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Anti-PD1 is WORKING!!!!!!!!!!!!!

Forums General Melanoma Community Anti-PD1 is WORKING!!!!!!!!!!!!!

  • Post
    rbruce
    Participant

      After over a year of nothing but bad news and constant tumor progression, I just met with my Doctor at UCSF who was excited to tell me that I have had over a 30% tumor reduction from the ANTI-PD1 trial I am on.  All of the results out of ASCO last weekend in Chicago about ANTI-PD1 have been very promising and have shown that responders continue to respond.  I am so grateful for the groundbreaking research that is bringing these new immunotherapies to the forefront.

      After over a year of nothing but bad news and constant tumor progression, I just met with my Doctor at UCSF who was excited to tell me that I have had over a 30% tumor reduction from the ANTI-PD1 trial I am on.  All of the results out of ASCO last weekend in Chicago about ANTI-PD1 have been very promising and have shown that responders continue to respond.  I am so grateful for the groundbreaking research that is bringing these new immunotherapies to the forefront. I am so thankful for my friends and family that have supported me.  I am eternally thankful to my love, my partner, Lisa who, without her constant love and positive encouragement, I would be lost.  

       
      Today is a happy, happy day.  I thank God he continues to give me more time to live each day to the fullest.  I ask for God's blessings in your lives.
       
      With love and gratitude,
       
      Robert

    Viewing 41 reply threads
    • Replies
        kylez
        Participant

          That's fantastic Robert. How are the side effects (if any?) it's great to hear the Merck drug is working in your case (and presumably other cases); it's not so clear whether some of the other non-BMS ones are. A friend of mine back east is on the BMS trial and has been stable for almost a year now.

          We go to the same clinic which makes your profile history very interesting reading. The UCSF Chancellor tweeted last week that anti-PD1 was "My pick for most promising  anti-cancer approach given potential broad impact and risk-benefit."

          What is your NRAS mutation? Mine is G12A. Too bad the Pi3K didn't work for yours but it's awesome you're getting good results so far with the anti-PD1… may they continue!

          -Kyle

            rbruce
            Participant

              Hi Kyle, side effects have been mainly some fatigue, a rash on my chest and neck, bone, joint, and some muscle pain.  but nothing serious or difficult to handle.  it's been pretty easy so far, especially when i compare it to the biochemo i did initially.  my mutation is nras q61. I'm still floating after the news today and praying for continued shrinkage.  take care.  Robert

              rbruce
              Participant

                Hi Kyle, side effects have been mainly some fatigue, a rash on my chest and neck, bone, joint, and some muscle pain.  but nothing serious or difficult to handle.  it's been pretty easy so far, especially when i compare it to the biochemo i did initially.  my mutation is nras q61. I'm still floating after the news today and praying for continued shrinkage.  take care.  Robert

                rbruce
                Participant

                  Hi Kyle, side effects have been mainly some fatigue, a rash on my chest and neck, bone, joint, and some muscle pain.  but nothing serious or difficult to handle.  it's been pretty easy so far, especially when i compare it to the biochemo i did initially.  my mutation is nras q61. I'm still floating after the news today and praying for continued shrinkage.  take care.  Robert

                  killmel
                  Participant

                    Hi Kyle,

                    I have a friend also that is on merck pd1 trial in San Antonio. Unfortunaley, just after a few months, his thyroid numbers went crazy and now he takes meds to regulate his thyroid. The study nurse told him that a few other patients on Merck pd1 trial also are having thyroid problems. I read in Asco 2012 article published about BMS PD1 this was also an adverse side effect.

                    It is great news that your friend is still stable after 1 year. Is your friend NED?? How long did your friend take BMS drug??? Is he still taking the drug??? Is he on a "maintenance" program???

                    I appreciate you taking the time to answer my questions so that I can pass this information onto my friend in San Antonia.

                    Thanks again for the info about your friend.

