) originally did the wide margin SNB, that came back negative however melanoma re-appeared in the same area and North Shore told you nothing could be done? Did it come back as another mole? What has happened since the reappearance? How was that treated? You certainly gave me additional questions to ask when I see the surgeon on Thursday. Thanks for the information.
Kelli
-
- January 10, 2012 at 9:27 pm
Hi Kelli…sorry this took so long. You're correct about what was originally done, but the fact is that when I did go back to N. Shore after the recurrence (an area of clustered moles w/smaller satellites near it), I just hated the doctor's attitude (first he thought I didn't have appt, then he didn't have derm's report (luckilly she was in her office & I had them faxed over immediagely.) so instead of going home & rescheduling, i went & sat in a room & waited for him. He still wanted to "go over biopsy results & talk later in the week." Well, the results were right in front of his face! So I asked for all my records and started calling Sloan. And I wasn't at all assertive before!
It still wasn't/isn't in my lymph nodes, but I'm considered stage IIIc, unresectible, because of the satellites.
So, anyhow, since then I've had localized radiation (at most, held it at bay for a few weeks), then Yervoy, which I believe I partially responsed to, then high dose IL-2, which at first they thought I was responding to, but now don't think so. I have a post called "update" which spells out what my next course of treatment "probably" is–will know more after Monday.
All the best,
karen
-
- January 10, 2012 at 9:27 pm
Hi Kelli…sorry this took so long. You're correct about what was originally done, but the fact is that when I did go back to N. Shore after the recurrence (an area of clustered moles w/smaller satellites near it), I just hated the doctor's attitude (first he thought I didn't have appt, then he didn't have derm's report (luckilly she was in her office & I had them faxed over immediagely.) so instead of going home & rescheduling, i went & sat in a room & waited for him. He still wanted to "go over biopsy results & talk later in the week." Well, the results were right in front of his face! So I asked for all my records and started calling Sloan. And I wasn't at all assertive before!
It still wasn't/isn't in my lymph nodes, but I'm considered stage IIIc, unresectible, because of the satellites.
So, anyhow, since then I've had localized radiation (at most, held it at bay for a few weeks), then Yervoy, which I believe I partially responsed to, then high dose IL-2, which at first they thought I was responding to, but now don't think so. I have a post called "update" which spells out what my next course of treatment "probably" is–will know more after Monday.
All the best,
karen
-
- January 10, 2012 at 9:27 pm
Hi Kelli…sorry this took so long. You're correct about what was originally done, but the fact is that when I did go back to N. Shore after the recurrence (an area of clustered moles w/smaller satellites near it), I just hated the doctor's attitude (first he thought I didn't have appt, then he didn't have derm's report (luckilly she was in her office & I had them faxed over immediagely.) so instead of going home & rescheduling, i went & sat in a room & waited for him. He still wanted to "go over biopsy results & talk later in the week." Well, the results were right in front of his face! So I asked for all my records and started calling Sloan. And I wasn't at all assertive before!
It still wasn't/isn't in my lymph nodes, but I'm considered stage IIIc, unresectible, because of the satellites.
So, anyhow, since then I've had localized radiation (at most, held it at bay for a few weeks), then Yervoy, which I believe I partially responsed to, then high dose IL-2, which at first they thought I was responding to, but now don't think so. I have a post called "update" which spells out what my next course of treatment "probably" is–will know more after Monday.
All the best,
karen
-
- January 9, 2012 at 12:04 pm
Hi Karen – Thanks for reaching out and sharing your story. Because I am new to this, are you saying that they (North Shore) originally did the wide margin SNB, that came back negative however melanoma re-appeared in the same area and North Shore told you nothing could be done? Did it come back as another mole? What has happened since the reappearance? How was that treated? You certainly gave me additional questions to ask when I see the surgeon on Thursday. Thanks for the information.
Kelli
-
- January 9, 2012 at 12:04 pm
Hi Karen – Thanks for reaching out and sharing your story. Because I am new to this, are you saying that they (North Shore) originally did the wide margin SNB, that came back negative however melanoma re-appeared in the same area and North Shore told you nothing could be done? Did it come back as another mole? What has happened since the reappearance? How was that treated? You certainly gave me additional questions to ask when I see the surgeon on Thursday. Thanks for the information.
