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Are there any good questions I can ask at my onc/derm followup following a positive CDKN2A result?
I gave my family tree as best I could and contacted the close relavtives who'd be affected. I was given information from genomics about pancreatic cancer and risk, a CT scan is being held up by insurance currently. As far as I know I was born Jaundice and placed under UV therapy, though obviously that was some time ago. We have a family history of spleen removal and inherrited spherocytosis.
How are CDKN2A+ melanoma patients followed up for other cancers like this?
It's a pretty small population that have CKDN2A. Maybe 2-4% of the melanoma population. I was told a 76% lifetime risk of getting melanoma so I doubt your early UV exposure was much of a factor.
As for followup, because I've had multiple primaries, I'm on 6 month visits for life. I just started getting pancreatic cancer screenings again. MRI one year, endoscopic ultrasound the next year. I've had both before but kind of got lost on followup because my insurance was problematic at that time. I was adopted so had no knowledge of any familiar connection when I was tested. The 3 primaries I had at that time was the reason I was included in a clinical trial looking for these mutations. I have since found my birth family and discovered both my mother and half sister have had melanoma. No history of pancreatic cancer that I've been made aware of. There are no screenings for any other cancers related to CDKN2A at my institution.
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