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Care for bleeding and growing tumors
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Care for bleeding and growing tumors

› Forums › General Melanoma Community › Care for bleeding and growing tumors

  • Post
    • February 21, 2012 at 12:57 am
    cwu
    Participant

      Hi everyone,

      Hi everyone,

      I wanted to give an update on my dad. My dad finished his last dose of Yervoy around Nov 21 and about a week after he was hospitalized for a severe reaction. He had problems moving his hands and feet and was confused and delirious. He was treated with steroids and salt to stabilize his salt level. The doctors think Yervoy caused imflammation of a part of his brain which controlled his salt level and caused his neuro problems. That was in late Nov/early December. He got out of the hospital and thankfully recovered. The bad news is that Yervoy doesnt seem to work for him. It has been about 24 weeks since he started Yervoy and the tumors on his leg  have gotten bigger. We have decided to stop pursuing treatment since there is nothing promising for him and he doesnt want to go to the hospital. His lesions are getting bigger and they have started to bleed. His MM is still contained in his lower leg.

      We are trying to get home hospice to help with the tumor dressing but I was hoping if anyone has advice on how to take care of tumors that are growing and oozing blood. Is it normal for the tumors to bleed? Dad lives with my sister and my sisters and brothers take good care of him so any advice on caring for his tumors and/or hospice is appreciated. I am so afraid of what is coming and dont want him to suffer. I hate this damn disease so much.

      Thank you everyone for your advice and support.

      Chau

    Viewing 8 reply threads
    • Replies
        • February 21, 2012 at 3:30 am
        LynnLuc
        Participant

          Perhaps you can contact Jill Sizemore. Her husband Eric lost his battle but he had severe leg tumors and also did Yervoy…they have about 16 videos on Youtube.Jill is also on FaceBook.She may also have suggestions for treatment.

          Here is one link…http://www.youtube.com/watch?v=qvsDUrbQv1g&feature=channel

          • February 21, 2012 at 3:30 am
          LynnLuc
          Participant

            Perhaps you can contact Jill Sizemore. Her husband Eric lost his battle but he had severe leg tumors and also did Yervoy…they have about 16 videos on Youtube.Jill is also on FaceBook.She may also have suggestions for treatment.

            Here is one link…http://www.youtube.com/watch?v=qvsDUrbQv1g&feature=channel

            • February 21, 2012 at 3:30 am
            LynnLuc
            Participant

              Perhaps you can contact Jill Sizemore. Her husband Eric lost his battle but he had severe leg tumors and also did Yervoy…they have about 16 videos on Youtube.Jill is also on FaceBook.She may also have suggestions for treatment.

              Here is one link…http://www.youtube.com/watch?v=qvsDUrbQv1g&feature=channel

                • February 21, 2012 at 9:44 pm
                cwu
                Participant

                  Hi Lynn,

                  Thanks for the advice. I remember reading about Jill and Eric's battle when I first joined this forum. I will reach out to her to see if she give any tips.

                  Thanks again,

                  Chau

                  • February 21, 2012 at 9:44 pm
                  cwu
                  Participant

                    Hi Lynn,

                    Thanks for the advice. I remember reading about Jill and Eric's battle when I first joined this forum. I will reach out to her to see if she give any tips.

                    Thanks again,

                    Chau

                    • February 21, 2012 at 9:44 pm
                    cwu
                    Participant

                      Hi Lynn,

                      Thanks for the advice. I remember reading about Jill and Eric's battle when I first joined this forum. I will reach out to her to see if she give any tips.

                      Thanks again,

                      Chau

                    • February 21, 2012 at 4:38 pm
                    o2bcheri
                    Participant
                      http://Www.ncrf.org.
                      My friend has breast cancer and melanoma on her leg.
                      After only a few days. Her tumors r shrinking on her leg.
                      It’s a miracle. And her energy is over the top.

                      Nothing to lose.

                        • February 21, 2012 at 9:45 pm
                        cwu
                        Participant

                          Thank you for responding, I will check out the website.

                          Chau

                          • February 21, 2012 at 9:45 pm
                          cwu
                          Participant

                            Thank you for responding, I will check out the website.

