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Danger of too many scans vs cancer?

Forums General Melanoma Community Danger of too many scans vs cancer?

  • Post
    Rendergirl
    Participant

      My mom is worried about all the scans I'm getting. PET/CT, MRI, X-rays, etc… I told her the doctors wouldn't let me have all those scans if they didnt think it was needed. She's scared of them causing cancer… I already have cancer…lol. I told her I'm sure they weigh the benefits against the risks and at this point I need the scans.

      Anyone know how many scans are a safe limit?

      My mom is worried about all the scans I'm getting. PET/CT, MRI, X-rays, etc… I told her the doctors wouldn't let me have all those scans if they didnt think it was needed. She's scared of them causing cancer… I already have cancer…lol. I told her I'm sure they weigh the benefits against the risks and at this point I need the scans.

      Anyone know how many scans are a safe limit?

    Viewing 13 reply threads
    • Replies
        washoegal
        Participant

          I don't know the answer to your question but I do have a response for you.

           

          Please ….this is a scary statistic.  I usually tune my Doc out when he starts quoting stats because I am not a statistic.  I am also a Stage 3a.  So when I read this from the University of Michigan it made me sick to my stomach.  I think this is way high, it certainly is higher than I have ever heard….. But if your mom is going to bug you about too many scans….maybe it's time to scare her straight.  anyway here's what they claim

           

          "People with melanoma who have one or more positive lymph nodes are at a high risk to have their melanoma recur. It is believed that 70 to 80% of these individuals will have their melanoma come back within the next three to five years."

           

          So now, ask her if she would rather you wait until it is non-operable or catch it when it can be removed?

           

          Then smile to yourself and say…..it OK, I'm not a statistic and I'm done with this thing.

           

          Mary

          Stage 3

          washoegal
          Participant

            I don't know the answer to your question but I do have a response for you.

             

            Please ….this is a scary statistic.  I usually tune my Doc out when he starts quoting stats because I am not a statistic.  I am also a Stage 3a.  So when I read this from the University of Michigan it made me sick to my stomach.  I think this is way high, it certainly is higher than I have ever heard….. But if your mom is going to bug you about too many scans….maybe it's time to scare her straight.  anyway here's what they claim

             

            "People with melanoma who have one or more positive lymph nodes are at a high risk to have their melanoma recur. It is believed that 70 to 80% of these individuals will have their melanoma come back within the next three to five years."

             

            So now, ask her if she would rather you wait until it is non-operable or catch it when it can be removed?

             

            Then smile to yourself and say…..it OK, I'm not a statistic and I'm done with this thing.

             

            Mary

            Stage 3

            NicOz
            Participant

              http://www.radiologyinfo.org/en/pdf/sfty_xray.pdf

              There is a good list here on page 2. I have to admit, it's not high up on my list of concerns- the possibility of contracting a fatal cancer ๐Ÿ™‚ Been there, done that! In fact I reckon if I live long enough to have enough scans to contract another one, I'll have done bloody well ๐Ÿ˜€

              NicOz
              Participant

                http://www.radiologyinfo.org/en/pdf/sfty_xray.pdf

                There is a good list here on page 2. I have to admit, it's not high up on my list of concerns- the possibility of contracting a fatal cancer ๐Ÿ™‚ Been there, done that! In fact I reckon if I live long enough to have enough scans to contract another one, I'll have done bloody well ๐Ÿ˜€

                MichaelFL
                Participant

                  Maybe this will help you some.

                  Here is the radiation dose calculator. It covers everything from x-rays to CT scans to Nuclear medicine.

                   http://www.xrayrisk.com/calculator/calculator.php

                   Here is some information on radiation dosage and here is where I got this information from:

                   http://www.radiologyinfo.org/en/safety/index.cfm?pg=sfty_xray

                   The scientific unit of measurement for radiation dose, commonly referred to as effective dose, is the millisievert (mSv).

                   Average annual background radiation is about 2.2-3 mSv average annually from naturally occurring radioactive materials and cosmic radiation from outer space.

                  These natural "background" doses vary throughout the country and world.

                   PET scan radiation varies, but I believe it is usually around 7-8 mSv (millisieverts) which is comparable to about a 2 + year dose of background radiation. 

                  CT varies depending on the location as well. Whole body or abdomen and pelvis CT screening subjects the individual screened to radiation exposure from x rays at about 7-10 msv or comparable to about three years of background radiation. 

                  1 CT scan = about 7 mSv, so one could have a CT scan 4 times a year for 25 years, and their increased cancer risk is only 4.133% (693 mSv) after the 25 years. 

                  Typical effective radiation dose values.

