› Forums › General Melanoma Community › Finally started Ipi!!!
- This topic has 26 replies, 12 voices, and was last updated 14 years, 2 months ago by makedoandmend.
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- September 24, 2010 at 12:28 pm
Well, it wasn't as smooth sailing as I had thought. After having all the preliminary tests and scans last week in Montreal, my Dr there called me last Fri to tell me my hemoglobin was too low (7.6), and if I didn't get it up within 5 days, I wasn't eligible for the trial. So I had bloodwork done locally on Fri afternnon, hemoglobin was 8.0, but still not high enough. So on Monday I went in to the Cancer Centre to have a blood transfusion — 2 units. Then, on Wed, I flew back to Montreal on a wing and a prayer, hoping that my hemoglobin had risen enough.
Well, it wasn't as smooth sailing as I had thought. After having all the preliminary tests and scans last week in Montreal, my Dr there called me last Fri to tell me my hemoglobin was too low (7.6), and if I didn't get it up within 5 days, I wasn't eligible for the trial. So I had bloodwork done locally on Fri afternnon, hemoglobin was 8.0, but still not high enough. So on Monday I went in to the Cancer Centre to have a blood transfusion — 2 units. Then, on Wed, I flew back to Montreal on a wing and a prayer, hoping that my hemoglobin had risen enough. Good news, it was up to 10.8, so on Thurs, we started Ipi at 11:30. I had no adverse events, walked back to the hotel afterwards (20-25 min walk), then went to the airport and flew home late last night. This morning I feel fine, and I hope it continues. I've waited a very long time to start this trial, with lots of detours (gamma knife, genetic profiling, mastectomy, etc), so I'm delighted to be finally underway. I'll update as things move forward.
Hugs
Sharyn
Stage IV
ILP, LND, PV-10, hysterectomy, GM-CSF, WBR, SRS, mastectomy, and now Ipi.
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- September 24, 2010 at 12:35 pm
Hi Sharyn
I'm new here and just read your profile. Jings!! You've been through so much! I really hope that the Ipi works for you, good luck!
Marsha x
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- September 24, 2010 at 12:35 pm
Hi Sharyn
I'm new here and just read your profile. Jings!! You've been through so much! I really hope that the Ipi works for you, good luck!
Marsha x
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- September 24, 2010 at 12:37 pm
Hi Sharyn
so glad to see you have started. Sending you lots of positive energy.
best wishes
James
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- September 24, 2010 at 12:37 pm
Hi Sharyn
so glad to see you have started. Sending you lots of positive energy.
best wishes
James
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- September 24, 2010 at 3:14 pm
Round one done..now on to round two!!! Let's get that nasty beast and kill it dead. Val
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- September 24, 2010 at 3:50 pm
good luck girl!
dian
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- September 24, 2010 at 3:50 pm
good luck girl!
dian
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- September 24, 2010 at 11:52 pm
Hey Sharyn,
Happy you are underway??/ I am thinking about IPI. Have you had any side effects??? What are you doing for them??
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- September 25, 2010 at 12:49 am
Sharyn, that is fantastic! I really hope you do well on it. You have waited so long. Keep up that hemoglobin too!
ellen – dad's daughter
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- September 25, 2010 at 12:49 am
Sharyn, that is fantastic! I really hope you do well on it. You have waited so long. Keep up that hemoglobin too!
ellen – dad's daughter
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- September 25, 2010 at 2:35 am
Hi Sharyn,
I am really happy to see your post – really good news! You have been really strong in going through so many obstacles to get to this point, so I am sending lots of positive thoughts to you (and Jim too) for your starting the Ipi treatment. You are truly an amazing lady who inspries others to keep fighting, and with true grace and humor.
Best,
Jim
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- September 25, 2010 at 12:19 pm
Oh this is great to read Sharyn. You are my very own Fighting Newie and I am always sending up thoughts to God and everyone who listens.
Continue with the positive attitudes. We are sort of kindred sisters in a off way. (cept well you got one left I have none) hahah
Love Bonnie
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- September 25, 2010 at 12:19 pm
Oh this is great to read Sharyn. You are my very own Fighting Newie and I am always sending up thoughts to God and everyone who listens.
Continue with the positive attitudes. We are sort of kindred sisters in a off way. (cept well you got one left I have none) hahah
Love Bonnie
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- September 25, 2010 at 2:35 am
Hi Sharyn,
I am really happy to see your post – really good news! You have been really strong in going through so many obstacles to get to this point, so I am sending lots of positive thoughts to you (and Jim too) for your starting the Ipi treatment. You are truly an amazing lady who inspries others to keep fighting, and with true grace and humor.
Best,
Jim
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- September 26, 2010 at 12:15 am
that is awesome that you got your counts up in the nick of time! I have a good feeling that all of your hard work is going to pay off!
-pat on long island
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- September 26, 2010 at 12:15 am
that is awesome that you got your counts up in the nick of time! I have a good feeling that all of your hard work is going to pay off!
-pat on long island
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