› Forums › General Melanoma Community › Anyone doing well with liver, spleen mets?
- This topic has 8 replies, 3 voices, and was last updated 12 years, 8 months ago by WalterA.
- Post
-
- August 17, 2011 at 3:27 am
Hi everyone just wondering what has worked for liver and spleen mets? Blood work all ok so the tumor burden is low, but he (my dad) just had a craniotomy for a single brain met. Anyone doing well and was in the same boat?
Hi everyone just wondering what has worked for liver and spleen mets? Blood work all ok so the tumor burden is low, but he (my dad) just had a craniotomy for a single brain met. Anyone doing well and was in the same boat?
- Replies
-
-
- August 17, 2011 at 4:27 am
As your dad is going to be starting treatment with a BRAF inhibitor soon, I feel that he has good prospects. However, there is nothing that we have at the moment that is guaranteed to work.
The current approach to keeping melanoma at bay is to try one treatment and then see how one responds to it. A big problem is that drugs will eventually become less effective as time goes by; meaning that the duration of response is limited in many cases. If one stops responding to the treatment, then hopefully there will be a different and/or newer drug available that one can try.
Unfortunately, medical science is unable to predict how well someone will do with any melanoma therapy because there some important things that remain unexplained.
To answer your original question, I am not sure who is doing well at the moment. Hopefully someone will chime in and tell you how they are.
Take care
Frank from Australia
-
- August 17, 2011 at 11:03 pm
Hi Frank, yeah I know that there are so many unknowns with this disease..hopefully he will be a BRAF responder so we can buy some time until another treatment arrives. ACT therapy sounds very promising, but as you said I can't find anything here in OZ about it. Do you have to be a US resident to receive this treatment?
-
- August 18, 2011 at 2:57 am
One doesn't have to be a resident, and it is not impossible to obtain treatment in the
US. Here is a recent thread about all this:
http://www.melanoma.org/community/mpip-melanoma-patients-information-page/non-us-citizens-participating-us-clinical-trialsBest wishes
Frank from Australia
-
- August 18, 2011 at 2:57 am
One doesn't have to be a resident, and it is not impossible to obtain treatment in the
US. Here is a recent thread about all this:
http://www.melanoma.org/community/mpip-melanoma-patients-information-page/non-us-citizens-participating-us-clinical-trialsBest wishes
Frank from Australia
-
- August 17, 2011 at 11:03 pm
Hi Frank, yeah I know that there are so many unknowns with this disease..hopefully he will be a BRAF responder so we can buy some time until another treatment arrives. ACT therapy sounds very promising, but as you said I can't find anything here in OZ about it. Do you have to be a US resident to receive this treatment?
-
- August 17, 2011 at 4:27 am
As your dad is going to be starting treatment with a BRAF inhibitor soon, I feel that he has good prospects. However, there is nothing that we have at the moment that is guaranteed to work.
The current approach to keeping melanoma at bay is to try one treatment and then see how one responds to it. A big problem is that drugs will eventually become less effective as time goes by; meaning that the duration of response is limited in many cases. If one stops responding to the treatment, then hopefully there will be a different and/or newer drug available that one can try.
Unfortunately, medical science is unable to predict how well someone will do with any melanoma therapy because there some important things that remain unexplained.
To answer your original question, I am not sure who is doing well at the moment. Hopefully someone will chime in and tell you how they are.
Take care
Frank from Australia
-
- You must be logged in to reply to this topic.