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Appointment with oncologist today
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Appointment with oncologist today

› Forums › General Melanoma Community › Appointment with oncologist today

  • Post
    • October 4, 2011 at 10:51 pm
    mombase
    Participant

      I met with my oncolologist today which is the one week after first Yervoy infusion point. I was so happy to say that I had very minimal side effects and he basically said, "hold on, Bucko". He reminded me that it takes at least a week for the Yervoy to ramp up the immune system responses and THEN the side effects would happen. Oh, shoot.

      I met with my oncolologist today which is the one week after first Yervoy infusion point. I was so happy to say that I had very minimal side effects and he basically said, "hold on, Bucko". He reminded me that it takes at least a week for the Yervoy to ramp up the immune system responses and THEN the side effects would happen. Oh, shoot.

      He did say that the side effects still could be light. He also said that he talked to a doctor at Bristol Meyer Squibb who said that imodium-d is the first line medicine in response to diahrrea. If after 8 doses of imodium the diahrrea does not go away, then endocort would be prescribed immediately to avert colitis.

      Next appointment is 2nd infusion on the 17th!

      Cristy, Stage IV

    Viewing 5 reply threads
    • Replies
        • October 5, 2011 at 2:21 am
        momof2kids
        Participant

          I hope all continues to go well. I haven't had any side effects yet, hoping I still don't, except the ones that may tell me that it's possibly working?.   I go for my 3rd Yervoy on the 14th this month.  

            • October 5, 2011 at 2:34 am
            Lisa13
            Participant

              I hope you are a responder to ipi and that you manage side effects well going forward.

              I'm due for my 4th infusion next week and other than itchy skin and the occasional stomach cramp, I havn't experienced any symptoms.  My Dr. said that symptoms do not necessarily indicate that ipi is working and that people in his clinical trial are responding with no symptoms.  

              Make sure to get copies of your bloodwork and keep an eye on your absolute lymphocyte count. They should continue to go up which may indicate a clinical response.

              • October 5, 2011 at 2:34 am
              Lisa13
              Participant

                I hope you are a responder to ipi and that you manage side effects well going forward.

                I'm due for my 4th infusion next week and other than itchy skin and the occasional stomach cramp, I havn't experienced any symptoms.  My Dr. said that symptoms do not necessarily indicate that ipi is working and that people in his clinical trial are responding with no symptoms.  

                Make sure to get copies of your bloodwork and keep an eye on your absolute lymphocyte count. They should continue to go up which may indicate a clinical response.

                • October 5, 2011 at 2:34 am
                Lisa13
                Participant

                  I hope you are a responder to ipi and that you manage side effects well going forward.

                  I'm due for my 4th infusion next week and other than itchy skin and the occasional stomach cramp, I havn't experienced any symptoms.  My Dr. said that symptoms do not necessarily indicate that ipi is working and that people in his clinical trial are responding with no symptoms.  

                  Make sure to get copies of your bloodwork and keep an eye on your absolute lymphocyte count. They should continue to go up which may indicate a clinical response.

                  • October 5, 2011 at 3:38 am
                  mombase
                  Participant

                    I have heard from many people that their docs say that side effects do not have to occur for the ipi to be working. AMEN!!

                    • October 5, 2011 at 3:38 am
                    mombase
                    Participant

                      I have heard from many people that their docs say that side effects do not have to occur for the ipi to be working. AMEN!!

                      • October 5, 2011 at 3:38 am
                      mombase
                      Participant

                        I have heard from many people that their docs say that side effects do not have to occur for the ipi to be working. AMEN!!

                      • October 5, 2011 at 2:21 am
                      momof2kids
                      Participant

                        I hope all continues to go well. I haven't had any side effects yet, hoping I still don't, except the ones that may tell me that it's possibly working?.   I go for my 3rd Yervoy on the 14th this month.  

                        • October 5, 2011 at 2:21 am
                        momof2kids
                        Participant

                          I hope all continues to go well. I haven't had any side effects yet, hoping I still don't, except the ones that may tell me that it's possibly working?.   I go for my 3rd Yervoy on the 14th this month.  

                          • October 5, 2011 at 3:22 am
                          jax2007gxp
                          Participant

                            Positive thinking Christy!  yes

                            Jacki

                            • October 5, 2011 at 3:22 am
                            jax2007gxp
                            Participant

                              Positive thinking Christy!  yes

                              Jacki

                              • October 5, 2011 at 3:22 am
                              jax2007gxp
                              Participant

                                Positive thinking Christy!  yes

                                Jacki

                                  • October 6, 2011 at 2:12 pm
                                  NYKaren
                                  Participant

                                    Hi  Christy.  It's good to hear that the doctor told you just 8 doses of Immodium.  Dr. Wolchuk says 2 or 3, it's just good that doctors know to tell people not to live on immodium throughout their treatment!

                                    karen

                                    • October 6, 2011 at 6:44 pm
                                    mombase
                                    Participant

                                      I totally agree. It is a little worrisome that there is such a disparity in dosing information, though!

                                      • October 6, 2011 at 7:50 pm
                                      NYKaren
                                      Participant

                                        I agree completely.

                                        • October 6, 2011 at 7:50 pm
                                        NYKaren
                                        Participant

                                          I agree completely.

                                          • October 6, 2011 at 7:50 pm
                                          NYKaren
                                          Participant

                                            I agree completely.

                                            • October 6, 2011 at 6:44 pm
                                            mombase
                                            Participant

                                              I totally agree. It is a little worrisome that there is such a disparity in dosing information, though!

                                              • October 6, 2011 at 6:44 pm
                                              mombase
                                              Participant

                                                I totally agree. It is a little worrisome that there is such a disparity in dosing information, though!

                                                • October 6, 2011 at 2:12 pm
                                                NYKaren
                                                Participant

                                                  Hi  Christy.  It's good to hear that the doctor told you just 8 doses of Immodium.  Dr. Wolchuk says 2 or 3, it's just good that doctors know to tell people not to live on immodium throughout their treatment!

                                                  karen

                                                  • October 6, 2011 at 2:12 pm
                                                  NYKaren
                                                  Participant

                                                    Hi  Christy.  It's good to hear that the doctor told you just 8 doses of Immodium.  Dr. Wolchuk says 2 or 3, it's just good that doctors know to tell people not to live on immodium throughout their treatment!

                                                    karen

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