                     

                    MaryJo

                    killmel
                    Participant

                      Hi Kyle,

                      I have a friend also that is on merck pd1 trial in San Antonio. Unfortunaley, just after a few months, his thyroid numbers went crazy and now he takes meds to regulate his thyroid. The study nurse told him that a few other patients on Merck pd1 trial also are having thyroid problems. I read in Asco 2012 article published about BMS PD1 this was also an adverse side effect.

                      It is great news that your friend is still stable after 1 year. Is your friend NED?? How long did your friend take BMS drug??? Is he still taking the drug??? Is he on a "maintenance" program???

                      I appreciate you taking the time to answer my questions so that I can pass this information onto my friend in San Antonia.

                      Thanks again for the info about your friend.

                       

                      MaryJo

                      kylez
                      Participant

                        Mary Jo, my friend is stable; not NED; trial/doses are ongoing. As for thyroid, I think his thyroid got blown out on IL-2, before BMS was even in the picture. 

                        kylez
                        Participant

                          Mary Jo, my friend is stable; not NED; trial/doses are ongoing. As for thyroid, I think his thyroid got blown out on IL-2, before BMS was even in the picture. 

                          kylez
                          Participant

                            Mary Jo, my friend is stable; not NED; trial/doses are ongoing. As for thyroid, I think his thyroid got blown out on IL-2, before BMS was even in the picture. 

                            LynnLuc
                            Participant

                              I am stage 4 and on BMS's Anti PD 1.. NED for over 2 years..my thyroid is also blown and I am on Synthroid…one piece of good news is that in previous IL-2 studies patients with the thryroid issues were shown to have durable responses…..so its a small price to pay. As we get older  our thyroid typical fizzles out anyway…

                              LynnLuc
                              Participant

                                PS I have been on it since Fall 2010. I curently get scans and anti pd 1 infusion every 3 months. My trial is someone different because I also rec'd 72 peptide injections in the first two 12 week cycles ( getting both anti pd 1 and peptides every other week). My onc also told me of a man on the BMS anti pd 1 who did progress and then had a complete spontaneous regression and is NED….

                                LynnLuc
                                Participant

                                  PS I have been on it since Fall 2010. I curently get scans and anti pd 1 infusion every 3 months. My trial is someone different because I also rec'd 72 peptide injections in the first two 12 week cycles ( getting both anti pd 1 and peptides every other week). My onc also told me of a man on the BMS anti pd 1 who did progress and then had a complete spontaneous regression and is NED….

                                  LynnLuc
                                  Participant

                                    PS I have been on it since Fall 2010. I curently get scans and anti pd 1 infusion every 3 months. My trial is someone different because I also rec'd 72 peptide injections in the first two 12 week cycles ( getting both anti pd 1 and peptides every other week). My onc also told me of a man on the BMS anti pd 1 who did progress and then had a complete spontaneous regression and is NED….

                                    LynnLuc
                                    Participant

                                      I am stage 4 and on BMS's Anti PD 1.. NED for over 2 years..my thyroid is also blown and I am on Synthroid…one piece of good news is that in previous IL-2 studies patients with the thryroid issues were shown to have durable responses…..so its a small price to pay. As we get older  our thyroid typical fizzles out anyway…

                                      LynnLuc
                                      Participant

                                        I am stage 4 and on BMS's Anti PD 1.. NED for over 2 years..my thyroid is also blown and I am on Synthroid…one piece of good news is that in previous IL-2 studies patients with the thryroid issues were shown to have durable responses…..so its a small price to pay. As we get older  our thyroid typical fizzles out anyway…

                                        killmel
                                        Participant

                                          Hi Kyle,

                                          I have a friend also that is on merck pd1 trial in San Antonio. Unfortunaley, just after a few months, his thyroid numbers went crazy and now he takes meds to regulate his thyroid. The study nurse told him that a few other patients on Merck pd1 trial also are having thyroid problems. I read in Asco 2012 article published about BMS PD1 this was also an adverse side effect.

