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BRAF Postive- Third Time is a Charm

Forums General Melanoma Community BRAF Postive- Third Time is a Charm

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    buffcody
    Participant

      Just wanted to share on a separate dedicated post the fact that a full genetic sequencing of my most recent tumor showed BRAF as positive.  First two testings, one in July 2012, the other a few months later, indicated BRAF wild type.  In fact, the second one was done precisely for the purpose of seeing if the first one might have been incorrrect.  My oncologist said that the BRAF showed up in an unlikely place on the tumor (genes?).  He also indicated that there were other peculiar findings.  The analysis is probably a very accurate one as it has been done by one of

      Just wanted to share on a separate dedicated post the fact that a full genetic sequencing of my most recent tumor showed BRAF as positive.  First two testings, one in July 2012, the other a few months later, indicated BRAF wild type.  In fact, the second one was done precisely for the purpose of seeing if the first one might have been incorrrect.  My oncologist said that the BRAF showed up in an unlikely place on the tumor (genes?).  He also indicated that there were other peculiar findings.  The analysis is probably a very accurate one as it has been done by one of the leading genetic sequencing labs in the world at the University of Michigan.  I'm looking forward to finding out more.   I hope soon.  This is one crazy disease.  But sometimes there is good news to report.  Like being eligible for treatments that I thought myself ineligible for.

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        POW
        Participant

          That is wonderful news! Those earlier conflicting results must have driven you crazy. I'm so glad that the "tie-breaker" came out this way. Good for you and the way you advocate for yourself. Which BRAF mutation do you have?

          POW
          Participant

            That is wonderful news! Those earlier conflicting results must have driven you crazy. I'm so glad that the "tie-breaker" came out this way. Good for you and the way you advocate for yourself. Which BRAF mutation do you have?

            POW
            Participant

              That is wonderful news! Those earlier conflicting results must have driven you crazy. I'm so glad that the "tie-breaker" came out this way. Good for you and the way you advocate for yourself. Which BRAF mutation do you have?

              JerryfromFauq
              Participant

                Interesting!  How much variability does a tumor have?  AND DOES THIS FACTOR CHANCE WITH TIME?  wHAT DOES YOUR ONCOLOGIST SAY AABOUT THIS?

                JerryfromFauq
                Participant

                  Interesting!  How much variability does a tumor have?  AND DOES THIS FACTOR CHANCE WITH TIME?  wHAT DOES YOUR ONCOLOGIST SAY AABOUT THIS?

                  JerryfromFauq
                  Participant

                    Interesting!  How much variability does a tumor have?  AND DOES THIS FACTOR CHANCE WITH TIME?  wHAT DOES YOUR ONCOLOGIST SAY AABOUT THIS?

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