Kelli
-
- January 8, 2012 at 11:33 pm
Hi Kelli,
Nice to meet you, sorry about the circumstances.
I just want to share with you that I live on Long Island and work in NYC. After starting at North Shore University Hospital, i switched to Sloan Kettering. I think the world of my doctors at Sloan…my derm's name is Alan Halpern; my onc's name is Jedd Wolchok. He's one of the researchers that brought Yervoy to FDA approval. I can't recommend them highly enough. They both have great bedside manners and make a great team.
I did have a consult w/a surgeon there, but it was determined that my mel couldn't be re-sected again. (I had wide margin resection w/negative SNB in Oct. '10, at North Shore and by Feb. 11 it had recurred in the same location.) It's a good thing that so many people on this board say "don't look back," or I'd constantly be asking myself if I had had the original surgery at Sloan, would it have recurred.
All the best to you; I'm looking forward to reading about your progress.
karen
-
- January 8, 2012 at 11:33 pm
Hi Kelli,
Nice to meet you, sorry about the circumstances.
I just want to share with you that I live on Long Island and work in NYC. After starting at North Shore University Hospital, i switched to Sloan Kettering. I think the world of my doctors at Sloan…my derm's name is Alan Halpern; my onc's name is Jedd Wolchok. He's one of the researchers that brought Yervoy to FDA approval. I can't recommend them highly enough. They both have great bedside manners and make a great team.
I did have a consult w/a surgeon there, but it was determined that my mel couldn't be re-sected again. (I had wide margin resection w/negative SNB in Oct. '10, at North Shore and by Feb. 11 it had recurred in the same location.) It's a good thing that so many people on this board say "don't look back," or I'd constantly be asking myself if I had had the original surgery at Sloan, would it have recurred.
All the best to you; I'm looking forward to reading about your progress.
karen
-
- January 9, 2012 at 5:18 pm
Hi again, how are you doing today?
My 15 year old is a boy and he usually doesn't ignore me, but I've been through the teenager stuff already so I know that every day is a mystery to them and me. He's very good in school, but last night we got an email from a teacher that said he didn't bother to do an important assignment last week. We were careful with what we said, but I'm sure he senses something.
I'm so sorry that you went through that with your mom. My neighbor had thyroid cancer last year, but now she's fine and better than ever after they did that thing to check it after it was removed (with radioactive dye I think). I'm thinking your mom must be okay now too?
Minneapolis is a fun city, I'm glad you liked it, and the food. Target likes to keep us from having to shop anywhere else now, they put groceries in all the stores now. I hope they are nice to work with.
Sounds like you have many good doctors in your area – I'll find one here too. Going to reply to you on the other thread now – this week we'll be a little further and hopefully less scared. Hugs to you Kelli
-
- January 9, 2012 at 5:18 pm
Hi again, how are you doing today?
My 15 year old is a boy and he usually doesn't ignore me, but I've been through the teenager stuff already so I know that every day is a mystery to them and me. He's very good in school, but last night we got an email from a teacher that said he didn't bother to do an important assignment last week. We were careful with what we said, but I'm sure he senses something.
I'm so sorry that you went through that with your mom. My neighbor had thyroid cancer last year, but now she's fine and better than ever after they did that thing to check it after it was removed (with radioactive dye I think). I'm thinking your mom must be okay now too?
Minneapolis is a fun city, I'm glad you liked it, and the food. Target likes to keep us from having to shop anywhere else now, they put groceries in all the stores now. I hope they are nice to work with.
Sounds like you have many good doctors in your area – I'll find one here too. Going to reply to you on the other thread now – this week we'll be a little further and hopefully less scared. Hugs to you Kelli
-
- January 9, 2012 at 5:18 pm
Hi again, how are you doing today?
My 15 year old is a boy and he usually doesn't ignore me, but I've been through the teenager stuff already so I know that every day is a mystery to them and me. He's very good in school, but last night we got an email from a teacher that said he didn't bother to do an important assignment last week. We were careful with what we said, but I'm sure he senses something.
I'm so sorry that you went through that with your mom. My neighbor had thyroid cancer last year, but now she's fine and better than ever after they did that thing to check it after it was removed (with radioactive dye I think). I'm thinking your mom must be okay now too?
