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Anyone on pd-1?? Would like to hear how you all are doing!
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Anyone on pd-1?? Would like to hear how you all are doing!

› Forums › General Melanoma Community › Anyone on pd-1?? Would like to hear how you all are doing!

  • Post
    • May 22, 2013 at 2:14 am
    mclaus23
    Participant
      My dad is in cycle 2. I would like feedback 🙂

      My dad is in cycle 2. I would like feedback 🙂

    Viewing 2 reply threads
    • Replies
        • May 22, 2013 at 11:59 am
        BrianP
        Participant

          I'm sure others will answer but you might also want to try the search function and type in "on pd-1" or "PD-1 trial" or anything along those lines.  There have been a lot of PD-1 threads the last 6 months with people talking about their experiences.

            • May 23, 2013 at 5:14 am
            Erinmay22
            Participant
              I’ve had 6 rounds of Mercks anti-pd1. Scans at 12 and 16 weeks show continued shrinkage. Although each scan has had something’s small/new show up but then go away.

              Side effects have been minimal. I’ve had some itching. I’ve noticed some increase in fatigue and now some joint pain (especially the more humid the weather gets). But overall pretty easy compared to zelboraf and ipi.

              How is your dad feeling on it?

              • May 23, 2013 at 7:23 pm
              NYKaren
              Participant

                Erinmay,

                do you know what dose you're on?  I'm so glad you're doing well!

                thanks,

                Karen

                • May 23, 2013 at 7:23 pm
                NYKaren
                Participant

                  Erinmay,

                  do you know what dose you're on?  I'm so glad you're doing well!

                  thanks,

                  Karen

                  • May 23, 2013 at 7:23 pm
                  NYKaren
                  Participant

                    Erinmay,

                    do you know what dose you're on?  I'm so glad you're doing well!

                    thanks,

                    Karen

                    • May 23, 2013 at 5:14 am
                    Erinmay22
                    Participant
                      I’ve had 6 rounds of Mercks anti-pd1. Scans at 12 and 16 weeks show continued shrinkage. Although each scan has had something’s small/new show up but then go away.

                      Side effects have been minimal. I’ve had some itching. I’ve noticed some increase in fatigue and now some joint pain (especially the more humid the weather gets). But overall pretty easy compared to zelboraf and ipi.

                      How is your dad feeling on it?

                      • May 23, 2013 at 5:14 am
                      Erinmay22
                      Participant
                        I’ve had 6 rounds of Mercks anti-pd1. Scans at 12 and 16 weeks show continued shrinkage. Although each scan has had something’s small/new show up but then go away.

                        Side effects have been minimal. I’ve had some itching. I’ve noticed some increase in fatigue and now some joint pain (especially the more humid the weather gets). But overall pretty easy compared to zelboraf and ipi.

                        How is your dad feeling on it?

                      • May 22, 2013 at 11:59 am
                      BrianP
                      Participant

                        I'm sure others will answer but you might also want to try the search function and type in "on pd-1" or "PD-1 trial" or anything along those lines.  There have been a lot of PD-1 threads the last 6 months with people talking about their experiences.

                        • May 22, 2013 at 11:59 am
                        BrianP
                        Participant

                          I'm sure others will answer but you might also want to try the search function and type in "on pd-1" or "PD-1 trial" or anything along those lines.  There have been a lot of PD-1 threads the last 6 months with people talking about their experiences.

                      Viewing 2 reply threads
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