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Alive and…well: Nic/Lin
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Alive and…well: Nic/Lin

› Forums › General Melanoma Community › Alive and…well: Nic/Lin

  • Post
    • May 29, 2011 at 2:37 pm
    glewis923
    Participant

      Thnaks for ya'lls concern…..I was wondering if any one would ever miss me.  Seriously, I miss talking to the board and should not be so "wierd" sometimes.  I have been reading the board some; I hope your doin' fine.  I just feel so helpless at times about myself that I feel i have nothing to tell anyone else that won't reflect my own doubts.  SOoooo many people are in bad shape, and i don't know how to "fix" it – 

       

      Thnaks for ya'lls concern…..I was wondering if any one would ever miss me.  Seriously, I miss talking to the board and should not be so "wierd" sometimes.  I have been reading the board some; I hope your doin' fine.  I just feel so helpless at times about myself that I feel i have nothing to tell anyone else that won't reflect my own doubts.  SOoooo many people are in bad shape, and i don't know how to "fix" it – 

       

      I completed round 4 of IPI,  a CT scan revealed "stable" with existing lung tumors, and no futher abdominal spread….so this is good news i suppose.  Kinda bad news is brain tumors- about 14 i think (were like 12, so 2 small new ones, which is dicouraging after WBR and SRS)-  but, the others are stable and a couple have shrunk a little.  I went through another round of 4 SRS (Novalis TS) to try to zap 2 resistant tumors again plus the 2 new ones.

       

      Hope all is well with everyone.  Was quite saddenend by recent deaths of some board members.  Just been at a loss of words lately……Love, Grady.

    Viewing 5 reply threads
    • Replies
        • May 29, 2011 at 2:51 pm
        dian in spokane
        Participant

          Grady! Linda and I were just talking about you last night! Thanks for checking in. Sorry about that bad news. Keep us posted.

           

          dian in spokane

          • May 29, 2011 at 2:51 pm
          dian in spokane
          Participant

            Grady! Linda and I were just talking about you last night! Thanks for checking in. Sorry about that bad news. Keep us posted.

             

            dian in spokane

            • May 29, 2011 at 8:47 pm
            lhaley
            Participant

              Thanks for checking in!  We do miss you!  Sounds like good vs bad news. Keep up the good and get rid of those pesky brain mets!

              We all wish we knew how to fix everyone but unfortunately we can't.

              Let us hear from you every once in a while!!

              Linda

              • May 29, 2011 at 8:47 pm
              lhaley
              Participant

                Thanks for checking in!  We do miss you!  Sounds like good vs bad news. Keep up the good and get rid of those pesky brain mets!

                We all wish we knew how to fix everyone but unfortunately we can't.

                Let us hear from you every once in a while!!

                Linda

                • May 29, 2011 at 10:58 pm
                NicOz
                Participant

                  Wondering if anyone would miss you? Are you insane?!?! Of course you've been missed- it's just trying to find the balance between giving somone (who may be needing it) some space, and wondering how in the heck you're doing. I know hibernation is a big part of maintaining what's left of my sanity at times, so try very hard not to overstep the bounds (and stalk :P) someone who's been quiet for a while.

                  And I still feel the way you do- the not wanting to reflect your own doubts. I fear I shall never be a "cheerleader" because of that 🙂 Glad to hear about the "stable"/no new growth on the extracranial front, not so thrilled about those little b@stard things in your brain still causing you some grief. You'd think they'd take the hint and die with all the hate that's being thrown their way, wouldn't you?

                  I'd swear a LOT about that news, but delicate eyes may be me reading, so I will refrain from typing any, and simply let my inner thoughts run rampant for a while. After all, you know what I think of brain mets and mel in general. I think you'll manage to guess what I'm thinking. I'm just glad to hear from you, mate!

                  Love to you, Bonita and the boys xxx

                  • May 29, 2011 at 10:58 pm
                  NicOz
                  Participant

                    Wondering if anyone would miss you? Are you insane?!?! Of course you've been missed- it's just trying to find the balance between giving somone (who may be needing it) some space, and wondering how in the heck you're doing. I know hibernation is a big part of maintaining what's left of my sanity at times, so try very hard not to overstep the bounds (and stalk :P) someone who's been quiet for a while.

                    And I still feel the way you do- the not wanting to reflect your own doubts. I fear I shall never be a "cheerleader" because of that 🙂 Glad to hear about the "stable"/no new growth on the extracranial front, not so thrilled about those little b@stard things in your brain still causing you some grief. You'd think they'd take the hint and die with all the hate that's being thrown their way, wouldn't you?

                    I'd swear a LOT about that news, but delicate eyes may be me reading, so I will refrain from typing any, and simply let my inner thoughts run rampant for a while. After all, you know what I think of brain mets and mel in general. I think you'll manage to guess what I'm thinking. I'm just glad to hear from you, mate!

                    Love to you, Bonita and the boys xxx

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