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Began second 12 weeks of trial

Forums General Melanoma Community Began second 12 weeks of trial

  • Post
    LynnLuc
    Participant

      Had my MDX 1106 and then the 6 injections of the peptides yesterday. I have thyroiditis caused by the MDX 1106 and was put on Synthroid…told it's not a problem and that its just an auto immune response. Was told my reaction is what is seen in IL-2 trials and is seen as having a positive reaction…ugh…side effects good news…bah humbug LOL. Hoping  to have some energy one of these days and hope to go back to work…SSDI doesn't pay the bills and the trauma of all of this…I would just like to move on and "pretend" I am normal again- at least for awhile!!

      Had my MDX 1106 and then the 6 injections of the peptides yesterday. I have thyroiditis caused by the MDX 1106 and was put on Synthroid…told it's not a problem and that its just an auto immune response. Was told my reaction is what is seen in IL-2 trials and is seen as having a positive reaction…ugh…side effects good news…bah humbug LOL. Hoping  to have some energy one of these days and hope to go back to work…SSDI doesn't pay the bills and the trauma of all of this…I would just like to move on and "pretend" I am normal again- at least for awhile!! When the total income of the household is 1350 a month and medicaid wants you to pay over 1000 a month first- you know our society is broken….

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    • Replies
        King
        Participant

          Lynn,

          Hope you feel better mentally and physically real soon.  I was at Moffitt all afternoon yesterday.  I used to post on off topic when I would be at Moffitt and I was able to meet up with several people that way.  Maybe I'll start doing that again.  

           

          Stay Strong
          King

          Stage IV 7/05 Liver mets

          King
          Participant

            Lynn,

            Hope you feel better mentally and physically real soon.  I was at Moffitt all afternoon yesterday.  I used to post on off topic when I would be at Moffitt and I was able to meet up with several people that way.  Maybe I'll start doing that again.  

             

            Stay Strong
            King

            Stage IV 7/05 Liver mets

              LynnLuc
              Participant

                How are you doing?? I will send my schedule…perhaps we can hook up one of these days!!

                LynnLuc
                Participant

                  How are you doing?? I will send my schedule…perhaps we can hook up one of these days!!

                JakeinNY
                Participant

                  Hey Lynn,

                  Stay positive.

                  Do the best you can financially and don't worry as the worry does nothing but bad.

                  Get better first.

                  I hope that you can enjoy the holiday season.

                  JakeinNY
                  Participant

                    Hey Lynn,

                    Stay positive.

                    Do the best you can financially and don't worry as the worry does nothing but bad.

                    Get better first.

                    I hope that you can enjoy the holiday season.

                    Tracey FL
                    Participant

                      Hi,   Have you tried to contact the American cancer society for any help? 

                      Tracey

                      Tracey FL
                      Participant

                        Hi,   Have you tried to contact the American cancer society for any help? 

                        Tracey

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