› Forums › General Melanoma Community › Amelanotic Melanoma
- This topic has 25 replies, 6 voices, and was last updated 7 years ago by Stlmag.
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- January 22, 2016 at 9:43 pm
Timeline of my husband's melanoma journey:
10/13/15 Diagnosed with amelanotic melanoma, Stage 2B
10/14/15 CT chest lungs clear
10/19/15 Sentinel node & wide excision. Stage 3C
8 mm deep, BRAF, wild type, 4 of 5 axillary lymph nodes pos/removed
10/30/15 first oncology visit.."it has prob mets to your brain; you need to go to Vanderbilt"
11/09/15 MRI brain clear
11/12/15 PET scan clear
11/16/15 Vanderbilt visit; offerred Yervoy/Interferon trial
11/18/15 Made appt @ MD Anderson
11/20/15 2nd oncology visit. Yervoy approved 10/28/15 for Stage 3. Will begin that.
12/09/15 First Yervoy tx. Cancelled MDA appt
12/30/15 No more Yervoy due to Grade 3 derm reaction
01/19/16 Melanoma lesion reocurrs in surgical scar; biospsy
01/22/16 Biopsey results confirm- lesion is melanoma
- Replies
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- January 23, 2016 at 2:17 am
Sorry for everything that has happened. What are your next steps? Surgical excision of reccurance? Probably not a bad idea to see if they can scan you again. Even though insurance will only pay for scans at a 3 or 4 month intervals since you have had relapse they will usually allow another scan. -
- January 23, 2016 at 2:17 am
Sorry for everything that has happened. What are your next steps? Surgical excision of reccurance? Probably not a bad idea to see if they can scan you again. Even though insurance will only pay for scans at a 3 or 4 month intervals since you have had relapse they will usually allow another scan.-
- January 23, 2016 at 9:12 pm
If you don't have a surgical oncologist, GET ONE. I had a small possible in-situ between my primary and my SLNB site and saw a surgical oncologist, who did the biopsy under local in the office. No razor biopsy…a real excision. It came back positive, but since he didn't do a wimpy derm type biopsy, I don't need to go back for further margins. Trust the doc who is doing the surgery to do it right the first time!!
Good luck to you Stlmag!
WithinMySkin
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- January 23, 2016 at 9:12 pm
If you don't have a surgical oncologist, GET ONE. I had a small possible in-situ between my primary and my SLNB site and saw a surgical oncologist, who did the biopsy under local in the office. No razor biopsy…a real excision. It came back positive, but since he didn't do a wimpy derm type biopsy, I don't need to go back for further margins. Trust the doc who is doing the surgery to do it right the first time!!
Good luck to you Stlmag!
WithinMySkin
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- January 23, 2016 at 9:12 pm
If you don't have a surgical oncologist, GET ONE. I had a small possible in-situ between my primary and my SLNB site and saw a surgical oncologist, who did the biopsy under local in the office. No razor biopsy…a real excision. It came back positive, but since he didn't do a wimpy derm type biopsy, I don't need to go back for further margins. Trust the doc who is doing the surgery to do it right the first time!!
Good luck to you Stlmag!
WithinMySkin
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- January 23, 2016 at 2:17 am
Sorry for everything that has happened. What are your next steps? Surgical excision of reccurance? Probably not a bad idea to see if they can scan you again. Even though insurance will only pay for scans at a 3 or 4 month intervals since you have had relapse they will usually allow another scan. -
- January 23, 2016 at 3:35 pm
Im sorry for the reoccurrance already. But at least you caught it and they can try to get clearer margins again. When there is a reoccurrance in the surgical scar. What does it look like and feel like. Is it a bump or does it just look like another mole has grown? Ive been feeling mine but Im not sure what to look for. I also had my mel in the left armpit. Did you go along and have the CLND in the armpit? Good luck in your future treatment
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- January 23, 2016 at 3:35 pm
Im sorry for the reoccurrance already. But at least you caught it and they can try to get clearer margins again. When there is a reoccurrance in the surgical scar. What does it look like and feel like. Is it a bump or does it just look like another mole has grown? Ive been feeling mine but Im not sure what to look for. I also had my mel in the left armpit. Did you go along and have the CLND in the armpit? Good luck in your future treatment
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- January 23, 2016 at 3:35 pm
Im sorry for the reoccurrance already. But at least you caught it and they can try to get clearer margins again. When there is a reoccurrance in the surgical scar. What does it look like and feel like. Is it a bump or does it just look like another mole has grown? Ive been feeling mine but Im not sure what to look for. I also had my mel in the left armpit. Did you go along and have the CLND in the armpit? Good luck in your future treatment
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