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first Ippi treatment yesterday
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first Ippi treatment yesterday

› Forums › General Melanoma Community › first Ippi treatment yesterday

  • Post
    • February 14, 2012 at 7:55 pm
    Maxximom
    Participant

      Well my adventure into the Brave New World of Melanoma started yesterday with my first Ippi treatment in Columbus at the James Cancer Center at OSU. Any hints at what to expect or any suggestions would be appreciated.The infusion went fine..so far no side effects.. but then it's only been less than 24 hours. Keeping my fingers crossed that this will work and the side effect will be at a minimum. Happy Valebtines day to All of you

      Joan

      Well my adventure into the Brave New World of Melanoma started yesterday with my first Ippi treatment in Columbus at the James Cancer Center at OSU. Any hints at what to expect or any suggestions would be appreciated.The infusion went fine..so far no side effects.. but then it's only been less than 24 hours. Keeping my fingers crossed that this will work and the side effect will be at a minimum. Happy Valebtines day to All of you

      Joan

    Viewing 17 reply threads
    • Replies
        • February 14, 2012 at 8:18 pm
        justlittleoleme
        Participant

          Joan,

          Congratulations on getting treatment number 1 under your belt!  My husband has had four ipi infusions and has had no side effects.  Everyone is different!

          Here is to NED!

          Barb

            • February 15, 2012 at 2:17 am
            Maxximom
            Participant

              Barb thanks you for your reply.It always helps to hear about everyone ecperience with Ippi..it gives me a clue as to what I may expect. I am so glad that your Husband had little or no side effects. I hope that I will be lucky as well. Was there anything special that he did to help prevent them? I see that he has a scan on the 24th.. I hope and pray that he has good results

              Joan

              • February 15, 2012 at 2:17 am
              Maxximom
              Participant

                Barb thanks you for your reply.It always helps to hear about everyone ecperience with Ippi..it gives me a clue as to what I may expect. I am so glad that your Husband had little or no side effects. I hope that I will be lucky as well. Was there anything special that he did to help prevent them? I see that he has a scan on the 24th.. I hope and pray that he has good results

                Joan

                • February 15, 2012 at 2:17 am
                Maxximom
                Participant

                  Barb thanks you for your reply.It always helps to hear about everyone ecperience with Ippi..it gives me a clue as to what I may expect. I am so glad that your Husband had little or no side effects. I hope that I will be lucky as well. Was there anything special that he did to help prevent them? I see that he has a scan on the 24th.. I hope and pray that he has good results

                  Joan

                • February 14, 2012 at 8:18 pm
                justlittleoleme
                Participant

                  Joan,

                  Congratulations on getting treatment number 1 under your belt!  My husband has had four ipi infusions and has had no side effects.  Everyone is different!

                  Here is to NED!

                  Barb

                  • February 14, 2012 at 8:18 pm
                  justlittleoleme
                  Participant

                    Joan,

                    Congratulations on getting treatment number 1 under your belt!  My husband has had four ipi infusions and has had no side effects.  Everyone is different!

                    Here is to NED!

                    Barb

                    • February 14, 2012 at 11:32 pm
                    Roxy1453
                    Participant
                      Usually you won’t see side effects until after your second treatment. But everyone is different. I developed colitis just before my second treatment and have been on steroids since the first of the year. The second treatment was Dec 29. I don’t know when or if I will have my other two treatments.

                      Good luck!!

                        • February 15, 2012 at 2:24 am
                        Maxximom
                        Participant

                          Thank you for the infomation Roxy.. Soory about your Colitis. My doctor warned me to call her at the first sign of it.I hope that I can avoid it.. because I am Diabetic and steroids impact on blood sugars..so I would have to be very careful to monitor very carefully if I ever go on steroids. Best luck

                          Joan

                          • February 15, 2012 at 2:24 am
                          Maxximom
                          Participant

                            Thank you for the infomation Roxy.. Soory about your Colitis. My doctor warned me to call her at the first sign of it.I hope that I can avoid it.. because I am Diabetic and steroids impact on blood sugars..so I would have to be very careful to monitor very carefully if I ever go on steroids. Best luck