Minneapolis is a fun city, I'm glad you liked it, and the food. Target likes to keep us from having to shop anywhere else now, they put groceries in all the stores now. I hope they are nice to work with.
Sounds like you have many good doctors in your area – I'll find one here too. Going to reply to you on the other thread now – this week we'll be a little further and hopefully less scared. Hugs to you Kelli
-
- January 8, 2012 at 4:00 pm
Hi Paula – Sorry you didn’t have a good day, getting the paper and all. All this waiting sux, and try not to (and I know it’s hard) think about it. You will have more answers this week at your appointment. Your 15 year old is ignoring you? Based on my experience with teenagers (I am an aunt) would she be ignoring your regardless of what was going on (ha ha). I suppose everyone just needs time to register and get their head around what is going on and their reactions are based out of love. They love you and it, at times, is always harder for those…..because we feel helpless. My mom is my everything and I remember when she was diagnosed with Thyroid cancer, I was so sad because there was NOTHING I could do but hope for the best. It’s tough for those around you, but if YOU continue maintaining a positive attitude, they will be fine!
I was in Minneapolis October of 2009, little more than a year. One of my accounts that I handle is Target, so we were there visiting our office supporting that account. I must say, it’s a beautiful city, I love all the underground tunnels to get from building to building, although their purpose, I am not a fan of (the weather conditions). The view from our office was great, Target field (where the baseball team plays) and we stayed at the Marriott. I was there for 3 days and gained 3 pounds….food amazing!!
Be strong and we shall talk soon!
-
- January 8, 2012 at 4:00 pm
Hi Paula – Sorry you didn’t have a good day, getting the paper and all. All this waiting sux, and try not to (and I know it’s hard) think about it. You will have more answers this week at your appointment. Your 15 year old is ignoring you? Based on my experience with teenagers (I am an aunt) would she be ignoring your regardless of what was going on (ha ha). I suppose everyone just needs time to register and get their head around what is going on and their reactions are based out of love. They love you and it, at times, is always harder for those…..because we feel helpless. My mom is my everything and I remember when she was diagnosed with Thyroid cancer, I was so sad because there was NOTHING I could do but hope for the best. It’s tough for those around you, but if YOU continue maintaining a positive attitude, they will be fine!
I was in Minneapolis October of 2009, little more than a year. One of my accounts that I handle is Target, so we were there visiting our office supporting that account. I must say, it’s a beautiful city, I love all the underground tunnels to get from building to building, although their purpose, I am not a fan of (the weather conditions). The view from our office was great, Target field (where the baseball team plays) and we stayed at the Marriott. I was there for 3 days and gained 3 pounds….food amazing!!
Be strong and we shall talk soon!
-
- January 8, 2012 at 4:02 am
Hi Kelli,
I found your thread, so thought I would reply here instead, and read all your replies, which are so nice.
So glad you had a good day – your daughter sounds so sweet! My older daughter wanted us to donate my younger daughter's hair to Locks of Love when she was 3 – her hair was already to her butt, but even cutting a lot wasn't long enough then.
I got the dreaded paper in the mail with all the jargon, so today kind of sucked for me, plus my daughter is watching me like a hawk to see if I'm acting any different and my 15 year old is ignoring me. My husband is really sad today, I might like the "ridiculous" attitude better – ha ha.
What time of the year were you in Minnesota last year? What did you think? I tell my east coast friends that its Maine, without an ocean, but you have to go more north to make that connection.
Sending my thoughts and prayers to you, and everyone here – Paula
-
- January 8, 2012 at 4:02 am
Hi Kelli,
I found your thread, so thought I would reply here instead, and read all your replies, which are so nice.
So glad you had a good day – your daughter sounds so sweet! My older daughter wanted us to donate my younger daughter's hair to Locks of Love when she was 3 – her hair was already to her butt, but even cutting a lot wasn't long enough then.
I got the dreaded paper in the mail with all the jargon, so today kind of sucked for me, plus my daughter is watching me like a hawk to see if I'm acting any different and my 15 year old is ignoring me. My husband is really sad today, I might like the "ridiculous" attitude better – ha ha.