                            Chau

                            • February 21, 2012 at 9:45 pm
                            cwu
                            Participant

                              Thank you for responding, I will check out the website.

                              Chau

                            • February 21, 2012 at 4:38 pm
                            o2bcheri
                            Participant
                              http://Www.ncrf.org.
                              My friend has breast cancer and melanoma on her leg.
                              After only a few days. Her tumors r shrinking on her leg.
                              It’s a miracle. And her energy is over the top.

                              Nothing to lose.

                              • February 21, 2012 at 4:38 pm
                              o2bcheri
                              Participant
                                http://Www.ncrf.org.
                                My friend has breast cancer and melanoma on her leg.
                                After only a few days. Her tumors r shrinking on her leg.
                                It’s a miracle. And her energy is over the top.

                                Nothing to lose.

                                • February 21, 2012 at 5:54 pm
                                dearfoam
                                Participant

                                  I do not have experience with tumor dressing – dad's were all internal. From what I understand, MM is typically very "vascular," meaning it is prone to bleed. There were a lot of issies regarding bleed risks etc in all of his treatments, etc.; bleeding was a constant issue.

                                  Hospice was a relief for us in so many ways. I hope you find that it helps you and your dad find peace, as well as support.

                                  Best,

                                  DF

                                    • February 21, 2012 at 9:58 pm
                                    cwu
                                    Participant

                                      Hi DF,

                                      Thank you for responding, dad's oncologist mentioned that it is not unusual for tumors to bleed off and on.  We have started the process of getting hospice and hope they will help dad be more comfortable. 

                                      I read that your dad passed away recently and I am so sorry to hear about your loss.

                                      Chau

                                      • February 21, 2012 at 9:58 pm
                                      cwu
                                      Participant

                                        Hi DF,

                                        Thank you for responding, dad's oncologist mentioned that it is not unusual for tumors to bleed off and on.  We have started the process of getting hospice and hope they will help dad be more comfortable. 

                                        I read that your dad passed away recently and I am so sorry to hear about your loss.

                                        Chau

                                        • February 22, 2012 at 4:44 am
                                        dearfoam
                                        Participant

                                          Thank you, Chau.

                                          Hospice will have many services to offer you, inlcuding emotional support when needed. They were all very nice and professional.

                                          -DF

                                          • February 22, 2012 at 4:44 am
                                          dearfoam
                                          Participant

                                            Thank you, Chau.

                                            Hospice will have many services to offer you, inlcuding emotional support when needed. They were all very nice and professional.

                                            -DF

                                            • February 22, 2012 at 4:44 am
                                            dearfoam
                                            Participant

                                              Thank you, Chau.

                                              Hospice will have many services to offer you, inlcuding emotional support when needed. They were all very nice and professional.

                                              -DF

                                              • February 21, 2012 at 9:58 pm
                                              cwu
                                              Participant

                                                Hi DF,

                                                Thank you for responding, dad's oncologist mentioned that it is not unusual for tumors to bleed off and on.  We have started the process of getting hospice and hope they will help dad be more comfortable. 

                                                I read that your dad passed away recently and I am so sorry to hear about your loss.

                                                Chau

                                              • February 21, 2012 at 5:54 pm
                                              dearfoam
                                              Participant

                                                I do not have experience with tumor dressing – dad's were all internal. From what I understand, MM is typically very "vascular," meaning it is prone to bleed. There were a lot of issies regarding bleed risks etc in all of his treatments, etc.; bleeding was a constant issue.

                                                Hospice was a relief for us in so many ways. I hope you find that it helps you and your dad find peace, as well as support.

                                                Best,

                                                DF

                                                • February 21, 2012 at 5:54 pm
                                                dearfoam
                                                Participant

                                                  I do not have experience with tumor dressing – dad's were all internal. From what I understand, MM is typically very "vascular," meaning it is prone to bleed. There were a lot of issies regarding bleed risks etc in all of his treatments, etc.; bleeding was a constant issue.

                                                  Hospice was a relief for us in so many ways. I hope you find that it helps you and your dad find peace, as well as support.

                                                  Best,

                                                  DF

                                              Viewing 8 reply threads
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