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CyberKnife Treatment worked

Forums General Melanoma Community CyberKnife Treatment worked

  • Post
    Rydell
    Participant

    I am fairly new to this website, I've been viewing posts and replying to some. This website has been so helpful! Thank you all for educating me, comforting me, and giving me hope!

    I was diagnosed with Stage 4 Melanoma in January 2011 after a double craniotomy. I have one brain met left and 5 other lesions throughout my body. I received 4 CyberKnife treatments in February and I started Temodar (150mg/day for 6 weeks). I also just found out that I tested positive for the B-RAF mutation. Can anyone tell me their experiences with B-RAF inhibitors?

    I am fairly new to this website, I've been viewing posts and replying to some. This website has been so helpful! Thank you all for educating me, comforting me, and giving me hope!

    I was diagnosed with Stage 4 Melanoma in January 2011 after a double craniotomy. I have one brain met left and 5 other lesions throughout my body. I received 4 CyberKnife treatments in February and I started Temodar (150mg/day for 6 weeks). I also just found out that I tested positive for the B-RAF mutation. Can anyone tell me their experiences with B-RAF inhibitors?

    I met with my neurosurgeon today. The MRI, one month after CyberKnife, shows negative uptake in the areas where my two brain tumors were removed and the tumor that couldn't be removed is stable not growing! I have two more weeks of Temodar then another PET scan to see if that is working. Dr. Carvajal from MSK will tell us what the next step will be in this fight! He's a big advocate of Ipi. Can anyone tell me their experiences with that?

    I can't express how helpful this place has been for me, I was scared and searching for someone to talk to that could actually relate. Thank you and I wish all the best to all of you that are battling this beast!

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  • Replies
      lhaley
      Participant

      So glad that cyberknife has worked!  I hope that you find that Temodar has also shown to haveshrunk your other tumors!

      Linda

      Stage IV since 06

      stable

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      lhaley
      Participant

      So glad that cyberknife has worked!  I hope that you find that Temodar has also shown to haveshrunk your other tumors!

      Linda

      Stage IV since 06

      stable

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      KellieSue
      Participant

      Fantastic news! So happy to hear cyberknife worked for you and Temodar.

      No advice on Ipi but there are some Ipi warriors on here!

      Kellie(from Iowa) Stage IV on B-RAF

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      KellieSue
      Participant

      Fantastic news! So happy to hear cyberknife worked for you and Temodar.

      No advice on Ipi but there are some Ipi warriors on here!

      Kellie(from Iowa) Stage IV on B-RAF

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      jrami3
      Participant

      You are a strength to many of us, who are really new here. Hearing your news on the Cyberknife treatment brings hope to many..  <3 Keep inspiring!!

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      jrami3
      Participant

      You are a strength to many of us, who are really new here. Hearing your news on the Cyberknife treatment brings hope to many..  <3 Keep inspiring!!

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