Antineoplastons – Burzynski Clinic
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Antineoplastons – Burzynski Clinic

› Forums › General Melanoma Community › Antineoplastons – Burzynski Clinic

  • Post
    • June 30, 2011 at 12:55 pm
    nickmac56
    Participant

    I am of a mind that alternative treatments as varied as coffee enemas, high dose Vitamin C, turkey trot mushrooms, clinics in Mexico are bunk and a way of nefarious people preying on the fears of people with serious diseases with the objective of extracting their money. 

    I am of a mind that alternative treatments as varied as coffee enemas, high dose Vitamin C, turkey trot mushrooms, clinics in Mexico are bunk and a way of nefarious people preying on the fears of people with serious diseases with the objective of extracting their money. 

    My wife has very advanced melanoma – at this point it is at  the deadly disease stage with the dying part not that far off. Conventional therapies have failed, as have the new wonder drugs (Yervoy). She could go through a few more very tough chemo/biological regimens, but the evidence on their success is miniscule – naybe eke out a few more months but at a hihgly copromised quality of life. Especially if she has to treat more brain mets and lose more brain function.

    So her therapist suggested she look at this alternative treatment – indicated in the subject line. I haven't found anything on this board that has looked at him or his theory and found compelling evidence to stay away, as I have had with researching  other suggestions from well meaning friends.

    Anyone know about this, and care to offer facts or an informed opinion based on their research? I am not interested (for the sake of all of us) in rekindling the entire alternative medical approach debate. I am just interested in this one approach and this one clinic and if anyone knows of anyplace or information nexus where I can find anything about them which has a shred of evidenced based outcomes.

    thanks, Nick

Viewing 12 reply threads
  • Replies
      • June 30, 2011 at 1:50 pm
      fgilbert63
      Participant

      Have you looked into NeoPlas

      http://www.neoplas.org/ 

      • June 30, 2011 at 1:50 pm
      fgilbert63
      Participant

      Have you looked into NeoPlas

      http://www.neoplas.org/ 

        • June 30, 2011 at 2:27 pm
        nickmac56
        Participant

        Although I think they are bunk and just trying to make money, my wife wouldn't qualify anyway becuase they exclude you if you've had cerebral metastases, which she has had.

        • June 30, 2011 at 2:27 pm
        nickmac56
        Participant

        Although I think they are bunk and just trying to make money, my wife wouldn't qualify anyway becuase they exclude you if you've had cerebral metastases, which she has had.

        • June 30, 2011 at 2:38 pm
        fgilbert63
        Participant

        Nick,

        You did not read far enough, here is a cut and paste;

        Non-qualifying patients

        Patients who do not meet the criteria above may be considered for compassionate treatment with the same regimen if they are experiencing disease progression with a poor prognosis after completing indicated therapies. If so requested by a patient, this determination will be made on a case-by-case basis. 

        • June 30, 2011 at 2:38 pm
        fgilbert63
        Participant

        Nick,

        You did not read far enough, here is a cut and paste;

        Non-qualifying patients

        Patients who do not meet the criteria above may be considered for compassionate treatment with the same regimen if they are experiencing disease progression with a poor prognosis after completing indicated therapies. If so requested by a patient, this determination will be made on a case-by-case basis. 

        • June 30, 2011 at 3:18 pm
        nickmac56
        Participant

        You are right I did not read that far. But here is what they are really saying when the have that compassionate use clause: "we typically exclude people with brain metastases because we know our stuff doesn't work on them. But if you are desperate enough, we will take your money, and give you the treatment. If it doesn't work we can say, well, we told you we excluded brain metastases patients and we only did it at their request". 

        • June 30, 2011 at 3:18 pm
        nickmac56
        Participant

        You are right I did not read that far. But here is what they are really saying when the have that compassionate use clause: "we typically exclude people with brain metastases because we know our stuff doesn't work on them. But if you are desperate enough, we will take your money, and give you the treatment. If it doesn't work we can say, well, we told you we excluded brain metastases patients and we only did it at their request". 

      • June 30, 2011 at 2:56 pm
      LynnLuc
      Participant

      I would worry  if the place doesn't take insurance….that speaks volumes!

      • June 30, 2011 at 2:56 pm
      LynnLuc
      Participant

      I would worry  if the place doesn't take insurance….that speaks volumes!

      • June 30, 2011 at 3:05 pm
      LynnLuc
      Participant

      I did look that up!

