› Forums › General Melanoma Community › cheking in. PD1 # 4
- This topic has 18 replies, 3 voices, and was last updated 10 years, 6 months ago by Tina D.
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- October 3, 2013 at 4:47 pm
Happy that you are feeling well.Prayers sent that with your next scans you will get only good news.Beat the Beast. Al
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- October 3, 2013 at 4:47 pm
Happy that you are feeling well.Prayers sent that with your next scans you will get only good news.Beat the Beast. Al
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- October 7, 2013 at 2:25 am
Hi Tina. Had my gamma treatment Sept 3. MRI on Sept.30 and results were inconclusive.There was no new brain mets and doc could not say if tumors shrunk but did say they did not increase in size.Felt it was too early to tell.Will get another MRI at end of this month.Will see onc. doc on the 15th.Will post after visit.Still keeping my PMA. Thanks for your concern.Beat the Beast. Al
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- October 7, 2013 at 2:25 am
Hi Tina. Had my gamma treatment Sept 3. MRI on Sept.30 and results were inconclusive.There was no new brain mets and doc could not say if tumors shrunk but did say they did not increase in size.Felt it was too early to tell.Will get another MRI at end of this month.Will see onc. doc on the 15th.Will post after visit.Still keeping my PMA. Thanks for your concern.Beat the Beast. Al
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- October 7, 2013 at 2:25 am
Hi Tina. Had my gamma treatment Sept 3. MRI on Sept.30 and results were inconclusive.There was no new brain mets and doc could not say if tumors shrunk but did say they did not increase in size.Felt it was too early to tell.Will get another MRI at end of this month.Will see onc. doc on the 15th.Will post after visit.Still keeping my PMA. Thanks for your concern.Beat the Beast. Al
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- October 3, 2013 at 4:47 pm
Happy that you are feeling well.Prayers sent that with your next scans you will get only good news.Beat the Beast. Al
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- October 4, 2013 at 2:20 am
Hey Tina,
Glad to hear you are still feeling pretty good. I likewise am still feeling pretty good. Sounds like the Merck trial you are on and the BMS trial I am on are slightly different in the dosing schedule. I'm getting 3mg/kg every two weeks for 12 weeks. I have my 5th infusion scheduled for next Tuesday. Was feeling just slightly run down after my 3rd infusion but I haven't really felt that way this past week. Of course it's hard to tell if the fatigue is due to chasing my 3 and 4 year old or due to the Anti-Pd1 :). Hope you continue to feel well.
Brian
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- October 4, 2013 at 12:39 pm
Yes, chasing 3 and 4 year olds is the most delightful type of fatigue one can feel ๐ . I felt very fatigued for several days starting 4 days after last infusion. Doing ok so far this time. My thyroid has begun to waffle, so I think that may also be part of why I am feeling a bit more tired. The Merck trial I am on is every 3 weeks, but the dose is blinded. When are your scans?
Glad you are also feeling well. Been reading lots of good updates from people on the PD1. Always encouraging!
Tina
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- October 4, 2013 at 12:39 pm
Yes, chasing 3 and 4 year olds is the most delightful type of fatigue one can feel ๐ . I felt very fatigued for several days starting 4 days after last infusion. Doing ok so far this time. My thyroid has begun to waffle, so I think that may also be part of why I am feeling a bit more tired. The Merck trial I am on is every 3 weeks, but the dose is blinded. When are your scans?
Glad you are also feeling well. Been reading lots of good updates from people on the PD1. Always encouraging!
Tina
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- October 4, 2013 at 12:39 pm
Yes, chasing 3 and 4 year olds is the most delightful type of fatigue one can feel ๐ . I felt very fatigued for several days starting 4 days after last infusion. Doing ok so far this time. My thyroid has begun to waffle, so I think that may also be part of why I am feeling a bit more tired. The Merck trial I am on is every 3 weeks, but the dose is blinded. When are your scans?
Glad you are also feeling well. Been reading lots of good updates from people on the PD1. Always encouraging!
Tina
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- October 4, 2013 at 2:20 am
Hey Tina,
Glad to hear you are still feeling pretty good. I likewise am still feeling pretty good. Sounds like the Merck trial you are on and the BMS trial I am on are slightly different in the dosing schedule. I'm getting 3mg/kg every two weeks for 12 weeks. I have my 5th infusion scheduled for next Tuesday. Was feeling just slightly run down after my 3rd infusion but I haven't really felt that way this past week. Of course it's hard to tell if the fatigue is due to chasing my 3 and 4 year old or due to the Anti-Pd1 :). Hope you continue to feel well.
Brian
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- October 4, 2013 at 2:20 am
Hey Tina,
Glad to hear you are still feeling pretty good. I likewise am still feeling pretty good. Sounds like the Merck trial you are on and the BMS trial I am on are slightly different in the dosing schedule. I'm getting 3mg/kg every two weeks for 12 weeks. I have my 5th infusion scheduled for next Tuesday. Was feeling just slightly run down after my 3rd infusion but I haven't really felt that way this past week. Of course it's hard to tell if the fatigue is due to chasing my 3 and 4 year old or due to the Anti-Pd1 :). Hope you continue to feel well.
Brian
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