The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Any Melanoma Treating Centre to Suggest?

Forums General Melanoma Community Any Melanoma Treating Centre to Suggest?

  • Post
    Ying
    Participant

      Hi everyone! My mom was diagnosed as having melanoma in 2011, recently developed to Stage 4 with metastasis to lung. She has NRAS mutation which is very very rare here in China, and when we went to the best melanoma treating hospital, we learnt that currently there's no specific drug for this mutation type. We are very disappointed. 

       
      I did quite a lot research on website and seeking any possibility to get medical treatment aboard. I've been to this forum for several months already but never posted anything. This is my first post. Could anyone suggest some good melanoma treating centres in any countries especially in U.S. and Australia? We desperately need this information.
       
      Thank you!
       
      Ying
    Viewing 14 reply threads
    • Replies
        liberty04281
        Participant
          One of the best centers for melanoma is Memorial Sloan Kettering Cancer center in New York City, NY.
          liberty04281
          Participant
            One of the best centers for melanoma is Memorial Sloan Kettering Cancer center in New York City, NY.
            liberty04281
            Participant
              One of the best centers for melanoma is Memorial Sloan Kettering Cancer center in New York City, NY.
              liberty04281
              Participant
                One of the best centers for melanoma is Memorial Sloan Kettering Cancer center in New York City, NY.
                liberty04281
                Participant
                  One of the best centers for melanoma is Memorial Sloan Kettering Cancer center in New York City, NY.
                  liberty04281
                  Participant
                    One of the best centers for melanoma is Memorial Sloan Kettering Cancer center in New York City, NY.
                    Ying
                    Participant

                      My big thanks to everyone! 

                      Ying
                      Participant

                        My big thanks to everyone! 

                        Ying
                        Participant

                          My big thanks to everyone! 

                          ecc26
                          Participant

                            There are lots of great centers in the US, I won't pretend to know anything about international centers. Much depends on what you're looking for, your location and willingness to travel. I live in central NY state and have been absolutely thrilled with my very carefully chosen local care as well as more specialized melanoma care regionally. My favorite by far has been Roswell Park Cancer Institute in Buffalo, NY (about 3 hrs from where I live). They aren't the largest, but I have found them to be truly excellent in the care they provide, as well as in their ability to communicate and work with patients. I have been much less satisfied with larger institutes such as Dana Farber (Boston, MA) and Sloan Kettering (NYC) despite their more recognizable names and noteriety. These larger institutions are great if you're looking for research trials as they tend to have many more options, but I have been far less enthralled with their "workability" from a patient standpoint. I have an educational background that allows me to research and understand what is going on with my disease and what advances are being made well before any doctors visits and I find that these larger centers are often a bit condescending and patronizing, not to mention unwilling to release my medical records, imaging, etc. I have found Roswell, though smaller and less "renowned" to be a much more willing partner in my care- very proactive. Despite their smaller size, they actually do have a really excellent reputation for many cancers with melanoma being one of them. They are, at the moment, the only center in the Northeast US that still offers IL-2 therapy if that's something you're considering. 

                            I'm not going to get into a discussion about therapies and what should come first, be relegated to the past, etc. I've had IL-2 (at Roswell) along with other therapies and just last week their neurosurgery team removed a rather large brain metastasis and it went so well I was discharged only 48 hrs later- now home and doing very well. It's a personal choice for where to go to get treatment and I would definitely advocate talking to a couple of different specialists at a couple different institutions before making a decision about where is best for you, but I also heartily recommend Roswell and it's doctors, even if they aren't a big name. 

                            ecc26
                            Participant

                              There are lots of great centers in the US, I won't pretend to know anything about international centers. Much depends on what you're looking for, your location and willingness to travel. I live in central NY state and have been absolutely thrilled with my very carefully chosen local care as well as more specialized melanoma care regionally. My favorite by far has been Roswell Park Cancer Institute in Buffalo, NY (about 3 hrs from where I live). They aren't the largest, but I have found them to be truly excellent in the care they provide, as well as in their ability to communicate and work with patients. I have been much less satisfied with larger institutes such as Dana Farber (Boston, MA) and Sloan Kettering (NYC) despite their more recognizable names and noteriety. These larger institutions are great if you're looking for research trials as they tend to have many more options, but I have been far less enthralled with their "workability" from a patient standpoint. I have an educational background that allows me to research and understand what is going on with my disease and what advances are being made well before any doctors visits and I find that these larger centers are often a bit condescending and patronizing, not to mention unwilling to release my medical records, imaging, etc. I have found Roswell, though smaller and less "renowned" to be a much more willing partner in my care- very proactive. Despite their smaller size, they actually do have a really excellent reputation for many cancers with melanoma being one of them. They are, at the moment, the only center in the Northeast US that still offers IL-2 therapy if that's something you're considering. 

                              I'm not going to get into a discussion about therapies and what should come first, be relegated to the past, etc. I've had IL-2 (at Roswell) along with other therapies and just last week their neurosurgery team removed a rather large brain metastasis and it went so well I was discharged only 48 hrs later- now home and doing very well. It's a personal choice for where to go to get treatment and I would definitely advocate talking to a couple of different specialists at a couple different institutions before making a decision about where is best for you, but I also heartily recommend Roswell and it's doctors, even if they aren't a big name. 

                              ecc26
                              Participant

                                There are lots of great centers in the US, I won't pretend to know anything about international centers. Much depends on what you're looking for, your location and willingness to travel. I live in central NY state and have been absolutely thrilled with my very carefully chosen local care as well as more specialized melanoma care regionally. My favorite by far has been Roswell Park Cancer Institute in Buffalo, NY (about 3 hrs from where I live). They aren't the largest, but I have found them to be truly excellent in the care they provide, as well as in their ability to communicate and work with patients. I have been much less satisfied with larger institutes such as Dana Farber (Boston, MA) and Sloan Kettering (NYC) despite their more recognizable names and noteriety. These larger institutions are great if you're looking for research trials as they tend to have many more options, but I have been far less enthralled with their "workability" from a patient standpoint. I have an educational background that allows me to research and understand what is going on with my disease and what advances are being made well before any doctors visits and I find that these larger centers are often a bit condescending and patronizing, not to mention unwilling to release my medical records, imaging, etc. I have found Roswell, though smaller and less "renowned" to be a much more willing partner in my care- very proactive. Despite their smaller size, they actually do have a really excellent reputation for many cancers with melanoma being one of them. They are, at the moment, the only center in the Northeast US that still offers IL-2 therapy if that's something you're considering. 

                                I'm not going to get into a discussion about therapies and what should come first, be relegated to the past, etc. I've had IL-2 (at Roswell) along with other therapies and just last week their neurosurgery team removed a rather large brain metastasis and it went so well I was discharged only 48 hrs later- now home and doing very well. It's a personal choice for where to go to get treatment and I would definitely advocate talking to a couple of different specialists at a couple different institutions before making a decision about where is best for you, but I also heartily recommend Roswell and it's doctors, even if they aren't a big name. 

                            Viewing 14 reply threads
                            • You must be logged in to reply to this topic.
                            About the MRF Patient Forum

                            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                            Popular Topics