                            Joan

                            • February 15, 2012 at 2:24 am
                            Maxximom
                            Participant

                              Thank you for the infomation Roxy.. Soory about your Colitis. My doctor warned me to call her at the first sign of it.I hope that I can avoid it.. because I am Diabetic and steroids impact on blood sugars..so I would have to be very careful to monitor very carefully if I ever go on steroids. Best luck

                              Joan

                            • February 14, 2012 at 11:32 pm
                            Roxy1453
                            Participant
                              Usually you won’t see side effects until after your second treatment. But everyone is different. I developed colitis just before my second treatment and have been on steroids since the first of the year. The second treatment was Dec 29. I don’t know when or if I will have my other two treatments.

                              Good luck!!

                              • February 14, 2012 at 11:32 pm
                              Roxy1453
                              Participant
                                Usually you won’t see side effects until after your second treatment. But everyone is different. I developed colitis just before my second treatment and have been on steroids since the first of the year. The second treatment was Dec 29. I don’t know when or if I will have my other two treatments.

                                Good luck!!

                                • February 15, 2012 at 1:06 am
                                fdess056
                                Participant

                                  Joan.  I had my 3rd infusion last week and have just began getting headaches (a few Motrin tablets take care of them), some mild stomach upset and some fatigue. Nothing i can't manager.  In fact, act, i still run almost every day.  I hope your treatments go as well as mine.  Best of luck to you!

                                  Frank D brooklyn

                                  • February 15, 2012 at 1:06 am
                                  fdess056
                                  Participant

                                    Joan.  I had my 3rd infusion last week and have just began getting headaches (a few Motrin tablets take care of them), some mild stomach upset and some fatigue. Nothing i can't manager.  In fact, act, i still run almost every day.  I hope your treatments go as well as mine.  Best of luck to you!

                                    Frank D brooklyn

                                      • February 15, 2012 at 2:35 am
                                      Maxximom
                                      Participant

                                        Frank I am an old Brooklyn Girl myself….but from before you were born. Thanks for your reply. I can deal with headaches and fatigue..as for running in Marathons..well at 81.. I am glad to just walk..LOL It is wonderful that you are still able to be so active.I too hope that my side effects are as managable as yours.. good luck with treatment number 4

                                        Joan

                                        • February 15, 2012 at 2:35 am
                                        Maxximom
                                        Participant

                                          Frank I am an old Brooklyn Girl myself….but from before you were born. Thanks for your reply. I can deal with headaches and fatigue..as for running in Marathons..well at 81.. I am glad to just walk..LOL It is wonderful that you are still able to be so active.I too hope that my side effects are as managable as yours.. good luck with treatment number 4

                                          Joan

                                          • February 15, 2012 at 2:35 am
                                          Maxximom
                                          Participant

                                            Frank I am an old Brooklyn Girl myself….but from before you were born. Thanks for your reply. I can deal with headaches and fatigue..as for running in Marathons..well at 81.. I am glad to just walk..LOL It is wonderful that you are still able to be so active.I too hope that my side effects are as managable as yours.. good luck with treatment number 4

                                            Joan

                                            • February 15, 2012 at 10:59 pm
                                            runnergirl
                                            Participant

                                              "The miracle is not that I finished, but that I had the courage to start."  John Bingham.  Keep running!!!!

                                              • February 15, 2012 at 10:59 pm
                                              runnergirl
                                              Participant

                                                "The miracle is not that I finished, but that I had the courage to start."  John Bingham.  Keep running!!!!

