Driving and traveling after brain mets

I say take it a day at a time. If he’s feeling well enough come mid-January I say go for it. I think you can handle the drive. I live in South Florida and I know that at Disney World they have private free of use breast feeding rooms throughout the park. If your husband needs a timeout to rest he can use one of these private rooms. They are quite nice and free of use. I wish you and your family a fabulous holiday.

Wendy

I say take it a day at a time. If he’s feeling well enough come mid-January I say go for it. I think you can handle the drive. I live in South Florida and I know that at Disney World they have private free of use breast feeding rooms throughout the park. If your husband needs a timeout to rest he can use one of these private rooms. They are quite nice and free of use. I wish you and your family a fabulous holiday.

Wendy

I say take it a day at a time. If he’s feeling well enough come mid-January I say go for it. I think you can handle the drive. I live in South Florida and I know that at Disney World they have private free of use breast feeding rooms throughout the park. If your husband needs a timeout to rest he can use one of these private rooms. They are quite nice and free of use. I wish you and your family a fabulous holiday.

Wendy

I say take it a day at a time. If he’s feeling well enough come mid-January I say go for it. I think you can handle the drive. I live in South Florida and I know that at Disney World they have private free of use breast feeding rooms throughout the park. If your husband needs a timeout to rest he can use one of these private rooms. They are quite nice and free of use. I wish you and your family a fabulous holiday.

Wendy

I say take it a day at a time. If he’s feeling well enough come mid-January I say go for it. I think you can handle the drive. I live in South Florida and I know that at Disney World they have private free of use breast feeding rooms throughout the park. If your husband needs a timeout to rest he can use one of these private rooms. They are quite nice and free of use. I wish you and your family a fabulous holiday.

Wendy

I say take it a day at a time. If he’s feeling well enough come mid-January I say go for it. I think you can handle the drive. I live in South Florida and I know that at Disney World they have private free of use breast feeding rooms throughout the park. If your husband needs a timeout to rest he can use one of these private rooms. They are quite nice and free of use. I wish you and your family a fabulous holiday.

Wendy

I say take it a day at a time. If he’s feeling well enough come mid-January I say go for it. I think you can handle the drive. I live in South Florida and I know that at Disney World they have private free of use breast feeding rooms throughout the park. If your husband needs a timeout to rest he can use one of these private rooms. They are quite nice and free of use. I wish you and your family a fabulous holiday.

Wendy

I say take it a day at a time. If he’s feeling well enough come mid-January I say go for it. I think you can handle the drive. I live in South Florida and I know that at Disney World they have private free of use breast feeding rooms throughout the park. If your husband needs a timeout to rest he can use one of these private rooms. They are quite nice and free of use. I wish you and your family a fabulous holiday.

Wendy

I say take it a day at a time. If he’s feeling well enough come mid-January I say go for it. I think you can handle the drive. I live in South Florida and I know that at Disney World they have private free of use breast feeding rooms throughout the park. If your husband needs a timeout to rest he can use one of these private rooms. They are quite nice and free of use. I wish you and your family a fabulous holiday.

Wendy

Go for it, I would definitely make the trip, nothing like the magic of Disney, to give you some wonderful memories. Plus, you might just luck out and get some nice warm weather, that can lift the spirits too! My husband also had a craniotomy and then WBR in October and during that radiation made a weekend family trip to NYC in a blinding rain/snow storm right before Halloween this year! We just slowed down when he needed to, but still managed a Broadway show, dinners out, Toys R Us and M and M store in Times Square, mass at St Patricks, Legos store at Rockefeller Center,etc. and we had FUN! Just plan accordingly, give your husband some down time, let him set his own pace! You will always cherish those special memories, so don’t let the medical profession discourage you. Be sensible, take his medications, and know that Orlando has hospitals in the unlikely event he may need one! There is no better medicine that watching your kids have a Blast! Merry Christmas! Valerie (Phil’s wife)

