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Decision Time…Lung Surgery + Braf vs. Braf alone

Forums General Melanoma Community Decision Time…Lung Surgery + Braf vs. Braf alone

  • Post
    Suzan AB
    Participant

    I received hard news today, mets/tumors in my right lung have grown and shown increased uptake.  I have one node in my left lung and nodes above and below my collar bone.  I have read that complete lung removal with treatment has a better survival rate than just getting clear margins (I have a paralyzed right hemi diaphragm with aceiation (misspelled?)  to the lower part of my lung with a large node sitting in there as well as a couple of nodes in the upper part of my right lung too.).  Seeing Dr.

    I received hard news today, mets/tumors in my right lung have grown and shown increased uptake.  I have one node in my left lung and nodes above and below my collar bone.  I have read that complete lung removal with treatment has a better survival rate than just getting clear margins (I have a paralyzed right hemi diaphragm with aceiation (misspelled?)  to the lower part of my lung with a large node sitting in there as well as a couple of nodes in the upper part of my right lung too.).  Seeing Dr. at UCSF on Thursday to discuss treatment.  Any suggestions will be greatly appreciated or stories about treatments that worked.

    My best to all…I am kinda of numb right now…

    Suzan AB

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      LynnLuc
      Participant

      No suggestions really…Just going to pray for you!  Maybe B-raf and Anti-PD1

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      LynnLuc
      Participant

      No suggestions really…Just going to pray for you!  Maybe B-raf and Anti-PD1

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        Suzan AB
        Participant

        Thanks, Lynn!

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        Suzan AB
        Participant

        Thanks, Lynn!

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