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CANCER “A Global Quest” replay

Forums General Melanoma Community CANCER “A Global Quest” replay

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      jennunicorn
      Participant

        It is also incredibly one sided and full of some terrible myths and lies unfortunately. This article is a good read for anyone about to watch the "truth" about cancer docu-series.

          Gene_S
          Participant
            I watched this 9-part docu series the last time it came out. I had just gone through 2 cycles of chemo and had decided to quit the chemo. My oncologist at the time was upset with me. I knew my family was supporting my decision, but they were flinching. I wanted to be strong for them, but I hadn't found a good emotional base to do that.Then I found Ty's The Truth About Cancer series and started watching. The most important piece of info I got from Ty was that cancer is not a death sentence. He then went on to explain what he meant. With the encouragement I got from Ty through his online video, I was able to shift my perspective and find a good emotional foundation. My kids were finally able to let go of their fear because they saw me let go of my fear. And this was all due to Ty. He is a most amazing man. And so is his wife. They care.
             
            In the series, Ty not only talks about the ill practices of the pharmacology industry, he interviews doctors, nurses' practitioners, therapists, all over the world at their clinics and at their homes. Some of these medical people once believe everything they had been taught in medical school but over time had come to take a stance against the modern medical practices now in place. Some of these medical people went straight into alternative healing practices and knew their stuff. Ty talks about cures, and he talks about medical clinics that have alternative healing methods that are healing people of cancer. Ty talks about the science of your body's immunity and its ability to cure you of anything. He brings forth natural cures that are derived from organics, not synthetics, which the pharmaceutical companies are involved with.
             
            I began taking Essiac Tea, an herbal formula Ty talked about. At my last oncology visit, all my tests had come out fantastic. No cancer. I had changed oncologists, and this second one at my first visit didn't really want me as a patient. I had opted out of chemo and radiation, the two treatments he also was involved with. He wasn't sure about me as a new patient and I wasn't sure about him as a new doctor for me. He didn't expect good results from the tests he ordered. He assumed I would be riddled with cancer because that is all he knows. But at the last visit, a couple of weeks ago, he was ecstatic. All my tests showed no cancer and that I was healthy. I never told him about the Essiac Tea. Down here in the Deep South where I live, alternative healing methods are akin to the devil's work. So in order not to disturb the doctors' realities, I just don't tell them. I go to them for the lab work and the machine work, like Pet Scans and so on, just so I know how I am doing. 
             
            But I know that what had changed was my attitude. I no longer bought into the whole sad faces I got from the medical community about the terminal effects of cancer. I have been doing alternative healing methods for 30 years, but when I got cancer, I fell apart and then did my whole stoic thing that I do. But I could tell how scared I was. But when I watched The Truth About Cancer, I suddenly stopped being scared. Even tho I knew everything about what Ty talked about, being an alternative healing methods person for the past 30 or so-odd years, something about the way the info was put together was the perfect storm for me. It all came together in an instant. So I can't say that The Truth About Cancer is so good it saved me life, even tho that is what happened. But I can say that Ty has packed a whole lot of info in those 9-parts about how to behave towards being sick. And I learned more about other methods of healing that I had sort of heard about but now had direct info about them.
             
            The reason I am talking about this is to let those of you who have never seen the series and might be interested but not sure about spending the time know that this series is well worth it, if only to help you find a way to be strong again with your own intuition and ability to heal yourself. Because, after all, that is what true healing is all about – how we perceive our ability to heal. And we have to do whatever it takes to get to that perspective. Ty's series is one of those efforts to help ourselves get to that perspective.
             
            Skye
            Bubbles
            Participant

              I'm not about to begin to address all the issues here…but I've been in the melanoma game a long time.  If you think a mental perspective is all it takes to beat melanoma….you do an extreme disservice to those who have lost this fight.  Artie.  Eric.  You have no idea.  I wrote this in 2012:  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2012/12/oh-people-youll-meet.html

              …and it does not begin to address what has happened in the 4 years since.  Artie was the most positive soul on earth and in heaven. I will not denigrate his spirit with any intimation that somehow….he did not have the right attitude. 

              Tea and perspective will NOT cure melanoma.  I believe in looking on the bright side.  I am considered by most to be a rather funny and optimistic human.  I think it helps…if only because it keeps others from strangling me.  However, it will NOT keep my melanoma at bay. 

              And there was this:  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/12/artiea-beautiful-soul-amazing-knight.html

              Just keeping it fair and balanced. You want to drink tea…put your toe in the sand…perceive you are healing…okay by me…just make sure you tell folks to seek a melanoma specialist and state of the art melanoma care.  To paraphrase Rakoff, "You can be the worst bastard on the cancer ward and you will not die at any greater rate than any of the others.  Folks will just be gladder when you do!"

              So tea, wine…whine….whatever…there is no magic, no elixir….saints have passed this way. Literally.  And we are all blessed for having shared their presence.  – c

              Bubbles
              Participant

                I'm not about to begin to address all the issues here…but I've been in the melanoma game a long time.  If you think a mental perspective is all it takes to beat melanoma….you do an extreme disservice to those who have lost this fight.  Artie.  Eric.  You have no idea.  I wrote this in 2012:  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2012/12/oh-people-youll-meet.html

                …and it does not begin to address what has happened in the 4 years since.  Artie was the most positive soul on earth and in heaven. I will not denigrate his spirit with any intimation that somehow….he did not have the right attitude. 

                Tea and perspective will NOT cure melanoma.  I believe in looking on the bright side.  I am considered by most to be a rather funny and optimistic human.  I think it helps…if only because it keeps others from strangling me.  However, it will NOT keep my melanoma at bay. 

                And there was this:  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/12/artiea-beautiful-soul-amazing-knight.html

                Just keeping it fair and balanced. You want to drink tea…put your toe in the sand…perceive you are healing…okay by me…just make sure you tell folks to seek a melanoma specialist and state of the art melanoma care.  To paraphrase Rakoff, "You can be the worst bastard on the cancer ward and you will not die at any greater rate than any of the others.  Folks will just be gladder when you do!"

                So tea, wine…whine….whatever…there is no magic, no elixir….saints have passed this way. Literally.  And we are all blessed for having shared their presence.  – c

                Bubbles
                Participant

                  I'm not about to begin to address all the issues here…but I've been in the melanoma game a long time.  If you think a mental perspective is all it takes to beat melanoma….you do an extreme disservice to those who have lost this fight.  Artie.  Eric.  You have no idea.  I wrote this in 2012:  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2012/12/oh-people-youll-meet.html

                  …and it does not begin to address what has happened in the 4 years since.  Artie was the most positive soul on earth and in heaven. I will not denigrate his spirit with any intimation that somehow….he did not have the right attitude. 

                  Tea and perspective will NOT cure melanoma.  I believe in looking on the bright side.  I am considered by most to be a rather funny and optimistic human.  I think it helps…if only because it keeps others from strangling me.  However, it will NOT keep my melanoma at bay. 

                  And there was this:  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/12/artiea-beautiful-soul-amazing-knight.html

                  Just keeping it fair and balanced. You want to drink tea…put your toe in the sand…perceive you are healing…okay by me…just make sure you tell folks to seek a melanoma specialist and state of the art melanoma care.  To paraphrase Rakoff, "You can be the worst bastard on the cancer ward and you will not die at any greater rate than any of the others.  Folks will just be gladder when you do!"

                  So tea, wine…whine….whatever…there is no magic, no elixir….saints have passed this way. Literally.  And we are all blessed for having shared their presence.  – c

                  Brent Morris
                  Participant

                    Dear Skye,    It is not clear from your post what cancer is yours. It is clear that having been a practitioner of alternative healing for 30 years was to no avail except to expose your profound ignorance. Please checkout this review of Ty Bollinger's exercise in perverse dangerous pseudoscience.

                    https://www.sciencebasedmedicine.org/the-truth-about-cancer-series-is-untruthful-about-cancer/ious 

                    This is a serious discussion for those with life threatening problems. Please bring all you marbles to the game.

                    jennunicorn
                    Participant

                      Thank you both Celeste and Brent… I have been sent the link to watch this enraging docu-series by many people recently and it made me quite confused and upset to see it posted here. I know we've all had those friends and family send us every article and snippet of "THE SECRET CURE" to cancer in one form or another. Just irritates the you know what out of me when so many great people are fighting and living through these conventional (and highly effective) treatments. And then all these myths, lies, and malarkey are spread around the internet telling us what herbal supplement of the month cures cancer and that conventional treatments will GIVE us cancer.

                      As if the word 'cancer' was a single broad diagnosis that explained everyone's situation. 

                      Argh.

                      Was the world better off before the internet when we had to trust the words of our medical professionals directly? I wonder sometimes…

                       

                      jennunicorn
                      Participant

                        Thank you both Celeste and Brent… I have been sent the link to watch this enraging docu-series by many people recently and it made me quite confused and upset to see it posted here. I know we've all had those friends and family send us every article and snippet of "THE SECRET CURE" to cancer in one form or another. Just irritates the you know what out of me when so many great people are fighting and living through these conventional (and highly effective) treatments. And then all these myths, lies, and malarkey are spread around the internet telling us what herbal supplement of the month cures cancer and that conventional treatments will GIVE us cancer.

                        As if the word 'cancer' was a single broad diagnosis that explained everyone's situation. 

                        Argh.

                        Was the world better off before the internet when we had to trust the words of our medical professionals directly? I wonder sometimes…

                         

                        jennunicorn
                        Participant

                          Thank you both Celeste and Brent… I have been sent the link to watch this enraging docu-series by many people recently and it made me quite confused and upset to see it posted here. I know we've all had those friends and family send us every article and snippet of "THE SECRET CURE" to cancer in one form or another. Just irritates the you know what out of me when so many great people are fighting and living through these conventional (and highly effective) treatments. And then all these myths, lies, and malarkey are spread around the internet telling us what herbal supplement of the month cures cancer and that conventional treatments will GIVE us cancer.

                          As if the word 'cancer' was a single broad diagnosis that explained everyone's situation. 

                          Argh.

                          Was the world better off before the internet when we had to trust the words of our medical professionals directly? I wonder sometimes…

                           

                          Brent Morris
                          Participant

                            Dear Skye,    It is not clear from your post what cancer is yours. It is clear that having been a practitioner of alternative healing for 30 years was to no avail except to expose your profound ignorance. Please checkout this review of Ty Bollinger's exercise in perverse dangerous pseudoscience.