                                          It is great news that your friend is still stable after 1 year. Is your friend NED?? How long did your friend take BMS drug??? Is he still taking the drug??? Is he on a "maintenance" program???

                                          I appreciate you taking the time to answer my questions so that I can pass this information onto my friend in San Antonia.

                                          Thanks again for the info about your friend.

                                           

                                          MaryJo

                                          noisy77
                                          Participant

                                            Very excited to hear! Please keep us updated

                                            noisy77
                                            Participant

                                              Very excited to hear! Please keep us updated

                                              noisy77
                                              Participant

                                                Very excited to hear! Please keep us updated

                                                kylez
                                                Participant
                                                  actually I’ve only heard things on forums or elsewhere about 3 (of the 5 or 6) anti-pd1s out there, with your experience on Merck being the third. DI don’t know anything / have heard no forum-based info about any of the rest.
                                                  kylez
                                                  Participant
                                                    actually I’ve only heard things on forums or elsewhere about 3 (of the 5 or 6) anti-pd1s out there, with your experience on Merck being the third. DI don’t know anything / have heard no forum-based info about any of the rest.
                                                    kylez
                                                    Participant
                                                      actually I’ve only heard things on forums or elsewhere about 3 (of the 5 or 6) anti-pd1s out there, with your experience on Merck being the third. DI don’t know anything / have heard no forum-based info about any of the rest.
                                                    kylez
                                                    Participant

                                                      That's fantastic Robert. How are the side effects (if any?) it's great to hear the Merck drug is working in your case (and presumably other cases); it's not so clear whether some of the other non-BMS ones are. A friend of mine back east is on the BMS trial and has been stable for almost a year now.

                                                      We go to the same clinic which makes your profile history very interesting reading. The UCSF Chancellor tweeted last week that anti-PD1 was "My pick for most promising  anti-cancer approach given potential broad impact and risk-benefit."

                                                      What is your NRAS mutation? Mine is G12A. Too bad the Pi3K didn't work for yours but it's awesome you're getting good results so far with the anti-PD1… may they continue!

                                                      -Kyle

                                                      kylez
                                                      Participant

                                                        That's fantastic Robert. How are the side effects (if any?) it's great to hear the Merck drug is working in your case (and presumably other cases); it's not so clear whether some of the other non-BMS ones are. A friend of mine back east is on the BMS trial and has been stable for almost a year now.

                                                        We go to the same clinic which makes your profile history very interesting reading. The UCSF Chancellor tweeted last week that anti-PD1 was "My pick for most promising  anti-cancer approach given potential broad impact and risk-benefit."

                                                        What is your NRAS mutation? Mine is G12A. Too bad the Pi3K didn't work for yours but it's awesome you're getting good results so far with the anti-PD1… may they continue!

                                                        -Kyle

                                                        melmar
                                                        Participant
                                                          So happy to read the good news! Congratulations!
                                                          melmar
                                                          Participant
                                                            So happy to read the good news! Congratulations!
                                                            melmar
                                                            Participant
                                                              So happy to read the good news! Congratulations!
                                                              MeNDave
                                                              Participant

                                                                That is awesome news Robert!!  I was hoping you would post soon with something upbeat – David tried to get into the merk trial in Pittsburgh, but we discovered his brain mets.  I'm hoping that maybe once they get those under control, he'll have a shot at getting into one of these.

                                                                It sounds as though we both had some prayers answered this week πŸ™‚  Keep up the good work!!

                                                                All our best,

                                                                Maria n Dave

                                                                MeNDave
                                                                Participant

                                                                  That is awesome news Robert!!  I was hoping you would post soon with something upbeat – David tried to get into the merk trial in Pittsburgh, but we discovered his brain mets.  I'm hoping that maybe once they get those under control, he'll have a shot at getting into one of these.

                                                                  It sounds as though we both had some prayers answered this week πŸ™‚  Keep up the good work!!