What time of the year were you in Minnesota last year? What did you think? I tell my east coast friends that its Maine, without an ocean, but you have to go more north to make that connection.
Sending my thoughts and prayers to you, and everyone here – Paula
-
- January 9, 2012 at 4:44 am
Hi Kelli – Boy I feel your pain. I too, am 42, I have 3 children, and I TOO am in New Jersey. The craziness in your head – I know that all too well. My melanoma 1.01, I was diagnosed January 5, 2011 ( yes 1 year ago this week) I had the dye test done. It is a sentinal node biopsy. The devastation that I felt was that everyone was so sure I was going to have clean lymph nodes. That wasnt the case. Not the worst, but they did find a few cells in the sentinal node. So I didnt need treatment. Because this disease is so unpredictible, I went to NYU for a second opinion and basically heard the same from them as I did in NJ. I do go to Robert Wood – CINJ ( I see Dr. Goydos there) I am comfortable with my doctor, his nurses, practitioner etc. I do know people have difference of opinions on here with doctors..I guess you find that in everything. My mom was treated there for years, her doctor in CINJ gave her 5 more years when her original oncologist was giving her hospice. My other thought was to head to Sloan for a 3rd opinion…!
I go for CT scans every six months to make sure that all is okay. That makes me feel a bit more comfortable knowing that I am getting something done to be "sure" that MEL isnt sneaking up on me. Actually I am due for the tests this month, keep your fingers crossed !
My email is [email protected] if you want to email me. Our Melanoma seems to be very similar ! Keep smiling, it does get better. Last year at this time, I was hearing the same stuff you are right now, and I thought there was NO way it was going to get better. It does. I still think about it lots, but it lightens up. Trust me.
Keep in touch and keep us posted ! Prayers for you and your healing
Kathy 3a
-
- January 9, 2012 at 12:16 pm
Hi Kathy! Nice to meet you and sharing your experience. Just to clarify, they did find cells in the lymph node, just the one or did they remove more. Also did you mean to say that you ‘did’ need treatment? or didn’t? I plan on doing the same as you, regardless of the results of the SNB, CT scans. I really feel that a lot of times you take your health into your own hands. I rather get EVERYTHING done than sit around assuming everything is ok and then it’s too late. I was the chick getting mammography’s at 35, because there is always that 1 case….and I don’t want to be that one case. I never thought to get an opinion from Sloan, however, from everything I have heard (even outside of this disease), Sloan comes with high recommendations so may be something I want to look into too. You are so right with the unpredictability. The more posts and messages I read on here, it really puts things into perspective and seems no two cases are EXACTLY the same, which scares me a little more. I am happy to hear that after a year you are doing well, and continue to maintain your health. I will believe you that it does get b etter. Just feeling a little ‘alone’ right now, but you definitely made me feel better. Thank you! (I saved your email : ) )
Kelli
-
- January 9, 2012 at 12:16 pm
Hi Kathy! Nice to meet you and sharing your experience. Just to clarify, they did find cells in the lymph node, just the one or did they remove more. Also did you mean to say that you ‘did’ need treatment? or didn’t? I plan on doing the same as you, regardless of the results of the SNB, CT scans. I really feel that a lot of times you take your health into your own hands. I rather get EVERYTHING done than sit around assuming everything is ok and then it’s too late. I was the chick getting mammography’s at 35, because there is always that 1 case….and I don’t want to be that one case. I never thought to get an opinion from Sloan, however, from everything I have heard (even outside of this disease), Sloan comes with high recommendations so may be something I want to look into too. You are so right with the unpredictability. The more posts and messages I read on here, it really puts things into perspective and seems no two cases are EXACTLY the same, which scares me a little more. I am happy to hear that after a year you are doing well, and continue to maintain your health. I will believe you that it does get b etter. Just feeling a little ‘alone’ right now, but you definitely made me feel better. Thank you! (I saved your email : ) )
Kelli
-
- January 9, 2012 at 12:16 pm