                            https://www.sciencebasedmedicine.org/the-truth-about-cancer-series-is-untruthful-about-cancer/ious 

                            This is a serious discussion for those with life threatening problems. Please bring all you marbles to the game.

                            Brent Morris
                            Participant

                              Dear Skye,    It is not clear from your post what cancer is yours. It is clear that having been a practitioner of alternative healing for 30 years was to no avail except to expose your profound ignorance. Please checkout this review of Ty Bollinger's exercise in perverse dangerous pseudoscience.

                              https://www.sciencebasedmedicine.org/the-truth-about-cancer-series-is-untruthful-about-cancer/ious 

                              This is a serious discussion for those with life threatening problems. Please bring all you marbles to the game.

                              Gene_S
                              Participant
                                I watched this 9-part docu series the last time it came out. I had just gone through 2 cycles of chemo and had decided to quit the chemo. My oncologist at the time was upset with me. I knew my family was supporting my decision, but they were flinching. I wanted to be strong for them, but I hadn't found a good emotional base to do that.Then I found Ty's The Truth About Cancer series and started watching. The most important piece of info I got from Ty was that cancer is not a death sentence. He then went on to explain what he meant. With the encouragement I got from Ty through his online video, I was able to shift my perspective and find a good emotional foundation. My kids were finally able to let go of their fear because they saw me let go of my fear. And this was all due to Ty. He is a most amazing man. And so is his wife. They care.
                                 
                                In the series, Ty not only talks about the ill practices of the pharmacology industry, he interviews doctors, nurses' practitioners, therapists, all over the world at their clinics and at their homes. Some of these medical people once believe everything they had been taught in medical school but over time had come to take a stance against the modern medical practices now in place. Some of these medical people went straight into alternative healing practices and knew their stuff. Ty talks about cures, and he talks about medical clinics that have alternative healing methods that are healing people of cancer. Ty talks about the science of your body's immunity and its ability to cure you of anything. He brings forth natural cures that are derived from organics, not synthetics, which the pharmaceutical companies are involved with.
                                 
                                I began taking Essiac Tea, an herbal formula Ty talked about. At my last oncology visit, all my tests had come out fantastic. No cancer. I had changed oncologists, and this second one at my first visit didn't really want me as a patient. I had opted out of chemo and radiation, the two treatments he also was involved with. He wasn't sure about me as a new patient and I wasn't sure about him as a new doctor for me. He didn't expect good results from the tests he ordered. He assumed I would be riddled with cancer because that is all he knows. But at the last visit, a couple of weeks ago, he was ecstatic. All my tests showed no cancer and that I was healthy. I never told him about the Essiac Tea. Down here in the Deep South where I live, alternative healing methods are akin to the devil's work. So in order not to disturb the doctors' realities, I just don't tell them. I go to them for the lab work and the machine work, like Pet Scans and so on, just so I know how I am doing. 
                                 
                                But I know that what had changed was my attitude. I no longer bought into the whole sad faces I got from the medical community about the terminal effects of cancer. I have been doing alternative healing methods for 30 years, but when I got cancer, I fell apart and then did my whole stoic thing that I do. But I could tell how scared I was. But when I watched The Truth About Cancer, I suddenly stopped being scared. Even tho I knew everything about what Ty talked about, being an alternative healing methods person for the past 30 or so-odd years, something about the way the info was put together was the perfect storm for me. It all came together in an instant. So I can't say that The Truth About Cancer is so good it saved me life, even tho that is what happened. But I can say that Ty has packed a whole lot of info in those 9-parts about how to behave towards being sick. And I learned more about other methods of healing that I had sort of heard about but now had direct info about them.
                                 
                                The reason I am talking about this is to let those of you who have never seen the series and might be interested but not sure about spending the time know that this series is well worth it, if only to help you find a way to be strong again with your own intuition and ability to heal yourself. Because, after all, that is what true healing is all about – how we perceive our ability to heal. And we have to do whatever it takes to get to that perspective. Ty's series is one of those efforts to help ourselves get to that perspective.
                                 
                                Skye
                                Gene_S
                                Participant
                                  I watched this 9-part docu series the last time it came out. I had just gone through 2 cycles of chemo and had decided to quit the chemo. My oncologist at the time was upset with me. I knew my family was supporting my decision, but they were flinching. I wanted to be strong for them, but I hadn't found a good emotional base to do that.Then I found Ty's The Truth About Cancer series and started watching. The most important piece of info I got from Ty was that cancer is not a death sentence. He then went on to explain what he meant. With the encouragement I got from Ty through his online video, I was able to shift my perspective and find a good emotional foundation. My kids were finally able to let go of their fear because they saw me let go of my fear. And this was all due to Ty. He is a most amazing man. And so is his wife. They care.
                                   
                                  In the series, Ty not only talks about the ill practices of the pharmacology industry, he interviews doctors, nurses' practitioners, therapists, all over the world at their clinics and at their homes. Some of these medical people once believe everything they had been taught in medical school but over time had come to take a stance against the modern medical practices now in place. Some of these medical people went straight into alternative healing practices and knew their stuff. Ty talks about cures, and he talks about medical clinics that have alternative healing methods that are healing people of cancer. Ty talks about the science of your body's immunity and its ability to cure you of anything. He brings forth natural cures that are derived from organics, not synthetics, which the pharmaceutical companies are involved with.
                                   
                                  I began taking Essiac Tea, an herbal formula Ty talked about. At my last oncology visit, all my tests had come out fantastic. No cancer. I had changed oncologists, and this second one at my first visit didn't really want me as a patient. I had opted out of chemo and radiation, the two treatments he also was involved with. He wasn't sure about me as a new patient and I wasn't sure about him as a new doctor for me. He didn't expect good results from the tests he ordered. He assumed I would be riddled with cancer because that is all he knows. But at the last visit, a couple of weeks ago, he was ecstatic. All my tests showed no cancer and that I was healthy. I never told him about the Essiac Tea. Down here in the Deep South where I live, alternative healing methods are akin to the devil's work. So in order not to disturb the doctors' realities, I just don't tell them. I go to them for the lab work and the machine work, like Pet Scans and so on, just so I know how I am doing. 
                                   
                                  But I know that what had changed was my attitude. I no longer bought into the whole sad faces I got from the medical community about the terminal effects of cancer. I have been doing alternative healing methods for 30 years, but when I got cancer, I fell apart and then did my whole stoic thing that I do. But I could tell how scared I was. But when I watched The Truth About Cancer, I suddenly stopped being scared. Even tho I knew everything about what Ty talked about, being an alternative healing methods person for the past 30 or so-odd years, something about the way the info was put together was the perfect storm for me. It all came together in an instant. So I can't say that The Truth About Cancer is so good it saved me life, even tho that is what happened. But I can say that Ty has packed a whole lot of info in those 9-parts about how to behave towards being sick. And I learned more about other methods of healing that I had sort of heard about but now had direct info about them.
                                   
                                  The reason I am talking about this is to let those of you who have never seen the series and might be interested but not sure about spending the time know that this series is well worth it, if only to help you find a way to be strong again with your own intuition and ability to heal yourself. Because, after all, that is what true healing is all about – how we perceive our ability to heal. And we have to do whatever it takes to get to that perspective. Ty's series is one of those efforts to help ourselves get to that perspective.
                                   
                                  Skye
                                  DZnDef
                                  Participant

                                    I found my current doctor through an earlier version of this series.  While I don't go in for the conspiracy aspect (at least not an intentional one), I found the information interesting for me.  Apart from my initial surgery in 2012 to remove the first lung tumor and the lung needle biopsy in March 2014 to confirm diagnosis, I haven't yet started any conventional treatment.  Just the program my alt doc has me following.  I've had no spread since I started it and 4 out of 5 lung tumors are stable.  One was absent on the last two scans (after being mentioned on the previous 3) but my oncologist won't commit to saying it's gone.  Which is all to say I am doing pretty well with my melanoma so far.  I don't know if I'll conquer it this way or not.  If it gets aggressive, I'll see what's tops in conventional at that point.  But this was and is my Plan A.  I've got my Plan B lined up (like Artie advised) since every treatment might stop working.

                                    This article makes some fair points about the series but also is inconsistent.  At the end of the day, if you don't want to watch the series, don't watch it.  If you're curious to learn what some folks outside of conventional medicine think about the process and recommend, then watch.  I liked what my doctor had to say, read everything I could find about him on Quackwatch, then read what he had to say and made my decision.  You may decide the complete opposite.  Free country and all.

                                    DZnDef
                                    Participant

                                      I found my current doctor through an earlier version of this series.  While I don't go in for the conspiracy aspect (at least not an intentional one), I found the information interesting for me.  Apart from my initial surgery in 2012 to remove the first lung tumor and the lung needle biopsy in March 2014 to confirm diagnosis, I haven't yet started any conventional treatment.  Just the program my alt doc has me following.  I've had no spread since I started it and 4 out of 5 lung tumors are stable.  One was absent on the last two scans (after being mentioned on the previous 3) but my oncologist won't commit to saying it's gone.  Which is all to say I am doing pretty well with my melanoma so far.  I don't know if I'll conquer it this way or not.  If it gets aggressive, I'll see what's tops in conventional at that point.  But this was and is my Plan A.  I've got my Plan B lined up (like Artie advised) since every treatment might stop working.

                                      This article makes some fair points about the series but also is inconsistent.  At the end of the day, if you don't want to watch the series, don't watch it.  If you're curious to learn what some folks outside of conventional medicine think about the process and recommend, then watch.  I liked what my doctor had to say, read everything I could find about him on Quackwatch, then read what he had to say and made my decision.  You may decide the complete opposite.  Free country and all.

                                      DZnDef
                                      Participant

                                        I found my current doctor through an earlier version of this series.  While I don't go in for the conspiracy aspect (at least not an intentional one), I found the information interesting for me.  Apart from my initial surgery in 2012 to remove the first lung tumor and the lung needle biopsy in March 2014 to confirm diagnosis, I haven't yet started any conventional treatment.  Just the program my alt doc has me following.  I've had no spread since I started it and 4 out of 5 lung tumors are stable.  One was absent on the last two scans (after being mentioned on the previous 3) but my oncologist won't commit to saying it's gone.  Which is all to say I am doing pretty well with my melanoma so far.  I don't know if I'll conquer it this way or not.  If it gets aggressive, I'll see what's tops in conventional at that point.  But this was and is my Plan A.  I've got my Plan B lined up (like Artie advised) since every treatment might stop working.