                  Computed tomography Milliseverts (mSv)

                  Head CT 1 – 2 mSv

                  Pelvis CT 3 – 4 mSv

                  Chest CT 5 – 7 mSv

                  Abdomen CT 5 – 7 mSv

                  Abdomen/pelvis CT 8 – 11 mSv

                  Coronary CT angiography 5 – 12 mSv

                  Non-CT Milliseverts (mSv)

                  Hand radiograph Less than 0.1 mSv

                  Chest radiograph Less than 0.1 mSv

                  Mammogram 0.3 – 0.6 mSv

                  Barium enema exam 3 – 6 mSv

                  Coronary angiogram 5 – 10 mSv

                  Sestamibi myocardial perfusion (per injection) 6 – 9 mSv

                  Thallium myocardial perfusion (per injection) 26 – 35 mSv

                  Source: Cynthia H. McCullough, Ph.D., Mayo Clinic, Rochester, MN 

                  Michael

                  MichaelFL
                  Participant

                    Maybe this will help you some.

                    Here is the radiation dose calculator. It covers everything from x-rays to CT scans to Nuclear medicine.

                     http://www.xrayrisk.com/calculator/calculator.php

                     Here is some information on radiation dosage and here is where I got this information from:

                     http://www.radiologyinfo.org/en/safety/index.cfm?pg=sfty_xray

                     The scientific unit of measurement for radiation dose, commonly referred to as effective dose, is the millisievert (mSv).

                     Average annual background radiation is about 2.2-3 mSv average annually from naturally occurring radioactive materials and cosmic radiation from outer space.

                    These natural "background" doses vary throughout the country and world.

                     PET scan radiation varies, but I believe it is usually around 7-8 mSv (millisieverts) which is comparable to about a 2 + year dose of background radiation. 

                    CT varies depending on the location as well. Whole body or abdomen and pelvis CT screening subjects the individual screened to radiation exposure from x rays at about 7-10 msv or comparable to about three years of background radiation. 

                    1 CT scan = about 7 mSv, so one could have a CT scan 4 times a year for 25 years, and their increased cancer risk is only 4.133% (693 mSv) after the 25 years. 

                    Typical effective radiation dose values.

                    Computed tomography Milliseverts (mSv)

                    Head CT 1 – 2 mSv

                    Pelvis CT 3 – 4 mSv

                    Chest CT 5 – 7 mSv

                    Abdomen CT 5 – 7 mSv

                    Abdomen/pelvis CT 8 – 11 mSv

                    Coronary CT angiography 5 – 12 mSv

                    Non-CT Milliseverts (mSv)

                    Hand radiograph Less than 0.1 mSv

                    Chest radiograph Less than 0.1 mSv

                    Mammogram 0.3 – 0.6 mSv

                    Barium enema exam 3 – 6 mSv

                    Coronary angiogram 5 – 10 mSv

                    Sestamibi myocardial perfusion (per injection) 6 – 9 mSv

                    Thallium myocardial perfusion (per injection) 26 – 35 mSv

                    Source: Cynthia H. McCullough, Ph.D., Mayo Clinic, Rochester, MN 

                    Michael

                    Carmon in NM
                    Participant

                      I don't  know what is safe and what isn't but I can share my persoal experience:

                      I was diagnosed stage 3b 9/2008 and after over a year being NED, my onc decided to cut back PET/CT scans from every 3 months to every 6 months because I had done so well and she was concerned about radiation. The last three month scans were in 11/2009 and those scans were clear.

                      On June 18, 2010, a brain tumor that was not on that 11/2009 set of scans began bleeding into my brain requiring that I be airlifted to a neurosurgical ICU for an emergency craniotomy.

                      If she had done one more three month scan or had even gone to four months first, we could have caught that brain met before it was big enough to start bleeding. So I am a BIG believer in keeping up with scans because that brain met sure would have killed me before radiation from scans could have!

                      This isn't meant to scare you because each case and patient is completely different, just to say that it's kind of apples and oranges when you are dealing with melanoma that is so completely unpredictable. The radiation levels for CT scans are much lower than with PET scans so you might talk to your doctor about doing just CTs if that is a good option for you.

                      Now I get PET/CT and brain MRIs every three months and I'm glad for them!

                      Carmon in NM – Stage IIIb 9/2008, Stage IV 6/2010 with brain and adrenal mets, NED since 4/3/2011

                      Carmon in NM
                      Participant

                        I don't  know what is safe and what isn't but I can share my persoal experience:

                        I was diagnosed stage 3b 9/2008 and after over a year being NED, my onc decided to cut back PET/CT scans from every 3 months to every 6 months because I had done so well and she was concerned about radiation. The last three month scans were in 11/2009 and those scans were clear.

