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Braf Combo Success! Scan Results Great!
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Braf Combo Success! Scan Results Great!

› Forums › General Melanoma Community › Braf Combo Success! Scan Results Great!

  • Post
    • July 19, 2016 at 12:34 am
    Rita and Charles
    Participant

      After 9 months on Braf Combo, my husband was suffering still with such nausea and joint pain that he stopped.  He was 2 1/2 months without meds and we feared the worst PET Scan results.  The oncologists were as surprised as we were relieved – no progression, still stable!  The only thing that happened within the 2 months off is that he developed vitilligo……….but the good results are what we really loved.

      The Combo worked!  We don't have scans scheduled now until October 🙂  Vacation from worry worry worry and fear……for now!

    Viewing 11 reply threads
    • Replies
        • July 19, 2016 at 2:42 am
        JoshF
        Participant

          Great news!!! I pray that it continues…enjoy the rest of the summer, it is much deserved and I hope to join you in that stable or NED lane shortly.

          Josh

          • July 19, 2016 at 2:42 am
          JoshF
          Participant

            Great news!!! I pray that it continues…enjoy the rest of the summer, it is much deserved and I hope to join you in that stable or NED lane shortly.

            Josh

            • July 19, 2016 at 2:42 am
            JoshF
            Participant

              Great news!!! I pray that it continues…enjoy the rest of the summer, it is much deserved and I hope to join you in that stable or NED lane shortly.

              Josh

              • July 19, 2016 at 2:52 am
              jamieth29
              Participant
                Great news Rita…is he staying off meds for foreseeable future?
                  • July 20, 2016 at 2:25 am
                  Rita and Charles
                  Participant

                    No just for the summer………we know it is risky, but trying to do some travel buckets.  We know the battle isn't won, just small rest.  Hope you are well,

                    Rita

                    • July 20, 2016 at 2:25 am
                    Rita and Charles
                    Participant

                      No just for the summer………we know it is risky, but trying to do some travel buckets.  We know the battle isn't won, just small rest.  Hope you are well,

                      Rita

                      • July 20, 2016 at 2:25 am
                      Rita and Charles
                      Participant

                        No just for the summer………we know it is risky, but trying to do some travel buckets.  We know the battle isn't won, just small rest.  Hope you are well,

                        Rita

                      • July 19, 2016 at 2:52 am
                      jamieth29
                      Participant
                        Great news Rita…is he staying off meds for foreseeable future?
                        • July 19, 2016 at 2:52 am
                        jamieth29
                        Participant
                          Great news Rita…is he staying off meds for foreseeable future?
                          • July 20, 2016 at 3:48 am
                          BrianP
                          Participant

                            Fantastic Rita!  Happy travels to you and Charles. 

                            Brian

                            • July 20, 2016 at 3:48 am
                            BrianP
                            Participant

                              Fantastic Rita!  Happy travels to you and Charles. 

                              Brian

                                • July 22, 2016 at 4:10 am
                                paul
                                Participant

                                  Looking forward: did you try dose reduction? With Zelboraf I had ten days off, then a dose reduction, and a slightly reduced dose, and found the problems mostly resolved.

                                  All the best–

                                  Paul

                                   

                                   

                                  • July 23, 2016 at 5:37 pm
                                  Maureen038
                                  Participant

                                    I'm so happy for both of you Rita!! Wonderful news!!

                                    Maureen

                                    • July 23, 2016 at 5:37 pm
                                    Maureen038
                                    Participant

                                      I'm so happy for both of you Rita!! Wonderful news!!

                                      Maureen

                                      • July 23, 2016 at 5:37 pm
                                      Maureen038
                                      Participant

                                        I'm so happy for both of you Rita!! Wonderful news!!

                                        Maureen

                                        • July 24, 2016 at 1:32 pm
                                        Rita and Charles
                                        Participant

                                          We did try to go single therapy, removng the MEK but still his body  and mind was saying ENOUGH for a while.  He is gaining weight back now, so we will travel and visit old friends and family – worry free until October's scans!  Melanoma does teach you how to live in the present, doesn't it?  Grab happiness and tell people you love them more.  Day by Day.

                                          Rita

                                          • July 24, 2016 at 1:32 pm
                                          Rita and Charles
                                          Participant

                                            We did try to go single therapy, removng the MEK but still his body  and mind was saying ENOUGH for a while.  He is gaining weight back now, so we will travel and visit old friends and family – worry free until October's scans!  Melanoma does teach you how to live in the present, doesn't it?  Grab happiness and tell people you love them more.  Day by Day.

                                            Rita

                                            • July 24, 2016 at 1:32 pm
                                            Rita and Charles
                                            Participant

                                              We did try to go single therapy, removng the MEK but still his body  and mind was saying ENOUGH for a while.  He is gaining weight back now, so we will travel and visit old friends and family – worry free until October's scans!  Melanoma does teach you how to live in the present, doesn't it?  Grab happiness and tell people you love them more.  Day by Day.

                                              Rita

                                              • July 22, 2016 at 4:10 am
                                              paul
                                              Participant

                                                Looking forward: did you try dose reduction? With Zelboraf I had ten days off, then a dose reduction, and a slightly reduced dose, and found the problems mostly resolved.

                                                All the best–

                                                Paul

                                                 

                                                 

                                                • July 22, 2016 at 4:10 am
                                                paul
                                                Participant

                                                  Looking forward: did you try dose reduction? With Zelboraf I had ten days off, then a dose reduction, and a slightly reduced dose, and found the problems mostly resolved.

                                                  All the best–

                                                  Paul

                                                   

                                                   

                                                • July 20, 2016 at 3:48 am
                                                BrianP
                                                Participant

                                                  Fantastic Rita!  Happy travels to you and Charles. 

                                                  Brian

                                                  • August 2, 2016 at 2:24 am
                                                  Kay hh
                                                  Participant

                                                    I am happy to hear the break is working for you.  In my region (Tennessee) there is a trial my husband was offered: 1 month on, 2 months off.  He did not opt for it, but it was encouraging to know that some researchers feel it is a good option.  If your hubs is having unmanagable reactions to the braf combo, you may want to inquire about this trial.   

                                                    Be well and soak up every moment.  

                                                    Kay

                                                     

                                                    • August 2, 2016 at 2:24 am
                                                    Kay hh
                                                    Participant

                                                      I am happy to hear the break is working for you.  In my region (Tennessee) there is a trial my husband was offered: 1 month on, 2 months off.  He did not opt for it, but it was encouraging to know that some researchers feel it is a good option.  If your hubs is having unmanagable reactions to the braf combo, you may want to inquire about this trial.   

                                                      Be well and soak up every moment.  

                                                      Kay

                                                       

                                                      • August 2, 2016 at 2:24 am
                                                      Kay hh
                                                      Participant

                                                        I am happy to hear the break is working for you.  In my region (Tennessee) there is a trial my husband was offered: 1 month on, 2 months off.  He did not opt for it, but it was encouraging to know that some researchers feel it is a good option.  If your hubs is having unmanagable reactions to the braf combo, you may want to inquire about this trial.   

                                                        Be well and soak up every moment.  

                                                        Kay

                                                         

                                                    Viewing 11 reply threads
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