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  • Post
    • May 23, 2013 at 1:40 am
    bikerwifee
    Participant
      I dont know how but Lynn ldh went down to 900 was 1300. The dr will not be doing the sixth gamma knife. Lynn is to weak. He starts Temador tomo but they gave us only a 15 to 20 percent chance in it working. Theres just nothing else for us to try. Lynn is a fighter and was willing to try this.

      Lynn got saved a long time ago and hes says he knows hes going to heaven. I think hes ready but not ready he prayed today and asked God to heal him hes asked God to please take him home if he wasnt going to heal him. Ive never seen one man have so many people pulling for him. They recently had a bike run for him over 100 motorcycles and riders showed up. Ive seen people pray that I would have never thought could pray.

      Thank all of you for responding when i just needed comforting words. I pray God continues to comfort snd heal each of you and I pray all these new drugs make it in time to save you all.

      Lynn survived 5 gamma knife surgeries for 32 brain mets, ipi was a breeze no problems, zelobraf for 8 month and abaraxene and know on to temador. DONT EVER GIVE UP OR GIVE IN. FIGHT ON MY DEAR FAMILY

    Viewing 17 reply threads
    • Replies
        • May 23, 2013 at 4:54 am
        washoegal
        Participant

          I am so sorry to hear more bad news on your beloved husband.  I do hope they are managing any pain he might be in.  Please try to take care care of yourself in this horribly stressful time.

          My thoughts and love are with you and Lynn,

          Mary

          • May 23, 2013 at 4:54 am
          washoegal
          Participant

            I am so sorry to hear more bad news on your beloved husband.  I do hope they are managing any pain he might be in.  Please try to take care care of yourself in this horribly stressful time.

            My thoughts and love are with you and Lynn,

            Mary

              • May 23, 2013 at 6:42 am
              deardad
              Participant

                Sorry to hear Lynn is deteriorating, life seems so surreal when you living this stress. My father never gave up the will to live either, and so all we could do is support him in this belief, until life was gone. 

                I too believe there will be a time when all those who pass away will live again, so hold onto that comfort. Take care of yourself.

                Nahmi

                • May 23, 2013 at 6:42 am
                deardad
                Participant

                  Sorry to hear Lynn is deteriorating, life seems so surreal when you living this stress. My father never gave up the will to live either, and so all we could do is support him in this belief, until life was gone. 

                  I too believe there will be a time when all those who pass away will live again, so hold onto that comfort. Take care of yourself.

                  Nahmi

                  • May 23, 2013 at 6:42 am
                  deardad
                  Participant

                    Sorry to hear Lynn is deteriorating, life seems so surreal when you living this stress. My father never gave up the will to live either, and so all we could do is support him in this belief, until life was gone. 

                    I too believe there will be a time when all those who pass away will live again, so hold onto that comfort. Take care of yourself.

                    Nahmi

                  • May 23, 2013 at 4:54 am
                  washoegal
                  Participant

                    I am so sorry to hear more bad news on your beloved husband.  I do hope they are managing any pain he might be in.  Please try to take care care of yourself in this horribly stressful time.

                    My thoughts and love are with you and Lynn,

                    Mary

                    • May 23, 2013 at 11:17 am
                    Fen
                    Participant

                      My heart breaks for you both.  The test of a person is during these difficult times and you and Lynn stand out like shining stars. Whatever comes to pass you have the comfort of having done the right thing so well.  God bless you both and your praying motorcycle friends.    Fen

                      • May 23, 2013 at 11:17 am
                      Fen
                      Participant

                        My heart breaks for you both.  The test of a person is during these difficult times and you and Lynn stand out like shining stars. Whatever comes to pass you have the comfort of having done the right thing so well.  God bless you both and your praying motorcycle friends.    Fen

                        • May 23, 2013 at 11:17 am
                        Fen
                        Participant

                          My heart breaks for you both.  The test of a person is during these difficult times and you and Lynn stand out like shining stars. Whatever comes to pass you have the comfort of having done the right thing so well.  God bless you both and your praying motorcycle friends.    Fen

                          • May 23, 2013 at 11:32 am
                          Lori C
                          Participant

                            I hate this disease so very much.  I will certainly pray the Temador works for you.  I am very glad you have so many around you supporting you.