                                        This article makes some fair points about the series but also is inconsistent.  At the end of the day, if you don't want to watch the series, don't watch it.  If you're curious to learn what some folks outside of conventional medicine think about the process and recommend, then watch.  I liked what my doctor had to say, read everything I could find about him on Quackwatch, then read what he had to say and made my decision.  You may decide the complete opposite.  Free country and all.

                                      jennunicorn
                                      Participant

                                        It is also incredibly one sided and full of some terrible myths and lies unfortunately. This article is a good read for anyone about to watch the "truth" about cancer docu-series.

                                        jennunicorn
                                        Participant

                                          It is also incredibly one sided and full of some terrible myths and lies unfortunately. This article is a good read for anyone about to watch the "truth" about cancer docu-series.

                                          Bubbles
                                          Participant

                                            And….Gene….what the heck????  We've been down this road with you.  You need to start these posts with…."Okay…this sounds cool…but I was one lucky mother…I got to take ipi and GMCSF early on…and did really great…have vitiligo….a fabulous prognostic indicator and I'm still here!!!"  Why do you try to sell folks on, "Have a great attitude….you'll be fine!!!"  –  when you got state of the art treatment ???????  Seriously!!!- c

                                              DZnDef
                                              Participant

                                                Celeste, Gene just posted the link.  He didn't say anything about attitude.  I own the series, I don't recall anyone saying that attitude alone will cure you.

                                                Why does Gene's treatment history matter when posting a link to information?  Are we only allowed to post links to information that we ourselves have followed?  That would be quite limiting.  Although by those rules, I could have posted the link.  I realize that the views expressed in this series scare you.  But not all of us desire to be limited to only the conventional model of medicine.

                                                DZnDef
                                                Participant

                                                  Celeste, Gene just posted the link.  He didn't say anything about attitude.  I own the series, I don't recall anyone saying that attitude alone will cure you.

                                                  Why does Gene's treatment history matter when posting a link to information?  Are we only allowed to post links to information that we ourselves have followed?  That would be quite limiting.  Although by those rules, I could have posted the link.  I realize that the views expressed in this series scare you.  But not all of us desire to be limited to only the conventional model of medicine.

                                                  DZnDef
                                                  Participant

                                                    Celeste, Gene just posted the link.  He didn't say anything about attitude.  I own the series, I don't recall anyone saying that attitude alone will cure you.

                                                    Why does Gene's treatment history matter when posting a link to information?  Are we only allowed to post links to information that we ourselves have followed?  That would be quite limiting.  Although by those rules, I could have posted the link.  I realize that the views expressed in this series scare you.  But not all of us desire to be limited to only the conventional model of medicine.

                                                  Bubbles
                                                  Participant

                                                    And….Gene….what the heck????  We've been down this road with you.  You need to start these posts with…."Okay…this sounds cool…but I was one lucky mother…I got to take ipi and GMCSF early on…and did really great…have vitiligo….a fabulous prognostic indicator and I'm still here!!!"  Why do you try to sell folks on, "Have a great attitude….you'll be fine!!!"  –  when you got state of the art treatment ???????  Seriously!!!- c

                                                    Bubbles
                                                    Participant

                                                      And….Gene….what the heck????  We've been down this road with you.  You need to start these posts with…."Okay…this sounds cool…but I was one lucky mother…I got to take ipi and GMCSF early on…and did really great…have vitiligo….a fabulous prognostic indicator and I'm still here!!!"  Why do you try to sell folks on, "Have a great attitude….you'll be fine!!!"  –  when you got state of the art treatment ???????  Seriously!!!- c

                                                      MoiraM
                                                      Participant

                                                        Personally, I realy dislike the tendency to take a few facts and use them to 'sell' a message. It is even more important when people may be influenced not to do things that might prolong their lives. I want people to take informed decisions.

                                                        Ten things I believe to be true.

                                                        1. Melonama is cancer that progresses in very different ways and at very different rates in different people

                                                        2. Recent discoveries have confirmed that a patient's immune system has a huge part to play in the progression of melanoma.

                                                        3. The functioning of a person's immune system is influenced by many factors, including diet, exercise and stress.

                                                        4. Doctors want to 'fix people'. If there is no effective treatment available, some doctors will offer the best available treatment, which might not be worth having. (My father was one of those people with lymphoma who was treated with a mustard gas derivitive. He died at 38.)

                                                        5. There are 'new' 'conventional' treatents for melanoma that can reverse or slow the progression of the disease in some melanoma patients. The majority of these change the balance between the colonies of melanoma cells and the patient's immune system. Some of these treatments are now generally available and are revolutionising the treatment of melanoma.

                                                        6. Drug companies (like most companies) exist to make money. Because they are selling the propect of a longer or better life it is essential that they are highly regulated.

                                                        7. Other companies/other people also sell the prospect of a longer or better life but are not regulated like drug companies.

                                                        8. Your situation in the USA where health care is funded by insurers, complicates the situation for both doctors and patients. (I am in the UK.) 

                                                        9. Not all doctors are perfect – they are just people like the rest of us.

                                                        10. The best doctors treat the person, not the disease.

                                                         

                                                        MoiraM
                                                        Participant

                                                          Personally, I realy dislike the tendency to take a few facts and use them to 'sell' a message. It is even more important when people may be influenced not to do things that might prolong their lives. I want people to take informed decisions.

                                                          Ten things I believe to be true.

                                                          1. Melonama is cancer that progresses in very different ways and at very different rates in different people

                                                          2. Recent discoveries have confirmed that a patient's immune system has a huge part to play in the progression of melanoma.

                                                          3. The functioning of a person's immune system is influenced by many factors, including diet, exercise and stress.

                                                          4. Doctors want to 'fix people'. If there is no effective treatment available, some doctors will offer the best available treatment, which might not be worth having. (My father was one of those people with lymphoma who was treated with a mustard gas derivitive. He died at 38.)

                                                          5. There are 'new' 'conventional' treatents for melanoma that can reverse or slow the progression of the disease in some melanoma patients. The majority of these change the balance between the colonies of melanoma cells and the patient's immune system. Some of these treatments are now generally available and are revolutionising the treatment of melanoma.

                                                          6. Drug companies (like most companies) exist to make money. Because they are selling the propect of a longer or better life it is essential that they are highly regulated.

                                                          7. Other companies/other people also sell the prospect of a longer or better life but are not regulated like drug companies.

                                                          8. Your situation in the USA where health care is funded by insurers, complicates the situation for both doctors and patients. (I am in the UK.) 

                                                          9. Not all doctors are perfect – they are just people like the rest of us.

                                                          10. The best doctors treat the person, not the disease.

                                                           

                                                            WithinMySkin
                                                            Participant

                                                              Hey Moira, I love the list you put together. You make some great points about Melanoma treatment and how different healthcare is in different countries. The US is an incredibly complex and complicated system, that quite frankly, needs a lot of work. Between insurance companies, drug companies, lobbies, supplement and vitamin companies, quack cures and kickbacks for doctors, our system focuses on income rather than the patient. This is fantastic for innovation and development of treatments, but not great for the individual. So we all need to look out for ourselves, do our research, ask questions, and cross-check our doctors. 

                                                              WithinMySkin
                                                              Participant

                                                                Hey Moira, I love the list you put together. You make some great points about Melanoma treatment and how different healthcare is in different countries. The US is an incredibly complex and complicated system, that quite frankly, needs a lot of work. Between insurance companies, drug companies, lobbies, supplement and vitamin companies, quack cures and kickbacks for doctors, our system focuses on income rather than the patient. This is fantastic for innovation and development of treatments, but not great for the individual. So we all need to look out for ourselves, do our research, ask questions, and cross-check our doctors. 

                                                                WithinMySkin
                                                                Participant

                                                                  Hey Moira, I love the list you put together. You make some great points about Melanoma treatment and how different healthcare is in different countries. The US is an incredibly complex and complicated system, that quite frankly, needs a lot of work. Between insurance companies, drug companies, lobbies, supplement and vitamin companies, quack cures and kickbacks for doctors, our system focuses on income rather than the patient. This is fantastic for innovation and development of treatments, but not great for the individual. So we all need to look out for ourselves, do our research, ask questions, and cross-check our doctors. 

                                                                  MoiraM
                                                                  Participant

                                                                    I am glad you like the list.

                                                                    Here in the UK we have the NHS. It's by no means perfect but most of us value it highly. Both my melanoma team and my endocrine team (anterior pituitary stopped working on ipi) definitely treat me and not my disease.

                                                                    MoiraM
                                                                    Participant

                                                                      I am glad you like the list.

                                                                      Here in the UK we have the NHS. It's by no means perfect but most of us value it highly. Both my melanoma team and my endocrine team (anterior pituitary stopped working on ipi) definitely treat me and not my disease.

                                                                      MoiraM
                                                                      Participant

                                                                        I am glad you like the list.

                                                                        Here in the UK we have the NHS. It's by no means perfect but most of us value it highly. Both my melanoma team and my endocrine team (anterior pituitary stopped working on ipi) definitely treat me and not my disease.

                                                                      MoiraM
                                                                      Participant

                                                                        Personally, I realy dislike the tendency to take a few facts and use them to 'sell' a message. It is even more important when people may be influenced not to do things that might prolong their lives. I want people to take informed decisions.

                                                                        Ten things I believe to be true.

                                                                        1. Melonama is cancer that progresses in very different ways and at very different rates in different people

                                                                        2. Recent discoveries have confirmed that a patient's immune system has a huge part to play in the progression of melanoma.

                                                                        3. The functioning of a person's immune system is influenced by many factors, including diet, exercise and stress.

                                                                        4. Doctors want to 'fix people'. If there is no effective treatment available, some doctors will offer the best available treatment, which might not be worth having. (My father was one of those people with lymphoma who was treated with a mustard gas derivitive. He died at 38.)

                                                                        5. There are 'new' 'conventional' treatents for melanoma that can reverse or slow the progression of the disease in some melanoma patients. The majority of these change the balance between the colonies of melanoma cells and the patient's immune system. Some of these treatments are now generally available and are revolutionising the treatment of melanoma.

