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Exhaustion after Cyber/Gamma Knife treatments for brain mets?

Forums General Melanoma Community Exhaustion after Cyber/Gamma Knife treatments for brain mets?

  • Post
    kalisama
    Participant

      Hi all,

      It's been a week + since I underwent two 3 series Cyberknife treatments on 2 brain mets. I have been exhausted ever since. Have you experienced same? Is this normal or am I just depressed that the targeted immunotherapy I'm on (Mek/Taf) isn't getting up in to my brain? Curious about others' experiences after radio surgery to the brain.

      PS- so glad I found this forum where people understand what I'm going through and my language doesn't sound like Swahili! Thank you!

      Best,

      kali

    Viewing 2 reply threads
    • Replies
        ed williams
        Participant

          I had 3 small mets last Oct. and had cyber knife treatment at the Ottawa General in Canada. I was back on my mountain bike the next day. Last scan was July and shows things are still clear. I have a MRI scan every 3 months. I started a Immunotherapy trial in Jan of 2014 for two lung mets that they found July of 2013 and I have some fatigue associated with the trial drugs. Stage 4 with Brain and lung mets used to have a 5 month average survival time. I am happy to be able to say that the old stats need to be updated!!!!! Best wishes Ed

          ed williams
          Participant

            I had 3 small mets last Oct. and had cyber knife treatment at the Ottawa General in Canada. I was back on my mountain bike the next day. Last scan was July and shows things are still clear. I have a MRI scan every 3 months. I started a Immunotherapy trial in Jan of 2014 for two lung mets that they found July of 2013 and I have some fatigue associated with the trial drugs. Stage 4 with Brain and lung mets used to have a 5 month average survival time. I am happy to be able to say that the old stats need to be updated!!!!! Best wishes Ed

              kalisama
              Participant

                thanks ed, glad to hear of your success. how many treatments did you have on the 3 mets? was it a single treatment or multiple sessions? appreciate your input.

                kalisama
                Participant

                  thanks ed, glad to hear of your success. how many treatments did you have on the 3 mets? was it a single treatment or multiple sessions? appreciate your input.

                  ed williams
                  Participant

                    One treatment that lasted about one hour. The mets that I had were about 3mm in size in three different regions of the brain. The surgeon name was Dr. Sinclair who trained at Standord in stereotactic radiosurgery. I still have the mask , which my 5 year old daughter thinks is really neat. It does get easier, in time, to deal with Melanoma. Best wishes Ed  

                    ed williams
                    Participant

                      One treatment that lasted about one hour. The mets that I had were about 3mm in size in three different regions of the brain. The surgeon name was Dr. Sinclair who trained at Standord in stereotactic radiosurgery. I still have the mask , which my 5 year old daughter thinks is really neat. It does get easier, in time, to deal with Melanoma. Best wishes Ed  

                      tschmith
                      Participant

                        I had Stereotactic Radiosurgery after the removal of a brain met.  I don't recall fatigue as a problem.  However, later on I was treated with Yervoy and went through quite a a difficult trial at NIH. Both failed. My immune system was compromised so that naturally caused fatigue. When the fatigue continued longer than my blood work indicated (I was anemic), I was put on an anti-depressant, focused on a good diet, and exercised.  It helped.  I'm now on Pembro and am feeling better than I was. I think the stress of this disease is hard to deal with so talk to your doctors about your fatigue and concerns of depression.  They can help.  Best wishes!  Terrie

                        kalisama
                        Participant

                          Thank you Terrie. Makes a lot of sense.

                          Best of health to you,
                          kali

                          kalisama
                          Participant

                            Thank you Terrie. Makes a lot of sense.

                            Best of health to you,
                            kali

                            kalisama
                            Participant

                              Thank you Terrie. Makes a lot of sense.

                              Best of health to you,
                              kali

                              tschmith
                              Participant

                                I had Stereotactic Radiosurgery after the removal of a brain met.  I don't recall fatigue as a problem.  However, later on I was treated with Yervoy and went through quite a a difficult trial at NIH. Both failed. My immune system was compromised so that naturally caused fatigue. When the fatigue continued longer than my blood work indicated (I was anemic), I was put on an anti-depressant, focused on a good diet, and exercised.  It helped.  I'm now on Pembro and am feeling better than I was. I think the stress of this disease is hard to deal with so talk to your doctors about your fatigue and concerns of depression.  They can help.  Best wishes!  Terrie

                                tschmith
                                Participant

                                  I had Stereotactic Radiosurgery after the removal of a brain met.  I don't recall fatigue as a problem.  However, later on I was treated with Yervoy and went through quite a a difficult trial at NIH. Both failed. My immune system was compromised so that naturally caused fatigue. When the fatigue continued longer than my blood work indicated (I was anemic), I was put on an anti-depressant, focused on a good diet, and exercised.  It helped.  I'm now on Pembro and am feeling better than I was. I think the stress of this disease is hard to deal with so talk to your doctors about your fatigue and concerns of depression.  They can help.  Best wishes!  Terrie

                                  ed williams
                                  Participant

                                    One treatment that lasted about one hour. The mets that I had were about 3mm in size in three different regions of the brain. The surgeon name was Dr. Sinclair who trained at Standord in stereotactic radiosurgery. I still have the mask , which my 5 year old daughter thinks is really neat. It does get easier, in time, to deal with Melanoma. Best wishes Ed  

                                    kalisama
                                    Participant

                                      thanks ed, glad to hear of your success. how many treatments did you have on the 3 mets? was it a single treatment or multiple sessions? appreciate your input.

                                    ed williams
                                    Participant

                                      I had 3 small mets last Oct. and had cyber knife treatment at the Ottawa General in Canada. I was back on my mountain bike the next day. Last scan was July and shows things are still clear. I have a MRI scan every 3 months. I started a Immunotherapy trial in Jan of 2014 for two lung mets that they found July of 2013 and I have some fatigue associated with the trial drugs. Stage 4 with Brain and lung mets used to have a 5 month average survival time. I am happy to be able to say that the old stats need to be updated!!!!! Best wishes Ed

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