› Forums › General Melanoma Community › Colitis again after Keytruda
- This topic has 4 replies, 3 voices, and was last updated 3 years, 10 months ago by Tsvetochka.
- Post
-
- May 18, 2020 at 3:25 pm
I had my last Keytruda infusion in January, and now I’m NED. (Hurrah!) During treatment I struggled with colitis. Then I felt better after we finished. But now I’ve had a week of diarrhea again. I’m trying to figure out if this is an encore from Keytruda or something else entirely? I never had any kind of digestive trouble before immunotherapy. Is that likely to have changed now?
Viewing 3 reply threads
- Replies
-
-
- May 18, 2020 at 10:10 pm
Hi Tsvetochka;
Two and a half years ago before I developed the beast, I could anything, anytime anyway. I had a cast iron stomach and nothing bothered it. A couple months after starting Nivo (opdivo), I developed Colitis. Eventually had to stop the immunotherapy, but two years later, still NED! Stomach…..not so much. I’ve had no repeats on the colitis after a long dosage of steroids (with just about all the steroidal side effects you could get). My stomach has never been the same. I have diarrhea on an on and off again basis, unexplained stomach pain and constant “issues”. But I am doing okay considering we weren’t sure I was going to be around for long. Here I am. Hope and pray the colitis goes away for you! I also hope and pray you stay NED!!!!
Ted -
- May 19, 2020 at 6:34 pm
I was on keytruda for 15 months before I had to discontinue due to colitis. I was on steroids for 6 weeks and needed two rounds of rimcaid to clear up the colitis. I too have experienced diaherra, constipation and stomach pain after this. I am curious to your physician thoughts. I have another appt inJune to discuss? I have been ned for slmost two years. I am very interested in your thoughts. Praying for continuing wellness with this beast for you both. -
- May 19, 2020 at 6:34 pm
I was on keytruda for 15 months before I had to discontinue due to colitis. I was on steroids for 6 weeks and needed two rounds of rimcaid to clear up the colitis. I too have experienced diaherra, constipation and stomach pain after this. I am curious to your physician thoughts. I have another appt inJune to discuss? I have been ned for slmost two years. I am very interested in your thoughts. Praying for continuing wellness with this beast for you both. -
- May 20, 2020 at 4:39 am
Thanks. That helps. Even if I have permanently traded in my old cast iron stomach, it is worth it to be rid of the melanoma!I won’t see my cancer doctors again until July, but I’m also curious about what they might say. If I don’t start feeling better soon, I might go back to the gastroenterologist they sent me to before. I would like to wait out quarantine first, though….
-
Viewing 3 reply threads
- You must be logged in to reply to this topic.