› Forums › General Melanoma Community › BRAF/Zelboraf side effects – OUCH!
- This topic has 6 replies, 2 voices, and was last updated 12 years, 6 months ago by mombase.
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- October 6, 2011 at 11:41 am
Hi y'all,
I've been discharged by U of Penn, and will contine on BRAF while being followed by my local oncologist.
I continue to respond well to BRAF, with some side effects: arthritis in my hands/elbows (fleeting); erythema nodosum (VERY PAINFUL) little red lumps = look like mosquito bites; dry skin; extreme sun sensitivity.
I find I don't need to shave my legs, at all! There's always a silver lining, and the hair loss seems to be on my legs, mainly! I do seem to lose more hair on my head, but not causing patches, etc.
Hi y'all,
I've been discharged by U of Penn, and will contine on BRAF while being followed by my local oncologist.
I continue to respond well to BRAF, with some side effects: arthritis in my hands/elbows (fleeting); erythema nodosum (VERY PAINFUL) little red lumps = look like mosquito bites; dry skin; extreme sun sensitivity.
I find I don't need to shave my legs, at all! There's always a silver lining, and the hair loss seems to be on my legs, mainly! I do seem to lose more hair on my head, but not causing patches, etc.
Question re: erythema nodosum bumps…mine is like a random game. I've gotten them on my arms, and all over my legs and feet. Each day is a surprise: where is one popping up today?! I've had several flairs on my feet, and man does it make it hard to walk. BUT it resolves in a few days.
Anyone else had these, and have any treatment ideas? I'd posted previously, and was told to take Aleve. This does help, to a certain point.
I'm just happy to wake up each day and assess how I am doing before I head off to life: work/kids/house/church. It's all good, and kind of an adventure! "Wonder where/when the next one will be?"
Praying for everyone on this board, we're in it to win it!
TracyLee
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- October 6, 2011 at 6:32 pm
Hi Tracy Lee,
It sounds like you are pretty darned well! Congrats on the discharge. I have read many people say that Sarna is an awesome product for itch spots. I went to the website and registered and they had a $2.00 coupon to print out as well. The url is:
http://www.sarna-skincare.com/
They have quite an informative website…check it out! I think I am going to the drugstore to pick up a bottle (or whatever you call those pump containers) before I REALLY need it!
Take care,
Cristy, Stage IV
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- October 6, 2011 at 6:32 pm
Hi Tracy Lee,
It sounds like you are pretty darned well! Congrats on the discharge. I have read many people say that Sarna is an awesome product for itch spots. I went to the website and registered and they had a $2.00 coupon to print out as well. The url is:
http://www.sarna-skincare.com/
They have quite an informative website…check it out! I think I am going to the drugstore to pick up a bottle (or whatever you call those pump containers) before I REALLY need it!
Take care,
Cristy, Stage IV
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- October 6, 2011 at 6:32 pm
Hi Tracy Lee,
It sounds like you are pretty darned well! Congrats on the discharge. I have read many people say that Sarna is an awesome product for itch spots. I went to the website and registered and they had a $2.00 coupon to print out as well. The url is:
http://www.sarna-skincare.com/
They have quite an informative website…check it out! I think I am going to the drugstore to pick up a bottle (or whatever you call those pump containers) before I REALLY need it!
Take care,
Cristy, Stage IV
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