brain mets ipi or TIL
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

brain mets ipi or TIL

› Forums › General Melanoma Community › brain mets ipi or TIL

  • Post
    • May 30, 2011 at 12:26 pm
    Terra
    Participant

    Does anyone have any comments or knowledge on TIL or IPIand brain mets. 

    Does anyone have any comments or knowledge on TIL or IPIand brain mets. 

Viewing 5 reply threads
  • Replies
      • May 30, 2011 at 1:03 pm
      FormerCaregiver
      Participant

      I found this thread that mentions brain mets and ipi (Yervoy):
      http://www.melanoma.org/community/mpip-melanoma-patients-information-page/rollcall-have-you-taken-yervoyipi-your-results

      Not sure about TIL and brain mets, although I have read that some trials exclude people
      with them. I hope that someone will have more info on this.

      Take care

      Frank from Australia

      • May 30, 2011 at 1:03 pm
      FormerCaregiver
      Participant

      I found this thread that mentions brain mets and ipi (Yervoy):
      http://www.melanoma.org/community/mpip-melanoma-patients-information-page/rollcall-have-you-taken-yervoyipi-your-results

      Not sure about TIL and brain mets, although I have read that some trials exclude people
      with them. I hope that someone will have more info on this.

      Take care

      Frank from Australia

      • May 30, 2011 at 8:08 pm
      Jerry from Cape Cod
      Participant

      IPI does have success on brain mets.  Not sure about TIL. My initial scans showed 6 measurable mets in my brain and literally dozens (if not hundreds) of "floating" cells in my cerebral fluid.  I am participating in the IPI brain trial.

      IPI (Yervoy) is now an approved drug you do not need a trial to participate so there are no exclusions.  It's my undersanding that Bristol Myers Squibb is still restricting the drug to centers that participated in the earlier trials. 

      Call any one of the centers listed on the NIH site http://www.cancer.gov or BMS directly from the info on their web site.

      Jerry from Cape Cod

      • May 30, 2011 at 8:08 pm
      Jerry from Cape Cod
      Participant

      IPI does have success on brain mets.  Not sure about TIL. My initial scans showed 6 measurable mets in my brain and literally dozens (if not hundreds) of "floating" cells in my cerebral fluid.  I am participating in the IPI brain trial.

      IPI (Yervoy) is now an approved drug you do not need a trial to participate so there are no exclusions.  It's my undersanding that Bristol Myers Squibb is still restricting the drug to centers that participated in the earlier trials. 

      Call any one of the centers listed on the NIH site http://www.cancer.gov or BMS directly from the info on their web site.

      Jerry from Cape Cod

      • May 30, 2011 at 10:03 pm
      ValinMtl
      Participant

      Hi Terra,

      As Jerry said, ipi does have some success on brain mets. Are you asking because your husband has brain mets??  Will he be having gamma knife?

      I do not regret taking compassionate ipi trial, the first round of 4 treatments, cleared my cutaneous melanoma (and who knows may have stopped any brain mets)..I'm stil clear in brain/breast/colon (scans done last week while in hospital so now I will do war with the sub-qs and lymph node problem with another treatment, maybe TIL.  I am fully aware that TIL is an extremely harsh treatment …I never regretted taking ipi/yervoy.  Living in Canada, it would be much easier for you to try the compassionate ipi trial first and I would try it while it is still available in Canada…who knows when they will stop those trials up there..and who knows which provinces will cover the cost of this treatment (that's something to seriously consider too)…most 'not all' find the ipi not too difficult…I know I didn't.  Val

      • May 30, 2011 at 10:03 pm
      ValinMtl
      Participant

      Hi Terra,

      As Jerry said, ipi does have some success on brain mets. Are you asking because your husband has brain mets??  Will he be having gamma knife?

      I do not regret taking compassionate ipi trial, the first round of 4 treatments, cleared my cutaneous melanoma (and who knows may have stopped any brain mets)..I'm stil clear in brain/breast/colon (scans done last week while in hospital so now I will do war with the sub-qs and lymph node problem with another treatment, maybe TIL.  I am fully aware that TIL is an extremely harsh treatment …I never regretted taking ipi/yervoy.  Living in Canada, it would be much easier for you to try the compassionate ipi trial first and I would try it while it is still available in Canada…who knows when they will stop those trials up there..and who knows which provinces will cover the cost of this treatment (that's something to seriously consider too)…most 'not all' find the ipi not too difficult…I know I didn't.  Val

Viewing 5 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics