› Forums › General Melanoma Community › Breslin 0.95, SLNB positive 1 node, 1 cell what will the oncologist say
- This topic has 24 replies, 4 voices, and was last updated 9 years, 7 months ago by
Emcjones1.
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- October 3, 2014 at 7:57 pm
Okay now that I am over the rush of blood to my head I am craving information from people's personal experience. Less than three weeks ago I had a biopsy for a mole, three days ago I had a wide margin excision on my right calf and a SNLB. Just got the biopsy report… One node with one "tumor" cell. They are talking about more surgery, but I haven't seen the oncologist yet. That appointment is Wednesday. I am crazy active, freaked by the idea of being laid up in bed for long periods of time. Stories will help.
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- October 3, 2014 at 10:20 pm
hello…just had my WLE on my right calf on august 19…had one lymp node out of the 4 taken out in the SLNB possitive, chose not to do the CLND and am going to watch with ulrtrasound…only had a .9mm tumor in one lymph node and it wasn't ulcerated or extrcapsulary. Recovering from the WLE and SLNB was easy, just boring from sitting around for a few weeks…Wish you the best in your recovery and hope everything works out well for you…
God Bless
Craig
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- October 4, 2014 at 12:08 am
Ah, welcome to the stage 3 purgatory! I found the first part easy too. Now for the BIG decisions! I only had microscopic amounts in one lymph node but chose a CLND. Yes, I think I have had every side effect. Lymphedema, damaged nerves, a cyst (not correct term, sorry Janner) that burst, etc….. But I am still happy I chose that route. I am almost 5 years NED now!
MY CLND was in the armpit and I am convinced that is a bit easier than the groin but in the end you have to decide what makes you the most comfortable. Lymphedema can be controlled if you jump on it right away. I was proactive from day one about it.
Best of Luck,
Mary
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- October 4, 2014 at 12:08 am
Ah, welcome to the stage 3 purgatory! I found the first part easy too. Now for the BIG decisions! I only had microscopic amounts in one lymph node but chose a CLND. Yes, I think I have had every side effect. Lymphedema, damaged nerves, a cyst (not correct term, sorry Janner) that burst, etc….. But I am still happy I chose that route. I am almost 5 years NED now!
MY CLND was in the armpit and I am convinced that is a bit easier than the groin but in the end you have to decide what makes you the most comfortable. Lymphedema can be controlled if you jump on it right away. I was proactive from day one about it.
Best of Luck,
Mary
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- October 4, 2014 at 12:08 am
Ah, welcome to the stage 3 purgatory! I found the first part easy too. Now for the BIG decisions! I only had microscopic amounts in one lymph node but chose a CLND. Yes, I think I have had every side effect. Lymphedema, damaged nerves, a cyst (not correct term, sorry Janner) that burst, etc….. But I am still happy I chose that route. I am almost 5 years NED now!
MY CLND was in the armpit and I am convinced that is a bit easier than the groin but in the end you have to decide what makes you the most comfortable. Lymphedema can be controlled if you jump on it right away. I was proactive from day one about it.
Best of Luck,
Mary
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- October 4, 2014 at 3:06 am
Craig this helps. I have the path report in hand know and have spoken to an old colleague, a physician, I used to teach at the medical school. Odd thing is the report says a cell each was located in two of the node extracted. I have more appointments next week. I am wondering if anyone spoke to you about interferon therapy?
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- October 4, 2014 at 3:24 am
my oncologist did talk about interferon, but in my situation with only the microscopic tumor in one of the lymph nodes removed didn't think it was in my best interests to go through with it…while she couldn't recommend my course of treatment legally, as the CLND is the "standard of care", she did say that she was comfortable with my decision…is it the right one? I don't know, but hopefully it will be, and I believe after weighing all the side affects to a groin CLND and interferion, I'm comfortable with it…I wish you the best on whatever you decide on your situation…
btw she did also mention leukine I beleive as a trial drug, but my insurance wouldn't cover it, so you may want to ask about that…
Craig
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- October 4, 2014 at 3:24 am
my oncologist did talk about interferon, but in my situation with only the microscopic tumor in one of the lymph nodes removed didn't think it was in my best interests to go through with it…while she couldn't recommend my course of treatment legally, as the CLND is the "standard of care", she did say that she was comfortable with my decision…is it the right one? I don't know, but hopefully it will be, and I believe after weighing all the side affects to a groin CLND and interferion, I'm comfortable with it…I wish you the best on whatever you decide on your situation…
btw she did also mention leukine I beleive as a trial drug, but my insurance wouldn't cover it, so you may want to ask about that…
Craig
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- October 4, 2014 at 4:05 am
There is actual research papers out there that studied people who had microscopic amounts less than .1 or .2 mm i think it was and they had the same prognosis as those that had nothing so the conclusion was that CLND was overkill in those that had microscopic amounts of melanoma in their SN.