                                                                        6. Drug companies (like most companies) exist to make money. Because they are selling the propect of a longer or better life it is essential that they are highly regulated.

                                                                        7. Other companies/other people also sell the prospect of a longer or better life but are not regulated like drug companies.

                                                                        8. Your situation in the USA where health care is funded by insurers, complicates the situation for both doctors and patients. (I am in the UK.) 

                                                                        9. Not all doctors are perfect – they are just people like the rest of us.

                                                                        10. The best doctors treat the person, not the disease.

                                                                         

                                                                        WithinMySkin
                                                                        Participant

                                                                          I know this topic brings out a lot of emotions in people. I've been on both sides – as a mid-level provider, I used to think patients were nuts for only relying on alternative medicine. Then, suddenly I was a patient, on the other side of the drape. I hated being a part of the system, being a "case" and the feeling of hopelessness. So one of the first things I did was look into alternative medicine. I wanted to be in control of my health destiny. I was devout with my supplements and diet and chose watch and wait for my IIIB diagnosis. 

                                                                          Now that I've progressed, I'm somewhere in the middle. I realize that juicing will probably not "cure" me, but there is also no guarantee with Western medicine. We all need to do what is best for ourselves, and anyone who says something is a guaranteed cure is just wrong. But I think people who go the alternative route know and understand this just as much as people who chose purely Western medicine. 

                                                                          But one thing I would like to say is that people need to BELIEVE in their medicine. Again, a positive attitude won't cure you, but it certainly can't hurt. Look at the placebo effect. According to the American Cancer Society, 1 in 3 people may experience a placebo effect. That's HUGE! Believing a medicine will work and using mind over matter can make a difference for 33% of people. That's nothing to sneeze at, and better chances than some of the Melanoma treatments out there right now. 

                                                                          As someone else pointed out, stress and lifestyle also have a part to play in the immune system. So should I sell my house in New Hampshire and move to the Keys to help with my stress? No. But if you believe that that's what's best for you, then more power to you! I'll come and visit! So let's all take a moment to realize that we need to be each other's cheerleaders. We are a family, in a weird f-ed up way, so we need to understand each other's differences and support each other. So I'm sending a hippie love hug to EVERYONE on this board! Happy Tuesday, everyone! 

                                                                          Lauren

                                                                          WithinMySkin
                                                                          Participant

                                                                            I know this topic brings out a lot of emotions in people. I've been on both sides – as a mid-level provider, I used to think patients were nuts for only relying on alternative medicine. Then, suddenly I was a patient, on the other side of the drape. I hated being a part of the system, being a "case" and the feeling of hopelessness. So one of the first things I did was look into alternative medicine. I wanted to be in control of my health destiny. I was devout with my supplements and diet and chose watch and wait for my IIIB diagnosis. 

                                                                            Now that I've progressed, I'm somewhere in the middle. I realize that juicing will probably not "cure" me, but there is also no guarantee with Western medicine. We all need to do what is best for ourselves, and anyone who says something is a guaranteed cure is just wrong. But I think people who go the alternative route know and understand this just as much as people who chose purely Western medicine. 

                                                                            But one thing I would like to say is that people need to BELIEVE in their medicine. Again, a positive attitude won't cure you, but it certainly can't hurt. Look at the placebo effect. According to the American Cancer Society, 1 in 3 people may experience a placebo effect. That's HUGE! Believing a medicine will work and using mind over matter can make a difference for 33% of people. That's nothing to sneeze at, and better chances than some of the Melanoma treatments out there right now. 

                                                                            As someone else pointed out, stress and lifestyle also have a part to play in the immune system. So should I sell my house in New Hampshire and move to the Keys to help with my stress? No. But if you believe that that's what's best for you, then more power to you! I'll come and visit! So let's all take a moment to realize that we need to be each other's cheerleaders. We are a family, in a weird f-ed up way, so we need to understand each other's differences and support each other. So I'm sending a hippie love hug to EVERYONE on this board! Happy Tuesday, everyone! 

                                                                            Lauren

                                                                            WithinMySkin
                                                                            Participant

                                                                              I know this topic brings out a lot of emotions in people. I've been on both sides – as a mid-level provider, I used to think patients were nuts for only relying on alternative medicine. Then, suddenly I was a patient, on the other side of the drape. I hated being a part of the system, being a "case" and the feeling of hopelessness. So one of the first things I did was look into alternative medicine. I wanted to be in control of my health destiny. I was devout with my supplements and diet and chose watch and wait for my IIIB diagnosis. 

                                                                              Now that I've progressed, I'm somewhere in the middle. I realize that juicing will probably not "cure" me, but there is also no guarantee with Western medicine. We all need to do what is best for ourselves, and anyone who says something is a guaranteed cure is just wrong. But I think people who go the alternative route know and understand this just as much as people who chose purely Western medicine. 

                                                                              But one thing I would like to say is that people need to BELIEVE in their medicine. Again, a positive attitude won't cure you, but it certainly can't hurt. Look at the placebo effect. According to the American Cancer Society, 1 in 3 people may experience a placebo effect. That's HUGE! Believing a medicine will work and using mind over matter can make a difference for 33% of people. That's nothing to sneeze at, and better chances than some of the Melanoma treatments out there right now. 

                                                                              As someone else pointed out, stress and lifestyle also have a part to play in the immune system. So should I sell my house in New Hampshire and move to the Keys to help with my stress? No. But if you believe that that's what's best for you, then more power to you! I'll come and visit! So let's all take a moment to realize that we need to be each other's cheerleaders. We are a family, in a weird f-ed up way, so we need to understand each other's differences and support each other. So I'm sending a hippie love hug to EVERYONE on this board! Happy Tuesday, everyone! 

                                                                              Lauren

                                                                              Swanee
                                                                              Participant

                                                                                I've been a regular on this site for the past 6 years, but mostly as a viewer the past few years, occasionally posting when some old timer shows up, we have lost so many and the list is long!  The reason I no longer participate frequently is because of this condemming, judgmental self rightous attitude that I find so negative and defeats the purpose of why we are all here.  I've lost a few of my family here, not because they died of melanoma but because they were under verbal attack from those that did not embrace or respect their opinion.  I still grieve for those I've lost contact with here, because of the verbal abuse they encountered.

                                                                                My experience with western medicine did not go well for me.  I too, like Maggie, experienced all the side effects where others smoothly sailed.  Early on in my diagnosis I was told a story by my cardiologist, who experienced a miracle early on in his internship in New Mexico. He was treating a (drunk) patient who had fallen off a truck and was being treated in the emergency room for his injuries. However,  what the Dr. noted more importantly,  were his melanoma lesions and knew this man had bigger problems and told him he would die soon if he did not seek medical help for his melanoma. The patient went to the medicine man of his tribe and was carefully treated with the ancient cures that the tribe had practiced and the wisdom of the spiritual leader.  Six months later, the patient was free of his disease.  My Dr. shared this story not to oppose western medicine, for which he practices but to make me aware of what I could do to help myself, beyond drugs and this is his mission statement, I quote, ""I believe the optimal care of the heart requires not only superior medical knowledge, but an integration of body, mind, and spirit.  I believe in treating the person first, and the disease second.  I believe that life is sacred and people deserve to be treated with compassion and dignity.  I see my role as a healer to draw on all modalities, conventional and alternative, and that can achieve the deepest level of healing attainable."  Dr. Rubin Maidan is a Dr. of excellance and I only wish he was my oncologist!

                                                                                As a stage IV melanoma patient, I continue to follow my oncologist's advice but also closely listen to my gut and have made personal choices that reflect my positive, fearless attitude about my faith in letting my body do it's part to heal me, along with the wisdom of those that are the masters in the science they have studied. 

                                                                                Thank you to those that are not intimidated by the opinions of others and continue to share freely information that has helped them in their journey with melanoma, especially the integrated, alternative information that seems to work best with my body.   It's one more way we can be empowered and stay strong in our battle with melanoma.  The more you learn the more you know!  

                                                                                Finally, this is not Web MD, but a public site that is open to all,  to learn and express a variety of opinions, questions, thoughts, find support and pay tributes.  All posts are subject to interpretation and it is up to the reader to decide if they are interested in the advice and opinion of the poster.

                                                                                Swanee

                                                                                Once you choose hope, anything is possible……….Christopher Reeves! 

                                                                                 

                                                                                 

                                                                                I

                                                                                 

                                                                                Swanee
                                                                                Participant

                                                                                  I've been a regular on this site for the past 6 years, but mostly as a viewer the past few years, occasionally posting when some old timer shows up, we have lost so many and the list is long!  The reason I no longer participate frequently is because of this condemming, judgmental self rightous attitude that I find so negative and defeats the purpose of why we are all here.  I've lost a few of my family here, not because they died of melanoma but because they were under verbal attack from those that did not embrace or respect their opinion.  I still grieve for those I've lost contact with here, because of the verbal abuse they encountered.

                                                                                  My experience with western medicine did not go well for me.  I too, like Maggie, experienced all the side effects where others smoothly sailed.  Early on in my diagnosis I was told a story by my cardiologist, who experienced a miracle early on in his internship in New Mexico. He was treating a (drunk) patient who had fallen off a truck and was being treated in the emergency room for his injuries. However,  what the Dr. noted more importantly,  were his melanoma lesions and knew this man had bigger problems and told him he would die soon if he did not seek medical help for his melanoma. The patient went to the medicine man of his tribe and was carefully treated with the ancient cures that the tribe had practiced and the wisdom of the spiritual leader.  Six months later, the patient was free of his disease.  My Dr. shared this story not to oppose western medicine, for which he practices but to make me aware of what I could do to help myself, beyond drugs and this is his mission statement, I quote, ""I believe the optimal care of the heart requires not only superior medical knowledge, but an integration of body, mind, and spirit.  I believe in treating the person first, and the disease second.  I believe that life is sacred and people deserve to be treated with compassion and dignity.  I see my role as a healer to draw on all modalities, conventional and alternative, and that can achieve the deepest level of healing attainable."  Dr. Rubin Maidan is a Dr. of excellance and I only wish he was my oncologist!

                                                                                  As a stage IV melanoma patient, I continue to follow my oncologist's advice but also closely listen to my gut and have made personal choices that reflect my positive, fearless attitude about my faith in letting my body do it's part to heal me, along with the wisdom of those that are the masters in the science they have studied. 

