Boots how you doin
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Boots how you doin

› Forums › General Melanoma Community › Boots how you doin

  • Post
    • September 23, 2011 at 4:22 pm
    killmel
    Participant

    Hi Boots,

     

    I have been away from MPIP.

    What treatment did youdecide to do?How is the treatment going?

    Wishing you the best!

    A.

    Hi Boots,

     

    I have been away from MPIP.

    What treatment did youdecide to do?How is the treatment going?

    Wishing you the best!

    A.

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  • Replies
      • September 26, 2011 at 1:21 am
      boot2aboot
      Participant

      thank you for asking…

      i am on zelboraf and have a rough ride on it so far…still not up to full strength of the medicine…my pancreatic and liver enzymes are dismal… i have chills, fevers, body rashes, aches and bowel problems…i feel very weak and not able to correspond like i would like to…the doctor said the side effects would diminish…to hang in there and that is what i am doing.

      boots

      • September 26, 2011 at 1:21 am
      boot2aboot
      Participant

      thank you for asking…

      i am on zelboraf and have a rough ride on it so far…still not up to full strength of the medicine…my pancreatic and liver enzymes are dismal… i have chills, fevers, body rashes, aches and bowel problems…i feel very weak and not able to correspond like i would like to…the doctor said the side effects would diminish…to hang in there and that is what i am doing.

      boots

        • September 26, 2011 at 6:41 am
        FormerCaregiver
        Participant

        Boots, I would just like to chime in here. Sorry to read that you are having a rough time at the moment. Have you had a reply from Dr Rosenberg regarding possible TIL treatment?

        Good luck with Zelboraf, and I hope that you are feeling better soon.

        Frank from Australia

        • September 26, 2011 at 6:41 am
        FormerCaregiver
        Participant

        Boots, I would just like to chime in here. Sorry to read that you are having a rough time at the moment. Have you had a reply from Dr Rosenberg regarding possible TIL treatment?

        Good luck with Zelboraf, and I hope that you are feeling better soon.

        Frank from Australia

        • September 26, 2011 at 9:53 pm
        killmel
        Participant

        Boots,

        Why did you pick this treatment? Are you being treated by Dr. Weber.

        • September 26, 2011 at 9:53 pm
        killmel
        Participant

        Boots,

        Why did you pick this treatment? Are you being treated by Dr. Weber.

        • September 26, 2011 at 9:57 pm
        MichaelFL
        Participant

        She was told best option and yes.

        • September 26, 2011 at 9:57 pm
        MichaelFL
        Participant

        She was told best option and yes.

        • September 26, 2011 at 11:42 pm
        killmel
        Participant

        Hi Boots

        So sorry to hear about those side effects.

        If you are being treated by Dr. Weber maybe you can switch to PD-1 trial. Just a thought.

        Mary

        • September 26, 2011 at 11:42 pm
        killmel
        Participant

        Hi Boots

        So sorry to hear about those side effects.

        If you are being treated by Dr. Weber maybe you can switch to PD-1 trial. Just a thought.

        Mary

        • September 27, 2011 at 12:19 am
        rbruce
        Participant

        Hey Boots, sorry to hear it's a tough go on Zelboraf.  I did hear from others that the side effects subside after a while, I hope that is true for you.  I have my next Onc appt. at UCSF on the 5th of October to look at a PK13/MTOR inhibitor trial with scans the following week.  UCSF has a anti-PD1 trial starting the following month which I'm leaning towards as long as scans show I can wait til then.  Take care. 

        Robert

        • September 27, 2011 at 12:19 am
        rbruce
        Participant

        Hey Boots, sorry to hear it's a tough go on Zelboraf.  I did hear from others that the side effects subside after a while, I hope that is true for you.  I have my next Onc appt. at UCSF on the 5th of October to look at a PK13/MTOR inhibitor trial with scans the following week.  UCSF has a anti-PD1 trial starting the following month which I'm leaning towards as long as scans show I can wait til then.  Take care. 

        Robert

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