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- October 4, 2014 at 4:05 am
There is actual research papers out there that studied people who had microscopic amounts less than .1 or .2 mm i think it was and they had the same prognosis as those that had nothing so the conclusion was that CLND was overkill in those that had microscopic amounts of melanoma in their SN.
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- October 4, 2014 at 4:05 am
There is actual research papers out there that studied people who had microscopic amounts less than .1 or .2 mm i think it was and they had the same prognosis as those that had nothing so the conclusion was that CLND was overkill in those that had microscopic amounts of melanoma in their SN.
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- October 4, 2014 at 3:24 am
my oncologist did talk about interferon, but in my situation with only the microscopic tumor in one of the lymph nodes removed didn't think it was in my best interests to go through with it…while she couldn't recommend my course of treatment legally, as the CLND is the "standard of care", she did say that she was comfortable with my decision…is it the right one? I don't know, but hopefully it will be, and I believe after weighing all the side affects to a groin CLND and interferion, I'm comfortable with it…I wish you the best on whatever you decide on your situation…
btw she did also mention leukine I beleive as a trial drug, but my insurance wouldn't cover it, so you may want to ask about that…
Craig
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- October 4, 2014 at 3:06 am
Craig this helps. I have the path report in hand know and have spoken to an old colleague, a physician, I used to teach at the medical school. Odd thing is the report says a cell each was located in two of the node extracted. I have more appointments next week. I am wondering if anyone spoke to you about interferon therapy?
-
- October 4, 2014 at 3:06 am
Craig this helps. I have the path report in hand know and have spoken to an old colleague, a physician, I used to teach at the medical school. Odd thing is the report says a cell each was located in two of the node extracted. I have more appointments next week. I am wondering if anyone spoke to you about interferon therapy?
-
- October 3, 2014 at 10:20 pm
hello…just had my WLE on my right calf on august 19…had one lymp node out of the 4 taken out in the SLNB possitive, chose not to do the CLND and am going to watch with ulrtrasound…only had a .9mm tumor in one lymph node and it wasn't ulcerated or extrcapsulary. Recovering from the WLE and SLNB was easy, just boring from sitting around for a few weeks…Wish you the best in your recovery and hope everything works out well for you…
God Bless
Craig
-
- October 3, 2014 at 10:20 pm
hello…just had my WLE on my right calf on august 19…had one lymp node out of the 4 taken out in the SLNB possitive, chose not to do the CLND and am going to watch with ulrtrasound…only had a .9mm tumor in one lymph node and it wasn't ulcerated or extrcapsulary. Recovering from the WLE and SLNB was easy, just boring from sitting around for a few weeks…Wish you the best in your recovery and hope everything works out well for you…
God Bless
Craig
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- October 4, 2014 at 3:12 am
I would go with ultrasound follow up.
CLND is a brutal procedure and for very small amounts in one lymph node overkill in my opinion.
I doubt if it makes any difference in the long run.
Others will disagree but quality of life should be your number one goal.
Whatever happens dont let anyone rush you into any decision and dont listen to anyone who invokes fear.
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- October 4, 2014 at 3:12 am
I would go with ultrasound follow up.
CLND is a brutal procedure and for very small amounts in one lymph node overkill in my opinion.
I doubt if it makes any difference in the long run.
Others will disagree but quality of life should be your number one goal.
Whatever happens dont let anyone rush you into any decision and dont listen to anyone who invokes fear.
-
- October 4, 2014 at 3:12 am
I would go with ultrasound follow up.
CLND is a brutal procedure and for very small amounts in one lymph node overkill in my opinion.
I doubt if it makes any difference in the long run.
Others will disagree but quality of life should be your number one goal.
Whatever happens dont let anyone rush you into any decision and dont listen to anyone who invokes fear.
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- October 4, 2014 at 2:41 pm
Thank you for for the replies and support. I am getting a better picture of the choices. I will go to my oncology appointment and then for a second opinion. The hardest part is telling family and friends. Everyone wants to know what the next step is. I don't blame them, a course of action always seems better than gathering data to make an informed decision.
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- October 4, 2014 at 2:41 pm
Thank you for for the replies and support. I am getting a better picture of the choices. I will go to my oncology appointment and then for a second opinion. The hardest part is telling family and friends. Everyone wants to know what the next step is. I don't blame them, a course of action always seems better than gathering data to make an informed decision.
-
- October 4, 2014 at 2:41 pm
Thank you for for the replies and support. I am getting a better picture of the choices. I will go to my oncology appointment and then for a second opinion. The hardest part is telling family and friends. Everyone wants to know what the next step is. I don't blame them, a course of action always seems better than gathering data to make an informed decision.
Tagged: cutaneous melanoma
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