                                                                  All our best,

                                                                  Maria n Dave

                                                                  MeNDave
                                                                  Participant

                                                                    That is awesome news Robert!!  I was hoping you would post soon with something upbeat – David tried to get into the merk trial in Pittsburgh, but we discovered his brain mets.  I'm hoping that maybe once they get those under control, he'll have a shot at getting into one of these.

                                                                    It sounds as though we both had some prayers answered this week πŸ™‚  Keep up the good work!!

                                                                    All our best,

                                                                    Maria n Dave

                                                                    triciad
                                                                    Participant

                                                                      Such exciting news.  Sending prayers for continued success!

                                                                      triciad
                                                                      Participant

                                                                        Such exciting news.  Sending prayers for continued success!

                                                                          Laurie from maine
                                                                          Participant

                                                                            HOORAY!! Such wonderful news, thank you for sharing!!

                                                                            I am hopeful with the great results people are having and the ASCO conference that will push the drug companies to open up more trials and give stage 4 people more options.

                                                                            I also was in line to get on a PD-1 trial in Boston but was knocked out by a brain met.  I am hopeful that once that is zapped I can find one that is open and will take me.

                                                                            Keep us posted – and go out and CELEBRATE!!

                                                                            laurie from maine πŸ™‚

                                                                            Laurie from maine
                                                                            Participant

                                                                              HOORAY!! Such wonderful news, thank you for sharing!!

                                                                              I am hopeful with the great results people are having and the ASCO conference that will push the drug companies to open up more trials and give stage 4 people more options.

                                                                              I also was in line to get on a PD-1 trial in Boston but was knocked out by a brain met.  I am hopeful that once that is zapped I can find one that is open and will take me.

                                                                              Keep us posted – and go out and CELEBRATE!!

                                                                              laurie from maine πŸ™‚

                                                                              Laurie from maine
                                                                              Participant

                                                                                HOORAY!! Such wonderful news, thank you for sharing!!

                                                                                I am hopeful with the great results people are having and the ASCO conference that will push the drug companies to open up more trials and give stage 4 people more options.

                                                                                I also was in line to get on a PD-1 trial in Boston but was knocked out by a brain met.  I am hopeful that once that is zapped I can find one that is open and will take me.

                                                                                Keep us posted – and go out and CELEBRATE!!

                                                                                laurie from maine πŸ™‚

                                                                              triciad
                                                                              Participant

                                                                                Such exciting news.  Sending prayers for continued success!

                                                                                yoopergirl
                                                                                Participant

                                                                                  Great news and so promising for the rest of us hoping to get into that trial. God Bless……

                                                                                  yoopergirl
                                                                                  Participant

                                                                                    Great news and so promising for the rest of us hoping to get into that trial. God Bless……

                                                                                    yoopergirl
                                                                                    Participant

                                                                                      Great news and so promising for the rest of us hoping to get into that trial. God Bless……

                                                                                      Tina D
                                                                                      Participant

                                                                                        Thank God for answered prayers on your behalf πŸ™‚

                                                                                        Great news.. thank you for sharing!!

                                                                                        Tina

                                                                                        Tina D
                                                                                        Participant

                                                                                          Thank God for answered prayers on your behalf πŸ™‚

                                                                                          Great news.. thank you for sharing!!

                                                                                          Tina

                                                                                          Tina D
                                                                                          Participant

                                                                                            Thank God for answered prayers on your behalf πŸ™‚

                                                                                            Great news.. thank you for sharing!!

                                                                                            Tina

                                                                                            hope4cure1
                                                                                            Participant

                                                                                              Congratulations!!!!!   Thanks so much for this wonderful news!!!

                                                                                              Hope

                                                                                              hope4cure1
                                                                                              Participant

                                                                                                Congratulations!!!!!   Thanks so much for this wonderful news!!!

                                                                                                Hope

                                                                                                hope4cure1
                                                                                                Participant

                                                                                                  Congratulations!!!!!   Thanks so much for this wonderful news!!!

                                                                                                  Hope

                                                                                                  jim Breitfeller
                                                                                                  Participant

                                                                                                    Robert, Congrats!!!!!!