Go for it, I would definitely make the trip, nothing like the magic of Disney, to give you some wonderful memories. Plus, you might just luck out and get some nice warm weather, that can lift the spirits too! My husband also had a craniotomy and then WBR in October and during that radiation made a weekend family trip to NYC in a blinding rain/snow storm right before Halloween this year! We just slowed down when he needed to, but still managed a Broadway show, dinners out, Toys R Us and M and M store in Times Square, mass at St Patricks, Legos store at Rockefeller Center,etc. and we had FUN! Just plan accordingly, give your husband some down time, let him set his own pace! You will always cherish those special memories, so don’t let the medical profession discourage you. Be sensible, take his medications, and know that Orlando has hospitals in the unlikely event he may need one! There is no better medicine that watching your kids have a Blast! Merry Christmas! Valerie (Phil’s wife)

Go for it, I would definitely make the trip, nothing like the magic of Disney, to give you some wonderful memories. Plus, you might just luck out and get some nice warm weather, that can lift the spirits too! My husband also had a craniotomy and then WBR in October and during that radiation made a weekend family trip to NYC in a blinding rain/snow storm right before Halloween this year! We just slowed down when he needed to, but still managed a Broadway show, dinners out, Toys R Us and M and M store in Times Square, mass at St Patricks, Legos store at Rockefeller Center,etc. and we had FUN! Just plan accordingly, give your husband some down time, let him set his own pace! You will always cherish those special memories, so don’t let the medical profession discourage you. Be sensible, take his medications, and know that Orlando has hospitals in the unlikely event he may need one! There is no better medicine that watching your kids have a Blast! Merry Christmas! Valerie (Phil’s wife)

Yes – go for it.  Memories are important now.  And feeling good is important.  Make sure to wear sunglases in the car and to have some comfortable pillows and soothing music available.  I hope that you have a very happy holiday and many more to come.  

 

David

Yes – go for it.  Memories are important now.  And feeling good is important.  Make sure to wear sunglases in the car and to have some comfortable pillows and soothing music available.  I hope that you have a very happy holiday and many more to come.  

 

David

Yes – go for it.  Memories are important now.  And feeling good is important.  Make sure to wear sunglases in the car and to have some comfortable pillows and soothing music available.  I hope that you have a very happy holiday and many more to come.  

 

David

definitely do it.  Brain mets are bad.  Other systemic mets can be just as serious, how is he doing overall? where are his other mets? is he taking any other medications?.  The only reason I would consider putting this trip off would be if there were a trial or new treatment option available in mid January.  Definitely get travelers insurance (in case you need to cancel at the last minute).  There have been many times when I "shoulda" got it, then I ended up in the hospital getting surgerized.

definitely do it.  Brain mets are bad.  Other systemic mets can be just as serious, how is he doing overall? where are his other mets? is he taking any other medications?.  The only reason I would consider putting this trip off would be if there were a trial or new treatment option available in mid January.  Definitely get travelers insurance (in case you need to cancel at the last minute).  There have been many times when I "shoulda" got it, then I ended up in the hospital getting surgerized.

definitely do it.  Brain mets are bad.  Other systemic mets can be just as serious, how is he doing overall? where are his other mets? is he taking any other medications?.  The only reason I would consider putting this trip off would be if there were a trial or new treatment option available in mid January.  Definitely get travelers insurance (in case you need to cancel at the last minute).  There have been many times when I "shoulda" got it, then I ended up in the hospital getting surgerized.

It was 6 months before my doctors let me drive after craniotomy #1. Somewhat less time after #2.

Some people here say "don't let melanoma rule your life" but my take is that it needs to be paid its due — or rather, one's immune system that is fighting melanoma needs to be paid ITS due, which for me means healthy diet, ample rest, exercise at tolerated, family & friends, and (especially as a brain met patient) (and especially on any kind of treatment that slows one down) taking it very easy based on my own personal energy level.

It was 6 months before my doctors let me drive after craniotomy #1. Somewhat less time after #2.

Some people here say "don't let melanoma rule your life" but my take is that it needs to be paid its due — or rather, one's immune system that is fighting melanoma needs to be paid ITS due, which for me means healthy diet, ample rest, exercise at tolerated, family & friends, and (especially as a brain met patient) (and especially on any kind of treatment that slows one down) taking it very easy based on my own personal energy level.

It was 6 months before my doctors let me drive after craniotomy #1. Somewhat less time after #2.

Some people here say "don't let melanoma rule your life" but my take is that it needs to be paid its due — or rather, one's immune system that is fighting melanoma needs to be paid ITS due, which for me means healthy diet, ample rest, exercise at tolerated, family & friends, and (especially as a brain met patient) (and especially on any kind of treatment that slows one down) taking it very easy based on my own personal energy level.