                                                • February 15, 2012 at 11:07 pm
                                                Maxximom
                                                Participant

                                                  Thanks Runnergirl..I see you are from one of my all time favorite placed in the world..such beauty in Sedona!  Instead of running I will settle for a slow walk  LOL

                                                  Joan

                                                  • February 15, 2012 at 11:07 pm
                                                  Maxximom
                                                  Participant

                                                    Thanks Runnergirl..I see you are from one of my all time favorite placed in the world..such beauty in Sedona!  Instead of running I will settle for a slow walk  LOL

                                                    Joan

                                                    • February 15, 2012 at 11:07 pm
                                                    Maxximom
                                                    Participant

                                                      Thanks Runnergirl..I see you are from one of my all time favorite placed in the world..such beauty in Sedona!  Instead of running I will settle for a slow walk  LOL

                                                      Joan

                                                      • February 15, 2012 at 10:59 pm
                                                      runnergirl
                                                      Participant

                                                        "The miracle is not that I finished, but that I had the courage to start."  John Bingham.  Keep running!!!!

                                                      • February 15, 2012 at 1:06 am
                                                      fdess056
                                                      Participant

                                                        Joan.  I had my 3rd infusion last week and have just began getting headaches (a few Motrin tablets take care of them), some mild stomach upset and some fatigue. Nothing i can't manager.  In fact, act, i still run almost every day.  I hope your treatments go as well as mine.  Best of luck to you!

                                                        Frank D brooklyn

                                                        • February 15, 2012 at 10:08 am
                                                        Dave G
                                                        Participant

                                                          Joan,

                                                          I completed 4 rounds of IPPY with very little side effects. Some minor fatigue and a minor rash on my arms. Otherwise all went well. Unfortunately the scans showed progression so I moved on to IL2. Now thats the one with the side effects…

                                                          Good Luck

                                                          • February 15, 2012 at 10:08 am
                                                          Dave G
                                                          Participant

                                                            Joan,

                                                            I completed 4 rounds of IPPY with very little side effects. Some minor fatigue and a minor rash on my arms. Otherwise all went well. Unfortunately the scans showed progression so I moved on to IL2. Now thats the one with the side effects…

                                                            Good Luck

                                                            • February 15, 2012 at 10:08 am
                                                            Dave G
                                                            Participant

                                                              Joan,

                                                              I completed 4 rounds of IPPY with very little side effects. Some minor fatigue and a minor rash on my arms. Otherwise all went well. Unfortunately the scans showed progression so I moved on to IL2. Now thats the one with the side effects…

                                                              Good Luck

                                                                • February 15, 2012 at 6:12 pm
                                                                Maxximom
                                                                Participant

                                                                  Thank you Dave for replying. Glad that you had little side effects from the Ippy..but so sorry that it did not work for you..how long since your last Ippy treatment? I have read that sometimes things do show progression befor they get better. You are right that the IL2 is a tough treatment..but the results are very good for many people..I pray that you are one of them.

                                                                  Joan

                                                                  • February 15, 2012 at 6:12 pm
                                                                  Maxximom
                                                                  Participant

                                                                    Thank you Dave for replying. Glad that you had little side effects from the Ippy..but so sorry that it did not work for you..how long since your last Ippy treatment? I have read that sometimes things do show progression befor they get better. You are right that the IL2 is a tough treatment..but the results are very good for many people..I pray that you are one of them.

                                                                    Joan

                                                                    • February 15, 2012 at 6:12 pm
                                                                    Maxximom
                                                                    Participant

                                                                      Thank you Dave for replying. Glad that you had little side effects from the Ippy..but so sorry that it did not work for you..how long since your last Ippy treatment? I have read that sometimes things do show progression befor they get better. You are right that the IL2 is a tough treatment..but the results are very good for many people..I pray that you are one of them.

                                                                      Joan

                                                                    • February 16, 2012 at 2:56 am
                                                                    audgator
                                                                    Participant

                                                                      I'm 2 weeks past my 4th & last ipi infusion & 2 weeks away from follow-up scans. Sometime between the 2nd & 3rd treatment I developed a rash that is still hopsctching around my body but is getting better. It doesn't bother me much when I'm busy. I work 2 days & walk 18 holes 2 days. But its annoying when driving or watching TV or going to bed. Best wishes!

                                                                      • February 16, 2012 at 2:56 am
                                                                      audgator
                                                                      Participant

                                                                        I'm 2 weeks past my 4th & last ipi infusion & 2 weeks away from follow-up scans. Sometime between the 2nd & 3rd treatment I developed a rash that is still hopsctching around my body but is getting better. It doesn't bother me much when I'm busy. I work 2 days & walk 18 holes 2 days. But its annoying when driving or watching TV or going to bed. Best wishes!

