Brain Mets
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Brain Mets

› Forums › General Melanoma Community › Brain Mets

  • Post
    • August 28, 2013 at 8:50 pm
    NYKaren
    Participant
    Hi everyone,
    I just came back from the onc and all is good. I am having a pretty remarkable response to the Trafilnar, my ear, all my scalp mets, etc. are clearing up nicely. My blood work is good.
    The brain mets are having the pretty standard effect, anger, etc. and I really didn’t have a clue about where I was (my husband was driving) until he drove right up to the door. I know the office is going to be looking into some kind of neuro-psychologist who might help me navigate things better. My work won’t clear me for at least 2 more weeks, but I know that’s a good thing.
    Karen

    Hi everyone,
    I just came back from the onc and all is good. I am having a pretty remarkable response to the Trafilnar, my ear, all my scalp mets, etc. are clearing up nicely. My blood work is good.
    The brain mets are having the pretty standard effect, anger, etc. and I really didn’t have a clue about where I was (my husband was driving) until he drove right up to the door. I know the office is going to be looking into some kind of neuro-psychologist who might help me navigate things better. My work won’t clear me for at least 2 more weeks, but I know that’s a good thing.
    Karen

Viewing 21 reply threads
  • Replies
      • August 28, 2013 at 9:35 pm
      Richard_K
      Participant
      Way to go Karen!!!
      • August 28, 2013 at 9:35 pm
      Richard_K
      Participant
      Way to go Karen!!!
      • August 28, 2013 at 9:35 pm
      Richard_K
      Participant
      Way to go Karen!!!
      • August 28, 2013 at 9:56 pm
      awillett1991
      Participant
      Way to go girl! Good to hear from you! Sounds like you need to rest and take care of Karen!
      • August 28, 2013 at 9:56 pm
      awillett1991
      Participant
      Way to go girl! Good to hear from you! Sounds like you need to rest and take care of Karen!
      • August 28, 2013 at 9:56 pm
      awillett1991
      Participant
      Way to go girl! Good to hear from you! Sounds like you need to rest and take care of Karen!
      • August 29, 2013 at 12:53 am
      JerryfromFauq
      Participant

      YES !

      • August 29, 2013 at 12:53 am
      JerryfromFauq
      Participant

      YES !

      • August 29, 2013 at 12:53 am
      JerryfromFauq
      Participant

      YES !

      • August 29, 2013 at 2:52 am
      vivian
      Participant

      Yay, Karen!  Keep up the good work!

      • August 29, 2013 at 3:33 am
      POW
      Participant

      Wonderful news, Karen! If Traflinar (dabrafenib) is working on your body, it is probably working on your brain, too. It just takes longer. 

      I seem to recall that you took Zelboraf and it worked for you. You are one of the first who is post zelboraf and now on dabrafenib. It's so exciting to see that you are having such a good response!

      Keep on keepin' on, Karen! You're doing great!

      • August 29, 2013 at 3:33 am
      POW
      Participant

      Wonderful news, Karen! If Traflinar (dabrafenib) is working on your body, it is probably working on your brain, too. It just takes longer. 

      I seem to recall that you took Zelboraf and it worked for you. You are one of the first who is post zelboraf and now on dabrafenib. It's so exciting to see that you are having such a good response!

      Keep on keepin' on, Karen! You're doing great!

      • August 29, 2013 at 3:33 am
      POW
      Participant

      Wonderful news, Karen! If Traflinar (dabrafenib) is working on your body, it is probably working on your brain, too. It just takes longer. 

      I seem to recall that you took Zelboraf and it worked for you. You are one of the first who is post zelboraf and now on dabrafenib. It's so exciting to see that you are having such a good response!

      Keep on keepin' on, Karen! You're doing great!

      • August 29, 2013 at 10:59 am
      aldakota22
      Participant

      Happy for you that "T" is working .May it give you a long lasting response .Now just find a way to calm down your angry brain mets. Beat the Beast.  Al

      • August 29, 2013 at 10:59 am
      aldakota22
      Participant

      Happy for you that "T" is working .May it give you a long lasting response .Now just find a way to calm down your angry brain mets. Beat the Beast.  Al

      • August 29, 2013 at 10:59 am
      aldakota22
      Participant

      Happy for you that "T" is working .May it give you a long lasting response .Now just find a way to calm down your angry brain mets. Beat the Beast.  Al

      • August 31, 2013 at 2:51 am
      JerryfromFauq
      Participant

      Onward !!

      • August 31, 2013 at 2:51 am
      JerryfromFauq
      Participant

      Onward !!

      • August 31, 2013 at 2:51 am
      JerryfromFauq
      Participant

      Onward !!

      • August 31, 2013 at 9:09 pm
      Tina D
      Participant

      Sounds very encouraging!! Glad to hear your good report! I hope the other effects become less noticable by the day!

      Tina

      • August 31, 2013 at 9:09 pm
      Tina D
      Participant

      Sounds very encouraging!! Glad to hear your good report! I hope the other effects become less noticable by the day!

      Tina

      • August 31, 2013 at 9:09 pm
      Tina D
      Participant

      Sounds very encouraging!! Glad to hear your good report! I hope the other effects become less noticable by the day!

      Tina

      • August 29, 2013 at 2:52 am
      vivian
      Participant

      Yay, Karen!  Keep up the good work!

      • August 29, 2013 at 2:52 am
      vivian
      Participant

      Yay, Karen!  Keep up the good work!

Viewing 21 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics