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Braf-Mek please pray for another friend-Rosalie…she wrote an e mail explaining her new situtation-excerpt below..
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Braf-Mek please pray for another friend-Rosalie…she wrote an e mail explaining her new situtation-excerpt below..

› Forums › General Melanoma Community › Braf-Mek please pray for another friend-Rosalie…she wrote an e mail explaining her new situtation-excerpt below..

  • Post
    • March 16, 2011 at 1:45 am
    LynnLuc
    Participant

      Well I had my latest scans on Friday…The news was not good. There is a new mass on my right lung that is pressing on my trachea. This causes me much pain, shortness of breath and coughing.

      I was on a Braf-Mek inhibitor clinical trial, however, I was having terrible side effects, mainly daily fevers. I was immediately taken off this trial Friday. Then given 2 blood transfusions since my hemoglobin continues to be very low.

      Well I had my latest scans on Friday…The news was not good. There is a new mass on my right lung that is pressing on my trachea. This causes me much pain, shortness of breath and coughing.

      I was on a Braf-Mek inhibitor clinical trial, however, I was having terrible side effects, mainly daily fevers. I was immediately taken off this trial Friday. Then given 2 blood transfusions since my hemoglobin continues to be very low.

      Now we have 2 options….We wait 28 days to start Ipiluminab "Ipi" or if the pain increase they may have to radiate the tumor sooner.
      The other option, if approved, is much more complex. Tomorrow the doctors will meet to discuss my developments and see if surgery is at all possible. If so, they will harvest some of the tumor and make an injection and give it to me along with IL-2 and chemo. This will definitely be the tougher route. 

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        • March 16, 2011 at 3:46 pm
        KellieSue
        Participant

          Sorry to hear of your friends difficulties. Will be thinking about her and hoping she is able to find relief from her pain and make the right decisions.

          Kellie(from Iowa) Stage IV

          • March 16, 2011 at 3:46 pm
          KellieSue
          Participant

            Sorry to hear of your friends difficulties. Will be thinking about her and hoping she is able to find relief from her pain and make the right decisions.

            Kellie(from Iowa) Stage IV

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