                                                                                  Thank you to those that are not intimidated by the opinions of others and continue to share freely information that has helped them in their journey with melanoma, especially the integrated, alternative information that seems to work best with my body.   It's one more way we can be empowered and stay strong in our battle with melanoma.  The more you learn the more you know!  

                                                                                  Finally, this is not Web MD, but a public site that is open to all,  to learn and express a variety of opinions, questions, thoughts, find support and pay tributes.  All posts are subject to interpretation and it is up to the reader to decide if they are interested in the advice and opinion of the poster.

                                                                                  Swanee

                                                                                  Once you choose hope, anything is possible……….Christopher Reeves! 

                                                                                   

                                                                                   

                                                                                  I

                                                                                   

                                                                                  Swanee
                                                                                  Participant

                                                                                    I've been a regular on this site for the past 6 years, but mostly as a viewer the past few years, occasionally posting when some old timer shows up, we have lost so many and the list is long!  The reason I no longer participate frequently is because of this condemming, judgmental self rightous attitude that I find so negative and defeats the purpose of why we are all here.  I've lost a few of my family here, not because they died of melanoma but because they were under verbal attack from those that did not embrace or respect their opinion.  I still grieve for those I've lost contact with here, because of the verbal abuse they encountered.

                                                                                    My experience with western medicine did not go well for me.  I too, like Maggie, experienced all the side effects where others smoothly sailed.  Early on in my diagnosis I was told a story by my cardiologist, who experienced a miracle early on in his internship in New Mexico. He was treating a (drunk) patient who had fallen off a truck and was being treated in the emergency room for his injuries. However,  what the Dr. noted more importantly,  were his melanoma lesions and knew this man had bigger problems and told him he would die soon if he did not seek medical help for his melanoma. The patient went to the medicine man of his tribe and was carefully treated with the ancient cures that the tribe had practiced and the wisdom of the spiritual leader.  Six months later, the patient was free of his disease.  My Dr. shared this story not to oppose western medicine, for which he practices but to make me aware of what I could do to help myself, beyond drugs and this is his mission statement, I quote, ""I believe the optimal care of the heart requires not only superior medical knowledge, but an integration of body, mind, and spirit.  I believe in treating the person first, and the disease second.  I believe that life is sacred and people deserve to be treated with compassion and dignity.  I see my role as a healer to draw on all modalities, conventional and alternative, and that can achieve the deepest level of healing attainable."  Dr. Rubin Maidan is a Dr. of excellance and I only wish he was my oncologist!

                                                                                    As a stage IV melanoma patient, I continue to follow my oncologist's advice but also closely listen to my gut and have made personal choices that reflect my positive, fearless attitude about my faith in letting my body do it's part to heal me, along with the wisdom of those that are the masters in the science they have studied. 

                                                                                    Thank you to those that are not intimidated by the opinions of others and continue to share freely information that has helped them in their journey with melanoma, especially the integrated, alternative information that seems to work best with my body.   It's one more way we can be empowered and stay strong in our battle with melanoma.  The more you learn the more you know!  

                                                                                    Finally, this is not Web MD, but a public site that is open to all,  to learn and express a variety of opinions, questions, thoughts, find support and pay tributes.  All posts are subject to interpretation and it is up to the reader to decide if they are interested in the advice and opinion of the poster.

                                                                                    Swanee

                                                                                    Once you choose hope, anything is possible……….Christopher Reeves! 

                                                                                     

                                                                                     

                                                                                    I

                                                                                     

                                                                                    Polymath
                                                                                    Participant

                                                                                      Hello warriors,

                                                                                      Good comments on both sides have been made here.  1st Amendment rules, and differing opinions are what has made our country great (and our friends in the UK).  That said, everyday another scared, newly diagnosed person come here for help, advice, and often just emotional support.  I too have been inundated by well-meaning friends and family who seem to know about a secret cure for cancer.  I had the DVD set given to me. It is a pure propaganda piece because it refuses to acknowledge the two sides of the debate.  Out of respect for all those who came before us.  The "ratties" who risked all in clinical trials hoping to find a cure, Willing to sacrifice for the next generation.  The research scientists who spent countless hours searching for a promising lead, while their own friends and family around them succumbed to the disease. And those mean, greedy drug companies who spent millions, maybe billions chasing dead ends in search of something that actually works, and could make its way through a difficult FDA approval process. For all those sacrifices and the now proven results that are keeping so many on this board alive I cannot stand the thought of misleading these "newbies" that drinking lemon juice or taking turmeric is going to beat this horrible beast.  I have noted in several prior posts the power of the mind, and the placebo effect.  This battle takes strength and courage on all fronts. The mind, may well indeed be as powerful as the drugs, at least in certain cases.  Again, those newly diagnosed need facts, and modern medicine has come a very long way.  Personally I feel I'm still alive because of the drug therapy I've received even though I am far from the goal of being NED. In the meantime, and until these proven options no longer exist I'll stick with it and stay strong and positive.  I urge those who are now entering this club, to be careful, and beware of false prophets.

                                                                                      Gary

                                                                                      Polymath
                                                                                      Participant

                                                                                        Hello warriors,

                                                                                        Good comments on both sides have been made here.  1st Amendment rules, and differing opinions are what has made our country great (and our friends in the UK).  That said, everyday another scared, newly diagnosed person come here for help, advice, and often just emotional support.  I too have been inundated by well-meaning friends and family who seem to know about a secret cure for cancer.  I had the DVD set given to me. It is a pure propaganda piece because it refuses to acknowledge the two sides of the debate.  Out of respect for all those who came before us.  The "ratties" who risked all in clinical trials hoping to find a cure, Willing to sacrifice for the next generation.  The research scientists who spent countless hours searching for a promising lead, while their own friends and family around them succumbed to the disease. And those mean, greedy drug companies who spent millions, maybe billions chasing dead ends in search of something that actually works, and could make its way through a difficult FDA approval process. For all those sacrifices and the now proven results that are keeping so many on this board alive I cannot stand the thought of misleading these "newbies" that drinking lemon juice or taking turmeric is going to beat this horrible beast.  I have noted in several prior posts the power of the mind, and the placebo effect.  This battle takes strength and courage on all fronts. The mind, may well indeed be as powerful as the drugs, at least in certain cases.  Again, those newly diagnosed need facts, and modern medicine has come a very long way.  Personally I feel I'm still alive because of the drug therapy I've received even though I am far from the goal of being NED. In the meantime, and until these proven options no longer exist I'll stick with it and stay strong and positive.  I urge those who are now entering this club, to be careful, and beware of false prophets.

                                                                                        Gary

                                                                                        Polymath
                                                                                        Participant

                                                                                          Hello warriors,

                                                                                          Good comments on both sides have been made here.  1st Amendment rules, and differing opinions are what has made our country great (and our friends in the UK).  That said, everyday another scared, newly diagnosed person come here for help, advice, and often just emotional support.  I too have been inundated by well-meaning friends and family who seem to know about a secret cure for cancer.  I had the DVD set given to me. It is a pure propaganda piece because it refuses to acknowledge the two sides of the debate.  Out of respect for all those who came before us.  The "ratties" who risked all in clinical trials hoping to find a cure, Willing to sacrifice for the next generation.  The research scientists who spent countless hours searching for a promising lead, while their own friends and family around them succumbed to the disease. And those mean, greedy drug companies who spent millions, maybe billions chasing dead ends in search of something that actually works, and could make its way through a difficult FDA approval process. For all those sacrifices and the now proven results that are keeping so many on this board alive I cannot stand the thought of misleading these "newbies" that drinking lemon juice or taking turmeric is going to beat this horrible beast.  I have noted in several prior posts the power of the mind, and the placebo effect.  This battle takes strength and courage on all fronts. The mind, may well indeed be as powerful as the drugs, at least in certain cases.  Again, those newly diagnosed need facts, and modern medicine has come a very long way.  Personally I feel I'm still alive because of the drug therapy I've received even though I am far from the goal of being NED. In the meantime, and until these proven options no longer exist I'll stick with it and stay strong and positive.  I urge those who are now entering this club, to be careful, and beware of false prophets.

                                                                                          Gary

                                                                                            DZnDef
                                                                                            Participant

                                                                                              "It is a pure propaganda piece because it refuses to acknowledge the two sides of the debate."  I agree it does not try to present the conventional medicine view.  That is because the conventional medicine view is mainstream, well known, and received every time we go to the doctors' office.  This series is presenting the other side to that view.  You are concerned that "newbies" might be influenced by this series.  You are right.  When I was a newbie, I saw the predecessor to this series.  I found my doctor on it.  I am still alive and feeling fine.  People have in fact been cured outside the medical system.  Does that mean they can cure anyone?  I highly doubt that.  But even if their success rate is only equal to that of conventional medicine (which is pretty low) wouldn't that still be a worthwhile option?  If they had a 15% success rate, that would put them on par with Yervoy but without the side effects.  The first episode includes a 40-year survivor of pancreatic cancer.  I'm not aware of any patient of conventional medicine surviving that long but I'd gladly watch an interview with one if they exist.  I am glad the drug therapy worked for you, Gary.  I hope it will work for me too should I need it.  In the meantime, I'll continue with my doctor's protocol and see where it takes me.  My life my choice.  Any newbie should be free to make their own choice as well.

                                                                                              DZnDef
                                                                                              Participant

                                                                                                "It is a pure propaganda piece because it refuses to acknowledge the two sides of the debate."  I agree it does not try to present the conventional medicine view.  That is because the conventional medicine view is mainstream, well known, and received every time we go to the doctors' office.  This series is presenting the other side to that view.  You are concerned that "newbies" might be influenced by this series.  You are right.  When I was a newbie, I saw the predecessor to this series.  I found my doctor on it.  I am still alive and feeling fine.  People have in fact been cured outside the medical system.  Does that mean they can cure anyone?  I highly doubt that.  But even if their success rate is only equal to that of conventional medicine (which is pretty low) wouldn't that still be a worthwhile option?  If they had a 15% success rate, that would put them on par with Yervoy but without the side effects.  The first episode includes a 40-year survivor of pancreatic cancer.  I'm not aware of any patient of conventional medicine surviving that long but I'd gladly watch an interview with one if they exist.  I am glad the drug therapy worked for you, Gary.  I hope it will work for me too should I need it.  In the meantime, I'll continue with my doctor's protocol and see where it takes me.  My life my choice.  Any newbie should be free to make their own choice as well.

