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Finally started Ipi!!!

Forums General Melanoma Community Finally started Ipi!!!

  • Post
    Sharyn
    Participant

    Well, it wasn't as smooth sailing as I had thought. After having all the preliminary tests and scans last week in Montreal, my Dr there called me last Fri to tell me my hemoglobin was too low (7.6), and if I didn't get it up within 5 days, I wasn't eligible for the trial. So I had bloodwork done locally on Fri afternnon, hemoglobin was 8.0, but still not high enough. So on Monday I went in to the Cancer Centre to have a blood transfusion — 2 units. Then, on Wed, I flew back to Montreal on a wing and a prayer, hoping that my hemoglobin had risen enough.

    Well, it wasn't as smooth sailing as I had thought. After having all the preliminary tests and scans last week in Montreal, my Dr there called me last Fri to tell me my hemoglobin was too low (7.6), and if I didn't get it up within 5 days, I wasn't eligible for the trial. So I had bloodwork done locally on Fri afternnon, hemoglobin was 8.0, but still not high enough. So on Monday I went in to the Cancer Centre to have a blood transfusion — 2 units. Then, on Wed, I flew back to Montreal on a wing and a prayer, hoping that my hemoglobin had risen enough. Good news, it was up to 10.8, so on Thurs, we started Ipi at 11:30. I had no adverse events, walked back to the hotel afterwards (20-25 min walk), then went to the airport and flew home late last night. This morning I feel fine, and I hope it continues. I've waited a very long time to start this trial, with lots of detours (gamma knife, genetic profiling, mastectomy, etc), so I'm delighted to be finally underway.  I'll update as things move forward.

    Hugs

    Sharyn

    Stage IV

    ILP, LND, PV-10, hysterectomy, GM-CSF, WBR, SRS, mastectomy, and now Ipi.  

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Viewing 19 reply threads
  • Replies
      Marshipops
      Participant

      Hi Sharyn

      I'm new here and just read your profile.  Jings!!  You've been through so much!  I really hope that the Ipi works for you, good luck!

      Marsha x

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      Marshipops
      Participant

      Hi Sharyn

      I'm new here and just read your profile.  Jings!!  You've been through so much!  I really hope that the Ipi works for you, good luck!

      Marsha x

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      James from Sydney
      Participant

      Hi Sharyn

      so glad to see you have started. Sending you lots of positive energy.

      best wishes

      James

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      James from Sydney
      Participant

      Hi Sharyn

      so glad to see you have started. Sending you lots of positive energy.

      best wishes

      James

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      ValinMtl
      Participant

      Round one done..now on to round two!!!  Let's get that nasty beast and kill it dead. Val

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      ValinMtl
      Participant

      Round one done..now on to round two!!!  Let's get that nasty beast and kill it dead. Val

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        Sharyn
        Participant

        I'm with ya, girl!  See ya in October!  Hugs, Sharyn

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        Sharyn
        Participant

        I'm with ya, girl!  See ya in October!  Hugs, Sharyn

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      dian in spokane
      Participant

      good luck girl!

      dian

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      dian in spokane
      Participant

      good luck girl!

      dian

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      killmel
      Participant

      Hey Sharyn,

       

      Happy you are underway??/ I am thinking about IPI. Have you had any side effects??? What are you doing for them??

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        Sharyn
        Participant

        No side effects so far, but it's only been 36 hours. I feel totally normal, healthy appetite, sleeping well.

        Hugs

        Sharyn

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        Sharyn
        Participant

        No side effects so far, but it's only been 36 hours. I feel totally normal, healthy appetite, sleeping well.

        Hugs

        Sharyn

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      killmel
      Participant

      Hey Sharyn,

       

      Happy you are underway??/ I am thinking about IPI. Have you had any side effects??? What are you doing for them??

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      Jim M.
      Participant

      I'm glad you're finally on Ipi! I pray you are a responder.

      God Bless,

       Jim M.

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      Jim M.
      Participant

      I'm glad you're finally on Ipi! I pray you are a responder.

      God Bless,

       Jim M.

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      Sharyn, that is fantastic!  I really hope you do well on it.  You have waited so long.  Keep up that hemoglobin too!

       

      ellen – dad's daughter

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      Sharyn, that is fantastic!  I really hope you do well on it.  You have waited so long.  Keep up that hemoglobin too!

       

      ellen – dad's daughter

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      King
      Participant

      Sharyn,

       

      You have a great attitude and have been fighting, fighting, fighting.  Really hoping that Ipi is your answer and that the side effects are minimal.

       

      You are an inspiration!

       

      Stay Strong

      King

      Stage IV 7/05 Liver mets

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      King
      Participant

      Sharyn,

       

      You have a great attitude and have been fighting, fighting, fighting.  Really hoping that Ipi is your answer and that the side effects are minimal.

       

      You are an inspiration!

       

      Stay Strong

      King

      Stage IV 7/05 Liver mets

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      Jim in Denver
      Participant

      Hi Sharyn,

      I am really happy to see your post – really good news!  You have been really strong in going through so many obstacles to get to this point, so I am sending lots of positive thoughts to you (and Jim too) for your starting the Ipi treatment.  You are truly an amazing lady who inspries others to keep fighting, and with true grace and humor. 

      Best,

      Jim

       

       

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        Bonnie Lea
        Participant

        Oh this is great to read Sharyn.  You are my very own   Fighting Newie  and I am always sending up thoughts to God and everyone who listens.

        Continue with the positive attitudes.  We are sort of kindred sisters in a off way.  (cept well you got one left I have none) hahah

        Love Bonnie

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        Bonnie Lea
        Participant

        Oh this is great to read Sharyn.  You are my very own   Fighting Newie  and I am always sending up thoughts to God and everyone who listens.

        Continue with the positive attitudes.  We are sort of kindred sisters in a off way.  (cept well you got one left I have none) hahah

        Love Bonnie

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      Jim in Denver
      Participant

      Hi Sharyn,

      I am really happy to see your post – really good news!  You have been really strong in going through so many obstacles to get to this point, so I am sending lots of positive thoughts to you (and Jim too) for your starting the Ipi treatment.  You are truly an amazing lady who inspries others to keep fighting, and with true grace and humor. 

      Best,

      Jim

       

       

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      makedoandmend
      Participant

      that is awesome that you got your counts up in the nick of time!  I have a good feeling that all of your hard work is going to pay off!

      -pat on long island

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      makedoandmend
      Participant

      that is awesome that you got your counts up in the nick of time!  I have a good feeling that all of your hard work is going to pay off!

      -pat on long island

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