      I am not into all that stuff as treatment HOWEVER…I am doing the anti pd 1 trial at Moffitt and rec'd 6 injections of peptides every other week in a thigh….something to it…i remain NED but no longer receiving peptides and receiving anti pd 1 iv's every 3 months.

       

      How do Antineoplastons work?

      Antineoplastons act as molecular switches, which turn off life processes in abnormal cells and force them to die through apoptosis (programmed death of a cell). While they trigger the death of cancer cells, they do not inhibit normal cell growth. They specifically target cancer cells without harming healthy cells.

      It is generally known that the cancerous process results from increased activity of oncogenes and decreased expression of tumor suppressor genes. Antineoplastons "turn on" tumor suppressor genes and "turn off" oncogenes restoring the proper balance in gene expression.

       

      • June 30, 2011 at 3:05 pm
      LynnLuc
      Participant

      I did look that up!

      I am not into all that stuff as treatment HOWEVER…I am doing the anti pd 1 trial at Moffitt and rec'd 6 injections of peptides every other week in a thigh….something to it…i remain NED but no longer receiving peptides and receiving anti pd 1 iv's every 3 months.

       

      How do Antineoplastons work?

      Antineoplastons act as molecular switches, which turn off life processes in abnormal cells and force them to die through apoptosis (programmed death of a cell). While they trigger the death of cancer cells, they do not inhibit normal cell growth. They specifically target cancer cells without harming healthy cells.

      It is generally known that the cancerous process results from increased activity of oncogenes and decreased expression of tumor suppressor genes. Antineoplastons "turn on" tumor suppressor genes and "turn off" oncogenes restoring the proper balance in gene expression.

       

        • June 30, 2011 at 3:07 pm
        LynnLuc
        Participant

        to clarify  I am still receiving the anti pd 1    and I am no longer receiving the peptides…

        • June 30, 2011 at 3:07 pm
        LynnLuc
        Participant

        to clarify  I am still receiving the anti pd 1    and I am no longer receiving the peptides…

        • June 30, 2011 at 3:21 pm
        nickmac56
        Participant

        as I indicated in another post, Jeff Weber said we can't do that trial because of seizure risk. I would recommend she do a trial using this substance if it was under the auspices of a nonprofit institution like Moffitt.

        • June 30, 2011 at 3:21 pm
        nickmac56
        Participant

        as I indicated in another post, Jeff Weber said we can't do that trial because of seizure risk. I would recommend she do a trial using this substance if it was under the auspices of a nonprofit institution like Moffitt.

        • June 30, 2011 at 3:56 pm
        LynnLuc
        Participant

        I was just saying the  Antinroplastons that Burzynski  may be beneficial…

        • June 30, 2011 at 3:56 pm
        LynnLuc
        Participant

        I was just saying the  Antinroplastons that Burzynski  may be beneficial…

      • June 30, 2011 at 4:04 pm
      Gene_S
      Participant

      Nick,

      Do a search on  "Ralph Moss and melanoma". 

      He travels around the world visiting alternate treatment clinics

      in order to help people decide where to go to be treated for many types of cancers.

      Best wishes,

      Gene

      • June 30, 2011 at 4:04 pm
      Gene_S
      Participant

      Nick,

      Do a search on  "Ralph Moss and melanoma". 

      He travels around the world visiting alternate treatment clinics

      in order to help people decide where to go to be treated for many types of cancers.

      Best wishes,

      Gene

      • June 30, 2011 at 5:07 pm
      jag
      Participant
      The best site to investigate alternative thearpies is http://www.quackwatch.com
      • June 30, 2011 at 5:07 pm
      jag
      Participant
      The best site to investigate alternative thearpies is http://www.quackwatch.com
      • May 14, 2013 at 10:21 pm
      ces9991
      Participant

      Nick,

       

      Did you guys go along with any alternative treatments? My father has metastatic melanoma, and is too weak right now to recieve Yervoy. 

      • May 14, 2013 at 10:21 pm
      ces9991
      Participant

      Nick,

       

      Did you guys go along with any alternative treatments? My father has metastatic melanoma, and is too weak right now to recieve Yervoy. 

      • May 14, 2013 at 10:21 pm
      ces9991
      Participant

      Nick,

       

      Did you guys go along with any alternative treatments? My father has metastatic melanoma, and is too weak right now to recieve Yervoy. 

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