                                                                                                DZnDef
                                                                                                Participant

                                                                                                  "It is a pure propaganda piece because it refuses to acknowledge the two sides of the debate."  I agree it does not try to present the conventional medicine view.  That is because the conventional medicine view is mainstream, well known, and received every time we go to the doctors' office.  This series is presenting the other side to that view.  You are concerned that "newbies" might be influenced by this series.  You are right.  When I was a newbie, I saw the predecessor to this series.  I found my doctor on it.  I am still alive and feeling fine.  People have in fact been cured outside the medical system.  Does that mean they can cure anyone?  I highly doubt that.  But even if their success rate is only equal to that of conventional medicine (which is pretty low) wouldn't that still be a worthwhile option?  If they had a 15% success rate, that would put them on par with Yervoy but without the side effects.  The first episode includes a 40-year survivor of pancreatic cancer.  I'm not aware of any patient of conventional medicine surviving that long but I'd gladly watch an interview with one if they exist.  I am glad the drug therapy worked for you, Gary.  I hope it will work for me too should I need it.  In the meantime, I'll continue with my doctor's protocol and see where it takes me.  My life my choice.  Any newbie should be free to make their own choice as well.

                                                                                                  Brent Morris
                                                                                                  Participant

                                                                                                    Dear Maggie,

                                                                                                    I am sorry you have to struggle with the horror of this disease as do the others on this forum. And I wish that it would just go away for you and for all. Sadly, it does not  go away just because we wish it away – with juice, tea and happy thoughts. The overt suffering and death in its wake, forces us to confront it head on. We need the best our science can offer. Science is not an abstract mystery to be feared. It is a tool using the smartest rational thought and most relevant  facts (often earned by the lives of ratties – Les was one of these) to find the best answers we can. Now, we have some answers – but not nearly all. We are doing better – up to 40% response rates or more with some treatments – not nearly enough. Maggie, can you provide any valid studies that show response rates of even 15% with alternative means? Please post them. Anecdotes about a 40 year survivor with pancreatic cancer doesn't cut it. Newbies do have a choice. You have a choice. It needs to be an informed choice, not driven by desperation and denial . You think that alternative medicine frightens Celeste? I have lived with Les for 30 years. There is little that scares her except ignorance and the havoc it wrecks. And I am afraid that is what the Siren call of alternative medicine offers. Alternative medicine may appear to be a safe harbor out of the reach of cancer – giving the patient control of their own bodies, disallowing the control conventional cancer care gives to others – like doctors and the medical establishment. Yet, it is not a harbor but a blind alley. The primary directive of healing arts is do no harm. Ignorance is harm. Sure there is a range of options. They have to be presented in a scientific (read "smart") context. Then, let the chips fall where they may.

                                                                                                    Bring all your marbles to the game.  

                                                                                                    DZnDef
                                                                                                    Participant

                                                                                                      Hi Brent,

                                                                                                      I have no statistics regarding alternative treatments.  I mentioned the 15% as a theoretical example (I thought I made that clear but maybe not).  The point being that many people point to a survivor's story as being anecdotal and proving nothing.  Then those same people will mention an anecdotal story of a death as proof that all alternative medicine doesn't work.  This implies that alternative medicine must have a 100% success rate in order to be considered a valid option.  You can't have it both ways.  Either both stories are anecdotal and prove nothing or they are both proof.  I see them as both proof – that it works for some and not others.  Just like conventional medicine.  As long as a treatment works for one person, the effective rate is more than zero.  We don't have a study to tell us by how much.  It could be 0.001%.  It could be 80%.  We just don't know.

                                                                                                      Also please keep in mind that a valid study is not what makes a treatment effective.  The study only tells you the degree to which it is effective.  It was equally effective before the study as it was after.  To the extent a treatment has not been subjected to a study, we do not know how effective it is if at all.  But we also don't know that it is NOT effective.  Not yet being proven effective is not the same thing as being proven ineffective.

                                                                                                      If you choose to wait until everything has been rigorously tested before you try it, that is a fine and understandable choice.  Some of us choose to be more adventurous and are willing to risk our own lives in the process.  You can not say with any authority that an unproven treatment does not work.  You can only say that it is unproven.  It may or may not work.

                                                                                                      And for the record, I advised my brother to pursue conventional treatment for his Stage IV melanoma as the options available now are better than when I was diagnosed.  And I still plan to use Keytruda if and when I progress.  I just wanted to move from least toxic to more toxic in my personal treatment plan.

                                                                                                      People should be free to review all information available to them without censorship and form their own opinion.

                                                                                                      Cheers,

                                                                                                      Maggie

                                                                                                      DZnDef
                                                                                                      Participant

                                                                                                        Hi Brent,

                                                                                                        I have no statistics regarding alternative treatments.  I mentioned the 15% as a theoretical example (I thought I made that clear but maybe not).  The point being that many people point to a survivor's story as being anecdotal and proving nothing.  Then those same people will mention an anecdotal story of a death as proof that all alternative medicine doesn't work.  This implies that alternative medicine must have a 100% success rate in order to be considered a valid option.  You can't have it both ways.  Either both stories are anecdotal and prove nothing or they are both proof.  I see them as both proof – that it works for some and not others.  Just like conventional medicine.  As long as a treatment works for one person, the effective rate is more than zero.  We don't have a study to tell us by how much.  It could be 0.001%.  It could be 80%.  We just don't know.

                                                                                                        Also please keep in mind that a valid study is not what makes a treatment effective.  The study only tells you the degree to which it is effective.  It was equally effective before the study as it was after.  To the extent a treatment has not been subjected to a study, we do not know how effective it is if at all.  But we also don't know that it is NOT effective.  Not yet being proven effective is not the same thing as being proven ineffective.

                                                                                                        If you choose to wait until everything has been rigorously tested before you try it, that is a fine and understandable choice.  Some of us choose to be more adventurous and are willing to risk our own lives in the process.  You can not say with any authority that an unproven treatment does not work.  You can only say that it is unproven.  It may or may not work.

                                                                                                        And for the record, I advised my brother to pursue conventional treatment for his Stage IV melanoma as the options available now are better than when I was diagnosed.  And I still plan to use Keytruda if and when I progress.  I just wanted to move from least toxic to more toxic in my personal treatment plan.

                                                                                                        People should be free to review all information available to them without censorship and form their own opinion.

                                                                                                        Cheers,

                                                                                                        Maggie

                                                                                                        DZnDef
                                                                                                        Participant

                                                                                                          Hi Brent,

                                                                                                          I have no statistics regarding alternative treatments.  I mentioned the 15% as a theoretical example (I thought I made that clear but maybe not).  The point being that many people point to a survivor's story as being anecdotal and proving nothing.  Then those same people will mention an anecdotal story of a death as proof that all alternative medicine doesn't work.  This implies that alternative medicine must have a 100% success rate in order to be considered a valid option.  You can't have it both ways.  Either both stories are anecdotal and prove nothing or they are both proof.  I see them as both proof – that it works for some and not others.  Just like conventional medicine.  As long as a treatment works for one person, the effective rate is more than zero.  We don't have a study to tell us by how much.  It could be 0.001%.  It could be 80%.  We just don't know.

                                                                                                          Also please keep in mind that a valid study is not what makes a treatment effective.  The study only tells you the degree to which it is effective.  It was equally effective before the study as it was after.  To the extent a treatment has not been subjected to a study, we do not know how effective it is if at all.  But we also don't know that it is NOT effective.  Not yet being proven effective is not the same thing as being proven ineffective.

                                                                                                          If you choose to wait until everything has been rigorously tested before you try it, that is a fine and understandable choice.  Some of us choose to be more adventurous and are willing to risk our own lives in the process.  You can not say with any authority that an unproven treatment does not work.  You can only say that it is unproven.  It may or may not work.

                                                                                                          And for the record, I advised my brother to pursue conventional treatment for his Stage IV melanoma as the options available now are better than when I was diagnosed.  And I still plan to use Keytruda if and when I progress.  I just wanted to move from least toxic to more toxic in my personal treatment plan.

                                                                                                          People should be free to review all information available to them without censorship and form their own opinion.

                                                                                                          Cheers,

                                                                                                          Maggie

                                                                                                          WithinMySkin
                                                                                                          Participant

                                                                                                            Hi Brent. I just had to reply, and even though I know I'm not going to change your mind on this, please hear me out. I have a HUGE amount of respect for your opinion (and Les's) because I used to be you. And then I became a patient, and everything changed. Things are not black and white in life. Science does not give us all the answers. What I absolutely believe is the MOST important thing in healthcare is being your own advocate. Whatever treatment you chose, you need to do your research. Just because people go an alternative route does not immediately make them ignorant, as you implied. No one is presented with an alternative treatment in the doctor's office, so they have to be sought out, and they may be one sided. But so is a doctor's treatment plan. 

                                                                                                             
                                                                                                            Anyone who is going to do their own research to find a non-Westernized treatment plan knows they need to make the best decision for themselves. I'm not sure why you have such a bias against using the terms "alternative" and "informed" together, but I find the people who use alternative treatments to be well versed in their understanding and their choices. But of course, you are going to find some people who do fall for false "cures" and false prophets. This is completely their choice, so please don't judge their marbles. 

