› Forums › General Melanoma Community › Bone Mets And pain
- This topic has 9 replies, 3 voices, and was last updated 9 years, 9 months ago by
shanemcdonald99.
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- July 24, 2014 at 3:06 pm
quick question…
hey everyone…various bone mets….Spine (few spots), bilateral humerus and bilateral femurs, pubic bone hips etc.
currently in between Chemo Treatments
switching from BRAF Combo to Yervoy in the next week.
I have pain in hips and legs and understand that pain from
Has anyone had physical pain on the skin over or above a bone met?
I mean the outside of my shoulder/arm is burning….in a very small spot. But it is intense.
please let me know
Matt
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- July 24, 2014 at 4:52 pm
Matt,
I've had several bone mets — half of my mets have probably been to bone, several in left tibia, one each in left and right femurs, and one in left proximal humerus, some treated with SBRT radiation, others with surgery (including a pretty major resection of my left shoulder), a couple with both (radiation and then eventual surgery).
Fortunately, I never had severe bone pain with any of the bone mets, although the first ones I had (in my left tibia) I noticed before they showed up on any scan — it wasn't pain per se, just a sensation that something wasn't right. When they told me my humerus was down to 10% mass in one spot and they were worried I'd fracture it rolling over on it in my sleep, they were stunned that I wasn't hurting more. It ached, but not to the extent that they would have expected. Odd, but we're all different, so maybe I'm not a good example. But personally, I don't recall any burning sensations in the skin or soft tissues above the mets. It could depend on where in the bone the mets are located and the inflammatory response in nearby soft tissues, and perhaps the BRAF inhibitors are playing some role?
Joe
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- July 24, 2014 at 10:20 pm
Joe thanks.
good info. sounds like alot of stuff you have had done and a few things we have in common.
I have had not pain per se, but a sensation throughout my left leg for about 3 months…kind of feel like my muscle is stretched or thin or something….
I have what he said are small lesions on my hips, rib cage, L2, T5, T7, pubic bone, both femur and both humeri….generally speaking I'm sore and have night sweats pretty bad. something about shaking when you are cold can make you hurt worse the next day…..also having limited sleep. lol.
I'm off all treatment chemo until they get everything set up and sched for Yervoy.
So I guess it makes sense that I hurt like heck at the moment, but the outside burning sensation is very new.
matt
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- July 24, 2014 at 10:56 pm
Sounds like neuropathy or nerve pain brought on by Chemo .
My niece had similar pain after chemo treatments.
Thay have Gabapentin type drugs for that type of pain, but they make you very tired.
best wishes
shane
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- July 24, 2014 at 10:56 pm
Sounds like neuropathy or nerve pain brought on by Chemo .
My niece had similar pain after chemo treatments.
Thay have Gabapentin type drugs for that type of pain, but they make you very tired.
best wishes
shane
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- July 24, 2014 at 10:56 pm
Sounds like neuropathy or nerve pain brought on by Chemo .
My niece had similar pain after chemo treatments.
Thay have Gabapentin type drugs for that type of pain, but they make you very tired.
best wishes
shane
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- July 24, 2014 at 10:20 pm
Joe thanks.
good info. sounds like alot of stuff you have had done and a few things we have in common.
I have had not pain per se, but a sensation throughout my left leg for about 3 months…kind of feel like my muscle is stretched or thin or something….
I have what he said are small lesions on my hips, rib cage, L2, T5, T7, pubic bone, both femur and both humeri….generally speaking I'm sore and have night sweats pretty bad. something about shaking when you are cold can make you hurt worse the next day…..also having limited sleep. lol.
I'm off all treatment chemo until they get everything set up and sched for Yervoy.
So I guess it makes sense that I hurt like heck at the moment, but the outside burning sensation is very new.
matt
-
- July 24, 2014 at 10:20 pm
Joe thanks.
good info. sounds like alot of stuff you have had done and a few things we have in common.
I have had not pain per se, but a sensation throughout my left leg for about 3 months…kind of feel like my muscle is stretched or thin or something….
I have what he said are small lesions on my hips, rib cage, L2, T5, T7, pubic bone, both femur and both humeri….generally speaking I'm sore and have night sweats pretty bad. something about shaking when you are cold can make you hurt worse the next day…..also having limited sleep. lol.
I'm off all treatment chemo until they get everything set up and sched for Yervoy.
So I guess it makes sense that I hurt like heck at the moment, but the outside burning sensation is very new.
matt
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- July 24, 2014 at 4:52 pm
Matt,
I've had several bone mets — half of my mets have probably been to bone, several in left tibia, one each in left and right femurs, and one in left proximal humerus, some treated with SBRT radiation, others with surgery (including a pretty major resection of my left shoulder), a couple with both (radiation and then eventual surgery).
Fortunately, I never had severe bone pain with any of the bone mets, although the first ones I had (in my left tibia) I noticed before they showed up on any scan — it wasn't pain per se, just a sensation that something wasn't right. When they told me my humerus was down to 10% mass in one spot and they were worried I'd fracture it rolling over on it in my sleep, they were stunned that I wasn't hurting more. It ached, but not to the extent that they would have expected. Odd, but we're all different, so maybe I'm not a good example. But personally, I don't recall any burning sensations in the skin or soft tissues above the mets. It could depend on where in the bone the mets are located and the inflammatory response in nearby soft tissues, and perhaps the BRAF inhibitors are playing some role?
Joe
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- July 24, 2014 at 4:52 pm
Matt,
I've had several bone mets — half of my mets have probably been to bone, several in left tibia, one each in left and right femurs, and one in left proximal humerus, some treated with SBRT radiation, others with surgery (including a pretty major resection of my left shoulder), a couple with both (radiation and then eventual surgery).
Fortunately, I never had severe bone pain with any of the bone mets, although the first ones I had (in my left tibia) I noticed before they showed up on any scan — it wasn't pain per se, just a sensation that something wasn't right. When they told me my humerus was down to 10% mass in one spot and they were worried I'd fracture it rolling over on it in my sleep, they were stunned that I wasn't hurting more. It ached, but not to the extent that they would have expected. Odd, but we're all different, so maybe I'm not a good example. But personally, I don't recall any burning sensations in the skin or soft tissues above the mets. It could depend on where in the bone the mets are located and the inflammatory response in nearby soft tissues, and perhaps the BRAF inhibitors are playing some role?
Joe
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