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Also Failed B-RAF

Forums General Melanoma Community Also Failed B-RAF

  • Post
    Karen wife of Phil
    Participant

    We just received the news that Phil doesn't have the B-RAF mutation. My husband's phone died during the conversation with the doc, so not sure what he has up his sleeve. We have an appointment on the 15th so will find out some options then, And the research nurse is going to touch base with us on Monday. We have done IL2, ipi, OX 40 something or other, a bit of radiation. His mets are in his lung and in his intestinal tract. We know they are growing because his pain has increased to the point that he is taking more pain meds.

    We just received the news that Phil doesn't have the B-RAF mutation. My husband's phone died during the conversation with the doc, so not sure what he has up his sleeve. We have an appointment on the 15th so will find out some options then, And the research nurse is going to touch base with us on Monday. We have done IL2, ipi, OX 40 something or other, a bit of radiation. His mets are in his lung and in his intestinal tract. We know they are growing because his pain has increased to the point that he is taking more pain meds. We are kind of at a loss at this point since all the hopeful treatments haven't panned out. The doc mentioned we would look at some other trials. I am just beginning to see mention of this Eisai and MEK/P13. Could someone post some links so I can check these out to talk to the doc about when we see him in a week. We are trying to stay positive but this was a tough blow. We need a little something to hang on to. Thanks for any info any one can give me.

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      Fen
      Participant

      I'm so sorry to hear of your latest test results.  There is a thread started by vickirs below which talks about Eisai – there's a link within the thread but I'm having difficulty copying it.  Please scroll down try to find it because I've fiddled with it for awhile and it refuses to cooperate.

      prayers – fen

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        FormerCaregiver
        Participant

        I don't know if this will help, but I feel that the following should all be considered:                                                                             a. Any new clinical trial that might increase the overall survival rate.                                                                                                    b. Surgery to reduce the tumor burden.                                                                                                                                                 c. Radiation treatment.

        Frank

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        FormerCaregiver
        Participant

        I don't know if this will help, but I feel that the following should all be considered:                                                                             a. Any new clinical trial that might increase the overall survival rate.                                                                                                    b. Surgery to reduce the tumor burden.                                                                                                                                                 c. Radiation treatment.

        Frank

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      Fen
      Participant

      I'm so sorry to hear of your latest test results.  There is a thread started by vickirs below which talks about Eisai – there's a link within the thread but I'm having difficulty copying it.  Please scroll down try to find it because I've fiddled with it for awhile and it refuses to cooperate.

      prayers – fen

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