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Does it ever end?

Forums General Melanoma Community Does it ever end?

  • Post
    Richard_K
    Participant

       

      December 1998 – Melanoma left cheek, Clark’s level IV.  Excised, SNB, all is good.

      August 2007 – Myoepithelial carcinoma in left parotid gland.  Partial Parotidectomy, all is good.

      October 2009 – Stage IV Melanoma in lung.  IL-2 no response, Zelboraf great response.

      December 2010 – Squamous-cell carcinoma.  MOHS excision, all is good.

      September 8, 2011 – Found out I now have prostate cancer.

       

      December 1998 – Melanoma left cheek, Clark’s level IV.  Excised, SNB, all is good.

      August 2007 – Myoepithelial carcinoma in left parotid gland.  Partial Parotidectomy, all is good.

      October 2009 – Stage IV Melanoma in lung.  IL-2 no response, Zelboraf great response.

      December 2010 – Squamous-cell carcinoma.  MOHS excision, all is good.

      September 8, 2011 – Found out I now have prostate cancer.

      The purpose of this post; is anyone aware of a site similar to Melanoma.org but for people with prostate cancer?  Thanks in advance.

      Dick

    Viewing 13 reply threads
    • Replies
        washoegal
        Participant

          Dick,

          So sorry, you have really been though a lot!  Try csn.cancer.org  I don't know how active they are but it's worth a try.

          Good Luck

          Mary

          Stage 3

          washoegal
          Participant

            Dick,

            So sorry, you have really been though a lot!  Try csn.cancer.org  I don't know how active they are but it's worth a try.

            Good Luck

            Mary

            Stage 3

            BethA
            Participant

              Your list is pretty long!  But each event ends with "all is good".  That shows you have a good attitude and a strong fight in you.  Soon you will be able to say the same about your new cancer. 

              I hope you have found your new cancer very early and the treatment won't be too tough.  I will say a prayer that you will be healthy soon.  I hope you find a good support group too.  Beth 3/B

              BethA
              Participant

                Your list is pretty long!  But each event ends with "all is good".  That shows you have a good attitude and a strong fight in you.  Soon you will be able to say the same about your new cancer. 

                I hope you have found your new cancer very early and the treatment won't be too tough.  I will say a prayer that you will be healthy soon.  I hope you find a good support group too.  Beth 3/B

                Fen
                Participant

                  I'm sorry about your most recent diagnosis, Dick, you have certainly made the rounds.   I asked a friend about support groups and he suggested this one http://www.mdjunction.com/prostate-cancer.   

                  good luck and keep us posted.

                  Fen

                    Laurie from maine
                    Participant

                      HI Dick,

                      I am so sorry.  You were so kind in your post to me I just wanted to respond to tell you I am thinking of you – unfortunately I dont know of any website.  Good luck and keep us posted!!

                      laurie from maine

                      Laurie from maine
                      Participant

                        HI Dick,

                        I am so sorry.  You were so kind in your post to me I just wanted to respond to tell you I am thinking of you – unfortunately I dont know of any website.  Good luck and keep us posted!!

                        laurie from maine

                      Fen
                      Participant

                        I'm sorry about your most recent diagnosis, Dick, you have certainly made the rounds.   I asked a friend about support groups and he suggested this one http://www.mdjunction.com/prostate-cancer.   

                        good luck and keep us posted.

                        Fen

                        Donna M.
                        Participant

                          Hi Dick,

                          I came across the mdjunction site in my search too, but also please try Imerman Angels.  They will match you up with a mentor who is going through the same thing you are.

                          Hang in there.  Sending good, positive thoughts your way.

                          Donna M.
                          Participant

                            Hi Dick,

                            I came across the mdjunction site in my search too, but also please try Imerman Angels.  They will match you up with a mentor who is going through the same thing you are.

                            Hang in there.  Sending good, positive thoughts your way.

                            CKasper
                            Participant

                              Hi,

                              I don't know of a site, but it sounds like you have been on one heck of a roller coaster ride.

                              You might ask the secretary or nurse of the physician that is treating you if there are any groups you can go to or any internet sites regarding prostate cancer.

                              Good Luck to you and my prayers are with you. 

                               

                              C Kasper

                              CKasper
                              Participant

                                Hi,

                                I don't know of a site, but it sounds like you have been on one heck of a roller coaster ride.

                                You might ask the secretary or nurse of the physician that is treating you if there are any groups you can go to or any internet sites regarding prostate cancer.

                                Good Luck to you and my prayers are with you. 

                                 

                                C Kasper

                                JerryfromFauq
                                Participant

                                  From what I have learned with melanoma, Prostate cancer patients should look at Proton Radiation Therapy.

                                  http://www2.mdanderson.org/depts/oncolog/articles/04/7-8-julaug/7-8-04-1.html

                                  http://www.protons.com/

                                  http://www.righthealth.com/topic/Proton%20Radiation?as=goog&ac=427&p=l

                                     There are more Proton Therapy locations opening up as they can be afforded.

                                  JerryfromFauq
                                  Participant

                                    From what I have learned with melanoma, Prostate cancer patients should look at Proton Radiation Therapy.

                                    http://www2.mdanderson.org/depts/oncolog/articles/04/7-8-julaug/7-8-04-1.html

                                    http://www.protons.com/

                                    http://www.righthealth.com/topic/Proton%20Radiation?as=goog&ac=427&p=l

                                       There are more Proton Therapy locations opening up as they can be afforded.

                                    Richard_K
                                    Participant

                                      Thank you all for the suggestions and all of the kind thoughts.

                                      My current problem should be slow growing so I am going to spend some more time gathering information.  Since February 2010, I have had some 13 PET scans as part of the Zelboraf BRIM2 trial.  Only the August 2011 scan report made mention of hypermetabolic activity in the prostate while all the others simply noted and enlarged prostate.

                                      I am contacting the doctor who interprets the scans to see if there is any additional information in earlier scans that was not reported since the focus had been on melanoma.

                                      Dick

                                      Richard_K
                                      Participant

                                        Thank you all for the suggestions and all of the kind thoughts.

                                        My current problem should be slow growing so I am going to spend some more time gathering information.  Since February 2010, I have had some 13 PET scans as part of the Zelboraf BRIM2 trial.  Only the August 2011 scan report made mention of hypermetabolic activity in the prostate while all the others simply noted and enlarged prostate.

                                        I am contacting the doctor who interprets the scans to see if there is any additional information in earlier scans that was not reported since the focus had been on melanoma.

                                        Dick

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