                                                                                                             
                                                                                                            On the other hand, I have seen HUNDREDS of ignorant patients going through the traditional healthcare system without a clue about their disease or condition. So many patients have NO idea what their doctor has prescribed them for treatment, or don't care, or simply don't ask questions. Like lambs lead to slaughter. Where's the outrage over this?!? And let me tell you, an MD/DO/PhD does not make you perfectly informed. Thousands of people die every year from medical errors, much more than the amount who die from Melanoma. Medical errors are the third leading cause of death in the US. The public SHOULD be wary of doctors and hospitals. And since I know you'll want proof, here's a link:

                                                                                                             
                                                                                                            And just because something does (or doesn't) have a statistic attached to it does not make it true. As the old saying goes, there are 3 types of lies: lies, d@mn lies, and statistics. I'm more likely to die in a car accident at my age than from Melanoma. So if I don't drive, does that change my chances of dying? Give me a study, and I can skew the data. So you'll have to take the statistics in the link I posted with a grain of salt 😉 
                                                                                                             
                                                                                                            I like to think of nature as a forgotten medicine. Where did penicillin come from? Morphine? Caffeine? The first anesthetics? Naturally derived cocaine is still used for anesthesia today, and there have been studies proving that acupuncture and hypnosis help ease post operative nausea and decrease healing time, respectively. How many hospitals offer these to their patients? Practically none. People who follow purely Western medicine have forgotten about so many things that nature (and natural/alternative medicine) have to offer. No, they probably aren't cures. But neither is immunotherapy. 
                                                                                                             
                                                                                                            Moral of the story? Everyone makes up their own mind on what is best for them. I urge everyone to do their own research, first and foremost. This forum is for supporting each other, whatever your (hopefully informed) decisions. No one on here goes crazy when someone posts something scientific. So please don't judge when someone posts something holistic. We can all agree to disagree in a respectful manner.
                                                                                                             
                                                                                                            Lauren

                                                                                                             

                                                                                                            Swanee
                                                                                                            Participant

                                                                                                              Thank you Lauren for taking the time to share your thoughts, expressing what so many of us want to say and  I know many here are nodding their heads in agreement.  This is such a ominous cancer to battle and we need all the resources we can find to strengthen our bodies to meet  this challenge.  I am being treated at a top notch cancer center and is a  leading center in melanoma treatments.  My Dr.'s, welcome alternative medicine, many live a lifestyle anyway that supports naturopathy and many practice integrated medicine.  They just want to be informed about what you are doing so they can decide  what will work with what they are prescribing.   I feel so fortunate and grateful  to have access to this level of care.  I feel the most  informed have all this in their arsenal to wage battle against melanoma and I feel guilt for those who don't, I want us all to have the same advantages!

                                                                                                              When I was first diagnosed, it was a stage IV diagnosis.   I read on the American Cancer Society website, searching for anything….all I found was discouraging information.  I don't know what it says now, but six years ago it said, "there are no survivors after five years" YIKES!  But when you think about it, the standard treatment was chemo and radiation.  People are living longer with melanoma because many are choosing the wait and watch approach, passing on the standard treatment protocal and looking for alternatives that don't destroy their body in the process! 

                                                                                                              I want everyone who comes to this site to hear good positive stories from both sides of the spectrum.  We are all diagnosed differently and enter the battle at different stages.  But both sides(western/eastern) should know they can fight this disease from many angles and if we use everything we have learned, we have a better chance of survival.  

                                                                                                              Thank you to all who continue to post their experiences and knowledge, we all gain something from each other (or pay no mind to what we read) and that is what this website was intended for.  It was not intended for one person, one thought, one mind……we are many people here, on a journey together but with many different ideas about health wellness and our own experiences with melanoma. This is not a right or wrong dilemma, but a series of choices based on our own gut instinct and our trust in our health team…..knowledge is our friend!  

                                                                                                              Swanee

                                                                                                               

                                                                                                               

                                                                                                               

                                                                                                              DZnDef
                                                                                                              Participant

                                                                                                                Lauren and Swanee – You both write so well and express these views that I share so much better than I ever could.  I am glad you are both on this board.

                                                                                                                With much respect,

                                                                                                                Maggie

                                                                                                                DZnDef
                                                                                                                Participant

                                                                                                                  Lauren and Swanee – You both write so well and express these views that I share so much better than I ever could.  I am glad you are both on this board.

                                                                                                                  With much respect,

                                                                                                                  Maggie

                                                                                                                  DZnDef
                                                                                                                  Participant

                                                                                                                    Lauren and Swanee – You both write so well and express these views that I share so much better than I ever could.  I am glad you are both on this board.

                                                                                                                    With much respect,

                                                                                                                    Maggie

                                                                                                                    Swanee
                                                                                                                    Participant

                                                                                                                      Thank you Lauren for taking the time to share your thoughts, expressing what so many of us want to say and  I know many here are nodding their heads in agreement.  This is such a ominous cancer to battle and we need all the resources we can find to strengthen our bodies to meet  this challenge.  I am being treated at a top notch cancer center and is a  leading center in melanoma treatments.  My Dr.'s, welcome alternative medicine, many live a lifestyle anyway that supports naturopathy and many practice integrated medicine.  They just want to be informed about what you are doing so they can decide  what will work with what they are prescribing.   I feel so fortunate and grateful  to have access to this level of care.  I feel the most  informed have all this in their arsenal to wage battle against melanoma and I feel guilt for those who don't, I want us all to have the same advantages!

                                                                                                                      When I was first diagnosed, it was a stage IV diagnosis.   I read on the American Cancer Society website, searching for anything….all I found was discouraging information.  I don't know what it says now, but six years ago it said, "there are no survivors after five years" YIKES!  But when you think about it, the standard treatment was chemo and radiation.  People are living longer with melanoma because many are choosing the wait and watch approach, passing on the standard treatment protocal and looking for alternatives that don't destroy their body in the process! 

                                                                                                                      I want everyone who comes to this site to hear good positive stories from both sides of the spectrum.  We are all diagnosed differently and enter the battle at different stages.  But both sides(western/eastern) should know they can fight this disease from many angles and if we use everything we have learned, we have a better chance of survival.  

                                                                                                                      Thank you to all who continue to post their experiences and knowledge, we all gain something from each other (or pay no mind to what we read) and that is what this website was intended for.  It was not intended for one person, one thought, one mind……we are many people here, on a journey together but with many different ideas about health wellness and our own experiences with melanoma. This is not a right or wrong dilemma, but a series of choices based on our own gut instinct and our trust in our health team…..knowledge is our friend!  

                                                                                                                      Swanee

                                                                                                                       

                                                                                                                       

                                                                                                                       

                                                                                                                      Swanee
                                                                                                                      Participant

                                                                                                                        Thank you Lauren for taking the time to share your thoughts, expressing what so many of us want to say and  I know many here are nodding their heads in agreement.  This is such a ominous cancer to battle and we need all the resources we can find to strengthen our bodies to meet  this challenge.  I am being treated at a top notch cancer center and is a  leading center in melanoma treatments.  My Dr.'s, welcome alternative medicine, many live a lifestyle anyway that supports naturopathy and many practice integrated medicine.  They just want to be informed about what you are doing so they can decide  what will work with what they are prescribing.   I feel so fortunate and grateful  to have access to this level of care.  I feel the most  informed have all this in their arsenal to wage battle against melanoma and I feel guilt for those who don't, I want us all to have the same advantages!

                                                                                                                        When I was first diagnosed, it was a stage IV diagnosis.   I read on the American Cancer Society website, searching for anything….all I found was discouraging information.  I don't know what it says now, but six years ago it said, "there are no survivors after five years" YIKES!  But when you think about it, the standard treatment was chemo and radiation.  People are living longer with melanoma because many are choosing the wait and watch approach, passing on the standard treatment protocal and looking for alternatives that don't destroy their body in the process! 

                                                                                                                        I want everyone who comes to this site to hear good positive stories from both sides of the spectrum.  We are all diagnosed differently and enter the battle at different stages.  But both sides(western/eastern) should know they can fight this disease from many angles and if we use everything we have learned, we have a better chance of survival.  

                                                                                                                        Thank you to all who continue to post their experiences and knowledge, we all gain something from each other (or pay no mind to what we read) and that is what this website was intended for.  It was not intended for one person, one thought, one mind……we are many people here, on a journey together but with many different ideas about health wellness and our own experiences with melanoma. This is not a right or wrong dilemma, but a series of choices based on our own gut instinct and our trust in our health team…..knowledge is our friend!  

                                                                                                                        Swanee

                                                                                                                         

                                                                                                                         

                                                                                                                         

                                                                                                                        WithinMySkin
                                                                                                                        Participant

                                                                                                                          Hi Brent. I just had to reply, and even though I know I'm not going to change your mind on this, please hear me out. I have a HUGE amount of respect for your opinion (and Les's) because I used to be you. And then I became a patient, and everything changed. Things are not black and white in life. Science does not give us all the answers. What I absolutely believe is the MOST important thing in healthcare is being your own advocate. Whatever treatment you chose, you need to do your research. Just because people go an alternative route does not immediately make them ignorant, as you implied. No one is presented with an alternative treatment in the doctor's office, so they have to be sought out, and they may be one sided. But so is a doctor's treatment plan. 

                                                                                                                           
                                                                                                                          Anyone who is going to do their own research to find a non-Westernized treatment plan knows they need to make the best decision for themselves. I'm not sure why you have such a bias against using the terms "alternative" and "informed" together, but I find the people who use alternative treatments to be well versed in their understanding and their choices. But of course, you are going to find some people who do fall for false "cures" and false prophets. This is completely their choice, so please don't judge their marbles. 

                                                                                                                           
                                                                                                                          On the other hand, I have seen HUNDREDS of ignorant patients going through the traditional healthcare system without a clue about their disease or condition. So many patients have NO idea what their doctor has prescribed them for treatment, or don't care, or simply don't ask questions. Like lambs lead to slaughter. Where's the outrage over this?!? And let me tell you, an MD/DO/PhD does not make you perfectly informed. Thousands of people die every year from medical errors, much more than the amount who die from Melanoma. Medical errors are the third leading cause of death in the US. The public SHOULD be wary of doctors and hospitals. And since I know you'll want proof, here's a link:

                                                                                                                           
                                                                                                                          And just because something does (or doesn't) have a statistic attached to it does not make it true. As the old saying goes, there are 3 types of lies: lies, d@mn lies, and statistics. I'm more likely to die in a car accident at my age than from Melanoma. So if I don't drive, does that change my chances of dying? Give me a study, and I can skew the data. So you'll have to take the statistics in the link I posted with a grain of salt 😉 
                                                                                                                           
                                                                                                                          I like to think of nature as a forgotten medicine. Where did penicillin come from? Morphine? Caffeine? The first anesthetics? Naturally derived cocaine is still used for anesthesia today, and there have been studies proving that acupuncture and hypnosis help ease post operative nausea and decrease healing time, respectively. How many hospitals offer these to their patients? Practically none. People who follow purely Western medicine have forgotten about so many things that nature (and natural/alternative medicine) have to offer. No, they probably aren't cures. But neither is immunotherapy. 
                                                                                                                           
                                                                                                                          Moral of the story? Everyone makes up their own mind on what is best for them. I urge everyone to do their own research, first and foremost. This forum is for supporting each other, whatever your (hopefully informed) decisions. No one on here goes crazy when someone posts something scientific. So please don't judge when someone posts something holistic. We can all agree to disagree in a respectful manner.
                                                                                                                           
                                                                                                                          Lauren

                                                                                                                           

                                                                                                                          WithinMySkin
                                                                                                                          Participant

                                                                                                                            Hi Brent. I just had to reply, and even though I know I'm not going to change your mind on this, please hear me out. I have a HUGE amount of respect for your opinion (and Les's) because I used to be you. And then I became a patient, and everything changed. Things are not black and white in life. Science does not give us all the answers. What I absolutely believe is the MOST important thing in healthcare is being your own advocate. Whatever treatment you chose, you need to do your research. Just because people go an alternative route does not immediately make them ignorant, as you implied. No one is presented with an alternative treatment in the doctor's office, so they have to be sought out, and they may be one sided. But so is a doctor's treatment plan. 

