Elevated CK. Anyone else have this?

I was all set to start treatment for stage III melanoma with interferon (had actually received my first  month worth of shots) and went to my appointment where my oncologist was going to administer my first dose.  I was told of all the miserable side effects and was fully prepared to face each and everyone of them….because I was not going to let this beat me!!  To my surprise when my doctor came into the room he advised me we were going to go a different route as the Ipi had just been approved for use in Stage III :o)  I had my first treatment on November 23, 2015 and 3 more following that for the 1st four (what my doc called, "big doses") and after the 4th was set go every 3 months for a year.  I had absolutely no problem with any of my treatments until about a week after my 4th treatment. I got an awful sinus infection which was treated with antiobiotics but my head ache and pressure would not go away.  Doc ordered an MRI and my body was unfortunately attacking my pituitary gland.  I was prescribe 40 ml of prednisone and the gland started to shrink to normal.  Unfortunately my doc decided the unnkown benefits was out weighted by the known risks at this point and discontinued my treatment with the Ipi.  That was frightening to me.   I still have issues I am struggling with caused by the pituitary problems.  Have since had to have a hysterectomy as my hormones went crazy and my body thought it would be super awesome to just menstruate…..non stop for months!!  I am still on a low dose of prednisone (5 ml every other day) because every time I try to stop I have bad head aches and dizzy spells. 

I do not know what any of my levels were or are…..but the doc always tells me everything looks normal. 

My doc told me that things could pop up at any time and they weren't quite sure on how long after treatment we may have issues that need to be dealt with.  He said we sort of trained our body to go into somewhat of a panic/attack mode when things are not right and that is what they will do.  We need to be hyper vigilant.

I just pray I got enough and that it found any thing that shouldn't be there and DESTROYED it!!! 

I was all set to start treatment for stage III melanoma with interferon (had actually received my first  month worth of shots) and went to my appointment where my oncologist was going to administer my first dose.  I was told of all the miserable side effects and was fully prepared to face each and everyone of them….because I was not going to let this beat me!!  To my surprise when my doctor came into the room he advised me we were going to go a different route as the Ipi had just been approved for use in Stage III :o)  I had my first treatment on November 23, 2015 and 3 more following that for the 1st four (what my doc called, "big doses") and after the 4th was set go every 3 months for a year.  I had absolutely no problem with any of my treatments until about a week after my 4th treatment. I got an awful sinus infection which was treated with antiobiotics but my head ache and pressure would not go away.  Doc ordered an MRI and my body was unfortunately attacking my pituitary gland.  I was prescribe 40 ml of prednisone and the gland started to shrink to normal.  Unfortunately my doc decided the unnkown benefits was out weighted by the known risks at this point and discontinued my treatment with the Ipi.  That was frightening to me.   I still have issues I am struggling with caused by the pituitary problems.  Have since had to have a hysterectomy as my hormones went crazy and my body thought it would be super awesome to just menstruate…..non stop for months!!  I am still on a low dose of prednisone (5 ml every other day) because every time I try to stop I have bad head aches and dizzy spells. 

I do not know what any of my levels were or are…..but the doc always tells me everything looks normal. 

My doc told me that things could pop up at any time and they weren't quite sure on how long after treatment we may have issues that need to be dealt with.  He said we sort of trained our body to go into somewhat of a panic/attack mode when things are not right and that is what they will do.  We need to be hyper vigilant.

I just pray I got enough and that it found any thing that shouldn't be there and DESTROYED it!!! 

I was all set to start treatment for stage III melanoma with interferon (had actually received my first  month worth of shots) and went to my appointment where my oncologist was going to administer my first dose.  I was told of all the miserable side effects and was fully prepared to face each and everyone of them….because I was not going to let this beat me!!  To my surprise when my doctor came into the room he advised me we were going to go a different route as the Ipi had just been approved for use in Stage III :o)  I had my first treatment on November 23, 2015 and 3 more following that for the 1st four (what my doc called, "big doses") and after the 4th was set go every 3 months for a year.  I had absolutely no problem with any of my treatments until about a week after my 4th treatment. I got an awful sinus infection which was treated with antiobiotics but my head ache and pressure would not go away.  Doc ordered an MRI and my body was unfortunately attacking my pituitary gland.  I was prescribe 40 ml of prednisone and the gland started to shrink to normal.  Unfortunately my doc decided the unnkown benefits was out weighted by the known risks at this point and discontinued my treatment with the Ipi.  That was frightening to me.   I still have issues I am struggling with caused by the pituitary problems.  Have since had to have a hysterectomy as my hormones went crazy and my body thought it would be super awesome to just menstruate…..non stop for months!!  I am still on a low dose of prednisone (5 ml every other day) because every time I try to stop I have bad head aches and dizzy spells. 

I do not know what any of my levels were or are…..but the doc always tells me everything looks normal. 

My doc told me that things could pop up at any time and they weren't quite sure on how long after treatment we may have issues that need to be dealt with.  He said we sort of trained our body to go into somewhat of a panic/attack mode when things are not right and that is what they will do.  We need to be hyper vigilant.

I just pray I got enough and that it found any thing that shouldn't be there and DESTROYED it!!!