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from Lori

Forums Caregiver Community from Lori

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      JuleFL
      Participant
      Thank you for posting this. You’ve accurately described much of what Cal and I went through during Cal’s illness. You are not alone. Best wishes for healing during this difficult time.
      Jule

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      JuleFL
      Participant
      Thank you for posting this. You’ve accurately described much of what Cal and I went through during Cal’s illness. You are not alone. Best wishes for healing during this difficult time.
      Jule

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      Sherron
      Participant

      Hi Lori – printing this out so I can read it tonight after I get home….  I am looking forward to it.

      Take Care,

      Sherron, wife to Jim FOREVER

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      Sherron
      Participant

      Hi Lori – printing this out so I can read it tonight after I get home….  I am looking forward to it.

      Take Care,

      Sherron, wife to Jim FOREVER

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      MichaelFL
      Participant

      Great writing! You have a knack as a writer, caregiver and friend. I hope this will help bring you some solace in the days ahead.

      Michael

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      MichaelFL
      Participant

      Great writing! You have a knack as a writer, caregiver and friend. I hope this will help bring you some solace in the days ahead.

      Michael

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      KellieSue
      Participant

      That was a really  nice article, Lori!

       

      Kellie(from Iowa) Stage IV since June 2008

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      KellieSue
      Participant

      That was a really  nice article, Lori!

       

      Kellie(from Iowa) Stage IV since June 2008

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      Cate
      Participant

      Hi Lori, this really hits home.  I lost my athletic, marathon running, mountain climbing, father this past May.  I would have never in a million years guessed that this energetic, healthy man who looked 20 yrs younger than his age (70) could be brought down by a little mole on his back.  It still hurts and I miss him so much!  Thank you for writing this and I do understand what you are going through.  Cate

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      Cate
      Participant

      Hi Lori, this really hits home.  I lost my athletic, marathon running, mountain climbing, father this past May.  I would have never in a million years guessed that this energetic, healthy man who looked 20 yrs younger than his age (70) could be brought down by a little mole on his back.  It still hurts and I miss him so much!  Thank you for writing this and I do understand what you are going through.  Cate

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      JerryfromFauq
      Participant
      Lori, I am so proud to have known you. That is a very good article that helps others to understand more about what is experienced by both caregivers and the patients ourselves Yes, I remember Will’s fighting spirit and the great fight you put up to help him obtain the treatments he wanted. You are quite a lady. Again, My had is off to honor you.
      JerryfromFauq.

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      JerryfromFauq
      Participant
      Lori, I am so proud to have known you. That is a very good article that helps others to understand more about what is experienced by both caregivers and the patients ourselves Yes, I remember Will’s fighting spirit and the great fight you put up to help him obtain the treatments he wanted. You are quite a lady. Again, My had is off to honor you.
      JerryfromFauq.

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      Lori C
      Participant

      thank you all for your lovely comments.  I wish I could tell you how much help this board has truly been.  A year ago, when Will was told the melanoma had spread to his liver, I was flailing.  It was an extraordinarily difficult situation.  I was fighting not only the disease but an organization which, having profited richly from exploiting Will for 22 years, was trying to prevent him from having better options.   Without the information, encouragement and support of the people of this board, Will would likely not have survived as long as he did, and as difficult as those last six months were, they were also a richly blessed time, during which he was able to achieve many  more of his goals.  Each of you is an incredible model of how to live fully with enormous challenges and mind-shaking uncertainty, and without that, I truly don't know how I would have gotten through the last year.

      Thank you all, always!

      Lori

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        Vermont_Donna
        Participant

        Dear Lori,

        Very well written and I thank you for sharing this article you wrote with us!

        Vermont_Donna

        stage 3a, stable after 4infusions of Ipi

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        Vermont_Donna
        Participant

        Dear Lori,

        Very well written and I thank you for sharing this article you wrote with us!

        Vermont_Donna

        stage 3a, stable after 4infusions of Ipi

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      Lori C
      Participant

      thank you all for your lovely comments.  I wish I could tell you how much help this board has truly been.  A year ago, when Will was told the melanoma had spread to his liver, I was flailing.  It was an extraordinarily difficult situation.  I was fighting not only the disease but an organization which, having profited richly from exploiting Will for 22 years, was trying to prevent him from having better options.   Without the information, encouragement and support of the people of this board, Will would likely not have survived as long as he did, and as difficult as those last six months were, they were also a richly blessed time, during which he was able to achieve many  more of his goals.  Each of you is an incredible model of how to live fully with enormous challenges and mind-shaking uncertainty, and without that, I truly don't know how I would have gotten through the last year.

      Thank you all, always!

      Lori

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      yensidw
      Participant

      Oh, Lori,  I know just how you feel about wondeirng if you were doing the right thing.  I still think about what else I could have done for Ron.  Intellectually I know there was probably nothing I could have done (from the time he found the lump till he passed away wasn't even 12 weeks and was just so widespread), in my heart I think "what if we went here, would it have made a difference?"  You were such a good friend to Will and I know how much you must miss him.

       

      Janis 

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      yensidw
      Participant

      Oh, Lori,  I know just how you feel about wondeirng if you were doing the right thing.  I still think about what else I could have done for Ron.  Intellectually I know there was probably nothing I could have done (from the time he found the lump till he passed away wasn't even 12 weeks and was just so widespread), in my heart I think "what if we went here, would it have made a difference?"  You were such a good friend to Will and I know how much you must miss him.

       

      Janis 

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