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from Lori
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from Lori

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      • February 23, 2011 at 10:00 pm
      JuleFL
      Participant
        Thank you for posting this. You’ve accurately described much of what Cal and I went through during Cal’s illness. You are not alone. Best wishes for healing during this difficult time.
        Jule
        • February 23, 2011 at 10:00 pm
        JuleFL
        Participant
          Thank you for posting this. You’ve accurately described much of what Cal and I went through during Cal’s illness. You are not alone. Best wishes for healing during this difficult time.
          Jule
          • February 23, 2011 at 10:40 pm
          Sherron
          Participant

            Hi Lori – printing this out so I can read it tonight after I get home….  I am looking forward to it.

            Take Care,

            Sherron, wife to Jim FOREVER

            • February 23, 2011 at 10:40 pm
            Sherron
            Participant

              Hi Lori – printing this out so I can read it tonight after I get home….  I am looking forward to it.

              Take Care,

              Sherron, wife to Jim FOREVER

              • February 24, 2011 at 2:10 am
              MichaelFL
              Participant

                Great writing! You have a knack as a writer, caregiver and friend. I hope this will help bring you some solace in the days ahead.

                Michael

                • February 24, 2011 at 2:10 am
                MichaelFL
                Participant

                  Great writing! You have a knack as a writer, caregiver and friend. I hope this will help bring you some solace in the days ahead.

                  Michael

                  • February 24, 2011 at 4:17 pm
                  KellieSue
                  Participant

                    That was a really  nice article, Lori!

                     

                    Kellie(from Iowa) Stage IV since June 2008

                    • February 24, 2011 at 4:17 pm
                    KellieSue
                    Participant

                      That was a really  nice article, Lori!

                       

                      Kellie(from Iowa) Stage IV since June 2008

                      • February 25, 2011 at 12:40 am
                      Cate
                      Participant

                        Hi Lori, this really hits home.  I lost my athletic, marathon running, mountain climbing, father this past May.  I would have never in a million years guessed that this energetic, healthy man who looked 20 yrs younger than his age (70) could be brought down by a little mole on his back.  It still hurts and I miss him so much!  Thank you for writing this and I do understand what you are going through.  Cate

                        • February 25, 2011 at 12:40 am
                        Cate
                        Participant

                          Hi Lori, this really hits home.  I lost my athletic, marathon running, mountain climbing, father this past May.  I would have never in a million years guessed that this energetic, healthy man who looked 20 yrs younger than his age (70) could be brought down by a little mole on his back.  It still hurts and I miss him so much!  Thank you for writing this and I do understand what you are going through.  Cate

                          • February 25, 2011 at 7:18 am
                          JerryfromFauq
                          Participant
                            Lori, I am so proud to have known you. That is a very good article that helps others to understand more about what is experienced by both caregivers and the patients ourselves Yes, I remember Will’s fighting spirit and the great fight you put up to help him obtain the treatments he wanted. You are quite a lady. Again, My had is off to honor you.
                            JerryfromFauq.
                            • February 25, 2011 at 7:18 am
                            JerryfromFauq
                            Participant
                              Lori, I am so proud to have known you. That is a very good article that helps others to understand more about what is experienced by both caregivers and the patients ourselves Yes, I remember Will’s fighting spirit and the great fight you put up to help him obtain the treatments he wanted. You are quite a lady. Again, My had is off to honor you.
                              JerryfromFauq.
                              • February 25, 2011 at 12:18 pm
                              Lori C
                              Participant

                                thank you all for your lovely comments.  I wish I could tell you how much help this board has truly been.  A year ago, when Will was told the melanoma had spread to his liver, I was flailing.  It was an extraordinarily difficult situation.  I was fighting not only the disease but an organization which, having profited richly from exploiting Will for 22 years, was trying to prevent him from having better options.   Without the information, encouragement and support of the people of this board, Will would likely not have survived as long as he did, and as difficult as those last six months were, they were also a richly blessed time, during which he was able to achieve many  more of his goals.  Each of you is an incredible model of how to live fully with enormous challenges and mind-shaking uncertainty, and without that, I truly don't know how I would have gotten through the last year.

                                Thank you all, always!

                                Lori

                                  • February 25, 2011 at 2:59 pm
                                  Vermont_Donna
                                  Participant

                                    Dear Lori,

                                    Very well written and I thank you for sharing this article you wrote with us!

                                    Vermont_Donna

                                    stage 3a, stable after 4infusions of Ipi

                                    • February 25, 2011 at 2:59 pm
                                    Vermont_Donna
                                    Participant

                                      Dear Lori,

                                      Very well written and I thank you for sharing this article you wrote with us!

                                      Vermont_Donna

                                      stage 3a, stable after 4infusions of Ipi

                                    • February 25, 2011 at 12:18 pm
                                    Lori C
                                    Participant

                                      thank you all for your lovely comments.  I wish I could tell you how much help this board has truly been.  A year ago, when Will was told the melanoma had spread to his liver, I was flailing.  It was an extraordinarily difficult situation.  I was fighting not only the disease but an organization which, having profited richly from exploiting Will for 22 years, was trying to prevent him from having better options.   Without the information, encouragement and support of the people of this board, Will would likely not have survived as long as he did, and as difficult as those last six months were, they were also a richly blessed time, during which he was able to achieve many  more of his goals.  Each of you is an incredible model of how to live fully with enormous challenges and mind-shaking uncertainty, and without that, I truly don't know how I would have gotten through the last year.

                                      Thank you all, always!

                                      Lori

                                      • February 26, 2011 at 12:26 am
                                      yensidw
                                      Participant

                                        Oh, Lori,  I know just how you feel about wondeirng if you were doing the right thing.  I still think about what else I could have done for Ron.  Intellectually I know there was probably nothing I could have done (from the time he found the lump till he passed away wasn't even 12 weeks and was just so widespread), in my heart I think "what if we went here, would it have made a difference?"  You were such a good friend to Will and I know how much you must miss him.

                                         

                                        Janis 

                                        • February 26, 2011 at 12:26 am
                                        yensidw
                                        Participant

                                          Oh, Lori,  I know just how you feel about wondeirng if you were doing the right thing.  I still think about what else I could have done for Ron.  Intellectually I know there was probably nothing I could have done (from the time he found the lump till he passed away wasn't even 12 weeks and was just so widespread), in my heart I think "what if we went here, would it have made a difference?"  You were such a good friend to Will and I know how much you must miss him.

                                           

                                          Janis 

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