› Forums › General Melanoma Community › Feeling after lymph node removal
- This topic has 15 replies, 5 voices, and was last updated 8 years, 3 months ago by AshleyS.
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- January 7, 2016 at 1:21 am
Does anyone know of any therapy or remedies to help regain feeling after lymph node removal? I had my surgery in September at my right groin and haven't really regained much feeling in my upper thigh. It goes down the inner thigh, down to my knee and in the groin area. (And even a little further over) I know it's possible not to regain any but if anyone has any helpful hints I would greatly appreciate it.
Misty
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- January 7, 2016 at 3:16 am
I had similar numbness for about 6 months or so. Then it began to resolve and things have been mostly back to normal since (3 years later), except occasionally I still have some numbness that returns at the very top of my thigh. I didn't do anything at all to get rid of it and it just seemed to resolve on its own. I hope yours does too. Maybe somebody else will have some proactive suggestions, but I wanted to share my own experience just to say that there is always the possibility it will resolve on its own with time.
Good luck!
Cheri
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- January 7, 2016 at 3:16 am
I had similar numbness for about 6 months or so. Then it began to resolve and things have been mostly back to normal since (3 years later), except occasionally I still have some numbness that returns at the very top of my thigh. I didn't do anything at all to get rid of it and it just seemed to resolve on its own. I hope yours does too. Maybe somebody else will have some proactive suggestions, but I wanted to share my own experience just to say that there is always the possibility it will resolve on its own with time.
Good luck!
Cheri
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- January 7, 2016 at 3:16 am
I had similar numbness for about 6 months or so. Then it began to resolve and things have been mostly back to normal since (3 years later), except occasionally I still have some numbness that returns at the very top of my thigh. I didn't do anything at all to get rid of it and it just seemed to resolve on its own. I hope yours does too. Maybe somebody else will have some proactive suggestions, but I wanted to share my own experience just to say that there is always the possibility it will resolve on its own with time.
Good luck!
Cheri
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- January 7, 2016 at 3:29 am
Misty – i had the my underarm nodes removed 14 months ago. After the surgery I could feel nothing in area of about the size of a softball (in my arm and chest area)….other than pain around that general area.
Today the area of numbness about the size of a baseball. My best suggestion is to the stretching exercises they recommended right after surgery. Only take 3-5 minutes but I notice an improvement for a couple of days…and then I repeat again).
Best wishes….Michel
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- January 7, 2016 at 3:29 am
Misty – i had the my underarm nodes removed 14 months ago. After the surgery I could feel nothing in area of about the size of a softball (in my arm and chest area)….other than pain around that general area.
Today the area of numbness about the size of a baseball. My best suggestion is to the stretching exercises they recommended right after surgery. Only take 3-5 minutes but I notice an improvement for a couple of days…and then I repeat again).
Best wishes….Michel
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- January 7, 2016 at 3:29 am
Misty – i had the my underarm nodes removed 14 months ago. After the surgery I could feel nothing in area of about the size of a softball (in my arm and chest area)….other than pain around that general area.
Today the area of numbness about the size of a baseball. My best suggestion is to the stretching exercises they recommended right after surgery. Only take 3-5 minutes but I notice an improvement for a couple of days…and then I repeat again).
Best wishes….Michel
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- January 7, 2016 at 3:36 am
It might not be quite the same, but I had some nerves cut to my lower arm during a WLE. It was quite horrible having the WLE and some cautery and feeling the cautery 'electrocute' down my nerves. That was six months ago and I have noticed a definite improvement over time, I'd say about 50% better. Apparently nerves do try to regrow, and if they manage to make the right connections you can regain sensation. It's a bit hit and miss though. I found a link saying they regenerate at one inch per month, so hopefully you have a gradual improvement over time. It's quite unnerving, so to speak, to have no feeling on part of your body. Here's the link:
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- January 7, 2016 at 3:36 am
It might not be quite the same, but I had some nerves cut to my lower arm during a WLE. It was quite horrible having the WLE and some cautery and feeling the cautery 'electrocute' down my nerves. That was six months ago and I have noticed a definite improvement over time, I'd say about 50% better. Apparently nerves do try to regrow, and if they manage to make the right connections you can regain sensation. It's a bit hit and miss though. I found a link saying they regenerate at one inch per month, so hopefully you have a gradual improvement over time. It's quite unnerving, so to speak, to have no feeling on part of your body. Here's the link:
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- January 7, 2016 at 3:36 am
It might not be quite the same, but I had some nerves cut to my lower arm during a WLE. It was quite horrible having the WLE and some cautery and feeling the cautery 'electrocute' down my nerves. That was six months ago and I have noticed a definite improvement over time, I'd say about 50% better. Apparently nerves do try to regrow, and if they manage to make the right connections you can regain sensation. It's a bit hit and miss though. I found a link saying they regenerate at one inch per month, so hopefully you have a gradual improvement over time. It's quite unnerving, so to speak, to have no feeling on part of your body. Here's the link:
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- January 7, 2016 at 4:12 pm
Hey Misty, I am glad you're doing relatively well. My experience may not be what you want to hear….
After my complete lymph node dissection from my left groin I experienced the same thing as you. A year later, and it's a bit better, but pretty much the same. However, I've kind of gotten used to it. I wear a Jobst support hose because it helps with the "strange sensation" (most people wear them for lymphedema). If one of my kids grabs my leg the wrong way it can still be really painful. I tried rubbing Frankincense essential oils on it early on, but I don't think it did a thing.
I hope you figure something out.
Ashley
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- January 7, 2016 at 4:12 pm
Hey Misty, I am glad you're doing relatively well. My experience may not be what you want to hear….
After my complete lymph node dissection from my left groin I experienced the same thing as you. A year later, and it's a bit better, but pretty much the same. However, I've kind of gotten used to it. I wear a Jobst support hose because it helps with the "strange sensation" (most people wear them for lymphedema). If one of my kids grabs my leg the wrong way it can still be really painful. I tried rubbing Frankincense essential oils on it early on, but I don't think it did a thing.
I hope you figure something out.
Ashley
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- January 7, 2016 at 4:12 pm
Hey Misty, I am glad you're doing relatively well. My experience may not be what you want to hear….
After my complete lymph node dissection from my left groin I experienced the same thing as you. A year later, and it's a bit better, but pretty much the same. However, I've kind of gotten used to it. I wear a Jobst support hose because it helps with the "strange sensation" (most people wear them for lymphedema). If one of my kids grabs my leg the wrong way it can still be really painful. I tried rubbing Frankincense essential oils on it early on, but I don't think it did a thing.
I hope you figure something out.
Ashley
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