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  • Post
    • January 13, 2013 at 6:54 pm
    Owl
    Participant

      Dear all,

      after one week 'holiday' my husband is now back on Z since Friday, but on a smaller dose, 3-0-3. His rash hasn't disappeared but is much better than a week before. He got some steroid salve and 'anti-histamine' which helped after a couple of days. We hope that his skin will get better over the time and he can stick with a lower dose without taking any steroids.

      Dear all,

      after one week 'holiday' my husband is now back on Z since Friday, but on a smaller dose, 3-0-3. His rash hasn't disappeared but is much better than a week before. He got some steroid salve and 'anti-histamine' which helped after a couple of days. We hope that his skin will get better over the time and he can stick with a lower dose without taking any steroids.

      Thank you for the latest information about Z and a possible on/off therapy avoiding resistance. It is also encouring to hear that MEK is hopefully close to be approved. In Germany this information is hard to get so that's why I always come back to you.

      Jenny

    Viewing 5 reply threads
    • Replies
        • January 14, 2013 at 5:40 pm
        awillett1991
        Participant
          Good luck! Keep us posted!
          • January 14, 2013 at 5:40 pm
          awillett1991
          Participant
            Good luck! Keep us posted!
            • January 14, 2013 at 5:40 pm
            awillett1991
            Participant
              Good luck! Keep us posted!
              • January 15, 2013 at 1:54 am
              Tina D
              Participant

                I also had a terrible rash after being on the full dose for 1 week. After some time off for it to clear up some, I was put on 3-3 and though I had skin oddities, I never again developed that severe rash. I have heard several people say the same thing. Hopefully that is history!

                Hoping the week is a smooth one for him!

                Tina

                  • January 15, 2013 at 1:00 pm
                  Owl
                  Participant

                    Until now he feels good. Rash is a little worse than a couple of days ago but it isn't itchy at all, no joint paint, no fatigue and he enjoys eating (last time he didn't). Hopefully the first time was the worst and his body will get used to it.

                    Thanks for your reply!

                    • January 15, 2013 at 1:00 pm
                    Owl
                    Participant

                      Until now he feels good. Rash is a little worse than a couple of days ago but it isn't itchy at all, no joint paint, no fatigue and he enjoys eating (last time he didn't). Hopefully the first time was the worst and his body will get used to it.

                      Thanks for your reply!

                      • January 15, 2013 at 1:00 pm
                      Owl
                      Participant

                        Until now he feels good. Rash is a little worse than a couple of days ago but it isn't itchy at all, no joint paint, no fatigue and he enjoys eating (last time he didn't). Hopefully the first time was the worst and his body will get used to it.

                        Thanks for your reply!

                      • January 15, 2013 at 1:54 am
                      Tina D
                      Participant

                        I also had a terrible rash after being on the full dose for 1 week. After some time off for it to clear up some, I was put on 3-3 and though I had skin oddities, I never again developed that severe rash. I have heard several people say the same thing. Hopefully that is history!

                        Hoping the week is a smooth one for him!

                        Tina

                        • January 15, 2013 at 1:54 am
                        Tina D
                        Participant

                          I also had a terrible rash after being on the full dose for 1 week. After some time off for it to clear up some, I was put on 3-3 and though I had skin oddities, I never again developed that severe rash. I have heard several people say the same thing. Hopefully that is history!

                          Hoping the week is a smooth one for him!

                          Tina

                      Viewing 5 reply threads
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