                                                                                                                             
                                                                                                                            Anyone who is going to do their own research to find a non-Westernized treatment plan knows they need to make the best decision for themselves. I'm not sure why you have such a bias against using the terms "alternative" and "informed" together, but I find the people who use alternative treatments to be well versed in their understanding and their choices. But of course, you are going to find some people who do fall for false "cures" and false prophets. This is completely their choice, so please don't judge their marbles. 

                                                                                                                             
                                                                                                                            On the other hand, I have seen HUNDREDS of ignorant patients going through the traditional healthcare system without a clue about their disease or condition. So many patients have NO idea what their doctor has prescribed them for treatment, or don't care, or simply don't ask questions. Like lambs lead to slaughter. Where's the outrage over this?!? And let me tell you, an MD/DO/PhD does not make you perfectly informed. Thousands of people die every year from medical errors, much more than the amount who die from Melanoma. Medical errors are the third leading cause of death in the US. The public SHOULD be wary of doctors and hospitals. And since I know you'll want proof, here's a link:

                                                                                                                             
                                                                                                                            And just because something does (or doesn't) have a statistic attached to it does not make it true. As the old saying goes, there are 3 types of lies: lies, d@mn lies, and statistics. I'm more likely to die in a car accident at my age than from Melanoma. So if I don't drive, does that change my chances of dying? Give me a study, and I can skew the data. So you'll have to take the statistics in the link I posted with a grain of salt 😉 
                                                                                                                             
                                                                                                                            I like to think of nature as a forgotten medicine. Where did penicillin come from? Morphine? Caffeine? The first anesthetics? Naturally derived cocaine is still used for anesthesia today, and there have been studies proving that acupuncture and hypnosis help ease post operative nausea and decrease healing time, respectively. How many hospitals offer these to their patients? Practically none. People who follow purely Western medicine have forgotten about so many things that nature (and natural/alternative medicine) have to offer. No, they probably aren't cures. But neither is immunotherapy. 
                                                                                                                             
                                                                                                                            Moral of the story? Everyone makes up their own mind on what is best for them. I urge everyone to do their own research, first and foremost. This forum is for supporting each other, whatever your (hopefully informed) decisions. No one on here goes crazy when someone posts something scientific. So please don't judge when someone posts something holistic. We can all agree to disagree in a respectful manner.
                                                                                                                             
                                                                                                                            Lauren

                                                                                                                             

                                                                                                                            Brent Morris
                                                                                                                            Participant

                                                                                                                              Dear Maggie,

                                                                                                                              I am sorry you have to struggle with the horror of this disease as do the others on this forum. And I wish that it would just go away for you and for all. Sadly, it does not  go away just because we wish it away – with juice, tea and happy thoughts. The overt suffering and death in its wake, forces us to confront it head on. We need the best our science can offer. Science is not an abstract mystery to be feared. It is a tool using the smartest rational thought and most relevant  facts (often earned by the lives of ratties – Les was one of these) to find the best answers we can. Now, we have some answers – but not nearly all. We are doing better – up to 40% response rates or more with some treatments – not nearly enough. Maggie, can you provide any valid studies that show response rates of even 15% with alternative means? Please post them. Anecdotes about a 40 year survivor with pancreatic cancer doesn't cut it. Newbies do have a choice. You have a choice. It needs to be an informed choice, not driven by desperation and denial . You think that alternative medicine frightens Celeste? I have lived with Les for 30 years. There is little that scares her except ignorance and the havoc it wrecks. And I am afraid that is what the Siren call of alternative medicine offers. Alternative medicine may appear to be a safe harbor out of the reach of cancer – giving the patient control of their own bodies, disallowing the control conventional cancer care gives to others – like doctors and the medical establishment. Yet, it is not a harbor but a blind alley. The primary directive of healing arts is do no harm. Ignorance is harm. Sure there is a range of options. They have to be presented in a scientific (read "smart") context. Then, let the chips fall where they may.

                                                                                                                              Bring all your marbles to the game.  

                                                                                                                              Brent Morris
                                                                                                                              Participant

                                                                                                                                Dear Maggie,

                                                                                                                                I am sorry you have to struggle with the horror of this disease as do the others on this forum. And I wish that it would just go away for you and for all. Sadly, it does not  go away just because we wish it away – with juice, tea and happy thoughts. The overt suffering and death in its wake, forces us to confront it head on. We need the best our science can offer. Science is not an abstract mystery to be feared. It is a tool using the smartest rational thought and most relevant  facts (often earned by the lives of ratties – Les was one of these) to find the best answers we can. Now, we have some answers – but not nearly all. We are doing better – up to 40% response rates or more with some treatments – not nearly enough. Maggie, can you provide any valid studies that show response rates of even 15% with alternative means? Please post them. Anecdotes about a 40 year survivor with pancreatic cancer doesn't cut it. Newbies do have a choice. You have a choice. It needs to be an informed choice, not driven by desperation and denial . You think that alternative medicine frightens Celeste? I have lived with Les for 30 years. There is little that scares her except ignorance and the havoc it wrecks. And I am afraid that is what the Siren call of alternative medicine offers. Alternative medicine may appear to be a safe harbor out of the reach of cancer – giving the patient control of their own bodies, disallowing the control conventional cancer care gives to others – like doctors and the medical establishment. Yet, it is not a harbor but a blind alley. The primary directive of healing arts is do no harm. Ignorance is harm. Sure there is a range of options. They have to be presented in a scientific (read "smart") context. Then, let the chips fall where they may.

                                                                                                                                Bring all your marbles to the game.  

                                                                                                                                MoiraM
                                                                                                                                Participant

                                                                                                                                  The problem is false hope. I, like many others on here, do not want people being offered false hope. Does the programme offer false hope? Will that false hope stop someone who could be cured of their cancer from accepting a tried, trusted and highly effective treatment? (Yes, I do realise that is not the case for melanoma.)

                                                                                                                                  There is also the problem of using anecdotes as evidence. People have survived jumping out of planes without wearing parachutes. That does not mean it is sensible to jump out of a plane without a parachute.

                                                                                                                                  I have looked up the statitics for pancreatic cancer. 1 in 100 people diagnosed with pancreatic cancer survive over 10 years. Terrible, terrible statistics but it means that you can find the occasional survivor.

                                                                                                                                  I am not unconditionally 'pro' conventional medicine. On the contrary. I would be deeply cynical even if I did not have a phobia of doctors and hospitals.

                                                                                                                                  I do think that, in the past, doctors have underestimated the role of a patients' immune systems in fighting cancer, particularly melanoma. Keeping your immune system in tip-top condition is really important, which is why diet, exercise and avoiding stress can help.

                                                                                                                                  I want every programme to be balanced. I want to see those statistics because it allows me and others to compare approaches. I want all decisions to be informed.

                                                                                                                                  MoiraM
                                                                                                                                  Participant

                                                                                                                                    The problem is false hope. I, like many others on here, do not want people being offered false hope. Does the programme offer false hope? Will that false hope stop someone who could be cured of their cancer from accepting a tried, trusted and highly effective treatment? (Yes, I do realise that is not the case for melanoma.)

                                                                                                                                    There is also the problem of using anecdotes as evidence. People have survived jumping out of planes without wearing parachutes. That does not mean it is sensible to jump out of a plane without a parachute.

                                                                                                                                    I have looked up the statitics for pancreatic cancer. 1 in 100 people diagnosed with pancreatic cancer survive over 10 years. Terrible, terrible statistics but it means that you can find the occasional survivor.

                                                                                                                                    I am not unconditionally 'pro' conventional medicine. On the contrary. I would be deeply cynical even if I did not have a phobia of doctors and hospitals.

                                                                                                                                    I do think that, in the past, doctors have underestimated the role of a patients' immune systems in fighting cancer, particularly melanoma. Keeping your immune system in tip-top condition is really important, which is why diet, exercise and avoiding stress can help.

                                                                                                                                    I want every programme to be balanced. I want to see those statistics because it allows me and others to compare approaches. I want all decisions to be informed.

                                                                                                                                    MoiraM
                                                                                                                                    Participant

                                                                                                                                      The problem is false hope. I, like many others on here, do not want people being offered false hope. Does the programme offer false hope? Will that false hope stop someone who could be cured of their cancer from accepting a tried, trusted and highly effective treatment? (Yes, I do realise that is not the case for melanoma.)

                                                                                                                                      There is also the problem of using anecdotes as evidence. People have survived jumping out of planes without wearing parachutes. That does not mean it is sensible to jump out of a plane without a parachute.

                                                                                                                                      I have looked up the statitics for pancreatic cancer. 1 in 100 people diagnosed with pancreatic cancer survive over 10 years. Terrible, terrible statistics but it means that you can find the occasional survivor.

                                                                                                                                      I am not unconditionally 'pro' conventional medicine. On the contrary. I would be deeply cynical even if I did not have a phobia of doctors and hospitals.

                                                                                                                                      I do think that, in the past, doctors have underestimated the role of a patients' immune systems in fighting cancer, particularly melanoma. Keeping your immune system in tip-top condition is really important, which is why diet, exercise and avoiding stress can help.

                                                                                                                                      I want every programme to be balanced. I want to see those statistics because it allows me and others to compare approaches. I want all decisions to be informed.

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                                                                                                                                The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

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