                                                                                                    Keep an eye on the next few scans. Make sure that all (ALL) tumors are shrinking or have disappeared. If not, you may want do some IL-2 to finish the job. See my posts on combinatorial therapy at melanoma missionary.

                                                                                                     

                                                                                                    Keep up the good job.

                                                                                                     

                                                                                                    Jimmy B.

                                                                                                    jim Breitfeller
                                                                                                    Participant

                                                                                                      Robert, Congrats!!!!!!

                                                                                                      Keep an eye on the next few scans. Make sure that all (ALL) tumors are shrinking or have disappeared. If not, you may want do some IL-2 to finish the job. See my posts on combinatorial therapy at melanoma missionary.

                                                                                                       

                                                                                                      Keep up the good job.

                                                                                                       

                                                                                                      Jimmy B.

                                                                                                      jim Breitfeller
                                                                                                      Participant

                                                                                                        Robert, Congrats!!!!!!

                                                                                                        Keep an eye on the next few scans. Make sure that all (ALL) tumors are shrinking or have disappeared. If not, you may want do some IL-2 to finish the job. See my posts on combinatorial therapy at melanoma missionary.

                                                                                                         

                                                                                                        Keep up the good job.

                                                                                                         

                                                                                                        Jimmy B.

                                                                                                        jag
                                                                                                        Participant

                                                                                                          Rob, 

                                                                                                          Very happy to hear that you are responding and have tumor reduction.

                                                                                                          May you keep responding and continue to do so for a long time to come.

                                                                                                          I will say a prayer that God gives you a long (and full) life.

                                                                                                          God Bless

                                                                                                          John 

                                                                                                          jag
                                                                                                          Participant

                                                                                                            Rob, 

                                                                                                            Very happy to hear that you are responding and have tumor reduction.

                                                                                                            May you keep responding and continue to do so for a long time to come.

                                                                                                            I will say a prayer that God gives you a long (and full) life.

                                                                                                            God Bless

                                                                                                            John 

                                                                                                            jag
                                                                                                            Participant

                                                                                                              Rob, 

                                                                                                              Very happy to hear that you are responding and have tumor reduction.

                                                                                                              May you keep responding and continue to do so for a long time to come.

                                                                                                              I will say a prayer that God gives you a long (and full) life.

                                                                                                              God Bless

                                                                                                              John 

                                                                                                              Gene_S
                                                                                                              Participant

                                                                                                                Robert, Great news, thanks for sharing…  Gene

                                                                                                                Gene_S
                                                                                                                Participant

                                                                                                                  Robert, Great news, thanks for sharing…  Gene

                                                                                                                  Gene_S
                                                                                                                  Participant

                                                                                                                    Robert, Great news, thanks for sharing…  Gene

                                                                                                                    Gene_S
                                                                                                                    Participant

                                                                                                                      Robert, Great news, thanks for sharing…  Gene

                                                                                                                      Gene_S
                                                                                                                      Participant

                                                                                                                        Robert, Great news, thanks for sharing…  Gene

                                                                                                                        Gene_S
                                                                                                                        Participant

                                                                                                                          Robert, Great news, thanks for sharing…  Gene

                                                                                                                          JerryfromFauq
                                                                                                                          Participant

                                                                                                                            Sounds great! We are getting closer. I do have a couple of questions.

                                                                                                                            1.Has anyone been on a PD-1 trial that doe not require one to be HLA-02?

                                                                                                                            2.  Has anyone heard any results for someone that is c-kit positive?

                                                                                                                            Thank you.

                                                                                                                            JerryfromFauq

                                                                                                                              rbruce
                                                                                                                              Participant

                                                                                                                                Jerry, the Merck trial I'm on does not require the Hla typing.  I believe the only Anti-pd1 trials that require hla typing are the ones that include a vaccine component. I haven't heard any results broken down by mutation, but data from Asco has shown that, so far, only tumors expressing the pd ligand have responded.  I did not know this entering the trial, and my biopsy wasn't tested for it, so it seems I lucked out.  check out the abstracts for anti-pd1 frommAsco, lots of good data.

