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Finally started Ipi!!!

Forums General Melanoma Community Finally started Ipi!!!

  • Post
    Sharyn
    Participant

      Well, it wasn't as smooth sailing as I had thought. After having all the preliminary tests and scans last week in Montreal, my Dr there called me last Fri to tell me my hemoglobin was too low (7.6), and if I didn't get it up within 5 days, I wasn't eligible for the trial. So I had bloodwork done locally on Fri afternnon, hemoglobin was 8.0, but still not high enough. So on Monday I went in to the Cancer Centre to have a blood transfusion — 2 units. Then, on Wed, I flew back to Montreal on a wing and a prayer, hoping that my hemoglobin had risen enough.

      Well, it wasn't as smooth sailing as I had thought. After having all the preliminary tests and scans last week in Montreal, my Dr there called me last Fri to tell me my hemoglobin was too low (7.6), and if I didn't get it up within 5 days, I wasn't eligible for the trial. So I had bloodwork done locally on Fri afternnon, hemoglobin was 8.0, but still not high enough. So on Monday I went in to the Cancer Centre to have a blood transfusion — 2 units. Then, on Wed, I flew back to Montreal on a wing and a prayer, hoping that my hemoglobin had risen enough. Good news, it was up to 10.8, so on Thurs, we started Ipi at 11:30. I had no adverse events, walked back to the hotel afterwards (20-25 min walk), then went to the airport and flew home late last night. This morning I feel fine, and I hope it continues. I've waited a very long time to start this trial, with lots of detours (gamma knife, genetic profiling, mastectomy, etc), so I'm delighted to be finally underway.  I'll update as things move forward.

      Hugs

      Sharyn

      Stage IV

      ILP, LND, PV-10, hysterectomy, GM-CSF, WBR, SRS, mastectomy, and now Ipi.  

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    • Replies
        Marshipops
        Participant

          Hi Sharyn

          I'm new here and just read your profile.  Jings!!  You've been through so much!  I really hope that the Ipi works for you, good luck!

          Marsha x

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          Marshipops
          Participant

            Hi Sharyn

            I'm new here and just read your profile.  Jings!!  You've been through so much!  I really hope that the Ipi works for you, good luck!

            Marsha x

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            James from Sydney
            Participant

              Hi Sharyn

              so glad to see you have started. Sending you lots of positive energy.

              best wishes

              James

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              James from Sydney
              Participant

                Hi Sharyn

                so glad to see you have started. Sending you lots of positive energy.

                best wishes

                James

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                ValinMtl
                Participant

                  Round one done..now on to round two!!!  Let's get that nasty beast and kill it dead. Val

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                  ValinMtl
                  Participant

                    Round one done..now on to round two!!!  Let's get that nasty beast and kill it dead. Val

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                      Sharyn
                      Participant

                        I'm with ya, girl!  See ya in October!  Hugs, Sharyn

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                        Sharyn
                        Participant

                          I'm with ya, girl!  See ya in October!  Hugs, Sharyn

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                        dian in spokane
                        Participant

                          good luck girl!

                          dian

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                          dian in spokane
                          Participant

                            good luck girl!

                            dian

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                            killmel
                            Participant

                              Hey Sharyn,

                               

                              Happy you are underway??/ I am thinking about IPI. Have you had any side effects??? What are you doing for them??

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                                Sharyn
                                Participant

                                  No side effects so far, but it's only been 36 hours. I feel totally normal, healthy appetite, sleeping well.

                                  Hugs

                                  Sharyn

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                                  Sharyn
                                  Participant

                                    No side effects so far, but it's only been 36 hours. I feel totally normal, healthy appetite, sleeping well.

                                    Hugs

                                    Sharyn

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                                  killmel
                                  Participant

                                    Hey Sharyn,

                                     

                                    Happy you are underway??/ I am thinking about IPI. Have you had any side effects??? What are you doing for them??

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                                    Jim M.
                                    Participant

                                      I'm glad you're finally on Ipi! I pray you are a responder.

                                      God Bless,

                                       Jim M.

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                                      Jim M.
                                      Participant

                                        I'm glad you're finally on Ipi! I pray you are a responder.

                                        God Bless,

                                         Jim M.

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                                        Sharyn, that is fantastic!  I really hope you do well on it.  You have waited so long.  Keep up that hemoglobin too!

                                         

                                        ellen – dad's daughter

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                                        Sharyn, that is fantastic!  I really hope you do well on it.  You have waited so long.  Keep up that hemoglobin too!

                                         

                                        ellen – dad's daughter

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                                        King
                                        Participant

                                          Sharyn,

                                           

                                          You have a great attitude and have been fighting, fighting, fighting.  Really hoping that Ipi is your answer and that the side effects are minimal.

                                           

                                          You are an inspiration!

                                           

                                          Stay Strong

                                          King

                                          Stage IV 7/05 Liver mets

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                                          King
                                          Participant

                                            Sharyn,

                                             

                                            You have a great attitude and have been fighting, fighting, fighting.  Really hoping that Ipi is your answer and that the side effects are minimal.

                                             

                                            You are an inspiration!

                                             

                                            Stay Strong

                                            King

                                            Stage IV 7/05 Liver mets

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                                            Jim in Denver
                                            Participant

                                              Hi Sharyn,

                                              I am really happy to see your post – really good news!  You have been really strong in going through so many obstacles to get to this point, so I am sending lots of positive thoughts to you (and Jim too) for your starting the Ipi treatment.  You are truly an amazing lady who inspries others to keep fighting, and with true grace and humor. 

                                              Best,

                                              Jim

                                               

                                               

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                                                Bonnie Lea
                                                Participant

                                                  Oh this is great to read Sharyn.  You are my very own   Fighting Newie  and I am always sending up thoughts to God and everyone who listens.

                                                  Continue with the positive attitudes.  We are sort of kindred sisters in a off way.  (cept well you got one left I have none) hahah

                                                  Love Bonnie

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                                                  Bonnie Lea
                                                  Participant

                                                    Oh this is great to read Sharyn.  You are my very own   Fighting Newie  and I am always sending up thoughts to God and everyone who listens.

                                                    Continue with the positive attitudes.  We are sort of kindred sisters in a off way.  (cept well you got one left I have none) hahah

                                                    Love Bonnie

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                                                  Jim in Denver
                                                  Participant

                                                    Hi Sharyn,

                                                    I am really happy to see your post – really good news!  You have been really strong in going through so many obstacles to get to this point, so I am sending lots of positive thoughts to you (and Jim too) for your starting the Ipi treatment.  You are truly an amazing lady who inspries others to keep fighting, and with true grace and humor. 

                                                    Best,

                                                    Jim

                                                     

                                                     

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                                                    makedoandmend
                                                    Participant

                                                      that is awesome that you got your counts up in the nick of time!  I have a good feeling that all of your hard work is going to pay off!

                                                      -pat on long island

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                                                      makedoandmend
                                                      Participant

                                                        that is awesome that you got your counts up in the nick of time!  I have a good feeling that all of your hard work is going to pay off!

                                                        -pat on long island

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