                             

                            Lori

                            • May 23, 2013 at 11:32 am
                            Lori C
                            Participant

                              I hate this disease so very much.  I will certainly pray the Temador works for you.  I am very glad you have so many around you supporting you.

                               

                              Lori

                              • May 23, 2013 at 11:32 am
                              Lori C
                              Participant

                                I hate this disease so very much.  I will certainly pray the Temador works for you.  I am very glad you have so many around you supporting you.

                                 

                                Lori

                                • May 23, 2013 at 2:19 pm
                                buffcody
                                Participant

                                  Lynn will be in my mind, heart, prayers today.  We fellow Forum members continue to be strengthened by yours and his courage.  Thank you so much!

                                  • May 23, 2013 at 2:19 pm
                                  buffcody
                                  Participant

                                    Lynn will be in my mind, heart, prayers today.  We fellow Forum members continue to be strengthened by yours and his courage.  Thank you so much!

                                    • May 23, 2013 at 2:19 pm
                                    buffcody
                                    Participant

                                      Lynn will be in my mind, heart, prayers today.  We fellow Forum members continue to be strengthened by yours and his courage.  Thank you so much!

                                        • May 23, 2013 at 7:20 pm
                                        NYKaren
                                        Participant

                                          Dear Belva,

                                          I truly the Temador works for Lynn.

                                          You are both in my thoughts.

                                          with love,
                                          Karen

                                          • May 23, 2013 at 7:20 pm
                                          NYKaren
                                          Participant

                                            Dear Belva,

                                            I truly the Temador works for Lynn.

                                            You are both in my thoughts.

                                            with love,
                                            Karen

                                            • May 23, 2013 at 7:20 pm
                                            NYKaren
                                            Participant

                                              Dear Belva,

                                              I truly the Temador works for Lynn.

                                              You are both in my thoughts.

                                              with love,
                                              Karen

                                            • May 23, 2013 at 9:38 pm
                                            JoshF
                                            Participant
                                              I’ve followed your posts for some time and it makes me sad to hear what you and Lynn are going through. It’s heartbreaking when you hear that a fighter like Lynn is running out of options. I’m praying that the Temodar works. God be with you and Lynn.

                                              Josh

                                              • May 23, 2013 at 9:38 pm
                                              JoshF
                                              Participant
                                                I’ve followed your posts for some time and it makes me sad to hear what you and Lynn are going through. It’s heartbreaking when you hear that a fighter like Lynn is running out of options. I’m praying that the Temodar works. God be with you and Lynn.

                                                Josh

                                                • May 23, 2013 at 9:38 pm
                                                JoshF
                                                Participant
                                                  I’ve followed your posts for some time and it makes me sad to hear what you and Lynn are going through. It’s heartbreaking when you hear that a fighter like Lynn is running out of options. I’m praying that the Temodar works. God be with you and Lynn.

                                                  Josh

                                                  • May 25, 2013 at 10:29 pm
                                                  LibbyinVA
                                                  Participant
                                                    So terribly sorry to read your post…just had to tell you. Wish there was something more to say…will be thinking about you guys!
                                                    • May 25, 2013 at 10:29 pm
                                                    LibbyinVA
                                                    Participant
                                                      So terribly sorry to read your post…just had to tell you. Wish there was something more to say…will be thinking about you guys!
                                                      • May 25, 2013 at 10:29 pm
                                                      LibbyinVA
                                                      Participant
                                                        So terribly sorry to read your post…just had to tell you. Wish there was something more to say…will be thinking about you guys!
                                                    Viewing 17 reply threads
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