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Cancer moonshot 2020
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Cancer moonshot 2020

› Forums › General Melanoma Community › Cancer moonshot 2020

  • Post
    • January 16, 2017 at 6:37 am
    SOLE
    Participant

      I'm curious to have your impressions on this endeavor and on the current and available test called gps cancer.

    Viewing 2 reply threads
    • Replies
        • January 18, 2017 at 1:52 pm
        debwray
        Participant

          http://www.gpscancer.com/

          http://www.cancermoonshot2020.org/press-releases/gps-cancer-commercial-availability

          Looks like some medical insurers will cover cost., but have no idea about this andmelanoma, but have put up links so easy for others to follow what is under consideration.

          ps- how are you doing ? Are you watching and waiting or still looking for stage 3 treatment ?

          Deb

           

            • January 18, 2017 at 2:51 pm
            SOLE
            Participant

              Deb,

              thanks for asking about me. I think I will resort to interferon even though I'm 3-4 months out of surgery. My onc said its too late but frankly I don't know how he comes to that conclusion. 

              The waiting game is hard for me. And even if my dec scans were all clear (except a prostate hypertrophia an increased PSA and some manly problems… as if mel was not enough) I still struggle everyday. Maybe medically doing something will help, I dont know. The holidays have been the worst ever in all aspects of my life. Girlfriend and I aren't in sync anymore, didn't get to see my daughter because she was not comfortable with me… Crabs destroy lives. Mine is almost leveled at the moment. And I'm not even stage 4 … So I'll stop my whining here. Starting new meds for depression this morning. 

              I try not to come here too often because I collapse reading what is happening to everyone of us. 

              Hope your doing ok Deb.

              Everyone is in my prayers.

              • January 18, 2017 at 10:27 pm
              debwray
              Participant

                Hi Sole,

                Must admit I felt better doing something at stage 3 – even though in the end all I was doing was a placebo as part of the trial Keynote 54.

                Staying away might be a good idea for now- I'm watching as wondering what might come next and trying to understand ipi nivo side effects. Due for a scanxiety weekend – but trying to take avoidance measures by building in some fun. 

                Hope the depression meds help  but fresh air and  excercise are also helpful and might give benefits before the drugs kick in ?

                Sorry to hear you are fighting battles on multiple fronts..  here's hoping for a change in your luck…you are due a break.

                Best wishes

                Deb

                • January 18, 2017 at 10:27 pm
                debwray
                Participant

                  Hi Sole,

                  Must admit I felt better doing something at stage 3 – even though in the end all I was doing was a placebo as part of the trial Keynote 54.

                  Staying away might be a good idea for now- I'm watching as wondering what might come next and trying to understand ipi nivo side effects. Due for a scanxiety weekend – but trying to take avoidance measures by building in some fun. 

                  Hope the depression meds help  but fresh air and  excercise are also helpful and might give benefits before the drugs kick in ?

                  Sorry to hear you are fighting battles on multiple fronts..  here's hoping for a change in your luck…you are due a break.

                  Best wishes

                  Deb

                  • January 18, 2017 at 10:27 pm
                  debwray
                  Participant

                    Hi Sole,

                    Must admit I felt better doing something at stage 3 – even though in the end all I was doing was a placebo as part of the trial Keynote 54.

                    Staying away might be a good idea for now- I'm watching as wondering what might come next and trying to understand ipi nivo side effects. Due for a scanxiety weekend – but trying to take avoidance measures by building in some fun. 

                    Hope the depression meds help  but fresh air and  excercise are also helpful and might give benefits before the drugs kick in ?

                    Sorry to hear you are fighting battles on multiple fronts..  here's hoping for a change in your luck…you are due a break.

                    Best wishes

                    Deb

                    • January 18, 2017 at 2:51 pm
                    SOLE
                    Participant

                      Deb,

                      thanks for asking about me. I think I will resort to interferon even though I'm 3-4 months out of surgery. My onc said its too late but frankly I don't know how he comes to that conclusion. 

                      The waiting game is hard for me. And even if my dec scans were all clear (except a prostate hypertrophia an increased PSA and some manly problems… as if mel was not enough) I still struggle everyday. Maybe medically doing something will help, I dont know. The holidays have been the worst ever in all aspects of my life. Girlfriend and I aren't in sync anymore, didn't get to see my daughter because she was not comfortable with me… Crabs destroy lives. Mine is almost leveled at the moment. And I'm not even stage 4 … So I'll stop my whining here. Starting new meds for depression this morning. 

                      I try not to come here too often because I collapse reading what is happening to everyone of us. 

                      Hope your doing ok Deb.

                      Everyone is in my prayers.

                      • January 18, 2017 at 2:51 pm
                      SOLE
                      Participant

                        Deb,

                        thanks for asking about me. I think I will resort to interferon even though I'm 3-4 months out of surgery. My onc said its too late but frankly I don't know how he comes to that conclusion. 

                        The waiting game is hard for me. And even if my dec scans were all clear (except a prostate hypertrophia an increased PSA and some manly problems… as if mel was not enough) I still struggle everyday. Maybe medically doing something will help, I dont know. The holidays have been the worst ever in all aspects of my life. Girlfriend and I aren't in sync anymore, didn't get to see my daughter because she was not comfortable with me… Crabs destroy lives. Mine is almost leveled at the moment. And I'm not even stage 4 … So I'll stop my whining here. Starting new meds for depression this morning. 

                        I try not to come here too often because I collapse reading what is happening to everyone of us. 

                        Hope your doing ok Deb.

                        Everyone is in my prayers.

                      • January 18, 2017 at 1:52 pm
                      debwray
                      Participant

                        http://www.gpscancer.com/

                        http://www.cancermoonshot2020.org/press-releases/gps-cancer-commercial-availability

                        Looks like some medical insurers will cover cost., but have no idea about this andmelanoma, but have put up links so easy for others to follow what is under consideration.

                        ps- how are you doing ? Are you watching and waiting or still looking for stage 3 treatment ?

                        Deb

                         

                        • January 18, 2017 at 1:52 pm
                        debwray
                        Participant

                          http://www.gpscancer.com/

                          http://www.cancermoonshot2020.org/press-releases/gps-cancer-commercial-availability

                          Looks like some medical insurers will cover cost., but have no idea about this andmelanoma, but have put up links so easy for others to follow what is under consideration.

                          ps- how are you doing ? Are you watching and waiting or still looking for stage 3 treatment ?

                          Deb

                           

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