                                                                          • February 16, 2012 at 9:18 pm
                                                                          Maxximom
                                                                          Participant

                                                                            Thank you for your reply audgator…every bit of infomation from those who "have been there..done that" helps me. Sorry you still have the Itch..I hope that it resolves soon. Do you have a perscription for it or use OTC stuff? I have read here that many take a perscription..but haven't read exactly what the perscription is. I am really bad when it comes to scratching a itch and have scratched myself raw upon occassion..so I am dreading controling the itch..if I get it.I hope that the results of your scan will show that the Ippi has worked for you..Best wishes

                                                                            Joan

                                                                            • February 16, 2012 at 9:18 pm
                                                                            Maxximom
                                                                            Participant

                                                                              Thank you for your reply audgator…every bit of infomation from those who "have been there..done that" helps me. Sorry you still have the Itch..I hope that it resolves soon. Do you have a perscription for it or use OTC stuff? I have read here that many take a perscription..but haven't read exactly what the perscription is. I am really bad when it comes to scratching a itch and have scratched myself raw upon occassion..so I am dreading controling the itch..if I get it.I hope that the results of your scan will show that the Ippi has worked for you..Best wishes

                                                                              Joan

                                                                              • February 16, 2012 at 10:15 pm
                                                                              audgator
                                                                              Participant

                                                                                Joan, I started out using Cortizone and/or The Walgreen's equivilent store brand. Each application only gave relief for about 3 hours. After going through about 6 tubes I tried my wife's skin moisturizer and found the effect about the same. Then I bought the generic equivilent of Gold Bond cream and have stuck with that. It works as well as anything else I've tried and doesn't have the label direction of "use 2 or 3 times daily" like the Cortizone. I was using way more than that. With a previous rash (pre-melanoma) the best thing I found was "Itch-X" but its initial effect is a burning & I didn't want to do that on such a wide-spread condition. My rash has been what seems like the least objectional side effect & I feel lucky. I hope you have none!   Dan

                                                                                • February 16, 2012 at 10:15 pm
                                                                                audgator
                                                                                Participant

                                                                                  Joan, I started out using Cortizone and/or The Walgreen's equivilent store brand. Each application only gave relief for about 3 hours. After going through about 6 tubes I tried my wife's skin moisturizer and found the effect about the same. Then I bought the generic equivilent of Gold Bond cream and have stuck with that. It works as well as anything else I've tried and doesn't have the label direction of "use 2 or 3 times daily" like the Cortizone. I was using way more than that. With a previous rash (pre-melanoma) the best thing I found was "Itch-X" but its initial effect is a burning & I didn't want to do that on such a wide-spread condition. My rash has been what seems like the least objectional side effect & I feel lucky. I hope you have none!   Dan

                                                                                  • February 16, 2012 at 10:17 pm
                                                                                  audgator
                                                                                  Participant

                                                                                    ps: My oncologist did give a script fpr prednizone, But I felt no relief with that.   Dan

                                                                                    • February 16, 2012 at 10:17 pm
                                                                                    audgator
                                                                                    Participant

                                                                                      ps: My oncologist did give a script fpr prednizone, But I felt no relief with that.   Dan

                                                                                      • February 16, 2012 at 10:17 pm
                                                                                      audgator
                                                                                      Participant

                                                                                        ps: My oncologist did give a script fpr prednizone, But I felt no relief with that.   Dan

                                                                                        • February 16, 2012 at 10:32 pm
                                                                                        runnergirl
                                                                                        Participant

                                                                                          My derm recommended Capzasin.  Be careful.  It is made from peppers.  Keep it away from mucos membrances like you eyes!

                                                                                          • February 16, 2012 at 10:32 pm
                                                                                          runnergirl
                                                                                          Participant

                                                                                            My derm recommended Capzasin.  Be careful.  It is made from peppers.  Keep it away from mucos membrances like you eyes!