Hi Kathy! Nice to meet you and sharing your experience. Just to clarify, they did find cells in the lymph node, just the one or did they remove more. Also did you mean to say that you ‘did’ need treatment? or didn’t? I plan on doing the same as you, regardless of the results of the SNB, CT scans. I really feel that a lot of times you take your health into your own hands. I rather get EVERYTHING done than sit around assuming everything is ok and then it’s too late. I was the chick getting mammography’s at 35, because there is always that 1 case….and I don’t want to be that one case. I never thought to get an opinion from Sloan, however, from everything I have heard (even outside of this disease), Sloan comes with high recommendations so may be something I want to look into too. You are so right with the unpredictability. The more posts and messages I read on here, it really puts things into perspective and seems no two cases are EXACTLY the same, which scares me a little more. I am happy to hear that after a year you are doing well, and continue to maintain your health. I will believe you that it does get b etter. Just feeling a little ‘alone’ right now, but you definitely made me feel better. Thank you! (I saved your email : ) )
Kelli
-
- January 9, 2012 at 4:44 am
Hi Kelli – Boy I feel your pain. I too, am 42, I have 3 children, and I TOO am in New Jersey. The craziness in your head – I know that all too well. My melanoma 1.01, I was diagnosed January 5, 2011 ( yes 1 year ago this week) I had the dye test done. It is a sentinal node biopsy. The devastation that I felt was that everyone was so sure I was going to have clean lymph nodes. That wasnt the case. Not the worst, but they did find a few cells in the sentinal node. So I didnt need treatment. Because this disease is so unpredictible, I went to NYU for a second opinion and basically heard the same from them as I did in NJ. I do go to Robert Wood – CINJ ( I see Dr. Goydos there) I am comfortable with my doctor, his nurses, practitioner etc. I do know people have difference of opinions on here with doctors..I guess you find that in everything. My mom was treated there for years, her doctor in CINJ gave her 5 more years when her original oncologist was giving her hospice. My other thought was to head to Sloan for a 3rd opinion…!
I go for CT scans every six months to make sure that all is okay. That makes me feel a bit more comfortable knowing that I am getting something done to be "sure" that MEL isnt sneaking up on me. Actually I am due for the tests this month, keep your fingers crossed !
My email is [email protected] if you want to email me. Our Melanoma seems to be very similar ! Keep smiling, it does get better. Last year at this time, I was hearing the same stuff you are right now, and I thought there was NO way it was going to get better. It does. I still think about it lots, but it lightens up. Trust me.
Keep in touch and keep us posted ! Prayers for you and your healing
Kathy 3a
-
- January 9, 2012 at 4:44 am
Hi Kelli – Boy I feel your pain. I too, am 42, I have 3 children, and I TOO am in New Jersey. The craziness in your head – I know that all too well. My melanoma 1.01, I was diagnosed January 5, 2011 ( yes 1 year ago this week) I had the dye test done. It is a sentinal node biopsy. The devastation that I felt was that everyone was so sure I was going to have clean lymph nodes. That wasnt the case. Not the worst, but they did find a few cells in the sentinal node. So I didnt need treatment. Because this disease is so unpredictible, I went to NYU for a second opinion and basically heard the same from them as I did in NJ. I do go to Robert Wood – CINJ ( I see Dr. Goydos there) I am comfortable with my doctor, his nurses, practitioner etc. I do know people have difference of opinions on here with doctors..I guess you find that in everything. My mom was treated there for years, her doctor in CINJ gave her 5 more years when her original oncologist was giving her hospice. My other thought was to head to Sloan for a 3rd opinion…!
I go for CT scans every six months to make sure that all is okay. That makes me feel a bit more comfortable knowing that I am getting something done to be "sure" that MEL isnt sneaking up on me. Actually I am due for the tests this month, keep your fingers crossed !
My email is [email protected] if you want to email me. Our Melanoma seems to be very similar ! Keep smiling, it does get better. Last year at this time, I was hearing the same stuff you are right now, and I thought there was NO way it was going to get better. It does. I still think about it lots, but it lightens up. Trust me.
