Finally-great scan news!!
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Finally-great scan news!!

› Forums › General Melanoma Community › Finally-great scan news!!

  • Post
    • January 7, 2014 at 1:02 pm
    Maureen038
    Participant

    My husband just had scans from the BMS CA209-004 study of 3mg/kg of yervoy and 1 mg/kg of nivolumbab. There is nothing new and his tumors have shrunk almost 50 percent!!! We are so thrilled, but we are still dealing with the side effect of hemolytic anemia after the third infusion. He has been on steroids for almost a month and while it's been tapered down from 100mg to 30 mg he can't get on the maintaince schedule of nivolumbab until his steroids are stopped. Yesterday, we were at UPMC with Dr. kirkwood and his glucose level went very high so they had to give him insulin twice. We are hoping to get all of this under control soon and he needs to see an endricologist now.

    i wanted to post this to give people hope. This is the third trial he has been on, so please don't give up. He had HD interferon and he had the ACT at NIH this summer. The ACT stopped the alarmingly quick growth of lung mets, but unfortunately a few mets kept growing a few mm. Each of the trials have taken a toll on his body though so he is eating very healthy foods, exercising and enjoying each day! You truly learn what is important in life. We wish everyone here the best!!

    Maureen

Viewing 20 reply threads
  • Replies
      • January 7, 2014 at 4:57 pm
      Jahendry12
      Participant

      Great News Maureen – so glad to hear it.  I know how much anxiety there is when waiting for scan results….it's the worst.  When you get good news – celebrate and enjoy life!

      • January 7, 2014 at 4:57 pm
      Jahendry12
      Participant

      Great News Maureen – so glad to hear it.  I know how much anxiety there is when waiting for scan results….it's the worst.  When you get good news – celebrate and enjoy life!

      • January 7, 2014 at 4:57 pm
      Jahendry12
      Participant

      Great News Maureen – so glad to hear it.  I know how much anxiety there is when waiting for scan results….it's the worst.  When you get good news – celebrate and enjoy life!

      • January 7, 2014 at 9:49 pm
      BrianP
      Participant

      Great news Maureen.  Glad to see the combo is working for you all as well.  Hope the other items improve soon as well.  Sounds like you all are doing all the right things.

      Brian

      • January 7, 2014 at 9:49 pm
      BrianP
      Participant

      Great news Maureen.  Glad to see the combo is working for you all as well.  Hope the other items improve soon as well.  Sounds like you all are doing all the right things.

      Brian

        • January 7, 2014 at 10:04 pm
        Maureen038
        Participant

        Thanks Julie and Brian for your support!! The anxiety before scans is truly awful as everyone knows. We feel so thankful that this treatment showed such great results. We just hope he can resolve the side effects issues soon so he can start treatment again. I hope you are both doing well! Take care.

        Maureen

        • January 7, 2014 at 10:04 pm
        Maureen038
        Participant

        Thanks Julie and Brian for your support!! The anxiety before scans is truly awful as everyone knows. We feel so thankful that this treatment showed such great results. We just hope he can resolve the side effects issues soon so he can start treatment again. I hope you are both doing well! Take care.

        Maureen

        • January 7, 2014 at 10:04 pm
        Maureen038
        Participant

        Thanks Julie and Brian for your support!! The anxiety before scans is truly awful as everyone knows. We feel so thankful that this treatment showed such great results. We just hope he can resolve the side effects issues soon so he can start treatment again. I hope you are both doing well! Take care.

        Maureen

      • January 7, 2014 at 9:49 pm
      BrianP
      Participant

      Great news Maureen.  Glad to see the combo is working for you all as well.  Hope the other items improve soon as well.  Sounds like you all are doing all the right things.

      Brian

      • January 7, 2014 at 10:31 pm
      hbecker
      Participant

      Happy to hear your great news Maureen!

      Best regards –

      Hazel

      • January 7, 2014 at 10:31 pm
      hbecker
      Participant

      Happy to hear your great news Maureen!

      Best regards –

      Hazel

      • January 7, 2014 at 10:31 pm
      hbecker
      Participant

      Happy to hear your great news Maureen!

      Best regards –

      Hazel

        • January 8, 2014 at 6:54 pm
        Maureen038
        Participant

        Thanks Hazel! I'm so happy all is well with your husband.

        love,

        Maureen 

        • January 8, 2014 at 6:54 pm
        Maureen038
        Participant

        Thanks Hazel! I'm so happy all is well with your husband.

        love,

        Maureen 

        • January 8, 2014 at 6:54 pm
        Maureen038
        Participant

        Thanks Hazel! I'm so happy all is well with your husband.

        love,

        Maureen 

      • January 7, 2014 at 11:23 pm
      POW
      Participant

      Maureen, thank you for sharing Don's great results! You give all melanoma warriors reason to be hopeful. 