                                                                                            • February 16, 2012 at 10:32 pm
                                                                                            runnergirl
                                                                                            Participant

                                                                                              My derm recommended Capzasin.  Be careful.  It is made from peppers.  Keep it away from mucos membrances like you eyes!

                                                                                              • February 17, 2012 at 12:47 am
                                                                                              Maxximom
                                                                                              Participant

                                                                                                Thanks you Runnergirl..I used Capzasin many years ago for another reason..it burned me so badly that I did my best to try and wash it off..I guess if you can stand the burning it will help the itch..hey..when it gets bad..you will try anything..Right?

                                                                                                • February 17, 2012 at 12:47 am
                                                                                                Maxximom
                                                                                                Participant

                                                                                                  Thanks you Runnergirl..I used Capzasin many years ago for another reason..it burned me so badly that I did my best to try and wash it off..I guess if you can stand the burning it will help the itch..hey..when it gets bad..you will try anything..Right?

                                                                                                  • February 17, 2012 at 12:47 am
                                                                                                  Maxximom
                                                                                                  Participant

                                                                                                    Thanks you Runnergirl..I used Capzasin many years ago for another reason..it burned me so badly that I did my best to try and wash it off..I guess if you can stand the burning it will help the itch..hey..when it gets bad..you will try anything..Right?

                                                                                                    • February 17, 2012 at 12:42 am
                                                                                                    Maxximom
                                                                                                    Participant

                                                                                                      Thanks for the info Dan… Dr Kendra's NP suggested the Gold Bond Cream as well..she also said CeraV cream was good.I will keep them on hand if needed.

                                                                                                      Joan

                                                                                                      • February 17, 2012 at 12:42 am
                                                                                                      Maxximom
                                                                                                      Participant

                                                                                                        Thanks for the info Dan… Dr Kendra's NP suggested the Gold Bond Cream as well..she also said CeraV cream was good.I will keep them on hand if needed.

                                                                                                        Joan

                                                                                                        • February 17, 2012 at 12:42 am
                                                                                                        Maxximom
                                                                                                        Participant

                                                                                                          Thanks for the info Dan… Dr Kendra's NP suggested the Gold Bond Cream as well..she also said CeraV cream was good.I will keep them on hand if needed.

                                                                                                          Joan

                                                                                                          • February 16, 2012 at 10:15 pm
                                                                                                          audgator
                                                                                                          Participant

                                                                                                            Joan, I started out using Cortizone and/or The Walgreen's equivilent store brand. Each application only gave relief for about 3 hours. After going through about 6 tubes I tried my wife's skin moisturizer and found the effect about the same. Then I bought the generic equivilent of Gold Bond cream and have stuck with that. It works as well as anything else I've tried and doesn't have the label direction of "use 2 or 3 times daily" like the Cortizone. I was using way more than that. With a previous rash (pre-melanoma) the best thing I found was "Itch-X" but its initial effect is a burning & I didn't want to do that on such a wide-spread condition. My rash has been what seems like the least objectional side effect & I feel lucky. I hope you have none!   Dan

                                                                                                            • February 16, 2012 at 9:18 pm
                                                                                                            Maxximom
                                                                                                            Participant

                                                                                                              Thank you for your reply audgator…every bit of infomation from those who "have been there..done that" helps me. Sorry you still have the Itch..I hope that it resolves soon. Do you have a perscription for it or use OTC stuff? I have read here that many take a perscription..but haven't read exactly what the perscription is. I am really bad when it comes to scratching a itch and have scratched myself raw upon occassion..so I am dreading controling the itch..if I get it.I hope that the results of your scan will show that the Ippi has worked for you..Best wishes

                                                                                                              Joan

                                                                                                            • February 16, 2012 at 2:56 am
                                                                                                            audgator
                                                                                                            Participant

                                                                                                              I'm 2 weeks past my 4th & last ipi infusion & 2 weeks away from follow-up scans. Sometime between the 2nd & 3rd treatment I developed a rash that is still hopsctching around my body but is getting better. It doesn't bother me much when I'm busy. I work 2 days & walk 18 holes 2 days. But its annoying when driving or watching TV or going to bed. Best wishes!