                                                                                                                                NYKaren
                                                                                                                                Participant

                                                                                                                                  Robert, fantastic news.  I'm so happy for you!

                                                                                                                                  karen

                                                                                                                                  NYKaren
                                                                                                                                  Participant

                                                                                                                                    Robert, fantastic news.  I'm so happy for you!

                                                                                                                                    karen

                                                                                                                                    NYKaren
                                                                                                                                    Participant

                                                                                                                                      Robert, fantastic news.  I'm so happy for you!

                                                                                                                                      karen

                                                                                                                                      rbruce
                                                                                                                                      Participant

                                                                                                                                        Jerry, the Merck trial I'm on does not require the Hla typing.  I believe the only Anti-pd1 trials that require hla typing are the ones that include a vaccine component. I haven't heard any results broken down by mutation, but data from Asco has shown that, so far, only tumors expressing the pd ligand have responded.  I did not know this entering the trial, and my biopsy wasn't tested for it, so it seems I lucked out.  check out the abstracts for anti-pd1 frommAsco, lots of good data.

                                                                                                                                        rbruce
                                                                                                                                        Participant

                                                                                                                                          Jerry, the Merck trial I'm on does not require the Hla typing.  I believe the only Anti-pd1 trials that require hla typing are the ones that include a vaccine component. I haven't heard any results broken down by mutation, but data from Asco has shown that, so far, only tumors expressing the pd ligand have responded.  I did not know this entering the trial, and my biopsy wasn't tested for it, so it seems I lucked out.  check out the abstracts for anti-pd1 frommAsco, lots of good data.

                                                                                                                                        JerryfromFauq
                                                                                                                                        Participant

                                                                                                                                          Sounds great! We are getting closer. I do have a couple of questions.

                                                                                                                                          1.Has anyone been on a PD-1 trial that doe not require one to be HLA-02?

                                                                                                                                          2.  Has anyone heard any results for someone that is c-kit positive?

                                                                                                                                          Thank you.

                                                                                                                                          JerryfromFauq

                                                                                                                                          JerryfromFauq
                                                                                                                                          Participant

                                                                                                                                            Sounds great! We are getting closer. I do have a couple of questions.

                                                                                                                                            1.Has anyone been on a PD-1 trial that doe not require one to be HLA-02?

                                                                                                                                            2.  Has anyone heard any results for someone that is c-kit positive?

                                                                                                                                            Thank you.

                                                                                                                                            JerryfromFauq

                                                                                                                                            TSchulz
                                                                                                                                            Participant

                                                                                                                                              Great news.  Way to forge ahead and thank you for sharing your postive news.  I will celebrate your good news today and hope for more to come – for us all! 

                                                                                                                                              TSchulz
                                                                                                                                              Participant

                                                                                                                                                Great news.  Way to forge ahead and thank you for sharing your postive news.  I will celebrate your good news today and hope for more to come – for us all! 

                                                                                                                                                TSchulz
                                                                                                                                                Participant

                                                                                                                                                  Great news.  Way to forge ahead and thank you for sharing your postive news.  I will celebrate your good news today and hope for more to come – for us all! 

                                                                                                                                                  kev1h
                                                                                                                                                  Participant

                                                                                                                                                    Great news Robert!

                                                                                                                                                    I am on the Anti-PD1 with Merck at UCLA.  Here's hoping for similar results! 