                        On June 18, 2010, a brain tumor that was not on that 11/2009 set of scans began bleeding into my brain requiring that I be airlifted to a neurosurgical ICU for an emergency craniotomy.

                        If she had done one more three month scan or had even gone to four months first, we could have caught that brain met before it was big enough to start bleeding. So I am a BIG believer in keeping up with scans because that brain met sure would have killed me before radiation from scans could have!

                        This isn't meant to scare you because each case and patient is completely different, just to say that it's kind of apples and oranges when you are dealing with melanoma that is so completely unpredictable. The radiation levels for CT scans are much lower than with PET scans so you might talk to your doctor about doing just CTs if that is a good option for you.

                        Now I get PET/CT and brain MRIs every three months and I'm glad for them!

                        Carmon in NM – Stage IIIb 9/2008, Stage IV 6/2010 with brain and adrenal mets, NED since 4/3/2011

                        washoegal
                        Participant

                          Do you see a trend in all these messages?  Please follow your recommeded scan schedule.

                          washoegal
                          Participant

                            Do you see a trend in all these messages?  Please follow your recommeded scan schedule.

                            Jan in OC
                            Participant

                              I was worried about the same thing when my husband got Mel.  When I asked his doc, he kinda laughed and said that my husband was considered terminal at stage 4 and there was nothing they could do that could be any worse that that!!  Our first Oncologist did not believe in scans and I urged my husband to change doctors asap!  I'm not gonna do the "shoulda, woulda, coulda" regrets….but I strongly encourage you to keep up with your scans and if you feel things are unusual/changing with your body…push for earlier scans.  If your doctor's attitudes are not in line with yours, find a new doctor.  Scans are not going to kill you!  Melanoma can! 

                              Jan in OC
                              Participant

                                I was worried about the same thing when my husband got Mel.  When I asked his doc, he kinda laughed and said that my husband was considered terminal at stage 4 and there was nothing they could do that could be any worse that that!!  Our first Oncologist did not believe in scans and I urged my husband to change doctors asap!  I'm not gonna do the "shoulda, woulda, coulda" regrets….but I strongly encourage you to keep up with your scans and if you feel things are unusual/changing with your body…push for earlier scans.  If your doctor's attitudes are not in line with yours, find a new doctor.  Scans are not going to kill you!  Melanoma can! 

                                BarbieGirl
                                Participant

                                  Hi, I'm stage 2B (stats are worse than 3a), so I'm high-risk for recurrence.  My onc and I decided we'd do regular scans, so if anything pops up, we'd catch it early.  Hopefully by catching anything early, we can treat it.  My schedule is:

                                  PET/CT – Every 6 months

                                  Brain MRI – Once a year

                                  Chest x-ray – Once a year

                                  Blood work – Every 3 months (not necessarily for melanoma, but checking thyroid, Vit D,, Vit C, calcium, etc. 

                                  I've been doing this for over 10 (NED) years now.  I've been accused of overkill, and how I might die from radiation poisoning before melanoma. I talked to my onc about it and she still agrees with me that the key to hopefully surviving melanoma is regular scans.  We both acknowledge that even WITH regular scans, melanoma can still come back with a vengeance, but like you said, she weighs the benefits against the risks.

                                  That's MY protocol, I'm comfy with it, but everybody is different.  I'm thankful I have a good doc who cares, and that I have really good insurance that pays for my scans.

                                  All my best to you!

                                  ~Lisa~

                                  BarbieGirl
                                  Participant

                                    Hi, I'm stage 2B (stats are worse than 3a), so I'm high-risk for recurrence.  My onc and I decided we'd do regular scans, so if anything pops up, we'd catch it early.  Hopefully by catching anything early, we can treat it.  My schedule is:

                                    PET/CT – Every 6 months

                                    Brain MRI – Once a year

                                    Chest x-ray – Once a year

                                    Blood work – Every 3 months (not necessarily for melanoma, but checking thyroid, Vit D,, Vit C, calcium, etc. 

                                    I've been doing this for over 10 (NED) years now.  I've been accused of overkill, and how I might die from radiation poisoning before melanoma. I talked to my onc about it and she still agrees with me that the key to hopefully surviving melanoma is regular scans.  We both acknowledge that even WITH regular scans, melanoma can still come back with a vengeance, but like you said, she weighs the benefits against the risks.

                                    That's MY protocol, I'm comfy with it, but everybody is different.  I'm thankful I have a good doc who cares, and that I have really good insurance that pays for my scans.

                                    All my best to you!

                                    ~Lisa~

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