Keep in touch and keep us posted ! Prayers for you and your healing
Kathy 3a
-
- January 9, 2012 at 4:45 am
Hi Kelli – Boy I feel your pain. I too, am 42, I have 3 children, and I TOO am in New Jersey. The craziness in your head – I know that all too well. My melanoma 1.01, I was diagnosed January 5, 2011 ( yes 1 year ago this week) I had the dye test done. It is a sentinal node biopsy. The devastation that I felt was that everyone was so sure I was going to have clean lymph nodes. That wasnt the case. Not the worst, but they did find a few cells in the sentinal node. So I didnt need treatment. Because this disease is so unpredictible, I went to NYU for a second opinion and basically heard the same from them as I did in NJ. I do go to Robert Wood – CINJ ( I see Dr. Goydos there) I am comfortable with my doctor, his nurses, practitioner etc. I do know people have difference of opinions on here with doctors..I guess you find that in everything. My mom was treated there for years, her doctor in CINJ gave her 5 more years when her original oncologist was giving her hospice. My other thought was to head to Sloan for a 3rd opinion…!
I go for CT scans every six months to make sure that all is okay. That makes me feel a bit more comfortable knowing that I am getting something done to be "sure" that MEL isnt sneaking up on me. Actually I am due for the tests this month, keep your fingers crossed !
My email is kjkbrann @ aol.com if you want to email me. Our Melanoma seems to be very similar ! Keep smiling, it does get better. Last year at this time, I was hearing the same stuff you are right now, and I thought there was NO way it was going to get better. It does. I still think about it lots, but it lightens up. Trust me.
Keep in touch and keep us posted ! Prayers for you and your healing
Kathy 3a
-
- February 29, 2012 at 4:16 am
Hi Kathy…
I just stumbled upon your post here and we have a lot in common… I am 40, with 3 kids, primary on back and also 3A…with micrometasis in SNL (oncologist said barely eeking in there to be 3A but 3A all the same)..you are the closest person I have found so similar. The first post I read was about your back issue…funny, I had gone initially to the doctor for an MRI and sciatic nerve issues and just a feeling that something wasn't right…found Melanoma as well and I have been panicked with EVERYTHING that doesn't seem right now…it's a daily battle and I never was a hypocondriac…but now feel like I go crazy some days. Just got a prescription for Zoloft finally so hopefully I will calm down some. I am so glad to read you say the feelings coming along with this do get better in time…
~Jennifer
-
- February 29, 2012 at 4:16 am
Hi Kathy…
I just stumbled upon your post here and we have a lot in common… I am 40, with 3 kids, primary on back and also 3A…with micrometasis in SNL (oncologist said barely eeking in there to be 3A but 3A all the same)..you are the closest person I have found so similar. The first post I read was about your back issue…funny, I had gone initially to the doctor for an MRI and sciatic nerve issues and just a feeling that something wasn't right…found Melanoma as well and I have been panicked with EVERYTHING that doesn't seem right now…it's a daily battle and I never was a hypocondriac…but now feel like I go crazy some days. Just got a prescription for Zoloft finally so hopefully I will calm down some. I am so glad to read you say the feelings coming along with this do get better in time…
~Jennifer
-
- February 29, 2012 at 4:16 am
Hi Kathy…
I just stumbled upon your post here and we have a lot in common… I am 40, with 3 kids, primary on back and also 3A…with micrometasis in SNL (oncologist said barely eeking in there to be 3A but 3A all the same)..you are the closest person I have found so similar. The first post I read was about your back issue…funny, I had gone initially to the doctor for an MRI and sciatic nerve issues and just a feeling that something wasn't right…found Melanoma as well and I have been panicked with EVERYTHING that doesn't seem right now…it's a daily battle and I never was a hypocondriac…but now feel like I go crazy some days. Just got a prescription for Zoloft finally so hopefully I will calm down some. I am so glad to read you say the feelings coming along with this do get better in time…
~Jennifer
-
- January 9, 2012 at 4:45 am
Hi Kelli – Boy I feel your pain. I too, am 42, I have 3 children, and I TOO am in New Jersey. The craziness in your head – I know that all too well. My melanoma 1.01, I was diagnosed January 5, 2011 ( yes 1 year ago this week) I had the dye test done. It is a sentinal node biopsy. The devastation that I felt was that everyone was so sure I was going to have clean lymph nodes. That wasnt the case. Not the worst, but they did find a few cells in the sentinal node. So I didnt need treatment. Because this disease is so unpredictible, I went to NYU for a second opinion and basically heard the same from them as I did in NJ. I do go to Robert Wood – CINJ ( I see Dr. Goydos there) I am comfortable with my doctor, his nurses, practitioner etc. I do know people have difference of opinions on here with doctors..I guess you find that in everything. My mom was treated there for years, her doctor in CINJ gave her 5 more years when her original oncologist was giving her hospice. My other thought was to head to Sloan for a 3rd opinion…!