      In the 15 months since I joined MPIP, I have heard of more and more cases where patients have refused to quit after 2 or 3 or more treatments and finally– FINALLY– found something that worked for them. The depth and breadth of new melanoma treatments is, indeed, a whole new and unexplored world for us. Congratulatlons to you and Don for being the teriffic fighters that you are and "Thank you" for encouraging others to keep fighting. 

      • January 7, 2014 at 11:23 pm
      POW
      Participant

      Maureen, thank you for sharing Don's great results! You give all melanoma warriors reason to be hopeful. 

      In the 15 months since I joined MPIP, I have heard of more and more cases where patients have refused to quit after 2 or 3 or more treatments and finally– FINALLY– found something that worked for them. The depth and breadth of new melanoma treatments is, indeed, a whole new and unexplored world for us. Congratulatlons to you and Don for being the teriffic fighters that you are and "Thank you" for encouraging others to keep fighting. 

      • January 7, 2014 at 11:23 pm
      POW
      Participant

      Maureen, thank you for sharing Don's great results! You give all melanoma warriors reason to be hopeful. 

      In the 15 months since I joined MPIP, I have heard of more and more cases where patients have refused to quit after 2 or 3 or more treatments and finally– FINALLY– found something that worked for them. The depth and breadth of new melanoma treatments is, indeed, a whole new and unexplored world for us. Congratulatlons to you and Don for being the teriffic fighters that you are and "Thank you" for encouraging others to keep fighting. 

        • January 8, 2014 at 6:56 pm
        Maureen038
        Participant

        I agree with you Pat! Thank goodness there are more and more options. Bill is feeling much better today and his glucose level continues to get better! I so appreciate your support and advice!

        • January 8, 2014 at 6:56 pm
        Maureen038
        Participant

        I agree with you Pat! Thank goodness there are more and more options. Bill is feeling much better today and his glucose level continues to get better! I so appreciate your support and advice!

        • January 8, 2014 at 6:56 pm
        Maureen038
        Participant

        I agree with you Pat! Thank goodness there are more and more options. Bill is feeling much better today and his glucose level continues to get better! I so appreciate your support and advice!

      • January 8, 2014 at 1:01 am
      Hstevens0072
      Participant

      Wonderful news!

      • January 8, 2014 at 1:01 am
      Hstevens0072
      Participant

      Wonderful news!

      • January 8, 2014 at 1:01 am
      Hstevens0072
      Participant

      Wonderful news!

        • January 8, 2014 at 7:00 pm
        Maureen038
        Participant

        Thanks Holly! I am thrilled for you and your husband too!!

        Maureen

        • January 8, 2014 at 7:00 pm
        Maureen038
        Participant

        Thanks Holly! I am thrilled for you and your husband too!!

        Maureen

        • January 8, 2014 at 7:00 pm
        Maureen038
        Participant

        Thanks Holly! I am thrilled for you and your husband too!!

        Maureen

      • January 8, 2014 at 4:07 pm
      Brendan
      Participant

      Great news, Maureen. Thanks for sharing.

       

      • January 8, 2014 at 4:07 pm
      Brendan
      Participant

      Great news, Maureen. Thanks for sharing.

       

      • January 8, 2014 at 4:07 pm
      Brendan
      Participant

      Great news, Maureen. Thanks for sharing.

       

      • January 8, 2014 at 4:07 pm
      Brendan
      Participant

      Great news, Maureen. Thanks for sharing.

       

      • January 8, 2014 at 4:07 pm
      Brendan
      Participant

      Great news, Maureen. Thanks for sharing.

       

      • January 8, 2014 at 4:07 pm
      Brendan
      Participant

      Great news, Maureen. Thanks for sharing.

       

        • January 8, 2014 at 7:01 pm
        Maureen038
        Participant

        Thanks Brendan for the support! I hope you get great results too! When are your scans?

        Maureen

        • January 8, 2014 at 7:01 pm
        Maureen038
        Participant

        Thanks Brendan for the support! I hope you get great results too! When are your scans?

        Maureen

        • January 8, 2014 at 7:01 pm
        Maureen038
        Participant

        Thanks Brendan for the support! I hope you get great results too! When are your scans?

        Maureen

        • January 8, 2014 at 10:56 pm
        sofistef
        Participant
        Great news, Maureen, so happy to see the treatment is working!
        Dana
        • January 9, 2014 at 10:38 pm
        Maureen038
        Participant

        Thanks Dana! Wishing you the best with your scans in February!!

        Maureen

        • January 9, 2014 at 10:38 pm
        Maureen038
        Participant

        Thanks Dana! Wishing you the best with your scans in February!!

        Maureen

        • January 9, 2014 at 10:38 pm
        Maureen038
        Participant

        Thanks Dana! Wishing you the best with your scans in February!!

        Maureen

        • January 8, 2014 at 10:56 pm
        sofistef
        Participant
        Great news, Maureen, so happy to see the treatment is working!
        Dana
        • January 8, 2014 at 10:56 pm
        sofistef
        Participant
        Great news, Maureen, so happy to see the treatment is working!
        Dana
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