                                                                                                              • February 19, 2012 at 3:41 am
                                                                                                              Jim M.
                                                                                                              Participant

                                                                                                                Hi Joan,

                                                                                                                 I was on a clinical trial with Ipi from 3/08 to 10/08. I received 4 infusions of 10mg/kg. I had mostly mild side effects until I had constant headaches. An MRI revealed swelling of the pituitary gland. Steroids helped the swelling to subside but I've been on Hydrocortisone ever since as a hormone replacement. On the plus side my immune response was significant based on the proliferation of T cells from Ipi. I hope you get a significant response without having to be on steroids.

                                                                                                                Best of success and God Bless,

                                                                                                                 Jim M.

                                                                                                                 stage 3C

                                                                                                                NED: 4 years, 3 months

                                                                                                                  • February 19, 2012 at 10:28 pm
                                                                                                                  Maxximom
                                                                                                                  Participant

                                                                                                                    Jim..I see that you got a high dose of the Ippy.. I have no idea what dose I am getting..I will ask Dr Kendra next time.. I assume that it is not the high dose as it is not a clinical trial. I hope that I don't need to go on Steroids..as I am Diabetic and it can really mess up my blood sugars..but if I need to.. of course I will. Congratulations for being NED..that is wonderful

                                                                                                                    Joan

                                                                                                                    • February 19, 2012 at 10:28 pm
                                                                                                                    Maxximom
                                                                                                                    Participant

                                                                                                                      Jim..I see that you got a high dose of the Ippy.. I have no idea what dose I am getting..I will ask Dr Kendra next time.. I assume that it is not the high dose as it is not a clinical trial. I hope that I don't need to go on Steroids..as I am Diabetic and it can really mess up my blood sugars..but if I need to.. of course I will. Congratulations for being NED..that is wonderful

                                                                                                                      Joan

                                                                                                                      • February 19, 2012 at 10:28 pm
                                                                                                                      Maxximom
                                                                                                                      Participant

                                                                                                                        Jim..I see that you got a high dose of the Ippy.. I have no idea what dose I am getting..I will ask Dr Kendra next time.. I assume that it is not the high dose as it is not a clinical trial. I hope that I don't need to go on Steroids..as I am Diabetic and it can really mess up my blood sugars..but if I need to.. of course I will. Congratulations for being NED..that is wonderful

                                                                                                                        Joan

                                                                                                                      • February 19, 2012 at 3:41 am
                                                                                                                      Jim M.
                                                                                                                      Participant

                                                                                                                        Hi Joan,

                                                                                                                         I was on a clinical trial with Ipi from 3/08 to 10/08. I received 4 infusions of 10mg/kg. I had mostly mild side effects until I had constant headaches. An MRI revealed swelling of the pituitary gland. Steroids helped the swelling to subside but I've been on Hydrocortisone ever since as a hormone replacement. On the plus side my immune response was significant based on the proliferation of T cells from Ipi. I hope you get a significant response without having to be on steroids.

                                                                                                                        Best of success and God Bless,

                                                                                                                         Jim M.

                                                                                                                         stage 3C

                                                                                                                        NED: 4 years, 3 months

                                                                                                                        • February 19, 2012 at 3:41 am
                                                                                                                        Jim M.
                                                                                                                        Participant

                                                                                                                          Hi Joan,

                                                                                                                           I was on a clinical trial with Ipi from 3/08 to 10/08. I received 4 infusions of 10mg/kg. I had mostly mild side effects until I had constant headaches. An MRI revealed swelling of the pituitary gland. Steroids helped the swelling to subside but I've been on Hydrocortisone ever since as a hormone replacement. On the plus side my immune response was significant based on the proliferation of T cells from Ipi. I hope you get a significant response without having to be on steroids.

                                                                                                                          Best of success and God Bless,

                                                                                                                           Jim M.

                                                                                                                           stage 3C

                                                                                                                          NED: 4 years, 3 months

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