                                                                                                                                                    ~K

                                                                                                                                                      Erinlisay38
                                                                                                                                                      Participant
                                                                                                                                                        Hi I’m on bms pd1 trial in Boston just had my first 8 week scan and its bad news all tumors have progressed and new tumors have popped up ;( I get 2 more treatments then another scan in 6 weeks if tumors continue to grow I’m off the trial Not sure what’s next for me I already failed yervoy
                                                                                                                                                        Erinlisay38
                                                                                                                                                        Participant
                                                                                                                                                          Hi I’m on bms pd1 trial in Boston just had my first 8 week scan and its bad news all tumors have progressed and new tumors have popped up ;( I get 2 more treatments then another scan in 6 weeks if tumors continue to grow I’m off the trial Not sure what’s next for me I already failed yervoy
                                                                                                                                                          Erinlisay38
                                                                                                                                                          Participant
                                                                                                                                                            Hi I’m on bms pd1 trial in Boston just had my first 8 week scan and its bad news all tumors have progressed and new tumors have popped up ;( I get 2 more treatments then another scan in 6 weeks if tumors continue to grow I’m off the trial Not sure what’s next for me I already failed yervoy
                                                                                                                                                            Erinlisay38
                                                                                                                                                            Participant
                                                                                                                                                              Hi I’m on bms pd1 trial in Boston just had my first 8 week scan and its bad news all tumors have progressed and new tumors have popped up ;( I get 2 more treatments then another scan in 6 weeks if tumors continue to grow I’m off the trial Not sure what’s next for me I already failed yervoy
                                                                                                                                                              Erinlisay38
                                                                                                                                                              Participant
                                                                                                                                                                Hi I’m on bms pd1 trial in Boston just had my first 8 week scan and its bad news all tumors have progressed and new tumors have popped up ;( I get 2 more treatments then another scan in 6 weeks if tumors continue to grow I’m off the trial Not sure what’s next for me I already failed yervoy
                                                                                                                                                                POW
                                                                                                                                                                Participant

                                                                                                                                                                  Erin, it would be helplful if you would post your message again as a new thread so more people will see it and be able to  respond. Your news is definitely disappointing and somewhat scary. You deserve to get the best advice here that we can provide.

                                                                                                                                                                  POW
                                                                                                                                                                  Participant

                                                                                                                                                                    Erin, it would be helplful if you would post your message again as a new thread so more people will see it and be able to  respond. Your news is definitely disappointing and somewhat scary. You deserve to get the best advice here that we can provide.

                                                                                                                                                                    Erinlisay38
                                                                                                                                                                    Participant
                                                                                                                                                                      Ok thanks I will do that as soon as I figure out how to lol I’d like to hear from others
                                                                                                                                                                      Erinlisay38
                                                                                                                                                                      Participant
                                                                                                                                                                        Ok thanks I will do that as soon as I figure out how to lol I’d like to hear from others
                                                                                                                                                                        Erinlisay38
                                                                                                                                                                        Participant
                                                                                                                                                                          Ok thanks I will do that as soon as I figure out how to lol I’d like to hear from others
                                                                                                                                                                          POW
                                                                                                                                                                          Participant

                                                                                                                                                                            Erin, it would be helplful if you would post your message again as a new thread so more people will see it and be able to  respond. Your news is definitely disappointing and somewhat scary. You deserve to get the best advice here that we can provide.

                                                                                                                                                                            Erinlisay38
                                                                                                                                                                            Participant
                                                                                                                                                                              Hi I’m on bms pd1 trial in Boston just had my first 8 week scan and its bad news all tumors have progressed and new tumors have popped up ;( I get 2 more treatments then another scan in 6 weeks if tumors continue to grow I’m off the trial Not sure what’s next for me I already failed yervoy
                                                                                                                                                                            kev1h
                                                                                                                                                                            Participant

                                                                                                                                                                              Great news Robert!

                                                                                                                                                                              I am on the Anti-PD1 with Merck at UCLA.  Here's hoping for similar results! 

                                                                                                                                                                              ~K

                                                                                                                                                                              kev1h
                                                                                                                                                                              Participant

                                                                                                                                                                                Great news Robert!

                                                                                                                                                                                I am on the Anti-PD1 with Merck at UCLA.  Here's hoping for similar results! 

                                                                                                                                                                                ~K

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                                                                                                                                                                            About the MRF Patient Forum

                                                                                                                                                                            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                                                                                                                                            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide byΒ MRF posting policies.