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Amelanotic Melanoma

Forums General Melanoma Community Amelanotic Melanoma

  • Post
    Stlmag
    Participant

      Timeline of my husband's melanoma journey:

      10/13/15  Diagnosed with amelanotic melanoma, Stage 2B

      10/14/15  CT chest lungs clear

      10/19/15 Sentinel node & wide excision. Stage 3C

                       8 mm deep, BRAF, wild type, 4 of 5 axillary lymph nodes pos/removed

      10/30/15 first oncology visit.."it has prob mets to your brain; you need to go to Vanderbilt"

      11/09/15 MRI brain clear

      11/12/15 PET scan clear

      11/16/15 Vanderbilt visit; offerred Yervoy/Interferon trial

      11/18/15 Made appt @ MD Anderson

      11/20/15 2nd oncology visit. Yervoy approved 10/28/15 for Stage 3. Will begin that.

      12/09/15 First Yervoy tx. Cancelled MDA appt

      12/30/15 No more Yervoy due to Grade 3 derm reaction

      01/19/16 Melanoma lesion reocurrs in surgical scar; biospsy

      01/22/16 Biopsey results confirm- lesion is melanoma

       

       

       

    Viewing 5 reply threads
    • Replies
        jamieth29
        Participant
          Sorry for everything that has happened. What are your next steps? Surgical excision of reccurance? Probably not a bad idea to see if they can scan you again. Even though insurance will only pay for scans at a 3 or 4 month intervals since you have had relapse they will usually allow another scan.
          jamieth29
          Participant
            Sorry for everything that has happened. What are your next steps? Surgical excision of reccurance? Probably not a bad idea to see if they can scan you again. Even though insurance will only pay for scans at a 3 or 4 month intervals since you have had relapse they will usually allow another scan.
              Stlmag
              Participant

                PET scan scheduled for 01/26/16. I'm certain surgical excision again….thinking it may be time for oncology surgeon.

                Stlmag
                Participant

                  PET scan scheduled for 01/26/16. I'm certain surgical excision again….thinking it may be time for oncology surgeon.

                  WithinMySkin
                  Participant

                    If you don't have a surgical oncologist, GET ONE. I had a small possible in-situ between my primary and my SLNB site and saw a surgical oncologist, who did the biopsy under local in the office. No razor biopsy…a real excision. It came back positive, but since he didn't do a wimpy derm type biopsy, I don't need to go back for further margins. Trust the doc who is doing the surgery to do it right the first time!! 

                    Good luck to you Stlmag!

                    WithinMySkin

                    WithinMySkin
                    Participant

                      If you don't have a surgical oncologist, GET ONE. I had a small possible in-situ between my primary and my SLNB site and saw a surgical oncologist, who did the biopsy under local in the office. No razor biopsy…a real excision. It came back positive, but since he didn't do a wimpy derm type biopsy, I don't need to go back for further margins. Trust the doc who is doing the surgery to do it right the first time!! 

                      Good luck to you Stlmag!

                      WithinMySkin

                      WithinMySkin
                      Participant

                        If you don't have a surgical oncologist, GET ONE. I had a small possible in-situ between my primary and my SLNB site and saw a surgical oncologist, who did the biopsy under local in the office. No razor biopsy…a real excision. It came back positive, but since he didn't do a wimpy derm type biopsy, I don't need to go back for further margins. Trust the doc who is doing the surgery to do it right the first time!! 

                        Good luck to you Stlmag!

                        WithinMySkin

                        Stlmag
                        Participant

                          Very good advice- get a surgical oncologist. I insisted my husband see one and pleased he made that move – even though the melanoma battle continues.

                          Stlmag
                          Participant

                            PET scan scheduled for 01/26/16. I'm certain surgical excision again….thinking it may be time for oncology surgeon.

                            Stlmag
                            Participant

                              He is scanned every 3 months. Feb 3 scan showed more melanoma.

                            jamieth29
                            Participant
                              Sorry for everything that has happened. What are your next steps? Surgical excision of reccurance? Probably not a bad idea to see if they can scan you again. Even though insurance will only pay for scans at a 3 or 4 month intervals since you have had relapse they will usually allow another scan.
                              gregor913
                              Participant

                                Im sorry for the reoccurrance already. But at least you caught it and they can try to get clearer margins again. When there is a reoccurrance in the surgical scar. What does it look like and feel like. Is it a bump or does it just look like another mole has grown? Ive been feeling mine but Im not sure what to look for. I also had my mel in the left armpit. Did you go along and have the CLND in the armpit? Good luck in your future treatment

                                  Stlmag
                                  Participant

                                    Recurrance looks exactly like the first….same spot…..looks like a blood blister. Did have 5 lyph nodes excised at first surgery after sentinel.

                                    Stlmag
                                    Participant

                                      Recurrance looks exactly like the first….same spot…..looks like a blood blister. Did have 5 lyph nodes excised at first surgery after sentinel.

                                      blessd4x
                                      Participant

                                        my husbands looked like a blood blister too.  Not primary, staged him at IV.  I posted about venting.  Thank God for this site.  Everyone here will help you as theyve done for me.  Hang on.  One minute at a time. 

                                        blessd4x
                                        Participant

                                          my husbands looked like a blood blister too.  Not primary, staged him at IV.  I posted about venting.  Thank God for this site.  Everyone here will help you as theyve done for me.  Hang on.  One minute at a time. 

                                          Stlmag
                                          Participant

                                            17 months into this melanoma battle and it continues. This is a wonderful place for support.

                                            blessd4x
                                            Participant

                                              my husbands looked like a blood blister too.  Not primary, staged him at IV.  I posted about venting.  Thank God for this site.  Everyone here will help you as theyve done for me.  Hang on.  One minute at a time. 

                                              btcedarr
                                              Participant

                                                I had something that looked like a blood blister that is gone now. Dr. said I was probably spitting a stitch. Would it actually disappear if it was a reoccurence?

                                                btcedarr
                                                Participant

                                                  I had something that looked like a blood blister that is gone now. Dr. said I was probably spitting a stitch. Would it actually disappear if it was a reoccurence?

                                                  Stlmag
                                                  Participant

                                                    Reoccurance won't disappear.frown

                                                    btcedarr
                                                    Participant

                                                      I had something that looked like a blood blister that is gone now. Dr. said I was probably spitting a stitch. Would it actually disappear if it was a reoccurence?

                                                      Stlmag
                                                      Participant

                                                        Recurrance looks exactly like the first….same spot…..looks like a blood blister. Did have 5 lyph nodes excised at first surgery after sentinel.

                                                      gregor913
                                                      Participant

                                                        Im sorry for the reoccurrance already. But at least you caught it and they can try to get clearer margins again. When there is a reoccurrance in the surgical scar. What does it look like and feel like. Is it a bump or does it just look like another mole has grown? Ive been feeling mine but Im not sure what to look for. I also had my mel in the left armpit. Did you go along and have the CLND in the armpit? Good luck in your future treatment

                                                        gregor913
                                                        Participant

                                                          Im sorry for the reoccurrance already. But at least you caught it and they can try to get clearer margins again. When there is a reoccurrance in the surgical scar. What does it look like and feel like. Is it a bump or does it just look like another mole has grown? Ive been feeling mine but Im not sure what to look for. I also had my mel in the left armpit. Did you go along and have the CLND in the armpit? Good luck in your future treatment

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