I go for CT scans every six months to make sure that all is okay. That makes me feel a bit more comfortable knowing that I am getting something done to be "sure" that MEL isnt sneaking up on me. Actually I am due for the tests this month, keep your fingers crossed !
My email is kjkbrann @ aol.com if you want to email me. Our Melanoma seems to be very similar ! Keep smiling, it does get better. Last year at this time, I was hearing the same stuff you are right now, and I thought there was NO way it was going to get better. It does. I still think about it lots, but it lightens up. Trust me.
Keep in touch and keep us posted ! Prayers for you and your healing
Kathy 3a
-
- January 9, 2012 at 4:45 am
Hi Kelli – Boy I feel your pain. I too, am 42, I have 3 children, and I TOO am in New Jersey. The craziness in your head – I know that all too well. My melanoma 1.01, I was diagnosed January 5, 2011 ( yes 1 year ago this week) I had the dye test done. It is a sentinal node biopsy. The devastation that I felt was that everyone was so sure I was going to have clean lymph nodes. That wasnt the case. Not the worst, but they did find a few cells in the sentinal node. So I didnt need treatment. Because this disease is so unpredictible, I went to NYU for a second opinion and basically heard the same from them as I did in NJ. I do go to Robert Wood – CINJ ( I see Dr. Goydos there) I am comfortable with my doctor, his nurses, practitioner etc. I do know people have difference of opinions on here with doctors..I guess you find that in everything. My mom was treated there for years, her doctor in CINJ gave her 5 more years when her original oncologist was giving her hospice. My other thought was to head to Sloan for a 3rd opinion…!
I go for CT scans every six months to make sure that all is okay. That makes me feel a bit more comfortable knowing that I am getting something done to be "sure" that MEL isnt sneaking up on me. Actually I am due for the tests this month, keep your fingers crossed !
My email is kjkbrann @ aol.com if you want to email me. Our Melanoma seems to be very similar ! Keep smiling, it does get better. Last year at this time, I was hearing the same stuff you are right now, and I thought there was NO way it was going to get better. It does. I still think about it lots, but it lightens up. Trust me.
Keep in touch and keep us posted ! Prayers for you and your healing
Kathy 3a
-
- January 12, 2012 at 4:12 pm
Just wanted to write to say I hope your surgeon appt. goes well today – thinking about you
-
- January 12, 2012 at 5:41 pm
Hi, how's my J3P? Thanks for your thoughts. How are you today? My appt is at 2:15p. I have my questions and let ya know what comes out of it. Hope you are having a good day! Kelli
-
- January 12, 2012 at 5:41 pm
Hi, how's my J3P? Thanks for your thoughts. How are you today? My appt is at 2:15p. I have my questions and let ya know what comes out of it. Hope you are having a good day! Kelli
-
- January 12, 2012 at 5:41 pm
Hi, how's my J3P? Thanks for your thoughts. How are you today? My appt is at 2:15p. I have my questions and let ya know what comes out of it. Hope you are having a good day! Kelli
-
- February 29, 2012 at 4:36 am
Hi Kelli…
I read later your SNL was clear? I was diagnosed at right around the same time as you and was terrified… still in the process… I do say watch everything… at least you can breathe a bit better in doing so with a lot better odds but I just think never take for granted anything and check check check…
-
- February 29, 2012 at 4:36 am
Hi Kelli…
I read later your SNL was clear? I was diagnosed at right around the same time as you and was terrified… still in the process… I do say watch everything… at least you can breathe a bit better in doing so with a lot better odds but I just think never take for granted anything and check check check…
-
- February 29, 2012 at 4:36 am
Hi Kelli…
I read later your SNL was clear? I was diagnosed at right around the same time as you and was terrified… still in the process… I do say watch everything… at least you can breathe a bit better in doing so with a lot better odds but I just think never take for granted anything and check check check…
-
Tagged: cutaneous melanoma
- You must be logged in to reply to this topic.