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best melanoma treatment centers and thoracic surgeons near south Alabama

Forums General Melanoma Community best melanoma treatment centers and thoracic surgeons near south Alabama

  • Post
    Marcia
    Participant
      I apologize in advance. I am new to this forum and not sure what is the best forum to post in

      My brother, John, 70, was diagnosed with melanoma in early 2020 and had surgery. Dr. Robert M. Conry oncologist at UAB, Birmingham, removed his nipple and lymph nodes under his arm. He began keytruda immunotherapy. After 16 of 18 infusions, his recent pet scan shows it has metastasized in his lung, with the nodule being about dime size: is that metastatic melanoma? Dr. Conry has since relocated to another city. His new Dr is now recommending infusions of obdivo and yervoy simultaneously.

      John and his wife, Theresa, had planned this summer to move from Jasper, Alabama, to where I live 5 hours away in Gulf Shores, Alabama. His daughter, who has 3 small children, lives about 70 miles from me. John was beginning to look for new treatment centers and doctors in this area. But since his latest melanoma diagnosis, he is putting his plan to move on hold because he is an hour away from UAB and their doctors. But if he has surgery, he will require a thoracic surgeon this time, so he’ll be looking for a new doctor anyway. His daughter and I want them to move here, especially now while he is healthy enough. We can help support them mentally and with any necessary caregiving. John and Theresa don’t have people where they live to help them. Theresa, his caregiver, is already wearing down. With everything I’m reading about metastatic melanoma, he may be in for a difficult time. I don’t think I’m being selfish wanting them here. I want him to follow through with what they had planned and making a new life for themselves. He told me he was ready to start living his life again. And now this new diagnosis… He should make the move before it is too late.

      I wrote all that to ask – where is the best treatment center, oncologists, and/or thoracic surgeon near south Alabama? How do you even search for the best doctor online? I’m hoping someone on this forum has knowledge about doctors near here. We are close to Mobile, AL; Pensacola, FL; or even New Orleans, LA about 2 hours away. His daughter and I feel if he is given great options for treatment centers coupled with highly qualified doctors, he will follow through with his plans to relocate. Thanks for reading this. I just love them so much and want to help.

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        Bubbles
        Participant
          Sorry for what your family and brother in particular have been dealing with.  As someone raised in Brewton, and spent lots of my teen and young adult years in Pensacola, Mobile, Gulf Shores and New Orleans – I know where you’re coming from – LITERALLY!!!  Full disclosure – I completed my first nursing degree by doing clinicals at Baptist and Sacred Heart in P’cola and got my MSN/NP at UAB.

          Okay.  It is hard to say exactly what is in your brother’s lung without a biopsy.  However, if the UAB docs recommend the ipi/nivo (old timer’s slang for the Yervoy/Opdivo combo) that is definitely the next step I’d take.  They may not even recommend surgery at all!!!  We’ve learned, that when the tumor burden is low, often we can treat systemically and leave it at that.  If the tumor responds you’re one and done.  If it doesn’t or there is additional spread, you may then be looking at surgical removal.

          Here is a primer I put together on melanoma treatments that you may find helpful:  https://chaoticallypreciselifeloveandmelanoma.blogspot.com/2017/08/melanoma-intel-primer-for-current.html

          As to specialists.  Before the immunotherapies like the one your brother has already had and the combo proposed were commonly accepted and utilized by oncologist (Ipilimumab/Yervoy was FDA approved only in 2011.  Nivolumab/Opdivo and Pembrolizumab/Keytruda were approved in 2014.) having an honest to goodness melanoma specialist was essential in order to attain these drugs.  Now that they (along with targeted therapy) are considered standard of care, more general oncologists are more familiar with them, comfortable with administering them and dealing with side effects should they occur.  However, when a melanoma patient fails to respond to these and additional treatments and options need to be attained, the specialist remains crucial.  Here is a list of honest to goodness international melanoma specialists that I  put together – https://chaoticallypreciselifeloveandmelanoma.blogspot.com/2019/10/internationally-renowned-melanoma.html

          With all that said, your brother could probably find a reasonable thoracic surgeon (should he need it) and general oncologist in any of the cities you named.  However, if you are willing to travel 2 hours for care, why not just keep going to UAB?  I’m sure there are bound to be some good docs at LSU, etc – but of all the locations you named, I would see the folks at UAB.  In fact – I did.  Back in 2003, when I was first diagnosed.  I even traveled to Tampa from Chattanooga for more than 2 1/2 years when I participated in a phase 1 trial a phase 1 trial of Nivo/Opdivo.  If you do go doctor hunting, I always recommend asking how frequently have they provided the service needed.  In this case, “How often do you administer the ipi/nivo combo?”  The more you do – the more you know.

          I hope that has added more clarity than confusion.  Ask more questions as you have the need.  This forum is filled with lots of smart and caring peeps.  Your brother is lucky to have you in his corner.  Wishing you both my best.  Celeste

          Marcia
          Participant
            Thank you, Celeste, – a real hometown girl! I’ve lived in AL all my life and have been coming to Gulf Shores since the 70’s before moving down permanently ten years ago. It’s really changed around here. Lots of growth.

            Thank you for responding so quickly. When I was searching the forums earlier today, I came across a link for your blog. I read your specialist list. No one near here, but excellent info. I especially appreciate your suggestion to have your oncologist seek the opinion of those experts.

            My brother is starting the Yervoy/Opdivo combo within a month. Currently, he receives his Keytruda immunotherapy at a small clinic in his hometown. I’m sure Yervoy/Opdivo is conveniently available near Gulf Shores as well.

            How often does a melanoma patient need to see their specialist? If it were me, I would be willing to drive to UAB from Gulf Shores, around a 5-hour drive. They are renowned. But my brother expressed that he would rather stay in Jasper to be nearer UAB about an hour away from him. I want to find a specialist closer to Gulf Shores to give him an incentive to stick to his plan to move here since he does not seem to be receptive to the possibility of such a long drive. My concern is that if his health does go downhill, he and his wife will need even more help and support than they do now. Down here they will be surrounded by friends, family, and grandchildren who love and support them. They do not have that kind of support where they currently live. It is probably a 5 ½ to 6-hour drive to his home for me.

            We are praying that the immunotherapy works and surgery won’t be necessary but would like to be prepared if it is.  Marcia

            Bubbles
            Participant
              Glad to be of some small help, Marcia.  I’m sure you can find someone acceptable nearby – Mobile perhaps.  Having hands on support of family and friends is super important and no small thing!!!  I did have one additional thought – Ask the oncologist your brother sees for a recommendation in your area.  If he is not comfortable asking himself – you could always try to get an answer from them – saying something like you know a patient who is extremely satisfied with their care there and you are in need of similar oncology services for a dear one and who might they recommend.  Worth a try.  Wishing you well.  celeste
              MelMel
              Participant
                Although I understand your concern, I think being on combo immunotherapy is relatively short time frame since it involves four infusions each spread four weeks apart. This is then usually followed by single drug immunotherapy every four weeks. The combo is a handful and many cannot complete all four infusions. I only managed two. Changing oncologists now may be far too stressful for your brother and his wife. I would support them the best you can and hopefully, his lung issue will resolve. Once he is only on Opdivo, he should feel better and be more likely agreeable to make the move. Of course, this is just my opinion based on my own experience and that of many others who have gone this road.
                Either way, wishing your brother all the best and sending healing vibes his way.
                Melanie
                JudiAU
                Participant
                  If you don’t fine one you like, it is not uncommon to have a doctor in a different local direct the drug regime or treatment.
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