MRF-Logo2019-Horizontal-RGB
Gmma Knife, Steriods, etc
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Gmma Knife, Steriods, etc

› Forums › General Melanoma Community › Gmma Knife, Steriods, etc

  • Post
    • November 14, 2011 at 6:33 pm
    Lisa13
    Participant

      I met with my radiologist today to discuss the procedure of gamma knife tomorrow. He said my tumour (2cms) is showing no signs of edema which is unusual for most brain tumours.  That being said, he was going to give me or perscribe me the steriod in case there is an inflammation/edema after gamma knife treatment.  For those of you who have done gamma knife, did you take this steriod?  I'm not a big fan of taking things like that, but do understand that they're needed at times.  Maybe this is standard for larger tumours than small ones. 

      I met with my radiologist today to discuss the procedure of gamma knife tomorrow. He said my tumour (2cms) is showing no signs of edema which is unusual for most brain tumours.  That being said, he was going to give me or perscribe me the steriod in case there is an inflammation/edema after gamma knife treatment.  For those of you who have done gamma knife, did you take this steriod?  I'm not a big fan of taking things like that, but do understand that they're needed at times.  Maybe this is standard for larger tumours than small ones. 

      I also met with my clinical nurse today who told me to continue to be optimistic – especially in terms of keeping the immune system strong. Although ipi doesn't travel into the brain from your blood, lymphocytes can go in there and work some magic. She has seen some people who have developed brain tumours after ipi, but ipi has helped these tumours from growing. 

      Lisa

    Viewing 5 reply threads
    • Replies
        • November 15, 2011 at 1:34 am
        Fen
        Participant

          I don't have an answer to your steroid question, Lisa, but I certainly agree with your nurse. I think that keeping your stress in check can help your immune system. The Catch 22 for us cancer people, though.  

          Sending prayers and good vibes for your procedure.

          Fen

          • November 15, 2011 at 1:34 am
          Fen
          Participant

            I don't have an answer to your steroid question, Lisa, but I certainly agree with your nurse. I think that keeping your stress in check can help your immune system. The Catch 22 for us cancer people, though.  

            Sending prayers and good vibes for your procedure.

            Fen

            • November 15, 2011 at 1:34 am
            Fen
            Participant

              I don't have an answer to your steroid question, Lisa, but I certainly agree with your nurse. I think that keeping your stress in check can help your immune system. The Catch 22 for us cancer people, though.  

              Sending prayers and good vibes for your procedure.

              Fen

              • November 15, 2011 at 3:51 am
              Blueyes
              Participant

                Lisa, great news that there is no edema! I am a IV with brain & abdominal mets. I have had 2 gammas and have been on and off steroids for the past 2+ years. I hate them with a passion, but for me they were a necessary evil. Side effects include sleepless nights, anxiety, depression and a whole lot of anger. Thankfully, I wasn't on them for long periods of time and was tapered down. NOT taking them caused headaches for me. As of now, I have had no further recurrences or problems since my last craniotomy in October 2010. At that time it was to clean out necrotic tissue. Stay strong and positive! This is manageable! I was on a trial with an ipi combination for abdominal tumors in 2009, shortly after brain mets were found. So far, so good and I plan to keep it that way! Hopefully your dose will be low enough as to not cause severe problems. Let me know what happens!

                Kelly

                  • November 15, 2011 at 7:42 am
                  JerryfromFauq
                  Participant

                    Well Blueeyes, good to hear from you again.  glad to hear things are going well for you now.

                    • November 15, 2011 at 7:42 am
                    JerryfromFauq
                    Participant

                      Well Blueeyes, good to hear from you again.  glad to hear things are going well for you now.

                      • November 15, 2011 at 7:42 am
                      JerryfromFauq
                      Participant

                        Well Blueeyes, good to hear from you again.  glad to hear things are going well for you now.

                      • November 15, 2011 at 3:51 am
                      Blueyes
                      Participant

                        Lisa, great news that there is no edema! I am a IV with brain & abdominal mets. I have had 2 gammas and have been on and off steroids for the past 2+ years. I hate them with a passion, but for me they were a necessary evil. Side effects include sleepless nights, anxiety, depression and a whole lot of anger. Thankfully, I wasn't on them for long periods of time and was tapered down. NOT taking them caused headaches for me. As of now, I have had no further recurrences or problems since my last craniotomy in October 2010. At that time it was to clean out necrotic tissue. Stay strong and positive! This is manageable! I was on a trial with an ipi combination for abdominal tumors in 2009, shortly after brain mets were found. So far, so good and I plan to keep it that way! Hopefully your dose will be low enough as to not cause severe problems. Let me know what happens!

                        Kelly

                        • November 15, 2011 at 3:51 am
                        Blueyes
                        Participant

                          Lisa, great news that there is no edema! I am a IV with brain & abdominal mets. I have had 2 gammas and have been on and off steroids for the past 2+ years. I hate them with a passion, but for me they were a necessary evil. Side effects include sleepless nights, anxiety, depression and a whole lot of anger. Thankfully, I wasn't on them for long periods of time and was tapered down. NOT taking them caused headaches for me. As of now, I have had no further recurrences or problems since my last craniotomy in October 2010. At that time it was to clean out necrotic tissue. Stay strong and positive! This is manageable! I was on a trial with an ipi combination for abdominal tumors in 2009, shortly after brain mets were found. So far, so good and I plan to keep it that way! Hopefully your dose will be low enough as to not cause severe problems. Let me know what happens!

                          Kelly

                      Viewing 5 reply threads
                      • You must be logged in to reply to this topic.
                      About the MRF Patient Forum

                      The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                      The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                      Popular Topics