HI!  I am new to this board and to melanoma.  I have stage 4, recently diagnosed from a brain met that was removed on 14 Dec.  My family and i had planned to go to Disney for Christmas for months.  After my surgery I asked my neurosurgeons and oncologist if it would be ok to go still.  They completely approved so long as I didn't ride the rollercoasters!  I used a wheelchair the first day but it was miserable.  I have 2 small children and 2 older stepchildren and my sisters family is the same.  My parents also went and my stepmom was also in a wheelchair due to a foot injury.  So, I gave up the wheelchair the second day.  We stayed for 4 days total.  I was tired a lot but I tried not to push too hard and my family respected my needs to rest a bit now and then.  I quit taking my antiseizure meds though due to how fatigued they made me feel.  I have never had a seizure and am not driving either. But, I just don't want this melanoma to ruin my life that I have now.  My prognosis is still pretty good because they haven't found any other mets so far.  Hopefully they wont but I need a biopsy in January of my lung and a thyroid ultrasound.  I am supposed to get Gamma Knife in January so I am a bit behind your husband's level of treatment.  But, I just wanted to let you know that Disney can be done and going in January will be OK, the crowds will be less and they have motorized chairs you can rent or a push wheelchair you can use.  Definitely go!  Enjoy yourselves and try not to think about that horrible C word.  We did and I am so glad!  Good luck!!!!

Brenda

HI!  I am new to this board and to melanoma.  I have stage 4, recently diagnosed from a brain met that was removed on 14 Dec.  My family and i had planned to go to Disney for Christmas for months.  After my surgery I asked my neurosurgeons and oncologist if it would be ok to go still.  They completely approved so long as I didn't ride the rollercoasters!  I used a wheelchair the first day but it was miserable.  I have 2 small children and 2 older stepchildren and my sisters family is the same.  My parents also went and my stepmom was also in a wheelchair due to a foot injury.  So, I gave up the wheelchair the second day.  We stayed for 4 days total.  I was tired a lot but I tried not to push too hard and my family respected my needs to rest a bit now and then.  I quit taking my antiseizure meds though due to how fatigued they made me feel.  I have never had a seizure and am not driving either. But, I just don't want this melanoma to ruin my life that I have now.  My prognosis is still pretty good because they haven't found any other mets so far.  Hopefully they wont but I need a biopsy in January of my lung and a thyroid ultrasound.  I am supposed to get Gamma Knife in January so I am a bit behind your husband's level of treatment.  But, I just wanted to let you know that Disney can be done and going in January will be OK, the crowds will be less and they have motorized chairs you can rent or a push wheelchair you can use.  Definitely go!  Enjoy yourselves and try not to think about that horrible C word.  We did and I am so glad!  Good luck!!!!

Brenda

HI!  I am new to this board and to melanoma.  I have stage 4, recently diagnosed from a brain met that was removed on 14 Dec.  My family and i had planned to go to Disney for Christmas for months.  After my surgery I asked my neurosurgeons and oncologist if it would be ok to go still.  They completely approved so long as I didn't ride the rollercoasters!  I used a wheelchair the first day but it was miserable.  I have 2 small children and 2 older stepchildren and my sisters family is the same.  My parents also went and my stepmom was also in a wheelchair due to a foot injury.  So, I gave up the wheelchair the second day.  We stayed for 4 days total.  I was tired a lot but I tried not to push too hard and my family respected my needs to rest a bit now and then.  I quit taking my antiseizure meds though due to how fatigued they made me feel.  I have never had a seizure and am not driving either. But, I just don't want this melanoma to ruin my life that I have now.  My prognosis is still pretty good because they haven't found any other mets so far.  Hopefully they wont but I need a biopsy in January of my lung and a thyroid ultrasound.  I am supposed to get Gamma Knife in January so I am a bit behind your husband's level of treatment.  But, I just wanted to let you know that Disney can be done and going in January will be OK, the crowds will be less and they have motorized chairs you can rent or a push wheelchair you can use.  Definitely go!  Enjoy yourselves and try not to think about that horrible C word.  We did and I am so glad!  Good luck!!!!

Brenda